We're excited to share something we've been working on for a while.
ThereForME is now a registered charity! 🥳
1/4
ThereForME is now a registered charity! 🥳
1/4
September 23, 2026 at 8:17 AM
We're excited to share something we've been working on for a while.
ThereForME is now a registered charity! 🥳
1/4
ThereForME is now a registered charity! 🥳
1/4
Our wonderful @oonaghcousins.bsky.social took the reins for today’s #ThereForME update.
Feat. news from across the continent, plus some very poignant reflections on her story and how it is told.
open.substack.com/pub/therefor...
Feat. news from across the continent, plus some very poignant reflections on her story and how it is told.
open.substack.com/pub/therefor...
Campaign Update #11: #ThereForME across the continent
From #ThereForME HQ, to Rome and Switzerland
open.substack.com
November 19, 2024 at 9:31 AM
Our wonderful @oonaghcousins.bsky.social took the reins for today’s #ThereForME update.
Feat. news from across the continent, plus some very poignant reflections on her story and how it is told.
open.substack.com/pub/therefor...
Feat. news from across the continent, plus some very poignant reflections on her story and how it is told.
open.substack.com/pub/therefor...
📢 Today @karenlhargrave.bsky.social and @binitakane.bsky.social will be representing #ThereForME on the Task & Finish group for the new delivery plan for ME.
Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised.
www.thereforme.uk/p/a-delivery...
Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised.
www.thereforme.uk/p/a-delivery...
January 14, 2025 at 9:08 AM
📢 Today @karenlhargrave.bsky.social and @binitakane.bsky.social will be representing #ThereForME on the Task & Finish group for the new delivery plan for ME.
Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised.
www.thereforme.uk/p/a-delivery...
Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised.
www.thereforme.uk/p/a-delivery...
Today’s #ThereForME blog is from an anonymous healthcare worker
She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like.
www.thereforme.uk/p/designing-...
She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like.
www.thereforme.uk/p/designing-...
February 18, 2025 at 9:55 AM
Today’s #ThereForME blog is from an anonymous healthcare worker
She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like.
www.thereforme.uk/p/designing-...
She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like.
www.thereforme.uk/p/designing-...
George Monbiot was nominated for last year’s ThereForME Advent Calendar for using journalism to shine a light on failings faced by pwME.
Today, he writes that too often people with ME are abandoned, while discredited treatments continue to be prescribed.
He’s right.
Today, he writes that too often people with ME are abandoned, while discredited treatments continue to be prescribed.
He’s right.
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 24, 2026 at 11:26 AM
George Monbiot was nominated for last year’s ThereForME Advent Calendar for using journalism to shine a light on failings faced by pwME.
Today, he writes that too often people with ME are abandoned, while discredited treatments continue to be prescribed.
He’s right.
Today, he writes that too often people with ME are abandoned, while discredited treatments continue to be prescribed.
He’s right.
David Putrino is #ThereForME! @putrinolab.bsky.social is a leading #LongCovid clinician and Director of the @mountsinainyc.bsky.social Center for Recovery From Complex Chronic Illnesses.
His message: “Happy Holidays! We won’t stop fighting for pwME! Love David”
#PatientSafety #pwME #pwLC
His message: “Happy Holidays! We won’t stop fighting for pwME! Love David”
#PatientSafety #pwME #pwLC
December 7, 2024 at 9:00 AM
David Putrino is #ThereForME! @putrinolab.bsky.social is a leading #LongCovid clinician and Director of the @mountsinainyc.bsky.social Center for Recovery From Complex Chronic Illnesses.
His message: “Happy Holidays! We won’t stop fighting for pwME! Love David”
#PatientSafety #pwME #pwLC
His message: “Happy Holidays! We won’t stop fighting for pwME! Love David”
#PatientSafety #pwME #pwLC
It’s Krish-mas Eve! Krishnan Guru-Murthy, journalist, broadcaster, presenter, and former #Strictly star, is #ThereForME!
@krishgm.bsky.social's message: “Happy Christmas! Keep fighting! Lots of love Krishnan Guru-Murthy”
@channel4news.bsky.social
#PatientSafety #pwME #pwLC #ThereForME
@krishgm.bsky.social's message: “Happy Christmas! Keep fighting! Lots of love Krishnan Guru-Murthy”
@channel4news.bsky.social
#PatientSafety #pwME #pwLC #ThereForME
December 24, 2024 at 9:00 AM
It’s Krish-mas Eve! Krishnan Guru-Murthy, journalist, broadcaster, presenter, and former #Strictly star, is #ThereForME!
@krishgm.bsky.social's message: “Happy Christmas! Keep fighting! Lots of love Krishnan Guru-Murthy”
@channel4news.bsky.social
#PatientSafety #pwME #pwLC #ThereForME
@krishgm.bsky.social's message: “Happy Christmas! Keep fighting! Lots of love Krishnan Guru-Murthy”
@channel4news.bsky.social
#PatientSafety #pwME #pwLC #ThereForME
An absolute honour to be on the #ThereforME Advent Calendar. Wishing anyone living with this illness the best possible Christmas, especially the young people out there.
