#ShortBowelSyndrome
LightNews LightNews
danieljdrucker.bsky.social
A new comprehensive review of the proglucagon-derived peptides #disbetes #obesity #shortbowelsyndrome journals.physiology.org/doi/abs/10.1...
July 29, 2025 at 12:38 AM
danieljdrucker.bsky.social
An infant with residual small bowel length of 9 cm and #shortbowelsyndrome received teduglutide for 6 years, resulting in complete discontinuation of parenteral nutrition. Regenerative medicine via GLP-2 therapy aspenjournals.onlinelibrary.wiley.com/doi/10.1002/...
August 31, 2025 at 4:28 PM
achronicvoice.com
" #Music is the universal language. Everyone can speak it. Even if you don’t like their specific type of music there IS common ground. There ARE ways of relating & achieving the goal.": buff.ly/vMOGbvK

#musician #ShortBowelSyndrome #ChronicIllness #spoonie
“It's in My Blood”: Roy George — A Dramatic Life with a Short Bowel
In the “It's in My Blood” series, Roy George shares his love for music, theatre, basketball, and advocating for short bowel syndrome.
buff.ly
January 11, 2026 at 3:30 PM
achronicvoice.com
" #Theatre saved a lot of kids I teach – it saved their lives. It allowed them to come and be a part of a #community they weren’t bullied in. Something they found they were good at and could contribute to.": buff.ly/HfErhFp

Featuring: roysamuelgeorge
#bullying #MentalHealth #ShortBowelSyndrome
“It’s in My Blood”: Roy George — A Dramatic Life with a Short Bowel. Read on: A Chronic Voice .com
May 23, 2026 at 3:30 PM
achronicvoice.com
"We have so many #celebrities that speak up for cancer & other #ChronicIllnesses, but it’s RARE that you’ll find a celebrity who wants to speak abt bowel function or lack thereof. I hv nothing to lose so why not help people?": buff.ly/HfErhFp

Featuring: roysamuelgeorge
#ShortBowelSyndrome #spoonie
“It’s in My Blood”: Roy George — A Dramatic Life with a Short Bowel. Read on: A Chronic Voice .com
July 18, 2026 at 7:30 AM
achronicvoice.com
"Jenny shares key insights she's learned over the last year after losing her mama. LifesAPolyp explores daily life with #ChronicIllness caused by two rare diseases - #FamilialAdenomatousPolyposis and #ShortBowelSyndrome.": buff.ly/oDCzGMm

#RareDisease #grief
Lessons in Grief
Jenny shares key insights she's learned over the last year after losing her mama.Life's a Polyp explores daily life with chronic illness caused by two rare d...
buff.ly
May 3, 2025 at 9:30 AM
sharonjohnston.bsky.social
Financial support for #ShortBowelSyndrome patients.
👇
rarediseases.org/rare-disease...
December 29, 2024 at 1:14 PM
homamba.bsky.social
Merry Christmas from Nate the Great #DownSyndrome #Theluckyfew #Shortbowelsyndrome #merrychristmas #bluesky
December 13, 2024 at 10:14 PM
globalcastmd.bsky.social
New article you should know by
“Outcomes of #Children With #ShortBowelSyndrome” by Tsang et al.
Full text: tinyurl.pulse.ly/cf1xmlk2uy
#SoMe4PedSurg #pedsurg #multidisciplinary #intestinalrehab
#jpedsurg #MedEd #FOAMed

Made possible by
@cincychildrens.bsky.social
March 20, 2025 at 4:51 PM
aiinmeditech.bsky.social
Our latest KOL Perception Study explores how experts across the US and Europe view the evolving Short Bowel Syndrome (SBS/SBS-IF) treatment landscape.

Read more: www.sperresearch.com/Case-Studies...

#ShortBowelSyndrome #SBS #RareDisease #KOLInsights #Pharma #Healthcare #LifeSciences
June 19, 2026 at 6:26 AM
espghansociety.bsky.social
Join our open access course “Short Bowel Syndrome: Managing Nutrition and Care in Paediatric Patients”.

See what our learners had to say 📊 The feedback says it all! Register now: ow.ly/sAvY50WF6z1

#Paediatric #ESPGHAN #Nutrition #GI #Learning #ChildHealthcare #ShortBowelSyndrome
August 13, 2025 at 2:00 PM
danieljdrucker.bsky.social
In 104 teduglutide-treated children with #shortbowelsyndrome a clinical response was detected in 70% and.complete weaning from parenteral nutrition was achieved in 22% www.thelancet.com/journals/ecl...
Predictors of response and enteral autonomy in children with short bowel syndrome treated with teduglutide: a real-life multicentre cohort study
In children with SBS, longer residual small bowel, better nutritional status and absence of liver disease were associated with response to teduglutide. Complete PN weaning was predicted by lower calor...
www.thelancet.com
July 27, 2025 at 9:57 AM
sharonjohnston.bsky.social
This test was taken the night I went to the ER. I just noticed it. Having only 10% remaining intestinal tract, means if I don’t drink at least 2gal of fluid a day, this happens. Catching a mild flu, that has me sleeping for 2 days, & not drinking enough, can actually kill me.

