@gil-bashe.bsky.social
writes about the importance of relationships vs transactions in #healthcare, underscoring the role of #participatorymedicine and #primarycare. This is what @S4PM is studying with CHAMP. participatorymedicine.org/champ/
writes about the importance of relationships vs transactions in #healthcare, underscoring the role of #participatorymedicine and #primarycare. This is what @S4PM is studying with CHAMP. participatorymedicine.org/champ/
March 2, 2026 at 1:31 PM
@gil-bashe.bsky.social
writes about the importance of relationships vs transactions in #healthcare, underscoring the role of #participatorymedicine and #primarycare. This is what @S4PM is studying with CHAMP. participatorymedicine.org/champ/
writes about the importance of relationships vs transactions in #healthcare, underscoring the role of #participatorymedicine and #primarycare. This is what @S4PM is studying with CHAMP. participatorymedicine.org/champ/
My dear Aussie friends, @georgemargelis.bsky.social & @drlouiseschaper.bsky.social, interviewed me for their podcast drds.us/4mCQa55. We discussed #epatients, #participatorymedicine, & my recent paper in @jmirpub.bsky.social J Participatory Medicine jopm.jmir.org/2025/1/e68911.
@s4pm.bsky.social
@s4pm.bsky.social
PODCAST: Dr Danny Sands and the evolved e-patient - Pulse+IT
‘E-patients’ has evolved to mean “engaged, equipped and empowered”, global patient advocate Dr Danny Sands says on the latest episode of PULSE the Podcast. And there is now a model of ‘information sym...
drds.us
July 29, 2025 at 5:17 PM
My dear Aussie friends, @georgemargelis.bsky.social & @drlouiseschaper.bsky.social, interviewed me for their podcast drds.us/4mCQa55. We discussed #epatients, #participatorymedicine, & my recent paper in @jmirpub.bsky.social J Participatory Medicine jopm.jmir.org/2025/1/e68911.
@s4pm.bsky.social
@s4pm.bsky.social
Racquel Dozier describes core elements of #participatorymedicine in her #patientjourney post. #Communication, #trust, #honesty, & active informed participation are right out of @participatorymed.bsky.social's Manifesto.
#S4PM #ParticipationIsTheBestMedicine
socialhealthnetwork.com/advocacy/pat...
#S4PM #ParticipationIsTheBestMedicine
socialhealthnetwork.com/advocacy/pat...
How Patient Partnership and Collaboration Lead to Better Care
A patient advocate and health leader shares how collaborating in partnership with her healthcare provider has led her to better health outcomes.
socialhealthnetwork.com
April 7, 2026 at 2:57 PM
Racquel Dozier describes core elements of #participatorymedicine in her #patientjourney post. #Communication, #trust, #honesty, & active informed participation are right out of @participatorymed.bsky.social's Manifesto.
#S4PM #ParticipationIsTheBestMedicine
socialhealthnetwork.com/advocacy/pat...
#S4PM #ParticipationIsTheBestMedicine
socialhealthnetwork.com/advocacy/pat...
Discussion of how AI transforms participatory medicine by giving patients new tools to understand medical research, manage personal health data, challenge institutional failures, and act with greater agency. #participatorymedicine #patientsuseAI
plutopia.io/patient-powe...
plutopia.io/patient-powe...
Patient Power in the Age of AI | Plutopia News Network
How AI transforms participatory medicine by giving patients new tools to understand medical research, manage personal health data, and act with greater agency.
plutopia.io
June 4, 2026 at 6:53 PM
Discussion of how AI transforms participatory medicine by giving patients new tools to understand medical research, manage personal health data, challenge institutional failures, and act with greater agency. #participatorymedicine #patientsuseAI
plutopia.io/patient-powe...
plutopia.io/patient-powe...
From #vaccine controversies and the ethics of #painmanagement to the rise of drug-resistant infections and the promise of #participatorymedicine, these documentaries provide context for complex #healthscience and policy issues through real human stories and clear-eyed science: conta.cc/45dRJju
January 23, 2026 at 3:50 PM
From #vaccine controversies and the ethics of #painmanagement to the rise of drug-resistant infections and the promise of #participatorymedicine, these documentaries provide context for complex #healthscience and policy issues through real human stories and clear-eyed science: conta.cc/45dRJju
@s4pm.bsky.social announces CHAMP: Collaborative Healthcare Activity Measurement Platform project, to move #participatorymedicine from evangelism to evidence.
#patients #survey #research
participatorymedicine.org/epatients/20...
#patients #survey #research
participatorymedicine.org/epatients/20...
