It is an extreme honor to be featured like this in The Rheumatologist. Thank you for highlighting the patient voice #ACR. #PatientEngagement #PatientPartner
Read the article: www.the-rheumatologist.org/article/pati...
Read the article: www.the-rheumatologist.org/article/pati...
January 11, 2025 at 1:48 PM
It is an extreme honor to be featured like this in The Rheumatologist. Thank you for highlighting the patient voice #ACR. #PatientEngagement #PatientPartner
Read the article: www.the-rheumatologist.org/article/pati...
Read the article: www.the-rheumatologist.org/article/pati...
There's nothing more meaningful to me in my work in #PatientEngagement in research than being told by a #PatientPartner that I've helped them in some way (no matter what way or how big or small that help is). 💟
November 19, 2024 at 8:02 PM
There's nothing more meaningful to me in my work in #PatientEngagement in research than being told by a #PatientPartner that I've helped them in some way (no matter what way or how big or small that help is). 💟
#LetsTalkAboutPain : Living Well with #ChronicPain 🌞
Hannah Derue (@mcgill.ca) talks with Lesley Singer, physical therapist and #PatientPartner. They address #management strategies, #CommunitySupport, and much more.
👉 zurl.co/nJxPq
#PatientPartner #Physiotherapy
Hannah Derue (@mcgill.ca) talks with Lesley Singer, physical therapist and #PatientPartner. They address #management strategies, #CommunitySupport, and much more.
👉 zurl.co/nJxPq
#PatientPartner #Physiotherapy
July 11, 2025 at 4:01 PM
#LetsTalkAboutPain : Living Well with #ChronicPain 🌞
Hannah Derue (@mcgill.ca) talks with Lesley Singer, physical therapist and #PatientPartner. They address #management strategies, #CommunitySupport, and much more.
👉 zurl.co/nJxPq
#PatientPartner #Physiotherapy
Hannah Derue (@mcgill.ca) talks with Lesley Singer, physical therapist and #PatientPartner. They address #management strategies, #CommunitySupport, and much more.
👉 zurl.co/nJxPq
#PatientPartner #Physiotherapy
This is how it should be - Share the full article when posting. That is just my perspective. #PatientPartner
Patient partner engagement in the publication process: challenges and possible solutions | BMC Medical Research Methodology | Full Text #patientengagement bmcmedresmethodol.biomedcentral.com/articles/10....
Patient partner engagement in the publication process: challenges and possible solutions - BMC Medical Research Methodology
Patient engagement in research is gaining traction as an international standard, and often requirement, of many health research funding agencies. Drivers of this increase include patient interest, inc...
bmcmedresmethodol.biomedcentral.com
February 18, 2025 at 2:01 PM
This is how it should be - Share the full article when posting. That is just my perspective. #PatientPartner
Glad to see here they discourage using words like battle or fight when talking to patients with serious illness.
#PatientEngagement #PatientPartner #WhyWeRevolt
#PatientEngagement #PatientPartner #WhyWeRevolt
Is sharing our writing a thing here? 😊
Proud of this piece because it represents the work of so many trying to make medicine and communication better for our patients. #MedSky
www.mayoclinicproceedings.org/action/showP...
Proud of this piece because it represents the work of so many trying to make medicine and communication better for our patients. #MedSky
www.mayoclinicproceedings.org/action/showP...
November 20, 2024 at 3:35 AM
Glad to see here they discourage using words like battle or fight when talking to patients with serious illness.
#PatientEngagement #PatientPartner #WhyWeRevolt
#PatientEngagement #PatientPartner #WhyWeRevolt
Yesterday I learned I have 17 scientific journal articles to my credit as an author or co-author. That's really cool.
#PatientPartner #PatientEngagement #ArthritisResearch
#PatientPartner #PatientEngagement #ArthritisResearch
January 16, 2025 at 10:39 AM
Yesterday I learned I have 17 scientific journal articles to my credit as an author or co-author. That's really cool.
#PatientPartner #PatientEngagement #ArthritisResearch
#PatientPartner #PatientEngagement #ArthritisResearch
Here's the #PPI starter pack! Come join in on the fun!