It’s our #ThereForME ambassador @binitakane.bsky.social - a dr with a special interest in LC/ME, & a champion for patient voice.
“A special shout out to children & young people with Long Covid / ME this Christmas. You are so brave & lots of us are fighting for you.”
@longcovidkids.bsky.social
“A special shout out to children & young people with Long Covid / ME this Christmas. You are so brave & lots of us are fighting for you.”
@longcovidkids.bsky.social
December 23, 2024 at 6:37 PM
An absolute honour to be on the #ThereforME Advent Calendar. Wishing anyone living with this illness the best possible Christmas, especially the young people out there.
November 19, 2025 at 8:35 PM
Incredible stuff from @jacobcolliermp.bsky.social!
Thanks for standing up so powerfully for your constituent and all those whose lives have been fundamentally changed by ME/Long Covid 🫡
#ThereForME
Thanks for standing up so powerfully for your constituent and all those whose lives have been fundamentally changed by ME/Long Covid 🫡
#ThereForME
November 19, 2024 at 1:16 PM
Incredible stuff from @jacobcolliermp.bsky.social!
Thanks for standing up so powerfully for your constituent and all those whose lives have been fundamentally changed by ME/Long Covid 🫡
#ThereForME
Thanks for standing up so powerfully for your constituent and all those whose lives have been fundamentally changed by ME/Long Covid 🫡
#ThereForME
expected to defend themselves against baseless accusations and provide the high level of nursing care demanded by very severe ME without support from somewhere.
4/4 @ashleydaltonmp.bsky.social @therestpolitics.bsky.social
#ThereForME #ThePlanForME #HumanRightsAbuses #JusticeForME
4/4 @ashleydaltonmp.bsky.social @therestpolitics.bsky.social
#ThereForME #ThePlanForME #HumanRightsAbuses #JusticeForME
August 10, 2025 at 7:17 AM
expected to defend themselves against baseless accusations and provide the high level of nursing care demanded by very severe ME without support from somewhere.
4/4 @ashleydaltonmp.bsky.social @therestpolitics.bsky.social
#ThereForME #ThePlanForME #HumanRightsAbuses #JusticeForME
4/4 @ashleydaltonmp.bsky.social @therestpolitics.bsky.social
#ThereForME #ThePlanForME #HumanRightsAbuses #JusticeForME
We will never encourage anyone to give beyond their means, and there are ways to support our work other than donating.
You can follow our blog, where we'll share updates on how you can help 👇
4/4
www.thereforme.uk/p/thereforme...
You can follow our blog, where we'll share updates on how you can help 👇
4/4
www.thereforme.uk/p/thereforme...
ThereForME is now a registered charity
What it means for our work, and how you can get involved
www.thereforme.uk
September 23, 2026 at 8:18 AM
We will never encourage anyone to give beyond their means, and there are ways to support our work other than donating.
You can follow our blog, where we'll share updates on how you can help 👇
4/4
www.thereforme.uk/p/thereforme...
You can follow our blog, where we'll share updates on how you can help 👇
4/4
www.thereforme.uk/p/thereforme...
We'd love to ask for your support.
For those who are willing & able, it's now possible to donate to ThereForME via the link here 👇
3/4
cafdonate.cafonline.org/31147
For those who are willing & able, it's now possible to donate to ThereForME via the link here 👇
3/4
cafdonate.cafonline.org/31147
ThereForME - Donate now
cafdonate.cafonline.org
September 23, 2026 at 8:18 AM
We'd love to ask for your support.
For those who are willing & able, it's now possible to donate to ThereForME via the link here 👇
3/4
cafdonate.cafonline.org/31147
For those who are willing & able, it's now possible to donate to ThereForME via the link here 👇
3/4
cafdonate.cafonline.org/31147
We're delighted to share today's #ThereForME blog from friend of the campaign @tessamunt.bsky.social.
In her blog, Tessa lays out the case for change and how to get involved.
Link in next post 👇
In her blog, Tessa lays out the case for change and how to get involved.
Link in next post 👇
March 4, 2026 at 9:11 AM
We're delighted to share today's #ThereForME blog from friend of the campaign @tessamunt.bsky.social.
In her blog, Tessa lays out the case for change and how to get involved.
Link in next post 👇
In her blog, Tessa lays out the case for change and how to get involved.
Link in next post 👇
This morning Santa delivered a #ThereForME Christmas card from across the pond 🎅✈️
Big thanks to @putrinolab.bsky.social for joining the #ThereForME advent calendar! Our little team are big big fans 🤩
Big thanks to @putrinolab.bsky.social for joining the #ThereForME advent calendar! Our little team are big big fans 🤩
David Putrino is #ThereForME! @putrinolab.bsky.social is a leading #LongCovid clinician and Director of the @mountsinainyc.bsky.social Center for Recovery From Complex Chronic Illnesses.