Collaboration is the Best Medicine: The Time for Participatory Medicine is Now - SPM Blog
Editor’s Note: Kevin Freiert and Dan Halpren-Ruder, MD are part of a group working to launch an exciting new SPM inititative, described here. The Promise Participatory medicine promises […]
participatorymedicine.org
September 11, 2025 at 4:24 PM
@s4pm.bsky.social announces CHAMP: Collaborative Healthcare Activity Measurement Platform project, to move #participatorymedicine from evangelism to evidence.
#patients #survey #research
participatorymedicine.org/epatients/20...
#patients #survey #research
participatorymedicine.org/epatients/20...
“My first mistake was talking instead of listening. I should have slowed down. I should have given them the time and space to explain their thought process. I should have given myself the time to empathize with their perspective.”
@statnews.com #MedSky #ParticipatoryMedicine
buff.ly/WZ2dhj5
@statnews.com #MedSky #ParticipatoryMedicine
buff.ly/WZ2dhj5
What I got wrong 33 years ago as a new pediatrician talking to parents about vaccines
Thirty-three years ago, as a new pediatrician, RWJ CEO Richard Besser had a conversation about vaccines with two parents-to-be. It still sticks with him.
www.statnews.com
January 13, 2026 at 1:01 PM
“My first mistake was talking instead of listening. I should have slowed down. I should have given them the time and space to explain their thought process. I should have given myself the time to empathize with their perspective.”
@statnews.com #MedSky #ParticipatoryMedicine
buff.ly/WZ2dhj5
@statnews.com #MedSky #ParticipatoryMedicine
buff.ly/WZ2dhj5
Nurses play a critical role in connecting patients and providers. During COVID, nurses
were the ones who spoke with the families AND physicians.
#nursesareprofessional #MedSky #ParticipatoryMedicine #PatientEngagement #CollaborativeHealthcare #SPM
were the ones who spoke with the families AND physicians.
#nursesareprofessional #MedSky #ParticipatoryMedicine #PatientEngagement #CollaborativeHealthcare #SPM
December 15, 2025 at 1:01 PM
Nurses play a critical role in connecting patients and providers. During COVID, nurses
were the ones who spoke with the families AND physicians.
#nursesareprofessional #MedSky #ParticipatoryMedicine #PatientEngagement #CollaborativeHealthcare #SPM
were the ones who spoke with the families AND physicians.
#nursesareprofessional #MedSky #ParticipatoryMedicine #PatientEngagement #CollaborativeHealthcare #SPM
Have you heard the latest episode of Raising Rare yet?
@medsky.social #participatorymedicine @s4pm.bsky.social @globalgenes.bsky.social @everylifeorg.bsky.social #rarediseases #mentalhealth
www.raisingrare.fm/episodes/rar...
@medsky.social #participatorymedicine @s4pm.bsky.social @globalgenes.bsky.social @everylifeorg.bsky.social #rarediseases #mentalhealth
www.raisingrare.fm/episodes/rar...
Rare Men, Rare Wellness - David Hogan — Raising Rare
How do you tell whether a zebra is male or female? The male doesn’t’ talk about their #raredisease. This can be hard on them. There have been very few places for them to gather to take care of thei...
www.raisingrare.fm
December 10, 2025 at 2:40 PM
Have you heard the latest episode of Raising Rare yet?
@medsky.social #participatorymedicine @s4pm.bsky.social @globalgenes.bsky.social @everylifeorg.bsky.social #rarediseases #mentalhealth
www.raisingrare.fm/episodes/rar...
@medsky.social #participatorymedicine @s4pm.bsky.social @globalgenes.bsky.social @everylifeorg.bsky.social #rarediseases #mentalhealth
www.raisingrare.fm/episodes/rar...
Nurses are people you can talk to. Healthcare providers talk to them in medical terms.
Patients and families talk to them in practical terms. Nurses are critical to collaborative
healthcare…and they are good at it too!
#nursesareprofessional #ParticipatoryMedicine #PatientEngagement #MedSky
Patients and families talk to them in practical terms. Nurses are critical to collaborative
healthcare…and they are good at it too!
#nursesareprofessional #ParticipatoryMedicine #PatientEngagement #MedSky
December 22, 2025 at 2:02 PM
Nurses are people you can talk to. Healthcare providers talk to them in medical terms.
Patients and families talk to them in practical terms. Nurses are critical to collaborative
healthcare…and they are good at it too!
#nursesareprofessional #ParticipatoryMedicine #PatientEngagement #MedSky
Patients and families talk to them in practical terms. Nurses are critical to collaborative
healthcare…and they are good at it too!