#coproduction #collaboration #patientpartner 🧩🤝
#coproduction #collaboration #patientpartner 🧩🤝
Starter pack on #PublicInvolvement #PPI #PPIE #Coproduction and #ParticipatoryResearch.
Kindly put together by @louca-mai.bsky.social 🌟
Kindly put together by @louca-mai.bsky.social 🌟
November 20, 2024 at 5:37 PM
Here's the #PPI starter pack! Come join in on the fun!
#coproduction #collaboration #patientpartner 🧩🤝
#coproduction #collaboration #patientpartner 🧩🤝
Development for a validated useable 'Co-creation Research Partnership Engagement'measure C-273 #PCORI funded @monica-p-jolles.bsky.social #MedSky #PatientPartner #Community #Providers #Researchers #ARM25
June 9, 2025 at 3:02 PM
Development for a validated useable 'Co-creation Research Partnership Engagement'measure C-273 #PCORI funded @monica-p-jolles.bsky.social #MedSky #PatientPartner #Community #Providers #Researchers #ARM25
#CanSky
#OncoSky
#MedSky
#MedChat
#ScreenBetterCanada
#MedOnc
#MedOncology
#MedicalOncology
#MedEd
#Oncology
#CancerCare
#PatientCare
#CancerPatient
#Cancer
#ThanksCancer
#BreastCancer
#OncoDaily
#MetastaticCancer
#MBC
#MetastaticBreastCancer
#PatientAdvocate
#PatientPartner
#Stage4
#DeNovo
#OncoSky
#MedSky
#MedChat
#ScreenBetterCanada
#MedOnc
#MedOncology
#MedicalOncology
#MedEd
#Oncology
#CancerCare
#PatientCare
#CancerPatient
#Cancer
#ThanksCancer
#BreastCancer
#OncoDaily
#MetastaticCancer
#MBC
#MetastaticBreastCancer
#PatientAdvocate
#PatientPartner
#Stage4
#DeNovo
February 17, 2025 at 3:56 PM
ICYMI, I recently posted about the controversy around language in patient partnership. I'm very much in the camp of using the terminology #PatientPartner
over other options & I'm curious how others feel. #PatientPartnership #PatientEngagement
modelingchange.blogspot.com/2025/01/what...
over other options & I'm curious how others feel. #PatientPartnership #PatientEngagement
modelingchange.blogspot.com/2025/01/what...
What's in a name?
"What's in a name? That which we call a rose by any other name would smell as sweet" William Shakespeare Romeo and Juliet, Act II, ...
modelingchange.blogspot.com
February 5, 2025 at 9:08 PM
ICYMI, I recently posted about the controversy around language in patient partnership. I'm very much in the camp of using the terminology #PatientPartner
over other options & I'm curious how others feel. #PatientPartnership #PatientEngagement
modelingchange.blogspot.com/2025/01/what...
over other options & I'm curious how others feel. #PatientPartnership #PatientEngagement
modelingchange.blogspot.com/2025/01/what...
Welcome #HITsm Janice Tufte #PatientPartner Seattle WA- looking forward to hearing more from you all I will not be attending= I can only stay online for a short time.
February 21, 2025 at 5:02 PM
Welcome #HITsm Janice Tufte #PatientPartner Seattle WA- looking forward to hearing more from you all I will not be attending= I can only stay online for a short time.
This is really excited! Two of my session submissions were accepted for the 2025 American College of Rheumatology conference in Chicago this October! I am really excited to put together these sessions, last year was my first experience so this year I feel more prepared. #PatientPartner #ACR25
February 26, 2025 at 11:03 AM
This is really excited! Two of my session submissions were accepted for the 2025 American College of Rheumatology conference in Chicago this October! I am really excited to put together these sessions, last year was my first experience so this year I feel more prepared. #PatientPartner #ACR25
High-performing health systems share six key levers focused on the lived experiences of patients and those delivering care – they can be replicated across the country, says CEO Healthcare Excellence Canada, Dr. Jennifer Zelmer:
#medicare #healthcare #cdnpoli #patientpartner #caregiving
#medicare #healthcare #cdnpoli #patientpartner #caregiving
Healthcare transformation must be built around community needs
health systems share six key levers focused on the lived experiences of patients and those delivering care – they can be replicated...