#ShortBowelSyndrome
May 18, 2025 at 4:52 AM
pharmaphorum.bsky.social
NEWS: Shares in #IronwoodPharmaceuticals fell by a third after it revealed that the FDA is insisting on a new phase 3 trial of its #shortbowelsyndrome therapy before it can consider approval.

pharmaphorum.com/news/ironwoo...
Ironwood crashes down as FDA seeks new phase 3 trial
Shares in Ironwood fell by a third after it revealed the FDA is insisting on a new phase 3 trial of its short bowel syndrome therapy apraglutide.
pharmaphorum.com
April 15, 2025 at 1:24 PM
buttahflyk.bsky.social
The writers in Kaleidoscope #RareDisease Stories show strength, courage, creativity, &, even through fear, hope.
~🦋
https://a.co/d/3HxjJ6P
Proceeds donated to NORD
#CREST #sarcoidosis #FAP #ShortBowelSyndrome #TurnerSyndrome #PustularPsoriasis
#ChronicIllness #Rare #SpoonieSky #ZebraStrong
I have learned a lot of coping skills and developed a lot of tools to manage not only to survive but thrive as a rare disease patient Jim Kuhn CREST Syndrome, Sarcoidosis Finding my voice guided me to finding my rare disease community Jenny Jones Familiar Adenomatous Polypsosis, Short Bowel Syndrome As challenging and painful as my journey has been, I've become stronger, wiser, and more self-aware because of it. Jessica Fraccalvieri Turner Syndrome My advice to anyone struggling with autoimmune or Autoinflammatory diseases is to not give up. Although I live with these health concerns, I stay optimistic for better treatment. Jenni Weaver Pustular Psoriasis
February 20, 2025 at 5:43 PM
laparoscopy.bsky.social
www.laparoscopyhospital.com

Short Bowel Syndrome (SBS) | Causes, Symptoms, Diagnosis, Nutrition & Surgical Management

#ShortBowelSyndrome #SBS #IntestinalFailure #GastrointestinalSurgery #ColorectalSurgery #LaparoscopicSurgery #WorldLaparoscopyHospital #DrRKMishra
August 21, 2026 at 8:13 AM
med-iq.bsky.social
August is #ShortBowelSyndrome Awareness Month. Learning about #SBS helps you better understand the challenges faced by those living with this digestive condition and support #SBSAwareness in your family and community.

Join the Instagram Live on September 21 from 8-8:30 PM ET to learn about SBS.
Celebrating short bowel syndrome awareness month
August 21, 2026 at 2:23 PM
aga-cmgh.bsky.social
Check out the Editor's Essential Reading ⭐ "Enteral Feeding With Omega-3 Polyunsaturated Fatty Acids Mitigates Liver Injury Following Massive Intestinal Resection" ⭐
🔗 https://ow.ly/zAPM50Zo1IR
🏷️ #EditorsEssentialReading #ShortBowelSyndrome
July 16, 2026 at 12:01 PM
angryduck78.bsky.social
That feeling when you're very pleased with what your severely limited bowel has achieved today. #shortbowelsyndrome
February 14, 2025 at 4:22 PM
angryduck78.bsky.social
I wish digestive system version 3.0 came with some kind of user manual or troubleshooting guide. #shortbowelsyndrome
May 24, 2024 at 4:23 AM
danieljdrucker.bsky.social
Teduglutide and #shortbowelsyndrome #intestinalfailure in the real world. Treatment at specialized
centers associates with better outcomes www.clinicalnutritionjournal.com/article/S026...
Real-world experience of Teduglutide use in adults with short bowel syndrome: A seven-year international multicenter survey
Teduglutide is a glucagon-like peptide-2 analogue used to promote intestinal rehabilitation and decrease the dependence from intravenous supplementation (IVS) in patients with short bowel syndrome and...
www.clinicalnutritionjournal.com
February 24, 2025 at 11:41 AM
jacksdavie.bsky.social
I have #IBD related inflammation which can't be treated or operated on, all down to complications of previous surgery and #ShortBowelSyndrome. Feel like my body is giving me the middle finger when I had been finally feeling more positive. /3
December 18, 2024 at 3:34 AM