#nursesareprofessional #ParticipatoryMedicine #PatientEngagement #MedSky
Society for Participatory Medicine is proud to announce the second in our series of Patient Journey conferences: The Amyloidosis Patient Journey. www.zeffy.com/en-US/ticket... #participatorymedicine #spm #amyloidosis
August 4, 2026 at 3:19 PM
Society for Participatory Medicine is proud to announce the second in our series of Patient Journey conferences: The Amyloidosis Patient Journey. www.zeffy.com/en-US/ticket... #participatorymedicine #spm #amyloidosis
Join us Mar 20 at The Multiple Sclerosis Patient Journey: From New Diagnosis to Engagement. Engage w #patients, #caregivers, #healthcare professionals, & others; learn importance of #participatorymedicine in MS. Keynotes @healthhats.bsky.social & Ursela Baber.
www.eventbrite.com/e/the-ms-pat...
www.eventbrite.com/e/the-ms-pat...
The MS Patient Journey: From New Diagnosis to Patient Engagement
Join this interactive conference to explore the MS diagnosis journey, with insights from patients, caregivers, and healthcare professionals.
www.eventbrite.com
February 16, 2025 at 8:49 PM
Join us Mar 20 at The Multiple Sclerosis Patient Journey: From New Diagnosis to Engagement. Engage w #patients, #caregivers, #healthcare professionals, & others; learn importance of #participatorymedicine in MS. Keynotes @healthhats.bsky.social & Ursela Baber.
www.eventbrite.com/e/the-ms-pat...
www.eventbrite.com/e/the-ms-pat...
Internet health information often shifted consultations toward negotiated partnership, grounded in mutual trust, respect, and shared decision-making. #eHealth #ParticipatoryMedicine #SharedDecisionMaking doi.org/10.2196/jmir...
https://doi.org/10.2196/jmir.3792
doi.org
September 19, 2026 at 8:36 AM
Internet health information often shifted consultations toward negotiated partnership, grounded in mutual trust, respect, and shared decision-making. #eHealth #ParticipatoryMedicine #SharedDecisionMaking doi.org/10.2196/jmir...
"The Architect of Trust: Dr Tom Ferguson’s Legacy" restores the history of the e-patient and highlights patient empowerment, participatory medicine, trust and access to health knowledge. #ePatients #PatientEmpowerment #ParticipatoryMedicine
jopm.jmir.org
September 4, 2026 at 8:36 AM
"The Architect of Trust: Dr Tom Ferguson’s Legacy" restores the history of the e-patient and highlights patient empowerment, participatory medicine, trust and access to health knowledge. #ePatients #PatientEmpowerment #ParticipatoryMedicine
Danny Sands, cofounder of the Society for Participatory Medicine, is a physician who fully intended to be a magician! #SPM #participatorymedicine
www.youtube.com/watch?v=QzA-...
www.youtube.com/watch?v=QzA-...
Episode 20: Dr. Danny Sands - The Magician, the Physician, and the Future of Participatory Medicine
YouTube video by North of Patient
www.youtube.com
July 23, 2026 at 11:25 PM
Danny Sands, cofounder of the Society for Participatory Medicine, is a physician who fully intended to be a magician! #SPM #participatorymedicine
www.youtube.com/watch?v=QzA-...
www.youtube.com/watch?v=QzA-...
Join @s4pm.bsky.social Mar 20 at The Multiple Sclerosis Patient Journey: From New Dx to Engagement. Engage w #patients, #caregivers, #healthcare pros, & others; learn importance of #participatorymedicine in MS. Keynotes
@healthhats.bsky.social & Ursela Baber.
www.eventbrite.com/e/the-ms-pat...
@healthhats.bsky.social & Ursela Baber.
www.eventbrite.com/e/the-ms-pat...
The MS Patient Journey: From New Diagnosis to Patient Engagement
Join this interactive conference to explore the MS diagnosis journey, with insights from patients, caregivers, and healthcare professionals.
www.eventbrite.com
February 16, 2025 at 8:51 PM
Join @s4pm.bsky.social Mar 20 at The Multiple Sclerosis Patient Journey: From New Dx to Engagement. Engage w #patients, #caregivers, #healthcare pros, & others; learn importance of #participatorymedicine in MS. Keynotes
@healthhats.bsky.social & Ursela Baber.
www.eventbrite.com/e/the-ms-pat...
@healthhats.bsky.social & Ursela Baber.
www.eventbrite.com/e/the-ms-pat...
🚨 #Webinar on Oct. 22 at 11 AM ET: Discover how digital health is redefining patient engagement in 'The e-Patient Evolution.'
Register: landingpage.jmirpublications.com/how-digital-...