quoimedia.com
May 8, 2026 at 6:39 PM
High-performing health systems share six key levers focused on the lived experiences of patients and those delivering care – they can be replicated across the country, says CEO Healthcare Excellence Canada, Dr. Jennifer Zelmer:
#medicare #healthcare #cdnpoli #patientpartner #caregiving
#medicare #healthcare #cdnpoli #patientpartner #caregiving
Hello @Bluesky! I left the other place that became disgusting, and I'm hoping to come here and build it all over again. I'd like to find #patientpartner #epatient community #patientpublicinvolvement #research #PPIR related topics. #letpatientshelp #codesign #collaboration #partnership #Healthcare.
October 29, 2023 at 8:45 PM
Hello @Bluesky! I left the other place that became disgusting, and I'm hoping to come here and build it all over again. I'd like to find #patientpartner #epatient community #patientpublicinvolvement #research #PPIR related topics. #letpatientshelp #codesign #collaboration #partnership #Healthcare.
In the classes I give ( #patientpartner ), I always explain to #HCPs how much their words matter: they can make our #patientjourney wonderful or horrible!
Thank you to those who make the effort - I can assure you that you are making a difference! ❤️
Thank you to those who make the effort - I can assure you that you are making a difference! ❤️
Is sharing our writing a thing here? 😊
Proud of this piece because it represents the work of so many trying to make medicine and communication better for our patients. #MedSky
www.mayoclinicproceedings.org/action/showP...
Proud of this piece because it represents the work of so many trying to make medicine and communication better for our patients. #MedSky
www.mayoclinicproceedings.org/action/showP...
November 19, 2024 at 8:02 PM
In the classes I give ( #patientpartner ), I always explain to #HCPs how much their words matter: they can make our #patientjourney wonderful or horrible!
Thank you to those who make the effort - I can assure you that you are making a difference! ❤️
Thank you to those who make the effort - I can assure you that you are making a difference! ❤️
This is a hot topic in #Switzerland. It's difficult to get proper contracts & ethical+sustainable remuneration. We #patientpartners #PPIR are trying very hard to get this recognised.
Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.
Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.
November 21, 2024 at 2:00 PM
This is a hot topic in #Switzerland. It's difficult to get proper contracts & ethical+sustainable remuneration. We #patientpartners #PPIR are trying very hard to get this recognised.
Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.
Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.
If you can, hop onto this session on the Library of #livedexperience. I had no idea this existed.
#bridgingresearchandaction
#patientpartner
event.fourwaves.com/bridgingrese...
#bridgingresearchandaction
#patientpartner
event.fourwaves.com/bridgingrese...
Bridging Research and Action
Fourwaves - Bridging Research and Action
event.fourwaves.com
May 16, 2025 at 5:31 PM
If you can, hop onto this session on the Library of #livedexperience. I had no idea this existed.
#bridgingresearchandaction
#patientpartner
event.fourwaves.com/bridgingrese...
#bridgingresearchandaction
#patientpartner
event.fourwaves.com/bridgingrese...
📢 CANTRAIN Launches a New International Initiative with EUPATI and MRCT Center and Joint Task Force for Clinical Trials Competency
Learn more about this new initiative: tinyurl.com/PatientEngag...
#PatientEngagement #PatientPartner #PatientPartnership
Learn more about this new initiative: tinyurl.com/PatientEngag...
#PatientEngagement #PatientPartner #PatientPartnership
March 19, 2025 at 9:13 PM
📢 CANTRAIN Launches a New International Initiative with EUPATI and MRCT Center and Joint Task Force for Clinical Trials Competency
Learn more about this new initiative: tinyurl.com/PatientEngag...
#PatientEngagement #PatientPartner #PatientPartnership
Learn more about this new initiative: tinyurl.com/PatientEngag...
