#LongQTSyndrome
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iprkashmishra.bsky.social
Long QT Syndrome (LQTS): Recognize the Silent Heart Rhythm Danger
#LongQTSyndrome #Cardiology #ECG #iprkashmishra #MedicalEducation
June 29, 2026 at 10:37 PM
adeliniere.bsky.social
Honored to have spoken at the #JESFC about inherited arrhythmia syndromes and syncope
#LongQTSyndrome #Brugada #CPVT #Andersen-TawilSyndrome #TimothySyndrome #ShortQTSyndrome

www.cardio-online.fr/Lectures/202...

@hospicescivilslyon.bsky.social @hcl-recherche.bsky.social
January 18, 2025 at 11:57 AM
daysendstudio.bsky.social
Fresh #lilyandfoxnails tonight… I’ll Be Yours. It is Heart Month so I wear hearts for #longqtsyndrome #lqts I have Type 1. #heartmonth #hearthealthmonth #nails #nailsnailsnails #nailwraps #selfcare #lilyandfox
February 2, 2025 at 7:44 AM
epilepsiajournal.bsky.social
Atenolol reduced heart rate and QTc interval, without affecting seizure load in both mouse models of SUDEP.
doi.org/10.1111/epi....

#epilepsy #ILAE #epilepsia #atenolol #cardiacarrhythmia #KCNH2 #longQTsyndrome #SUDEP
October 2, 2025 at 1:43 PM
magnetosmettle.bsky.social
Hey #disabled fam! I’ve been finding new ways to cope with my health. Gardening & gardening shows help. Loving “The Instant Gardener” on Prime. So many of the guests are disabled &/or #chronicallyill.🩷🌱🪴
#♿️ #mentalillness #bipolar #ptsd #t1d #fibromyalgia #cfs #longqtsyndrome
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Amazon.com
watch.amazon.com
July 20, 2025 at 8:29 PM
daysendstudio.bsky.social
I have LQTS Type 1... My Dad did (likely what killed his Dad) my brother has it, all 4 of my boys inherited it... thankfully ours is pretty controllable with knowledge, medication and awareness to make lifestyle changes or activity decisions.
#lqts #longqtsyndrome #longqt #mymutation #canibeanxmen
February 24, 2025 at 3:41 AM
daysendstudio.bsky.social
Heart Health Month...
I have LongQTSyndrome Type 1
#hearthealthmonth #lqts #lomngqtsydrome #getchecked #heart #hearthealth
February 9, 2025 at 11:10 PM
gimopenjournal.bsky.social
Among Amish carriers of a #LongQTSyndrome founder variant, return of results was well received, but beta-blocker use was low, highlighting gaps in cascade testing and treatment uptake. bit.ly/3JedYOt #GIMO #KCNQ1 #OldOrderAmish #ReturnOfResults #CascadeScreening
October 17, 2025 at 7:16 PM
thryvtrx.bsky.social
Wave II is built around the people who make it possible. Every participant and caregiver has travel, meals & lodging covered—because living with Long QT Syndrome is already complex enough. 🌊
wavestudies.com/wave-2

#LongQTSyndrome #ClinicalTrials #RareDisease #LQTS2
April 1, 2026 at 7:00 PM
thryvtrx.bsky.social
"Living with Long QT has taught me to live every day to the fullest."

Lauren shares how a rare heart condition shapes the way she sees each day.

#LongQTSyndrome #LQTS2 #RareDisease #PatientStory
August 25, 2026 at 6:17 PM
thryvtrx.bsky.social
Meet Lauren — diagnosed with Long QT Syndrome at 7 days old, living with it for 28 years.

"I want more people to know that we're normal, healthy human beings." Her story, starting now.

