Millions of lives on hold around the world with this dreadful illness. Decades of neglect. The UK has the opportunity to be a leader.
Please #FundThePlan
Please #FundThePlan
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
March 12, 2025 at 3:11 PM
Millions of lives on hold around the world with this dreadful illness. Decades of neglect. The UK has the opportunity to be a leader.
Please #FundThePlan
Please #FundThePlan
And to kick things off, here’s @binitakane.bsky.social showing allies across the UK how it’s done and calling on the government to #FundThePlan 🙌
Allies, over to you!
Allies, over to you!
February 26, 2025 at 10:17 PM
Very grateful to all 72 Lib Dem MPs for their support re the delayed Delivery Plan for #MyalgicEncephalomyelitis. Further evidence of systemic neglect, broken promises, lack of candour. People with ME have had decades of this already. Many have died waiting for change. #whereistheplan #Fundtheplan
July 4, 2025 at 10:25 AM
Very grateful to all 72 Lib Dem MPs for their support re the delayed Delivery Plan for #MyalgicEncephalomyelitis. Further evidence of systemic neglect, broken promises, lack of candour. People with ME have had decades of this already. Many have died waiting for change. #whereistheplan #Fundtheplan
Further evidence of more neglect, delay, broken promises, dismissal, inaction, lack of transparency / candour. People with #MyalgicEncephalomyelitis have had decades of this already. Some have died waiting for change. #whereistheplan #Fundtheplan #brokenpromise
It’s 30 June….the ME Delivery Plan is a no-show. It’s unacceptable.
#pwME have been left in darkness for too long. I’m with @HelenMorganLibDem.bsky.social:
‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’
#pwME have been left in darkness for too long. I’m with @HelenMorganLibDem.bsky.social:
‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’
June 30, 2025 at 6:36 PM
Further evidence of more neglect, delay, broken promises, dismissal, inaction, lack of transparency / candour. People with #MyalgicEncephalomyelitis have had decades of this already. Some have died waiting for change. #whereistheplan #Fundtheplan #brokenpromise
'...hope for me is not about seeking to deny the existence of these dark leaves. We can’t. For us, hope is resistance despite them.'🍁
@sunsopeningband.bsky.social #ThereForME #FundThePlan #LongCovid #myalgicencephalomyelitis #TheRedTreeandME #ShaunTan #Hope open.substack.com/pub/theredtr...
@sunsopeningband.bsky.social #ThereForME #FundThePlan #LongCovid #myalgicencephalomyelitis #TheRedTreeandME #ShaunTan #Hope open.substack.com/pub/theredtr...
Amid the Dark Leaves: Hope as an act of resistance
By Jo Greer
open.substack.com
March 31, 2025 at 1:31 PM
'...hope for me is not about seeking to deny the existence of these dark leaves. We can’t. For us, hope is resistance despite them.'🍁
@sunsopeningband.bsky.social #ThereForME #FundThePlan #LongCovid #myalgicencephalomyelitis #TheRedTreeandME #ShaunTan #Hope open.substack.com/pub/theredtr...
@sunsopeningband.bsky.social #ThereForME #FundThePlan #LongCovid #myalgicencephalomyelitis #TheRedTreeandME #ShaunTan #Hope open.substack.com/pub/theredtr...
1/4
❗️ DHSC publishes the Final Delivery Plan on ME/CFS
The Department of Health & Social Care has published the Final Delivery Plan on #MECFS
We have issued a detailed statement on our website 👇
www.actionforme.org.uk/dhsc-publish...
#pwME #MyalgicE #MyalgicEncephalomyelitis #FundThePlan
⬇️
❗️ DHSC publishes the Final Delivery Plan on ME/CFS
The Department of Health & Social Care has published the Final Delivery Plan on #MECFS
We have issued a detailed statement on our website 👇
www.actionforme.org.uk/dhsc-publish...
#pwME #MyalgicE #MyalgicEncephalomyelitis #FundThePlan
⬇️
July 21, 2025 at 11:03 PM
1/4
❗️ DHSC publishes the Final Delivery Plan on ME/CFS
The Department of Health & Social Care has published the Final Delivery Plan on #MECFS
We have issued a detailed statement on our website 👇
www.actionforme.org.uk/dhsc-publish...
#pwME #MyalgicE #MyalgicEncephalomyelitis #FundThePlan
⬇️
❗️ DHSC publishes the Final Delivery Plan on ME/CFS
The Department of Health & Social Care has published the Final Delivery Plan on #MECFS
We have issued a detailed statement on our website 👇
www.actionforme.org.uk/dhsc-publish...
