#PatientPartner
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reumazorgnederland.bsky.social
Trots! Dat zijn we op onze patientpartner Rebecca Meuldijk. Zij is geslaagd voor de EULAR-training voor patiëntenparticipatie in wetenschappelijk onderzoek!
reumazorgnederland.nl/rebecca-meul...

#reuma
Rebecca geslaagd voor EULAR-training patiëntenparticipatie in onderzoek
Trots, zijn we op onze patientpartner Rebecca Meuldijk. Zij is zojuist geslaagd voor de tweejarige EULAR-training voor patiëntenparticipatie.
reumazorgnederland.nl
July 14, 2026 at 10:37 AM
rqrd-qprn.bsky.social
📢 New #PatientPartner

Welcome Kyrie Larcher, a mental health social worker and patient partner living with pain related to Ehlers-Danlos syndrome.

💬 Through her involvement, she contributes to more inclusive research grounded in lived experience.❤️
June 22, 2026 at 3:06 PM
cancersociety.bsky.social
IARC Conference Day 2: We’re so looking forward to today’s Parallel Session: Engagement of communities, civil society and patients as research partners.

#PatientPartner #CancerResearch #IARC60
May 20, 2026 at 12:31 PM
quoimedia.bsky.social
High-performing health systems share six key levers focused on the lived experiences of patients and those delivering care – they can be replicated across the country, says CEO Healthcare Excellence Canada, Dr. Jennifer Zelmer:

#medicare #healthcare #cdnpoli #patientpartner #caregiving
Healthcare transformation must be built around community needs
health systems share six key levers focused on the lived experiences of patients and those delivering care – they can be replicated...
quoimedia.com
May 8, 2026 at 6:39 PM
patientpartnercom.bsky.social
PatientPartner is a patient-focused health-tech solution that links individuals with relatable mentors to help navigate complex treatment journeys. Its peer-based support, real-time matching, and data intelligence help healthcare organizations improve patient engagement
December 15, 2025 at 3:08 PM
reumazorgnederland.bsky.social
Als vitaliteitscoach weet Ran Bos hoe belangrijk een gezonde leefstijl is. Vijftien jaar geleden kreeg zij de diagnose systemische lupus. In een gesprek met de Nationale Vereniging ReumaZorg Nederland vertelt zij hoe reuma oa haar dagelijks leven beïnvloedt
reumazorgnederland.nl/leefstijl-en...
Leefstijl en reuma: In gesprek met een patiëntpartner
Als vitaliteitscoach weet Ran Bos hoe belangrijk gezonde leefstijl is. Zij vertelt hoe reuma haar leven beïnvloedt én over tips voor anderen.
reumazorgnederland.nl
October 22, 2025 at 11:48 AM
worldebhcday.bsky.social
Read #WorldEBHCDay blog by Dr Talebpour & Prof Hajebrahimi, who discuss a person-centred, team-driven approach to strengthen patient identification for safer care focused on changing everyday routines, clarifying processes & involving patients as partners. https://ow.ly/H2Lh50XcUSq #PatientPartner
A healthcare professional in gloves and scrubs adjusts a patient's I.D. bracelet to the patient's wrist.
October 19, 2025 at 9:05 AM
reumazorgnederland.bsky.social
Toen Marja Foekking in 2008 de diagnose fibromyalgie en artrose kreeg, stond haar leven op zijn kop. . In een openhartig gesprek vertelt ze hoe reuma haar leven heeft veranderd.

reumazorgnederland.nl/leefstijl-en...

#reuma #leefstijl #patientpartner #fibromyalgie #artrose
Leefstijl en reuma: ervaringen van een patiëntpartner
Toen Marja Foekking in 2008 de diagnose fibromyalgie en artrose kreeg, stond haar leven op zijn kop. Ze kon nauwelijks meer lopen of staan. Inmiddels, jaren later, heeft ze een manier gevonden om met ...
reumazorgnederland.nl
October 16, 2025 at 11:29 AM
tuftejet.bsky.social
#PatientPartner in Health Systems Research
🧪ORCID # 0000-0002-4346-3238
www.janicetufte.com
Janice Tufte
Catalyst for Positive Change
www.janicetufte.com
August 28, 2025 at 12:17 PM
tuftejet.bsky.social
#PatientPartner in Health Systems Research
🧪ORCID # 0000-0002-4346-3238
www.janicetufte.com
Janice Tufte
Catalyst for Positive Change
www.janicetufte.com
August 28, 2025 at 12:15 PM
rqrd-qprn.bsky.social
#LetsTalkAboutPain : Living Well with #ChronicPain 🌞

Hannah Derue (@mcgill.ca) talks with Lesley Singer, physical therapist and #PatientPartner. They address #management strategies, #CommunitySupport, and much more.

👉 zurl.co/nJxPq

#PatientPartner #Physiotherapy
July 11, 2025 at 4:01 PM
muzicmaestro.bsky.social
Does such massive physical infrastructure spending align with healthcare's future?

With the proven value of virtual and primary care trends, should we prioritize digital & community solutions?

#CanadaHealth #PatientPartner #VirtualCare #PrimaryCare"
June 27, 2025 at 7:13 PM
journalgim.bsky.social
This #JGIM #HealingArts, complete with powerful narratives between a physician & a #PatientPartner, speaks of the often unspoken #rules of being a #patient...

