Very Severe ME now has a SNOMED CT code, but still no specialist NHS pathway.
#SevereMErgency #VerySevereMErgency
#SevereMErgency #VerySevereMErgency
The MEA’s Healthcare 4 ME (H4ME) team are pleased to share an important step forward for people with very severe ME/CFS in the UK.
Following an application submitted in Jan 2026, we can confirm that a new SNOMED CT concept has now been approved & published.
Following an application submitted in Jan 2026, we can confirm that a new SNOMED CT concept has now been approved & published.
A Step Forward in Recognition: New ‘Very Severe ME/CFS’ SNOMED CT Code - The ME Association
The ME Association’s Healthcare 4 ME (H4ME) team are pleased […]
meassociation.org.uk
May 20, 2026 at 7:41 PM
Very Severe ME now has a SNOMED CT code, but still no specialist NHS pathway.
#SevereMErgency #VerySevereMErgency
#SevereMErgency #VerySevereMErgency
New SNOMED CT mapping supports emergency care data and reporting.
Developed by HPO and the SNOMED CT National Release Centre, it supports detailed clinical recording using SNOMED CT while meeting ICD-10-AM reporting and Activity-Based Funding requirements.
Read more: bit.ly/4y5qowg
Developed by HPO and the SNOMED CT National Release Centre, it supports detailed clinical recording using SNOMED CT while meeting ICD-10-AM reporting and Activity-Based Funding requirements.
Read more: bit.ly/4y5qowg
September 21, 2026 at 9:36 AM
New SNOMED CT mapping supports emergency care data and reporting.
Developed by HPO and the SNOMED CT National Release Centre, it supports detailed clinical recording using SNOMED CT while meeting ICD-10-AM reporting and Activity-Based Funding requirements.
Read more: bit.ly/4y5qowg
Developed by HPO and the SNOMED CT National Release Centre, it supports detailed clinical recording using SNOMED CT while meeting ICD-10-AM reporting and Activity-Based Funding requirements.
Read more: bit.ly/4y5qowg
From ME Research UK:
NHS Digital has introduced a SNOMED CT UK code for very severe ME/CFS. Until now, medical record codes existed only for ‘mild’, ‘moderate’, and ‘severe’ ME/CFS, but not ‘very severe’ ME/CFS. However, all still under "Chronic fatigue syndrome (disorder)"- tinyurl.com/y3wrh3ru
NHS Digital has introduced a SNOMED CT UK code for very severe ME/CFS. Until now, medical record codes existed only for ‘mild’, ‘moderate’, and ‘severe’ ME/CFS, but not ‘very severe’ ME/CFS. However, all still under "Chronic fatigue syndrome (disorder)"- tinyurl.com/y3wrh3ru
Very Severe ME recognised in SONMED CT UK Code
NHS Digital for England now features a SNOMED CT UK code for very severe ME/CFS. Until now, it included concepts for ‘mild’, ‘moderate’, and ‘severe’ ME/CFS, but not ‘very severe’ ME/CFS. SNOMED CT (S...
tinyurl.com
May 24, 2026 at 8:33 PM
From ME Research UK:
NHS Digital has introduced a SNOMED CT UK code for very severe ME/CFS. Until now, medical record codes existed only for ‘mild’, ‘moderate’, and ‘severe’ ME/CFS, but not ‘very severe’ ME/CFS. However, all still under "Chronic fatigue syndrome (disorder)"- tinyurl.com/y3wrh3ru
NHS Digital has introduced a SNOMED CT UK code for very severe ME/CFS. Until now, medical record codes existed only for ‘mild’, ‘moderate’, and ‘severe’ ME/CFS, but not ‘very severe’ ME/CFS. However, all still under "Chronic fatigue syndrome (disorder)"- tinyurl.com/y3wrh3ru
UK ME Association: A Step Forward in Recognition: New ‘Very Severe ME/CFS’ SNOMED CT Code
meassociation.org.uk/2026/05/a-st...