#pwME #MyalgicE #MyalgicEncephalomyelitis #FundThePlan
⬇️
3/3
As we understand, the Final Plan will not be published until after the release of the NHS 10-Year Plan. We are continuing to advocate for its immediate release, & proper funding. Further delays are unacceptable
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #DeliveryPlan #FundThePlan
As we understand, the Final Plan will not be published until after the release of the NHS 10-Year Plan. We are continuing to advocate for its immediate release, & proper funding. Further delays are unacceptable
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #DeliveryPlan #FundThePlan
June 30, 2025 at 12:37 PM
3/3
As we understand, the Final Plan will not be published until after the release of the NHS 10-Year Plan. We are continuing to advocate for its immediate release, & proper funding. Further delays are unacceptable
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #DeliveryPlan #FundThePlan
As we understand, the Final Plan will not be published until after the release of the NHS 10-Year Plan. We are continuing to advocate for its immediate release, & proper funding. Further delays are unacceptable
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #DeliveryPlan #FundThePlan
You can tell I'm a pwME. I got the title wrong! It's ME Awareness Day. Never mind, it says what it needs to say.😎 Shares welcomed.💙 #InvisibleIllness #MEawareness #FibromyalgiaAwareness #MultipleChemicalSensitivity #MEAwarenessDay #FundThePlan #CanYouSeeMENow
hopefoundinme.com/2025/05/12/m...
hopefoundinme.com/2025/05/12/m...
May – ME Awareness Month
I never look forward to ME Awareness Month with a sense of anticipation, more of existential dread. But I realise it is important for the many suffering with this much maligned condition, that the …
hopefoundinme.com
May 12, 2025 at 9:17 AM
You can tell I'm a pwME. I got the title wrong! It's ME Awareness Day. Never mind, it says what it needs to say.😎 Shares welcomed.💙 #InvisibleIllness #MEawareness #FibromyalgiaAwareness #MultipleChemicalSensitivity #MEAwarenessDay #FundThePlan #CanYouSeeMENow
hopefoundinme.com/2025/05/12/m...
hopefoundinme.com/2025/05/12/m...
ME is real & takes a wrecking ball to people's lives, families, circumstances, careers, finances, hopes and dreams. Many, are not believed/supported, just belittled & gas lit. It MUST change.
#MEIsReal #BelieveME
#CanYouSeeMENow #MEAwarenessMonth #pwME #MEcfsAwareness #FundThePlan #MyalgicE #MEcfs
#MEIsReal #BelieveME
#CanYouSeeMENow #MEAwarenessMonth #pwME #MEcfsAwareness #FundThePlan #MyalgicE #MEcfs
May 2, 2025 at 10:31 AM
ME is real & takes a wrecking ball to people's lives, families, circumstances, careers, finances, hopes and dreams. Many, are not believed/supported, just belittled & gas lit. It MUST change.
#MEIsReal #BelieveME
#CanYouSeeMENow #MEAwarenessMonth #pwME #MEcfsAwareness #FundThePlan #MyalgicE #MEcfs
#MEIsReal #BelieveME
#CanYouSeeMENow #MEAwarenessMonth #pwME #MEcfsAwareness #FundThePlan #MyalgicE #MEcfs
On March 26, @longcovidkids.bsky.social composed an Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP calling for investment into research in Long Covid and ME/CFS, which The ME Association signed.
Read Ashley Dalton's response: https://shorturl.at/yG7jR
#LongCovid #MECFS #FundThePlan
Read Ashley Dalton's response: https://shorturl.at/yG7jR
#LongCovid #MECFS #FundThePlan
Response from Ashley Dalton MP received 24th April 2025.
On March 26, 2025, we composed an Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP. On the 24th April 2025 we received a response from Ashley Dalton, which you can read below.
shorturl.at
May 7, 2025 at 2:17 PM
On March 26, @longcovidkids.bsky.social composed an Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP calling for investment into research in Long Covid and ME/CFS, which The ME Association signed.