Read these impactful stories at the free full-text link ⬇️:
rdcu.be/em2fX
June 27, 2025 at 7:06 PM
tuftejet.bsky.social
Development for a validated useable 'Co-creation Research Partnership Engagement'measure C-273 #PCORI funded @monica-p-jolles.bsky.social #MedSky #PatientPartner #Community #Providers #Researchers #ARM25
June 9, 2025 at 3:02 PM
tuftejet.bsky.social
I really appreciated this #PatientPartner framework by The Patient and Family-Centered Research (PFCR) program has focused on identifying projects within the Center for Learning Health System Sciences (CLHSS) research at University of Minnesota
June 8, 2025 at 3:59 PM
rqrd-qprn.bsky.social
🔍 The @inesss.qc.ca has analyzed #opioid use in Quebec (2006-2016): the prevalence is stable (10.3%).

Our #QPRNmember Léonie Archambault and #PatientPartner Laurent Dupuis discuss opioid use disorders and some #solutions (in French).👇

youtu.be/4A-uJ0YyZ1k?...

#PrioritizePain
May 22, 2025 at 1:31 PM
shannonmckenney.bsky.social
If you can, hop onto this session on the Library of #livedexperience. I had no idea this existed.
#bridgingresearchandaction
#patientpartner
event.fourwaves.com/bridgingrese...
Bridging Research and Action
Fourwaves - Bridging Research and Action
event.fourwaves.com
May 16, 2025 at 5:31 PM
reumazorgnederland.bsky.social
Anita Bruijns kreeg onverwacht te maken met reuma. De diagnose kwam als een klap, boven op haar bestaande nierziekte. In een interview met ons vertelt ze haar verhaal. Van haar diagnose van reuma, tot haar rol als patientpartner.
reumazorgnederland.nl/de-kracht-va...
De kracht van Anita als patientpartner
Anita Bruijns kreeg onverwacht te maken met reuma. In een interview met RZN vertelt ze haar verhaal en over haar rol als patientpartner.
reumazorgnederland.nl
May 6, 2025 at 11:31 AM
reumazorgnederland.bsky.social
Als patientpartner bij de Nationale Vereniging ReumaZorg Nederland denkt Frans mee over betere zorg voor mensen met reuma. “Je helpt er anderen mee, maar ik vond het ook belangrijk voor mezelf om te doen.”
reumazorgnederland.nl/van-patient-...

#reuma
Van patiënt naar patiëntpartner: Frans en betere reumazorg
Als patientpartner bij de Nationale Vereniging ReumaZorg Nederland denkt Frans van Eekelen mee over betere zorg voor mensen met reuma.
reumazorgnederland.nl
April 4, 2025 at 8:39 AM
suissepatient.bsky.social
Proud to have been part of this project #patientpartner #PPI and to share our publication.

"Comparative inpatient care of #cancer vs. non-cancer #patients in #Switzerland during the #COVID_19 lockdown: a nationwide interrupted time series analysis."

bmccancer.biomedcentral.com/articles/10....
Comparative inpatient care of cancer vs. non-cancer patients in Switzerland during the national COVID-19 lockdown: a nationwide interrupted time series analysis - BMC Cancer
Background The COVID-19 pandemic exerted unprecedented pressure on healthcare systems worldwide, leading governments and hospitals to postpone elective procedures to prioritize care for COVID-19 patie...
bmccancer.biomedcentral.com
March 27, 2025 at 5:40 PM
cantrain.bsky.social
📢 CANTRAIN Launches a New International Initiative with EUPATI and MRCT Center and Joint Task Force for Clinical Trials Competency

Learn more about this new initiative: tinyurl.com/PatientEngag...

#PatientEngagement #PatientPartner #PatientPartnership
March 19, 2025 at 9:13 PM
rqrd-qprn.bsky.social
🎉 Congratulations to Lesley Singer, patient partner at #QPRN, for her Person with Lived Experience Leadership Award at the Canadian Pain Society 2024 meeting! 👏

She briefly reflects on her journey and commitment here 👇

#PatientPartner #Research
March 12, 2025 at 3:01 PM
cantrain.bsky.social
📢During the #CTSummit2025, researcher Caroline Jose and #PatientPartner partner Linda Hunter (@lhunter1310.bsky.social) launched and collected data for their research project on the role(s) of patients in developing and conducting clinical trial research.

We can’t wait to learn what you find!
Picture of Caroline Jose and Linda Hunter sitting in white armchairs on the stage at the 2025 Clinical Trials Training Summit. Picture of two tables of participants to Caroline Jose’s and Linda Hunter’s research project during the 2025 Clinical Trials Training Summit. Picture of participants to Caroline Jose’s and Linda Hunter’s research project during the 2025 Clinical Trials Training Summit.
March 10, 2025 at 4:36 PM
chroniceileen.bsky.social
This is really excited! Two of my session submissions were accepted for the 2025 American College of Rheumatology conference in Chicago this October! I am really excited to put together these sessions, last year was my first experience so this year I feel more prepared. #PatientPartner #ACR25
February 26, 2025 at 11:03 AM
tuftejet.bsky.social
Welcome Janice Tufte I am involved with Health Systems Research and QI as a #patientpartner hmmm..hotspicy food
a cartoon of a woman surrounded by red peppers .
ALT: a cartoon of a woman surrounded by red peppers .
media.tenor.com
February 21, 2025 at 5:04 PM