#LongQTSyndrome #LQTS2 #RareDisease #PatientStory
August 20, 2026 at 9:04 PM
dailynorthern.com
Toddler’s death reveals inherited heart condition #childdeath #Iceland #longQTsyndrome
Toddler’s death reveals inherited heart condition
The death of 18-month-old Elmar Pétursson in January revealed that he had long QT syndrome type 1, an inherited heart defect that can cause irregular heart rhythms and sudden death, mbl.is reported. The condition could have been diagnosed and managed if procedures had been different. Seven months…
www.dailynorthern.com
August 18, 2026 at 10:15 PM
dailynorthern.com
Parents mourn toddler after inherited heart condition goes undetected #childdeath #Iceland #longQTsyndrome
Parents mourn toddler after inherited heart condition goes undetected
Elmar Pétursson was 18 months old when he died on 14 January after a fever-induced cardiac arrest. His parents, Berglind Ólafsdóttir and Pétur Guðnason, later learned that he had long QT syndrome type 1, an inherited heart condition that can cause abnormal heart rhythms and sudden death, mbl.is r…
www.dailynorthern.com
August 17, 2026 at 11:15 PM
dailynorthern.com
Child’s cardiac arrest exposes inherited long QT syndrome #health #longQTsyndrome #ReykjavikMarathon
Child’s cardiac arrest exposes inherited long QT syndrome
Elmar Pétursson, who died aged 18 months in January after suffering a cardiac arrest following a febrile seizure, had inherited long QT syndrome type 1, mbl.is reports. The condition can cause abnormal heart rhythms and sudden death. Elmar had a fever and experienced a febrile seizure, as had rep…
www.dailynorthern.com
August 17, 2026 at 7:01 AM
insidethemagic.bsky.social
Dead Teenager Brought Back to Life at Disney World as Guest Comes to the Rescue
Dead Teenager Brought Back to Life at Disney World as Guest Comes to the Rescue
A Disney World vacation turned heroic when an Illinois doctor saved a 17-year-old girl in cardiac arrest. 🚑💓 #DisneyWorld #HeroDoctor #ThemeParkNews #MedicalMiracle #LongQTSyndrome #InsideTheMagic
insidethemagic.net
June 20, 2025 at 12:11 AM
daysendstudio.bsky.social
Fresh #lilyandfoxnails tonight… Crazy Love. It is Heart Month so I wear hearts for #longqtsyndrome #lqts I have Type 1. #heartmonth #hearthealthmonth #nails #nailsnailsnails #nailwraps #selfcare @lilyandfox
February 14, 2025 at 3:34 AM
thryvtrx.bsky.social
Big quarter for our SGK1 platform — and we're taking it to NYC. Find us at UBS (5/18-19), RBC (5/19-20) & Jefferies (6/2-4).

Read the full release: https://bit.ly/4nwM93K

#SGK1 #LongQTSyndrome #Biotech #HeartFailure
May 12, 2026 at 1:37 PM
thryvtrx.bsky.social
Every step forward begins with a moment 💚
Long QT Syndrome affects ~1 in 2,000 people, with no approved treatments today.

Wave II is now open for enrollment in the U.S.
👉 Click here for study details: www.wavestudies.com/wave-2

#LongQTSyndrome #LQTS2 #RareDisease #HeartHealth #ClinicalResearch
January 13, 2026 at 2:41 PM
victorchang.edu.au
#PaulKornerSeminar speaker Dr @ChaiAnn_Ng explains “using high-throughput assays to overcome #genetic purgatory in #longQTsyndrome” #ScienceTwitter
December 5, 2024 at 2:46 AM
scienceblog.com
🚨 New research using genomic analysis has uncovered undiagnosed cases of Long QT syndrome, a rare but dangerous heart disorder. This breakthrough could lead to better detection of genetic diseases. 🧬🫀 #Genomics #HeartHealth #LongQTSyndrome #ScienceNews @VUMChealth scienceblog.com/548103/new-g...
New Genomic Analysis Uncovers Undiagnosed Cases of Deadly Heart Disorder, Long QT Syndrome
An innovative analysis of shared segments within the genome — an indication of distant “relatedness” — has identified undiagnosed cases of Long QT
scienceblog.com
September 28, 2024 at 9:53 PM