Read Ashley Dalton's response: https://shorturl.at/yG7jR
#LongCovid #MECFS #FundThePlan
Read Ashley Dalton's response: https://shorturl.at/yG7jR
#LongCovid #MECFS #FundThePlan
Together with Hope 4 ME & Fibro NI, former nurse Rebecca Logan will continue to campaign for the MUCH-needed better healthcare, research and treatment. Here's a snippet of the WHY:
#hope4mefibroni #LongCovid #MEcfs #FundThePlan #ThereForME
#hope4mefibroni #LongCovid #MEcfs #FundThePlan #ThereForME
April 19, 2025 at 6:42 PM
Together with Hope 4 ME & Fibro NI, former nurse Rebecca Logan will continue to campaign for the MUCH-needed better healthcare, research and treatment. Here's a snippet of the WHY:
#hope4mefibroni #LongCovid #MEcfs #FundThePlan #ThereForME
#hope4mefibroni #LongCovid #MEcfs #FundThePlan #ThereForME
“...care for people with ME/CFS has varied widely, and in the worst cases has left some people feeling that their illness is not recognised by the health and care system”.
SOME?! I'd say the majority, certainly my experience and other#pwME that I know.
2/2
#thereforme #FundThePlan #pwME
SOME?! I'd say the majority, certainly my experience and other#pwME that I know.
2/2
#thereforme #FundThePlan #pwME
March 22, 2025 at 6:35 PM
“...care for people with ME/CFS has varied widely, and in the worst cases has left some people feeling that their illness is not recognised by the health and care system”.
SOME?! I'd say the majority, certainly my experience and other#pwME that I know.
2/2
#thereforme #FundThePlan #pwME
SOME?! I'd say the majority, certainly my experience and other#pwME that I know.
2/2
#thereforme #FundThePlan #pwME
There are #MillionsMissing from their lives. WE NEED MORE FUNDING
Today is ME awareness day. Will @wesstreeting.bsky.social
@ashleydaltonmp.bsky.social
#FundThePlan?
@meactionuk.bsky.social
@thereforme.bsky.social
#DisabilitySOS
@alancampbellmp.bsky.social
@nihr.bsky.social
2/3
Today is ME awareness day. Will @wesstreeting.bsky.social
@ashleydaltonmp.bsky.social
#FundThePlan?
@meactionuk.bsky.social
@thereforme.bsky.social
#DisabilitySOS
@alancampbellmp.bsky.social
@nihr.bsky.social
2/3
May 12, 2025 at 8:42 AM
There are #MillionsMissing from their lives. WE NEED MORE FUNDING
Today is ME awareness day. Will @wesstreeting.bsky.social
@ashleydaltonmp.bsky.social
#FundThePlan?
@meactionuk.bsky.social
@thereforme.bsky.social
#DisabilitySOS
@alancampbellmp.bsky.social
@nihr.bsky.social
2/3
Today is ME awareness day. Will @wesstreeting.bsky.social
@ashleydaltonmp.bsky.social
#FundThePlan?
@meactionuk.bsky.social
@thereforme.bsky.social
#DisabilitySOS
@alancampbellmp.bsky.social
@nihr.bsky.social
2/3
Dear @ashleydaltonmp.bsky.social
it’s great to see you working to end HIV with an extra £1.5m. Compared with HIV, #ME/CFS has
*No effective treatments
*~10x more sufferers
*rapidly increasing due to #LongCovid
*no standard of NHS care
*no ringfenced funding
Please #FundThePlan
it’s great to see you working to end HIV with an extra £1.5m. Compared with HIV, #ME/CFS has
*No effective treatments
*~10x more sufferers
*rapidly increasing due to #LongCovid
*no standard of NHS care
*no ringfenced funding
Please #FundThePlan
March 1, 2025 at 5:32 AM
Dear @ashleydaltonmp.bsky.social
it’s great to see you working to end HIV with an extra £1.5m. Compared with HIV, #ME/CFS has
*No effective treatments
*~10x more sufferers
*rapidly increasing due to #LongCovid
*no standard of NHS care
*no ringfenced funding
Please #FundThePlan
it’s great to see you working to end HIV with an extra £1.5m. Compared with HIV, #ME/CFS has
*No effective treatments
*~10x more sufferers
*rapidly increasing due to #LongCovid
*no standard of NHS care
*no ringfenced funding
Please #FundThePlan
The govt delivery plan for #ME/CFS DESPERATELY needs funding behind it, yet has none. @thereforme.bsky.social have launched a new campaign to persuade the govt to #FundThePlan
See below for multiple ways to show @wesstreeting-mp.bsky.social
@ashleydaltonmp.bsky.social how much this matters
#PASC
See below for multiple ways to show @wesstreeting-mp.bsky.social
@ashleydaltonmp.bsky.social how much this matters
#PASC
New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day.