Screenshot from Science for ME weekly update
#MEcfs #PwME
meassociation.org.uk/2026/05/a-st...
Screenshot from Science for ME weekly update
#MEcfs #PwME
May 30, 2026 at 12:42 AM
UK ME Association: A Step Forward in Recognition: New ‘Very Severe ME/CFS’ SNOMED CT Code
meassociation.org.uk/2026/05/a-st...
Screenshot from Science for ME weekly update
#MEcfs #PwME
meassociation.org.uk/2026/05/a-st...
Screenshot from Science for ME weekly update
#MEcfs #PwME
The MEA’s Healthcare 4 ME (H4ME) team are pleased to share an important step forward for people with very severe ME/CFS in the UK.
Following an application submitted in Jan 2026, we can confirm that a new SNOMED CT concept has now been approved & published.
Following an application submitted in Jan 2026, we can confirm that a new SNOMED CT concept has now been approved & published.
A Step Forward in Recognition: New ‘Very Severe ME/CFS’ SNOMED CT Code - The ME Association
The ME Association’s Healthcare 4 ME (H4ME) team are pleased […]
meassociation.org.uk
May 20, 2026 at 2:19 PM
The MEA’s Healthcare 4 ME (H4ME) team are pleased to share an important step forward for people with very severe ME/CFS in the UK.
Following an application submitted in Jan 2026, we can confirm that a new SNOMED CT concept has now been approved & published.
Following an application submitted in Jan 2026, we can confirm that a new SNOMED CT concept has now been approved & published.
Bridging the gap between ICD-10 and SNOMED CT is key to unlocking better health data.
Our new tool makes mapping easier, more transparent, and scalable — helping researchers get more from clinical data.
👉Learn more: www.bennett.ox.ac.uk/blog/2026/04/icd-10-to-snomed-ct-mapping-tool/
Our new tool makes mapping easier, more transparent, and scalable — helping researchers get more from clinical data.
👉Learn more: www.bennett.ox.ac.uk/blog/2026/04/icd-10-to-snomed-ct-mapping-tool/
ICD-10 to SNOMED CT mapping tool | Bennett Institute for Applied Data Science
We’ve created a tool that could help with mapping of codelists from ICD-10 to SNOMED CT.
www.bennett.ox.ac.uk
April 16, 2026 at 11:17 AM
Bridging the gap between ICD-10 and SNOMED CT is key to unlocking better health data.
Our new tool makes mapping easier, more transparent, and scalable — helping researchers get more from clinical data.
👉Learn more: www.bennett.ox.ac.uk/blog/2026/04/icd-10-to-snomed-ct-mapping-tool/
Our new tool makes mapping easier, more transparent, and scalable — helping researchers get more from clinical data.
👉Learn more: www.bennett.ox.ac.uk/blog/2026/04/icd-10-to-snomed-ct-mapping-tool/
One week into Data Golf, our SNOMED CT analysis competition on Kaggle: 26 entrants, 31 submissions, 4 teams on the board.
Shane Byrnes leads on 0.916; Marcus Baw is at 0.872 after 25 entries.
Results at SNOMED CT Expo in October. Still time to enter:
www.kaggle.com/competitions...
Shane Byrnes leads on 0.916; Marcus Baw is at 0.872 after 25 entries.
Results at SNOMED CT Expo in October. Still time to enter:
www.kaggle.com/competitions...
www.kaggle.com
September 7, 2026 at 4:50 AM
One week into Data Golf, our SNOMED CT analysis competition on Kaggle: 26 entrants, 31 submissions, 4 teams on the board.
Shane Byrnes leads on 0.916; Marcus Baw is at 0.872 after 25 entries.
Results at SNOMED CT Expo in October. Still time to enter:
www.kaggle.com/competitions...
Shane Byrnes leads on 0.916; Marcus Baw is at 0.872 after 25 entries.
