#patientsuseAI
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epatientdave.bsky.social
I'm thrilled to announce: I authored a four page article on #PatientsUseAI in Men's Health magazine, on newsstands now! It's GREAT to see patient empowerment in a well edited consumer magazine. Stories from the #PatientsUseAI Substack, and more!
patientsuseai.substack.com/p/patientsus...
#medsky
#PatientsUseAI is in Men's Health
We're mainstream! Stories from this blog make the national newsstand
patientsuseai.substack.com
January 7, 2025 at 7:42 PM
epatientdave.bsky.social
Guess where #PatientsUseAI showed up Saturday - the @wsj.com ! Here's our post:
open.substack.com/pub/patients...
#AISky #MedSky
@hugooc.bsky.social @gracecordovano.bsky.social
#PatientsUseAI makes the Wall St Journal
And other handy examples for our "Everyday Lives"
open.substack.com
November 25, 2024 at 5:42 PM
abrewi3010.bsky.social
This is a great thread about AI. #PatientsUseAi #ChronicPain
danamlewis.bsky.social Dana M. Lewis @danamlewis.bsky.social · Mar 3
One of the most powerful things you can do with AI: scale yourself.

Automate repetitive or tedious tasks and free up time for the things only YOU can do (or want to do).

Here’s how I think about it. 🧵👇
March 3, 2025 at 5:28 PM
drlouiseschaper.bsky.social
A little blue bird whispered that there’s a growing community of #digitalhealth peeps here. I hope so. I miss you guys.
#health #startup #clinician #medtwitter #patientsuseAI #entrepreneurship #innovation #healthIT #healthinformatics #medicalinformatics
November 14, 2024 at 3:34 PM
drlouiseschaper.bsky.social
If you’re in #digitalhealth, #AiMed or indeed #healthcare, then you’re going to want to follow #PatientsUseAI and the below three legends - ePatientDave, Grace Cordovano & Hugo Campos
November 25, 2024 at 7:29 PM
downing.bsky.social
We have to stop blaming patients.

This happens when people have no other way to get care - and predators see a way to exploit the situation.

The same is true for Facebook groups.

#patientsuseai #medsky #mLsky
#bcsm #lcsm #chronicillness
drsimpsonhsr.bsky.social Lisa Simpson MB BCh @drsimpsonhsr.bsky.social · Nov 27
O.M.G. How gullible do u need to be? Or is it desperate folks with no access to #healthcare? The # of latter folks will grow if feared changes to #Medicaid n #ACA subsidies occur in new administration.
November 27, 2024 at 4:36 PM
epatientdave.bsky.social
ChatGPT alone did better (LOTS better) than doctors USING ChatGPT. What does this mean for PATIENTS who use AI and bring the results TO the doctor??

It was a tiny study (n=50) but a bigger follow-up is underway. #PatientsUseAI

open.substack.com/pub/patients...
ChatGPT outperforms docs who *using* GPT: NYTimes. (Small study.)
Doctors *overruled* the AI if they disagreed with it. Will they overrule *patients* who use it?
open.substack.com
November 21, 2024 at 4:07 PM
epatientdave.bsky.social
4 pm ET today - Gilles Frydman, Hugo Campos and me on @boltyboy.bsky.social 's THCB Gang livestream podcast. It will be HOT. open.substack.com/pub/patients...
#MedSky
@gracecordovano.bsky.social @rasushrestha.bsky.social #PatientsUseAI
Patients use genAI to explore OUR questions. That's autonomy.
Video podcast today, livestream and archive, on THCB Gang.
open.substack.com
December 19, 2024 at 7:45 PM
handle.invalid
How might human-centered AI reduce costs, ease clinician burden, and improve the care experience for both patients and clinicians?

@chethan.bsky.social of OpenNotes and @brittanytrang.com of @statnews.com moderated panels at @cornelltech.bsky.social's Health Tech Summit.