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
February 25, 2025 at 9:39 PM
The govt delivery plan for #ME/CFS DESPERATELY needs funding behind it, yet has none. @thereforme.bsky.social have launched a new campaign to persuade the govt to #FundThePlan
See below for multiple ways to show @wesstreeting-mp.bsky.social
@ashleydaltonmp.bsky.social how much this matters
#PASC
See below for multiple ways to show @wesstreeting-mp.bsky.social
@ashleydaltonmp.bsky.social how much this matters
#PASC
People with ME are calling on the government to invest in their future and reverse generations of neglect. As Physios for ME, we are standing with them, to say- “please, fund the plan.” #FundThePlan
March 2, 2025 at 11:36 AM
People with ME are calling on the government to invest in their future and reverse generations of neglect. As Physios for ME, we are standing with them, to say- “please, fund the plan.” #FundThePlan
Dear
@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social
We are Physios for ME and we urge you to #FundThePlan
Our video is just too long for BlueSky so you can see it here or read what we have to say in the thread below
www.facebook.com/watch/?v=166...
@thereforme.bsky.social
@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social
We are Physios for ME and we urge you to #FundThePlan
Our video is just too long for BlueSky so you can see it here or read what we have to say in the thread below
www.facebook.com/watch/?v=166...
@thereforme.bsky.social
Redirecting...
www.facebook.com
March 2, 2025 at 11:36 AM
Dear
@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social
We are Physios for ME and we urge you to #FundThePlan
Our video is just too long for BlueSky so you can see it here or read what we have to say in the thread below
www.facebook.com/watch/?v=166...
@thereforme.bsky.social
@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social
We are Physios for ME and we urge you to #FundThePlan
Our video is just too long for BlueSky so you can see it here or read what we have to say in the thread below
www.facebook.com/watch/?v=166...
@thereforme.bsky.social
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
March 12, 2025 at 4:02 PM
I couldn't sketch today, I couldn't stay downstairs, I could only take medication, rest & nap in bed.
I hate my health problems, I feel useless.
I need treatments but there are none, I need support but there is none.
People with M.E need treatment.
#FundThePlan #ThereForME #Pwme
I hate my health problems, I feel useless.
I need treatments but there are none, I need support but there is none.
People with M.E need treatment.
#FundThePlan #ThereForME #Pwme
February 23, 2025 at 1:23 AM
I couldn't sketch today, I couldn't stay downstairs, I could only take medication, rest & nap in bed.
I hate my health problems, I feel useless.
I need treatments but there are none, I need support but there is none.
People with M.E need treatment.
#FundThePlan #ThereForME #Pwme
I hate my health problems, I feel useless.
I need treatments but there are none, I need support but there is none.
People with M.E need treatment.
#FundThePlan #ThereForME #Pwme
Only a couple extra days than I thought 🤦♀️ still, they’ll be there even closer to the 12th! #millionsmissing #sos #redalert #fundtheplan
May 6, 2025 at 4:58 PM
Only a couple extra days than I thought 🤦♀️ still, they’ll be there even closer to the 12th! #millionsmissing #sos #redalert #fundtheplan
I’m sending these cards to the people on the list and my local reps for #millionsmissing this year #fundtheplan @meactnet.bsky.social @meactionscotland.bsky.social @meactionuk.bsky.social
Will you guys join me in writing to the MRC, Lucy Chappell and others?
Will you guys join me in writing to the MRC, Lucy Chappell and others?
May 4, 2025 at 3:43 PM
I’m sending these cards to the people on the list and my local reps for #millionsmissing this year #fundtheplan @meactnet.bsky.social @meactionscotland.bsky.social @meactionuk.bsky.social
Will you guys join me in writing to the MRC, Lucy Chappell and others?
Will you guys join me in writing to the MRC, Lucy Chappell and others?
December 24th. Thank you for being #ThereForME, Rosie Barrett!
Rosie is a carer to her sister Alice and was featured this year by BBC Spotlight championing our #FundThePlan campaign. Nominated by Lauren. ✨
Rosie is a carer to her sister Alice and was featured this year by BBC Spotlight championing our #FundThePlan campaign. Nominated by Lauren. ✨
December 24, 2025 at 9:00 AM
December 24th. Thank you for being #ThereForME, Rosie Barrett!
Rosie is a carer to her sister Alice and was featured this year by BBC Spotlight championing our #FundThePlan campaign. Nominated by Lauren. ✨
Rosie is a carer to her sister Alice and was featured this year by BBC Spotlight championing our #FundThePlan campaign. Nominated by Lauren. ✨
A lot of work (and support from volunteers!) has gone into some of our bigger campaigns.
From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇
From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇
July 23, 2025 at 8:41 AM
A lot of work (and support from volunteers!) has gone into some of our bigger campaigns.
From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇
From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