His message: “Happy Holidays! We won’t stop fighting for pwME! Love David”
#PatientSafety #pwME #pwLC
His message: “Happy Holidays! We won’t stop fighting for pwME! Love David”
#PatientSafety #pwME #pwLC
December 7, 2024 at 9:07 AM
This morning Santa delivered a #ThereForME Christmas card from across the pond 🎅✈️
Big thanks to @putrinolab.bsky.social for joining the #ThereForME advent calendar! Our little team are big big fans 🤩
Big thanks to @putrinolab.bsky.social for joining the #ThereForME advent calendar! Our little team are big big fans 🤩
We are so pleased to share that @thereforme.bsky.social is now officially a registered charity!
It’s been a long road to get here - we have big ambitions and we’re excited to see where we can take ThereForME next.
It’s been a long road to get here - we have big ambitions and we’re excited to see where we can take ThereForME next.
We're excited to share something we've been working on for a while.
ThereForME is now a registered charity! 🥳
1/4
ThereForME is now a registered charity! 🥳
1/4
September 23, 2026 at 8:32 AM
We are so pleased to share that @thereforme.bsky.social is now officially a registered charity!
It’s been a long road to get here - we have big ambitions and we’re excited to see where we can take ThereForME next.
It’s been a long road to get here - we have big ambitions and we’re excited to see where we can take ThereForME next.
I spoke earlier today with @karenlhargrave.bsky.social about the #ThereForME campaign to bring awareness to lack of care and treatment for patients with ME and Long Covid.
virology.ws/2024/11/21/t...
virology.ws/2024/11/21/t...
Trial By Error: Interview with Karen Hargrave, Co-Founder of #ThereForME | Virology Blog
By David Tuller, DrPH Karen Hargrave is co-founder of an advocacy campaign called #ThereForME, which was launched this past summer to draw public awareness ...
virology.ws
November 22, 2024 at 3:29 AM
I spoke earlier today with @karenlhargrave.bsky.social about the #ThereForME campaign to bring awareness to lack of care and treatment for patients with ME and Long Covid.
virology.ws/2024/11/21/t...
virology.ws/2024/11/21/t...
"The political landscape has changed, and if we want different outcomes, our advocacy has to evolve with it."
In today's update our co-founder @KarenLHargrave shares her reflections going into year 3 of #ThereForME.
Link in next post 👇
In today's update our co-founder @KarenLHargrave shares her reflections going into year 3 of #ThereForME.
Link in next post 👇
August 4, 2026 at 8:18 AM
"The political landscape has changed, and if we want different outcomes, our advocacy has to evolve with it."
In today's update our co-founder @KarenLHargrave shares her reflections going into year 3 of #ThereForME.
Link in next post 👇
In today's update our co-founder @KarenLHargrave shares her reflections going into year 3 of #ThereForME.
Link in next post 👇
Our #ThereForMe blog is back!
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
September 2, 2025 at 8:25 AM
Our #ThereForMe blog is back!
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Karen is a founding member of the #ThereForME initiative @thereforme.bsky.social
www.thereforme.uk
Full video (10 mins)
youtu.be/10hCNt6ajSE?...
www.thereforme.uk
Full video (10 mins)
youtu.be/10hCNt6ajSE?...
#ThereForME | Karen Hargrave | Substack
#ThereForME is an initiative founded by Karen & Emma, two carers for partners with very severe ME. We work to improve support, understanding & quality of life for people affected by ME & related condi...
www.thereforme.uk
July 27, 2026 at 9:27 AM
Karen is a founding member of the #ThereForME initiative @thereforme.bsky.social
www.thereforme.uk
Full video (10 mins)
youtu.be/10hCNt6ajSE?...
www.thereforme.uk
Full video (10 mins)
youtu.be/10hCNt6ajSE?...
Such an absolute delight to spend the weekend with these two @emmagl.bsky.social @oonaghcousins.bsky.social
#ThereForME planning day + Christmas jumpers 👌
#ThereForME planning day + Christmas jumpers 👌
November 24, 2024 at 11:49 AM
Such an absolute delight to spend the weekend with these two @emmagl.bsky.social @oonaghcousins.bsky.social
#ThereForME planning day + Christmas jumpers 👌
#ThereForME planning day + Christmas jumpers 👌
December 22nd. Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems @libdems.org.uk!
This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨
This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨
December 22, 2025 at 9:00 AM
December 22nd. Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems @libdems.org.uk!
This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨
This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨
Thank you #ThereForME and #AdrianRamsay. We are calling for action on #covid and #longcovid. We need funding for research and treatment.
Dec 8: It’s Adrian Ramsay! @adrianramsay.bsky.social is Co-Leader of the @greenparty.org.uk, the first party to develop a Covid & Long Covid policy 🙌
His message: “My Christmas wish for people with ME and Long Covid is that they get the medical and financial support they need.”
#PatientSafety
His message: “My Christmas wish for people with ME and Long Covid is that they get the medical and financial support they need.”
#PatientSafety
December 8, 2024 at 10:07 AM
Thank you #ThereForME and #AdrianRamsay. We are calling for action on #covid and #longcovid. We need funding for research and treatment.