Results at SNOMED CT Expo in October. Still time to enter:
www.kaggle.com/competitions...
New approach tackles studying rare pediatric diseases! We developed an ontology-guided clustering framework using SNOMED CT to analyze proteomes from 1,140 children across 394 conditions - enabling meaningful insights even with tiny patient numbers!
www.embopress.org/doi/full/10....
www.embopress.org/doi/full/10....
Ontology-guided clustering enables proteomic analysis of rare pediatric disorders | EMBO Molecular Medicine
imageimageThis discovery-driven proteomics study of a pediatric population - including rare
diseases - introduces a SNOMED CT-guided clustering framework that enables analysis
across underpowered cond...
www.embopress.org
May 30, 2025 at 3:25 PM
New approach tackles studying rare pediatric diseases! We developed an ontology-guided clustering framework using SNOMED CT to analyze proteomes from 1,140 children across 394 conditions - enabling meaningful insights even with tiny patient numbers!
www.embopress.org/doi/full/10....
www.embopress.org/doi/full/10....
NHS Digital for England now features a SNOMED CT UK code for very severe ME/CFS. It is a contractual requirement for all NHS healthcare providers in England (not in Wales) to use SNOMED CT UK for capturing clinical terms, inc diagnoses, within electronic patient record systems
tinyurl.com/3wwz9xah
tinyurl.com/3wwz9xah
May 22, 2026 at 9:51 AM
NHS Digital for England now features a SNOMED CT UK code for very severe ME/CFS. It is a contractual requirement for all NHS healthcare providers in England (not in Wales) to use SNOMED CT UK for capturing clinical terms, inc diagnoses, within electronic patient record systems
tinyurl.com/3wwz9xah
tinyurl.com/3wwz9xah
Onko suomalaisen terveydenhuollon tietoarkkitehtuurin päätavoitteena parempi potilaan hoito vai tilastointi?
Tätä kysymme Marko Jalosen ja Mari Peltola-Nykyrin kanssa tuoreessa Tietotarjottimen Tiedonhallinnan blogissa. #Tietotarjotin #sote #AI #ICD-11 #SNOMED-CT
tietotarjotin.fi/puheenvuoro/...
Tätä kysymme Marko Jalosen ja Mari Peltola-Nykyrin kanssa tuoreessa Tietotarjottimen Tiedonhallinnan blogissa. #Tietotarjotin #sote #AI #ICD-11 #SNOMED-CT
tietotarjotin.fi/puheenvuoro/...
tietotarjotin.fi
November 27, 2025 at 11:21 AM
Onko suomalaisen terveydenhuollon tietoarkkitehtuurin päätavoitteena parempi potilaan hoito vai tilastointi?
Tätä kysymme Marko Jalosen ja Mari Peltola-Nykyrin kanssa tuoreessa Tietotarjottimen Tiedonhallinnan blogissa. #Tietotarjotin #sote #AI #ICD-11 #SNOMED-CT
tietotarjotin.fi/puheenvuoro/...
Tätä kysymme Marko Jalosen ja Mari Peltola-Nykyrin kanssa tuoreessa Tietotarjottimen Tiedonhallinnan blogissa. #Tietotarjotin #sote #AI #ICD-11 #SNOMED-CT
tietotarjotin.fi/puheenvuoro/...
UK @meassociation.org.uk News: New SNOMED CT (Systematized Nomenclature of Medicine Clinical Terms) code now recognizes "very severe" ME/CFS in the UK, filling a key gap in clinical records. meassociation.org.uk/9fcp
A Step Forward in Recognition: New ‘Very Severe ME/CFS’ SNOMED CT Code - The ME Association
The ME Association’s Healthcare 4 ME (H4ME) team are pleased […]
meassociation.org.uk
May 20, 2026 at 9:51 PM
UK @meassociation.org.uk News: New SNOMED CT (Systematized Nomenclature of Medicine Clinical Terms) code now recognizes "very severe" ME/CFS in the UK, filling a key gap in clinical records. meassociation.org.uk/9fcp
I am working on an Open Clinical Terminology - early days, but promising to have an alternative to #SNOMED-CT that is unencumbered by their restrictive proprietary licensing model which directly harms innovation, cripples open source tooling, and has slowed SNOMED's adoption.