#PatientsUseAI #Medsky
March 24, 2026 at 1:01 PM
handle.invalid
🚨It's time establish new standards for responsible and transparent use of AI in clinical documentation.

@cait-desroches.bsky.social spoke today about AI at Node Health's Digital Medicine Conference in NYC.

How do you see AI shaping the future of digital health?

#MedSky #PatientsUseAI
egallego.bsky.social Evelyn Gallego @egallego.bsky.social · Dec 10
Appreciate hearing Cait Des Roches from @myopennotes.bsky.social speak to the importance of co-designing AI solutions with patients and their caregivers. Great points discussed at the NODE.health Digital Health Conference in NYC around responsible AI.
December 10, 2024 at 4:44 PM
handle.invalid
How are patients using AI to improve their health outcomes?

@cait-desroches.bsky.social @danamlewis.bsky.social and @chethan.bsky.social presented new research at the SAIL conference on integrating AI into the clinic.

Read more: academic.oup.com/jamiaopen/ar...

#cansky #medsky #patientsuseAI
May 12, 2025 at 4:38 PM
jchi-ucsd.bsky.social

At our recent AI to Advance Patient Safety Summit, @mickytripathi.bsky.social of HHS shared how #AI is revolutionizing patient safety and #healthcare efficiency.

#PatientsUseAI

Watch⤵️
January 16, 2025 at 7:59 PM
janicemc.bsky.social
Article is more positive toward #PatientsUseAI than headline suggests. Yes, cautions about privacy & accuracy are important, but benefits make it worthwhile to learn how to use AI. Quotes @epatientdave.bsky.social & @thelizarmy.bsky.social
September 11, 2025 at 12:24 PM
epatientdave.bsky.social
Several of us #PatientsUseAI folks are super tickled by the idea of #OurNotes!

cc @gracecordovano.bsky.social @hugooc.bsky.social , @kosherfrog.bsky.social
Hugo Campos (@hugooc.bsky.social)
Research Partner #AllofUsResearch Program, Nutrition for Precision Health, #PCORI THRIVE Trial, #CardiacRhythm #HCM patient, #GenAI for Universal Health Equity.
HugoOC.Bsky.social
December 3, 2024 at 7:54 PM
participatorymed.bsky.social
Discussion of how AI transforms participatory medicine by giving patients new tools to understand medical research, manage personal health data, challenge institutional failures, and act with greater agency. #participatorymedicine #patientsuseAI
plutopia.io/patient-powe...
Patient Power in the Age of AI | Plutopia News Network
How AI transforms participatory medicine by giving patients new tools to understand medical research, manage personal health data, and act with greater agency.
plutopia.io
June 4, 2026 at 6:53 PM
boltyboy.bsky.social
PatientsUseAI: Hugo, Gilles and e-Patient Dave on the race to patient autonomy. @hugooc.bsky.social ocampos, @kosherfrog.bsky.social herfrog & @epatientdave.bsky.social tientDave join @boltyboy.bsky.social on a THCBGang Special on PatientAI. 1pm pt 4pm ET
thehealthcareblog.com/blog/2024/12...
PatientsUseAI: Hugo, Gilles and e-Patient Dave on the race to patient autonomy — THCB Gang Special Episode 149, Thursday December 19 – The Health Care Blog
thehealthcareblog.com
December 19, 2024 at 7:35 PM
epatientdave.bsky.social
New post on the #PatientsUseAI Substack, by Gilles Frydman (@kosherfrog.bsky.social), the pioneering #PatientEmpowerment guy who in 1995(!) created ACOR, which helped save my life.

Today he's *hugely* into generative AI for patients. Check it out! patientsuseai.substack.com/p/patientsus...
#PatientsUseAI: We seek collaboration, not control
AI’s potential to revolutionize healthcare dominates headlines and academic journals. But one critical voice is underrepresented: patients. By Gilles Frydman, pioneer (since the 1990s) of patient comm...
patientsuseai.substack.com
January 13, 2025 at 1:58 PM
epatientdave.bsky.social
A smart colleague called me over to Xitter to see an excellent thread about #PatientsUseAI. Really good stuff - lots of thoughts.

