#TheRedTreeandME
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drjogreer.bsky.social
open.substack.com/pub/theredtreeandme/p/very-severe-me-hope-left-waiting My 19 yo daughter has now been bedridden for 4 yrs with very severe ME and seriously unwell for 5 yrs. The silent indifference is sometimes deafening. #SevereMEDay2026 #MyalgicEncephalomyelitis #MECFS #TheRedTreeandME
Very Severe ME - Hope Left Waiting
I am generally cautious about wandering too far down Memory Lane, as the present demands enough of my energy and attention.
open.substack.com
August 8, 2026 at 7:50 PM
drjogreer.bsky.social
theredtreeandme.com/p/red-leaves-of-solidarity?r=4yhsbn ‘Red leaves’ of solidarity from #GreenParty Thank you @nataliegreenpeer.bsky.social for listening with kindness & compassion to my 16 yo son telling you about his sister who has very severe #myalgicencephalomyelitis #LongCovid #TheRedTreeandME
Red Leaves of Solidarity
Long Covid Awareness month landed at a time when the UK Covid-19 Inquiry is laying bare just how little attention was given to the long- term consequences of Covid infection for children and adults.
theredtreeandme.com
March 23, 2026 at 11:07 AM
drjogreer.bsky.social
Thank you so much. #TheRedTreeandME is a huge team effort - a real privilege to be part of such a lovely team. Very grateful for the many red leaves from #ThereForME especially for all your support, advocacy & clear messaging that people with ME need an NHS that is #ThereForME.
December 20, 2025 at 1:03 PM
drjogreer.bsky.social
theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social
Red Leaves and Messages of Hope @ Chester Cathedral
By Jo and Nick Greer
theredtreeandme.substack.com
November 27, 2025 at 11:35 PM
drjogreer.bsky.social
Thank you for sharing #TheRedTreeandME is a creative advocacy initiative to raise awareness of ME but also other IACCs, incl Long COVID. (My daughter has very severe ME following LC). theredtreeandme.substack.com #OneRedLeafataTime is the art project launched byThe Red Tree and ME earlier this year
The Red Tree and M.E. | Dr Jo Greer | Substack
Finding red leaves and glimmers of hope. Click to read "The Red Tree and M.E.", by Dr Jo Greer, a Substack publication with hundreds of subscribers.
theredtreeandme.substack.com
November 14, 2025 at 10:57 PM
drjogreer.bsky.social
open.substack.com/pub/theredtreeandme/p/one-red-leaf-at-a-time-greetings?r=4yhsbn&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true #OneRedLeafataTime #TheRedTreeandME is fundraising for research into #MyalgicEncephalomyelitis at The University of Edinburgh, led by Professor Chris Ponting.
One Red Leaf at a Time Greetings Cards - Raising funds for research into Myalgic Encephalomyelitis
Since so many of you have asked, greetings cards featuring images from the Red Leaf Creative Collaborative are now available to purchase.
open.substack.com
November 14, 2025 at 5:47 PM
drjogreer.bsky.social
So excited to share these stunning 'Red Leaves and Glimmers of Gold' open.substack.com/pub/theredtr... #Oneredleafatatime #TheRedTreeandME #MyalgicEncephalomyelitis #DecodeME
Red Leaves and Glimmers of Gold
The Red Leaf Creative Collaborative is deeply grateful to the growing community of artists who are helping to shape this project, quite literally ‘one red leaf at a time’.
open.substack.com
August 24, 2025 at 3:13 PM
drjogreer.bsky.social
theredtreeandme.substack.com/p/one-red-le... #oneredleafatatime #TheRedLeafCreativeCollaborative #TheRedTreeandME #MyalgicEncephalomyelitis #LongCovid #pwME
June 2, 2025 at 10:00 PM
drjogreer.bsky.social
theredtreeandme.substack.com/p/still-a-me... Elaine O’Neill, a founder member of The Red Leaf Creative Collaborative, presents ‘Still’. This captivating piece is part of her ‘Open Door’ series & offers a glimpse into a tiny corner of her lived experience as a carer for her daughter #TheRedTreeandME
Still: A Mesmerising Glimpse
By Elaine O’Neill
theredtreeandme.substack.com
April 13, 2025 at 3:38 PM
drjogreer.bsky.social
'...hope for me is not about seeking to deny the existence of these dark leaves. We can’t. For us, hope is resistance despite them.'🍁

@sunsopeningband.bsky.social #ThereForME #FundThePlan #LongCovid #myalgicencephalomyelitis #TheRedTreeandME #ShaunTan #Hope open.substack.com/pub/theredtr...
Amid the Dark Leaves: Hope as an act of resistance
By Jo Greer
open.substack.com
March 31, 2025 at 1:31 PM
drjogreer.bsky.social
theredtreeandme.substack.com/p/the-red-tr... Inspired by #TheRedTreeandME & Dr Lucinda Bateman @batemanhornecenter.bsky.social @carolinefricker.bsky.social has delicately crafted & introduces The Red Tree Warriors:

“We know you are suffering and will continue to fight for you.”