openterminology.org
openterminology.org
openterminology.org
February 24, 2026 at 1:34 PM
I am working on an Open Clinical Terminology - early days, but promising to have an alternative to #SNOMED-CT that is unencumbered by their restrictive proprietary licensing model which directly harms innovation, cripples open source tooling, and has slowed SNOMED's adoption.
openterminology.org
openterminology.org
Fantastic news! This is a good fit.
See many of the #openEHR models in the Clinical Knowledge Manager at ckm.openehr.org using Snomed CT codes already.
See many of the #openEHR models in the Clinical Knowledge Manager at ckm.openehr.org using Snomed CT codes already.
March 6, 2025 at 8:29 PM
Fantastic news! This is a good fit.
See many of the #openEHR models in the Clinical Knowledge Manager at ckm.openehr.org using Snomed CT codes already.
See many of the #openEHR models in the Clinical Knowledge Manager at ckm.openehr.org using Snomed CT codes already.
No SNOMED-CT code for that. Not sure how I can record it in Epic...
April 22, 2026 at 8:09 AM
No SNOMED-CT code for that. Not sure how I can record it in Epic...
It always amazes me how SNOMED CT quickly implemented the research outcome of this project. The paper was published on August 23, and the implementation was reported in January 2024 by the company itself.
academic.oup.com/jamia/articl...
academic.oup.com/jamia/articl...
Evaluating the representation of disaster hazards in SNOMED CT: gaps and opportunities
AbstractObjective. Climate change, an underlying risk driver of natural disasters, threatens the environmental sustainability, planetary health, and sustai
academic.oup.com
January 15, 2025 at 5:34 AM
It always amazes me how SNOMED CT quickly implemented the research outcome of this project. The paper was published on August 23, and the implementation was reported in January 2024 by the company itself.
academic.oup.com/jamia/articl...
academic.oup.com/jamia/articl...
I'm pretty pleased with this. 8 days of intermittent work, with a clear vision of a simpler, faster, and less infuriatingly opaque set of tools for playing with SNOMED-CT in a local dev env.
github.com/pacharanero/...
github.com/pacharanero/...
April 4, 2026 at 9:45 PM
I'm pretty pleased with this. 8 days of intermittent work, with a clear vision of a simpler, faster, and less infuriatingly opaque set of tools for playing with SNOMED-CT in a local dev env.
github.com/pacharanero/...
github.com/pacharanero/...
SNOMED CT supports a shared clinical language for digital healthcare.
Our latest article looks at Irish examples from BreastCheck Ireland and the EuroHeart Registry, shared at SNOMED CT Expo 2025, and how clinical data standards support safer, more connected care.
Read more: bit.ly/44HVzRh
Our latest article looks at Irish examples from BreastCheck Ireland and the EuroHeart Registry, shared at SNOMED CT Expo 2025, and how clinical data standards support safer, more connected care.
Read more: bit.ly/44HVzRh
July 20, 2026 at 1:02 PM
SNOMED CT supports a shared clinical language for digital healthcare.
Our latest article looks at Irish examples from BreastCheck Ireland and the EuroHeart Registry, shared at SNOMED CT Expo 2025, and how clinical data standards support safer, more connected care.
Read more: bit.ly/44HVzRh
Our latest article looks at Irish examples from BreastCheck Ireland and the EuroHeart Registry, shared at SNOMED CT Expo 2025, and how clinical data standards support safer, more connected care.
Read more: bit.ly/44HVzRh
Is this related / maybe give a route to finding the regulation?
It mandates and gives dates.
standards.nhs.uk/published-st...
