#MillonsMissing
Community Symposium on the Molecular Basis of ME/CFS

Stanford Genome Technology Center

9/11 at 11:00am EDT

#MECFS #MECFSResearch #pwME
#MEAwareness #MillonsMissing
Starts 4pm BST ends 2am BST.
Register in advance to join (on Zoom).
stanford.zoom.us/webinar/regi...
September 11, 2026 at 6:51 AM
February 25, 2026 at 11:42 AM
Jeden Tag daran erinnern,
dass #MECFS #PostCovid und
auch das selten auftretende
#PACVS neuroimmunologische
also somatische Erkrankungen
sind!

#MEkills

ME/CFS = G93.3 ICD10 bzw. 8E49 ICD11

#millonsmissing
October 16, 2023 at 6:09 AM
This is a great idea. If nothing else, it would at least bring ME/CFS to people's attention, since pwME tend to be "out of sight, out of mind." Maybe a first step in ME education.

I'd put one in my living room window--something doable for me, since I'm mostly housebound.

#MillonsMissing #ME/CFS
I was hoping to find a millions missing yard sign or bumper sticker - something that would get seen irl. I figure if millions missing signs started cropping up ppl outside of the community would see them & maybe we’d get more allies. There are Tshirts, but a lot of us can’t go out much/at all.
May 6, 2026 at 5:32 PM
“He was a doctor who ran marathons. Now, walking to the bathroom is harder than any marathon he ever ran. In this grade of severity ME is only invisible if people purposefully look away.”

Evelien van den Brink calling for biomedical #MECFS research in European Parliament in 2019.
July 4, 2026 at 10:22 AM
March is #LongCovidAwarenessMonth and so many of us are hitting our 5-year anniversaries of #LongCovid hell. #CovidIsNotOver #TreatLongCovid #SolveME #MillonsMissing
🎗️ #March is Long Covid Awareness Month

Children continue to develop #LongCovid, facing moderate to severe impacts on their health & lives. They deserve to be seen, heard & supported.

Join us in raising awareness & advocating for change.
#LongCovidAwarenessMonth #LongCovidKids
March 2, 2025 at 1:10 AM