#PatientEngagement #PatientPartner #PatientPartnership
I really appreciated this #PatientPartner framework by The Patient and Family-Centered Research (PFCR) program has focused on identifying projects within the Center for Learning Health System Sciences (CLHSS) research at University of Minnesota
June 8, 2025 at 3:59 PM
I really appreciated this #PatientPartner framework by The Patient and Family-Centered Research (PFCR) program has focused on identifying projects within the Center for Learning Health System Sciences (CLHSS) research at University of Minnesota
#patientpartner #epatient in Switzerland here! One of my mentors is #ePatientDave, and I graduated the Patient University of La Sorbonne.
I have a teaching and research #PPI position as patient partner in the health sciences faculty of Western Switzerland. 👋
I have a teaching and research #PPI position as patient partner in the health sciences faculty of Western Switzerland. 👋
November 17, 2024 at 8:46 AM
#patientpartner #epatient in Switzerland here! One of my mentors is #ePatientDave, and I graduated the Patient University of La Sorbonne.
I have a teaching and research #PPI position as patient partner in the health sciences faculty of Western Switzerland. 👋
I have a teaching and research #PPI position as patient partner in the health sciences faculty of Western Switzerland. 👋
OMG, YES!!! Just this morning, I was pep-talking my mentee #patientpartner who has to defend her work/intellectual contribution and be properly compensated for it.
It's just so disheartening! #PIs need to be taught the difficulties we deal w/, & it we shouldn't have to carry the economic risks!
It's just so disheartening! #PIs need to be taught the difficulties we deal w/, & it we shouldn't have to carry the economic risks!
November 21, 2024 at 2:29 PM
OMG, YES!!! Just this morning, I was pep-talking my mentee #patientpartner who has to defend her work/intellectual contribution and be properly compensated for it.
It's just so disheartening! #PIs need to be taught the difficulties we deal w/, & it we shouldn't have to carry the economic risks!
It's just so disheartening! #PIs need to be taught the difficulties we deal w/, & it we shouldn't have to carry the economic risks!
Thank you for sharing this fascinating paper! It really helps me in my #patientpartner #PPIR work! ☺️ Sharing with my network! 😉
November 20, 2024 at 6:11 AM
Thank you for sharing this fascinating paper! It really helps me in my #patientpartner #PPIR work! ☺️ Sharing with my network! 😉
Pleased to connect Christine. I'm a #patientadvocate #patientpartner based in Canada, working globally to ensure meaningful patient involvement at all levels. #kidneycancer #gucancers
November 18, 2024 at 8:49 PM
Pleased to connect Christine. I'm a #patientadvocate #patientpartner based in Canada, working globally to ensure meaningful patient involvement at all levels. #kidneycancer #gucancers
Hi! Thank you for this starter pack! I would love to join! 😊
I'm a #patientpartner, specialized in #PPI. I teach to applied science students in Western French-speaking Switzerland.
As a #patient I use #AI ( #patientsuseAI ) and as a teacher we train students to use AI with their future #patients.
I'm a #patientpartner, specialized in #PPI. I teach to applied science students in Western French-speaking Switzerland.
As a #patient I use #AI ( #patientsuseAI ) and as a teacher we train students to use AI with their future #patients.
November 21, 2024 at 4:36 PM
Hi! Thank you for this starter pack! I would love to join! 😊
I'm a #patientpartner, specialized in #PPI. I teach to applied science students in Western French-speaking Switzerland.
As a #patient I use #AI ( #patientsuseAI ) and as a teacher we train students to use AI with their future #patients.
I'm a #patientpartner, specialized in #PPI. I teach to applied science students in Western French-speaking Switzerland.
As a #patient I use #AI ( #patientsuseAI ) and as a teacher we train students to use AI with their future #patients.
Sometimes -we just need to sit down and think or rethink what exactly we are doing and where we are going... #life #patientpartner #evidence
November 21, 2024 at 7:34 PM
Sometimes -we just need to sit down and think or rethink what exactly we are doing and where we are going... #life #patientpartner #evidence