It mandates and gives dates.
standards.nhs.uk/published-st...
June 16, 2026 at 7:22 PM
Is this related / maybe give a route to finding the regulation?
It mandates and gives dates.
standards.nhs.uk/published-st...
It mandates and gives dates.
standards.nhs.uk/published-st...
Clinical NLP gets tricky fast, especially with rare concepts. This benchmark tests how well models can turn clinical notes into structured SNOMED CT data using the largest public dataset of labeled clinical notes out there.
Take a look: www.drivendata.org/benchmarks/3...
Take a look: www.drivendata.org/benchmarks/3...
SNOMED CT Entity Linking Benchmark
A benchmark for linking text in medical notes to entities in SNOMED Clinical Taxonomy.
www.drivendata.org
September 15, 2026 at 7:30 PM
Clinical NLP gets tricky fast, especially with rare concepts. This benchmark tests how well models can turn clinical notes into structured SNOMED CT data using the largest public dataset of labeled clinical notes out there.
Take a look: www.drivendata.org/benchmarks/3...
Take a look: www.drivendata.org/benchmarks/3...
6) The authors used the Montefore Health System electronic records which offered a large sample size of 36,076 COVID+ and 111,301 COVID- participants. The authors used SNOMED CT codes for Chronic fatigue syndrome (52702003) and Postviral fatigue syndrome (51771007).
July 24, 2025 at 1:59 PM
6) The authors used the Montefore Health System electronic records which offered a large sample size of 36,076 COVID+ and 111,301 COVID- participants. The authors used SNOMED CT codes for Chronic fatigue syndrome (52702003) and Postviral fatigue syndrome (51771007).
Merit Marquis et al. developed a method for semantic interoperability in #radiology using management tool TermX, resulting in a revised RadLex model using SNOMED CT.
April 17, 2025 at 9:02 AM
Merit Marquis et al. developed a method for semantic interoperability in #radiology using management tool TermX, resulting in a revised RadLex model using SNOMED CT.
The R port of fhir-tx-encoder is out: turn SNOMED CT codes into ML features via a FHIR terminology server. Multi-hot sparse matrix, subsumption ancestors, a tidymodels recipes step, same output as the Python lib.
github.com/aehrc/fhir-t...
github.com/aehrc/fhir-t...
GitHub - aehrc/fhir-tx-encoder: A tool for encoding FHIR terminology concepts for machine learning applications.
A tool for encoding FHIR terminology concepts for machine learning applications. - aehrc/fhir-tx-encoder
github.com
September 21, 2026 at 10:13 PM
The R port of fhir-tx-encoder is out: turn SNOMED CT codes into ML features via a FHIR terminology server. Multi-hot sparse matrix, subsumption ancestors, a tidymodels recipes step, same output as the Python lib.
github.com/aehrc/fhir-t...
github.com/aehrc/fhir-t...
EU & HPRA (hpra.ie) medications are now represented through iEHR.ai FHIR Terminology service, alongside international terminologies such as SNOMED CT, ICD, and LOINC.
Terminology Service: www.iehr.ai/docs/platfor...
Ireland FHIR IG: www.iehr.ai/fhir/ie/core
#HealthIT #Interoperability #FHIR
Terminology Service: www.iehr.ai/docs/platfor...
Ireland FHIR IG: www.iehr.ai/fhir/ie/core
#HealthIT #Interoperability #FHIR
May 5, 2025 at 2:07 PM
EU & HPRA (hpra.ie) medications are now represented through iEHR.ai FHIR Terminology service, alongside international terminologies such as SNOMED CT, ICD, and LOINC.
Terminology Service: www.iehr.ai/docs/platfor...
Ireland FHIR IG: www.iehr.ai/fhir/ie/core
#HealthIT #Interoperability #FHIR
Terminology Service: www.iehr.ai/docs/platfor...
Ireland FHIR IG: www.iehr.ai/fhir/ie/core
#HealthIT #Interoperability #FHIR