Dr Lucinda Bateman
The Red Tree Warriors
By Caroline Fricker
theredtreeandme.substack.com
February 19, 2025 at 6:17 PM
drjogreer.bsky.social
Dr Clare Rayner, a member of The Red Leaf Creative Collaborative, shares with The Red Tree and ME her stunning art work, 'Reflections'. View or subscribe for free. #pwme #myalgicencephalomyelitis #TheRedTreeandME open.substack.com/pub/theredtr... #oneredleafatatime
'Reflections'
By Dr Clare Rayner
open.substack.com
February 16, 2025 at 11:43 PM
drjogreer.bsky.social
Thank you so much
@daniellebeckman.bsky.social
for this wonderful message of solidarity for people with #myalgicencephalomyelitis #TheRedTreeandME
Please subscribe to theredtreeandme.substack.com for free for more messages of hope and solidarity
To everyone suffering from ME/ CFS and Long Covid, YOU ARE NOT ALONE. Scientists like me and many others will keep fighting to help identify and understand the causes of these illnesses. We are together and will work even harder in 2025. Dr Danielle Beckman, Neuroscientist at the University of California
February 1, 2025 at 7:34 PM
drjogreer.bsky.social
So excited to share these messages of hope & solidarity for 2025! Huge thanks to all who contributed.
#TheRedTreeandME #myalgicencephalomyelitis #LongCovid #pwME open.substack.com/pub/theredtr...
'We shall have spring again' - Messages of hope and solidarity for 2025
“Wrong will be right, when Aslan comes in sight, At the sound of his roar, sorrows will be no more, When he bares his teeth, winter meets its death, And when he shakes his mane, we shall have spring a...
open.substack.com
December 31, 2024 at 2:11 AM
germainehypher.bsky.social
‘One Red Leaf at a Time: an international art project’ wants your contributions. 🎨 🧶 🪡 📷 ✍🏻

“Strength for today, hope for tomorrow – one leaf at a time.” Dr Jo Greer 🍁

TheRedTreeandME.Substack.com

#Chronicillness #chronicpain #longcovid #me/cfs #art #craftsky #craft #naturephotography #fiberart
The background is navy blue. Along the bottom is a strip of photographs of artwork and nature photography featuring a red leaf. The text over the navy background says: All art mediums welcome! Artist Callout Calling all chronically ill artists and allies... One Red Leaf at a Time: an international art project. If you, or anyone you know, would like to submit a piece, please fill in the google form below or email jo@theredtreeandme.com and we will send you the details. Link: bit.ly/OneRedLeafArt A mosaic of a leaf featuring spirals and predominantly in red tones is at the centre of a dark mosaic background. Text says: @theredtreeandme Shirley Kay Mosaics - 'Red Leaf of Hope' (Mixed media mosaic)
June 8, 2025 at 11:01 AM
scribblerpen.bsky.social
#TheRedTreeandME are collecting finds for #MECFS research. 🎄 They have a Christmas tree at Chester Cathedral decorated with red leaves 🍂, each beating a message of hope from #ME researchers. Please consider donating, one red 🍁 at a time ❤️
www.justgiving.com/page/one-red...
One Red Leaf at a Time: Fundraising for ME/CFS Research
Help One Red Leaf at a Time raise money to support The University of Edinburgh
www.justgiving.com
November 28, 2025 at 1:42 PM
cabruce.bsky.social
From #TheRedTreeandME
@putrinolab.bsky.social
Let’s believe it 🤞🙏
February 5, 2025 at 7:49 AM
tomkindlon.bsky.social
"Creativity and chronic illness" (from the Chronic Living Therapy newsletter)
chroniclivingtherapy.com/creativity-c...

Features:

- Ballet dancer, @anilvanderzee.bsky.social

- Red Tree and ME – international collaborative art project

#chronicillness #MEcfs #TheRedTreeandME

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Creativity and chronic illness It's not therapy, and it's not simply a 'coping skill': creativity is something that can bring meaning to the lives of many people with chronic illnesses. There's no 'should' to coping with ill health - different people will find different things work for them. I was intrigued by how a ballet dancer, a group of artists and a photographer, amongst others, found ingenious new ways to be creative. Creative whilst Chronically ill...
January 23, 2026 at 7:55 PM