And then, as if by guarantee, in pops one of the resident demons I'd almost forgotten about. What a toilet.
December 9, 2024 at 8:58 PM
epatientdave.bsky.social
This book is superb. I have a LOT of thoughts about patient empowerment and restructuring the health system (to benefit both patients and docs), and I would have written this book, if I were able. But I don't have the skills of @crblease.bsky.social! open.substack.com/pub/patients...
To understand medicine's future you must read Dr. Bot
Charlotte Blease nails #PatientsUseAI in a beautifully composed work. Don't miss it.
open.substack.com
November 24, 2025 at 3:22 PM
abrewi3010.bsky.social
Need a break from the news and presidential court cases? If yes, please check out my site at www.alanbrewington.com. There I talk about my life as a #ChronicPain pt, #hiking, advocacy, and have posted a fair amount of my #photography. PS please #share. #medsky #PatientsUseAI
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
Explore the world of health, lifestyle, and more through the eyes of Alan Brewington. Join him on a journey of self-discovery, valuable insights, and expert perspectives on various topics. Discover in...
www.alanbrewington.com
January 10, 2025 at 6:20 PM
epatientdave.bsky.social
Woohoo! Fabulous episode!
#PatientsUseAI

Host Peters Lee and I had lots of laughs and deep thought, and Chrissy Farr is amazing - I knew that her insights come from her own experience as a patient and pediatric mom.
April 17, 2025 at 11:42 PM
abrewi3010.bsky.social
#AI can be overwhelming & we need to realize this. Select patient advocates get to go to the cool conferences/webinars to receive training with this new tech. Most patients just have to jump into AI without any training. Asking what could I do is a great start. Thanks Dana! #Medsky #PatientsUseAI
danamlewis.bsky.social Dana M. Lewis @danamlewis.bsky.social · Feb 6
What if you *could* do the things that you thought were impossible (or feel too hard, or you don't know where to get started)?

Speaking of overwhelming, what do you do if the pace of AI development feels rapid and you're not sure where to start? Or what to do?

Blog: bit.ly/3WPZYOl
Facing Uncertainty with AI and Rethinking What If You Could?
If you’re feeling overwhelmed by the rapid development of AI, you’re not alone. It’s moving fast, and for many people the uncertainty of the future (for any number of reasons) can feel scary. One reac...
bit.ly
February 6, 2025 at 6:47 PM
handle.invalid
Patients are increasingly using generative AI.

@hugoc.bsky.social and @thelizarmy.bsky.social introduce “Critical AI Health Literacy” as a new skill set for patients seeking agency and equity in the digital age of medicine.

Read more on @nam.edu: nam.edu/perspectives...

#PatientsUseAI #MedSky
January 6, 2026 at 2:03 PM
patientadvisors.bsky.social
Canada’s Drug Agency made AI the focus of its 2025 Watch List 🤖
PAN members @sandrashares.bsky.social @ctzenimprover.bsky.social @donnapp.bsky.social helped shape it—alongside other patient/caregiver partners.
📖 More via Pat Rich: bit.ly/3YxG1N7
#AI #PatientPartners #PatientsUseAI
Write this down — AI scribes essential for overall success of AI in health care: Can...
The use of AI scribes in health care is foundational for the successful implementation of other AI technologies to facilitate disease detection and diagnosis and optimize treatment. That was one ke…
bit.ly
April 15, 2025 at 1:40 PM
suissepatient.bsky.social
Great idea!

Hi! 👋 I'm into
#digitalhealth
#PatientsUseAI
#patientempowerment
#patientcommunities
#healthliteracy
#PPIR (patient and public involvement in research)
#BostonTerriers
#Foodie

Hrm... dumb question: we use hashtags here, right? 🤔
November 17, 2024 at 8:48 PM