@s4pm.bsky.social
@s4pm.bsky.social
• #PublicHealthInformatics
• #Epidemiology
• #PopulationHealth
• #HealthPolicy
Consumer Health Informatics
• #ePatients
• #PatientEngagement
• #PatientCenteredCare
• #HealthEquity
• #ConsumerHealthInformatics
• #HealthLiteracy
• #PatientExperience
• #HealthInformation
• #PublicHealthInformatics
• #Epidemiology
• #PopulationHealth
• #HealthPolicy
Consumer Health Informatics
• #ePatients
• #PatientEngagement
• #PatientCenteredCare
• #HealthEquity
• #ConsumerHealthInformatics
• #HealthLiteracy
• #PatientExperience
• #HealthInformation
"The point is not that science doesn’t matter (it does, very much) but that the path from lived experience to research to care can be bidirectional."
#PostCovid #PwME #PostCovid19 #CFS #epatient #epatients #chronicillness
"The point is not that science doesn’t matter (it does, very much) but that the path from lived experience to research to care can be bidirectional."
#PostCovid #PwME #PostCovid19 #CFS #epatient #epatients #chronicillness
#patients #survey #research
participatorymedicine.org/epatients/20...
#patients #survey #research
participatorymedicine.org/epatients/20...
"most patients research their own conditions. As physicians, we must accept that these patients may know more than we do about their condition."
doi.org/10.31486/toj...
Screenshot from latest Science for ME weekly update
#LongCovid #chronicillness #epatients #MEcfs
"most patients research their own conditions. As physicians, we must accept that these patients may know more than we do about their condition."
doi.org/10.31486/toj...
Screenshot from latest Science for ME weekly update
#LongCovid #chronicillness #epatients #MEcfs
S4PM Board member, Darlene Cunha explains the key role nurses and their training play.
participatorymedicine.org/epatients/20...
#MedSky
#nursesareprofessional
#nursing
#caritas
S4PM Board member, Darlene Cunha explains the key role nurses and their training play.
participatorymedicine.org/epatients/20...
#MedSky
#nursesareprofessional
#nursing
#caritas
CHAMP is not another patient satisfaction survey. Read our comparative analysis of patient experience scores. The bottom line, CHAMP is more than what you feel or want.
CHAMP is about behaviors.
Read more: participatorymedicine.org/epatients/20...
CHAMP is not another patient satisfaction survey. Read our comparative analysis of patient experience scores. The bottom line, CHAMP is more than what you feel or want.
CHAMP is about behaviors.
Read more: participatorymedicine.org/epatients/20...
@WomenHeartOrg @LisaWomenHeart @DrMarthaGulati
@WomenHeartOrg @LisaWomenHeart @DrMarthaGulati
This #WAAW I was grateful to share my story as Chair of the @who.int Task Force of #AMR Survivors
youtu.be/GUw6fRhwt3Y?...
#AntimicrobialResistance
participatorymedicine.org/epatients/20...
Im sure they know the research/theory since they are both so wunderfool
participatorymedicine.org/epatients/20...
Im sure they know the research/theory since they are both so wunderfool
participatorymedicine.org/epatients/20...
"It is simply no longer possible to believe much of the clinical research that is published, or to rely on the judgment of trusted physicians or authoritative medical guidelines"
"it’s not easy to find untainted experts anymore"
etc
participatorymedicine.org/epatients/20...
"It is simply no longer possible to believe much of the clinical research that is published, or to rely on the judgment of trusted physicians or authoritative medical guidelines"
"it’s not easy to find untainted experts anymore"
etc
Partnering with patients to develop the right tool ->
appropriate metric of physician-patient interaction
#Societyforparticipatorymedicine
participatorymedicine.org/epatients/20...
Partnering with patients to develop the right tool ->
appropriate metric of physician-patient interaction
#Societyforparticipatorymedicine
participatorymedicine.org/epatients/20...
makevisible.notion.site/Head-of-Desi...
makevisible.notion.site/Head-of-Desi...
ow.ly/dTIM7
ow.ly/dTIM7