#ePatient #DigitalHealth #ParticipatoryMedicine
Register: landingpage.jmirpublications.com/how-digital-...
#ePatient #DigitalHealth #ParticipatoryMedicine
October 21, 2025 at 2:05 PM
🚨 #Webinar on Oct. 22 at 11 AM ET: Discover how digital health is redefining patient engagement in 'The e-Patient Evolution.'
Register: landingpage.jmirpublications.com/how-digital-...
#ePatient #DigitalHealth #ParticipatoryMedicine
Register: landingpage.jmirpublications.com/how-digital-...
#ePatient #DigitalHealth #ParticipatoryMedicine
📣 #WEBINAR: Explore The #ePatient Evolution: How Digital Health is Redefining Patient Engagement
On October 22, learn how empowered patients are leveraging technology to improve their health outcomes.
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ParticipatoryMedicine
On October 22, learn how empowered patients are leveraging technology to improve their health outcomes.
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ParticipatoryMedicine
October 14, 2025 at 2:04 PM
📣 #WEBINAR: Explore The #ePatient Evolution: How Digital Health is Redefining Patient Engagement
On October 22, learn how empowered patients are leveraging technology to improve their health outcomes.
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ParticipatoryMedicine
On October 22, learn how empowered patients are leveraging technology to improve their health outcomes.
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ParticipatoryMedicine
#WEBINAR: Can the #ePatient movement truly revolutionize care? Join @S4PM speakers on Oct. 22 to explore integrating digital tools for self-care and better interactions with the healthcare system.
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ParticipatoryMedicine
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ParticipatoryMedicine
October 7, 2025 at 2:05 PM
#WEBINAR: Can the #ePatient movement truly revolutionize care? Join @S4PM speakers on Oct. 22 to explore integrating digital tools for self-care and better interactions with the healthcare system.
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ParticipatoryMedicine
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ParticipatoryMedicine
📢 #WEBINAR: How is digital health redefining patient engagement? Join @S4PM speakers on October 22 to discuss ‘The e-Patient Evolution’ and the future of healthcare.
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ePatient #ParticipatoryMedicine
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ePatient #ParticipatoryMedicine
September 30, 2025 at 2:02 PM
📢 #WEBINAR: How is digital health redefining patient engagement? Join @S4PM speakers on October 22 to discuss ‘The e-Patient Evolution’ and the future of healthcare.
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ePatient #ParticipatoryMedicine
Register: landingpage.jmirpublications.com/how-digital-...
#DigitalHealth #ePatient #ParticipatoryMedicine
So the other side of the argument comes from the engaged #patient perspective.
Maybe the risk is outweighed by the benefit for some patients (in uploading some #PHI into a #GenAI tool).
Reasonable minds may differ.
See bsky.app/profile/epat... by @epatientdave.bsky.social #participatorymedicine
Maybe the risk is outweighed by the benefit for some patients (in uploading some #PHI into a #GenAI tool).
Reasonable minds may differ.
See bsky.app/profile/epat... by @epatientdave.bsky.social #participatorymedicine
So, here we see that @TechCrunch has joined the ranks of paternalists who think they know my priorities better than I do.
Eat me, @techcrunch.com ... and have a peek at PatientsUseAI.substack.com
Btw have any of you ever been sick and wanted to understand what's going on?
Eat me, @techcrunch.com ... and have a peek at PatientsUseAI.substack.com
Btw have any of you ever been sick and wanted to understand what's going on?
November 20, 2024 at 9:42 PM
So the other side of the argument comes from the engaged #patient perspective.
Maybe the risk is outweighed by the benefit for some patients (in uploading some #PHI into a #GenAI tool).
Reasonable minds may differ.
See bsky.app/profile/epat... by @epatientdave.bsky.social #participatorymedicine
Maybe the risk is outweighed by the benefit for some patients (in uploading some #PHI into a #GenAI tool).
Reasonable minds may differ.
See bsky.app/profile/epat... by @epatientdave.bsky.social #participatorymedicine
#CHAMPindex #ParticipatoryMedicine #PatientEngagement #CollaborativeHealthcare #SPM #MedSky #PatientsUseAI #AskPatients #PatientExperience #PatientAdvocacy #PatientVoice #LivedExperience
I was thrilled to represent the Society for Participatory Medicine @s4pm.bsky.social at the December @everylifeorg.bsky.social Community Congress.
In return for some help with the travel costs, I wrote a short blog. Did you you know SPM offers travel awards to their members?
wp.me/p8S1TQ-61e
In return for some help with the travel costs, I wrote a short blog. Did you you know SPM offers travel awards to their members?
wp.me/p8S1TQ-61e
January 20, 2026 at 2:51 PM