#ZebraStrong
LightNews LightNews
gemmagould.bsky.social
This 👇
#ZebraStrong #MakeMayMatter #EDSAwareness
May 6, 2026 at 7:20 AM
zebrabande.bsky.social
Von mir abverlangt haben....

#EhlersDanlosSyndrom #hEDS #SFN #SmallFiberNeuropathie #Motilitätsstörung #Gastroparese #slowTransitConstipatiom #Piccline #SelteneErkrankung #rareDisease #TagDerSeltenenErkrankungen #SeltenSindViele #ZebraStrong
#kptbs #dis #dissoziativeIdentitätsstörung #mcas
February 28, 2026 at 8:18 PM
zebrabande.bsky.social
Liebe #EhlersDanlosBubble einr andere Betroffene könnte ein bisschen Bestätigung und gerne auch einen Ratschlag brauchen 🌸
#ZebraStrong #hEDS
roula.bsky.social Roula @roula.bsky.social · Apr 10
#hEDS

Gibt es hier noch andere mit der Diagnose hEDS, die auch so unter chronischen Schmerzen leiden?
Ich habe von diesem Genfehler erst durch
@zebrabande.bsky.social
erfahren und bräuchte gerade etwas Bestätigung von anderen Betroffenen im Bezug auf meine Medikamente.
Gerne rt, danke!
April 10, 2025 at 8:32 AM
zebrabande.bsky.social
#SelteneErkrankung #SeltenSindViele #ZebraStrong #ColorUp4rare
#EhlersDanlosSyndrom #hEDS #Neuropathie #SlowTransitConstipation #SmallFiberNeuropathie #SFN #Gastroparese #Dysphagie #MCAS #Dysautonomie #Mastzellaktivierungssyndrom
February 28, 2025 at 11:31 PM
gemmagould.bsky.social
As someone who lives with EDS Type 3, also known as Hypermobile EDS (hEDS), the more awareness the better. We aren't just a little bit bendy, we aren't just a bit double-jointed.
If you hear hooves, think zebras #ZebraStrong #Dazzle #MakeMayMatter
May 6, 2026 at 7:08 AM
nyxcrysis.bsky.social
Cool visual picture I edited and took last year! Just aesthetic and I love it! 💜 #aesthetic #visualart #zebrastrong #altmodel #fashionmodel
February 18, 2025 at 2:52 AM
zebrabande.bsky.social
#ChronischKrank #RareDisease #SelteneErkrankung #ZebraStrong
#Neuropathie
February 5, 2025 at 2:09 PM
sparklearts.bsky.social
I have Ehlers Danlos Syndrome and it sucks, so I made pretty art 🦓

#eds #ehlersdanlos #zebra #zebrastrong #arr #tattooart
A zebra with a banner saying zebra strong in a tattoo flash style by SparkleArts
November 28, 2024 at 12:12 AM
zebrabande.bsky.social
Ausbildung mit mir absolvieren wird.
Darauf freue ich mich schon sehr 🥰

Solltet ihr fragen haben, gerne jederzeit fragen.

#EhlersdanlosSyndrome #MyEDSChallenge #myHSDChallenge #ZebraStrong #EhlersDanlosAwareness #hEDS #TogetherWeDazzle #SelteneErkrankung #rareDisease #neuropathie #chronischkrank
May 13, 2025 at 12:12 PM
hannemiriam.bsky.social
January 31st is International Ehlers Danlos Syndrome Day 🙌🏾
#hEDS #YouMatter #ShoutOut #ehlersdanlossyndrome #ChronicPain #ChronicIllness #Disability #ZebraStrong #UndskyldViErHer
January 31, 2025 at 6:42 AM
zebrabande.bsky.social
#kptbs #dis #Trauma #dissoziativeIdentitätsstörung
#unsichtbar #ZebraStrong
January 17, 2026 at 7:55 PM
rtrn2tiffnco.bsky.social
#chronicfatigue #ovariancysttiktok #autoimmunedisease #autoimmunedisorder #zebrastrong #pain #adenomyosis #hysterectomy #hysterectomysurgery #mcas #eds #heds #hypermobile #hypermobileehlersdanlossyndrome #stage5endometriosis #radicalhysterectomy #cancer #spoonies #endometriosis #cervicalcancer
January 1, 2025 at 6:04 PM
zebrabande.bsky.social
Bringt
#Punktehund #Assistenhund #MentalHealth #notJustSad #kptbs #dis #dissoziativeIdentitätsstörung #selteneErkrankung #rareDisease #EhlersDanlosSyndrom #hEDS #MCAS #smallfiber #ChronischKrank #KleineSchrtte #Unsichtbar #ZebraStrong
May 27, 2025 at 10:30 PM
zebrabande.bsky.social
Auch in Zukunft ein Leben voller #SonnenscheinMomente führen zu können

#EhlersDanlosysyndrom #hEDS #Fatigue #Dysautonomie #MCAS #Neuropathie #MyEDSChallenge #ZebraStrong #SeltenSindViele #pots #notJustSad #JetPeg #Piccline #SelteneErkrankung #rareDisease #chronischKrank #Awareness
May 16, 2025 at 9:26 PM
sparklearts.bsky.social
YESSS!! Another zebra!!! This one really reminds me of my pony Moo 🤭🦓💖🦓 thank you Kevin!

#edsawarenessmonth #zebrastrong #eds
kevinragland.bsky.social Kevin Ragland @kevinragland.bsky.social · May 2
A drawing I made of a Zebra and Tim Gravy for my friend, @sparklearts.bsky.social and EDS awareness month.
❤️🦓❤️
#ZebraStrongArt #EDSAwarenessMonth
May 2, 2025 at 11:01 PM
silvernsass.bsky.social
IYKYK
Follow back fellow Zebras.
#zebrastrong #EhlersDanlosSyndrome
December 7, 2024 at 3:03 PM
zebrabande.bsky.social
Verkürzte Lebenserwartung besteht.
So sind sie auf besonders viel Rückhalt und Awareness angewiesen

Der #Punktehund und ich schicken daher allen #vEDS Betroffenen heute liebe Grüße 🌞.

#myEDSChallenge #hEDS #EhlersDanlosSyndrome #ZebraStrong #SelteneErkrankung #rareDisease #seltenSindViele
May 16, 2025 at 9:51 PM
whatspoppineds.bsky.social
This has to be my top fave meme I've made to date 😂

#thegoodplace #ehlersdanlos #eds #edsmene #EDSer #zebrastrong
Image description: A two panel image shows a character, Michael, from the Good Place. He appears to be speaking quite emphatically. Captions read, "You're about as useful as my connective tissue. It's an EDSer insult. It's devastating. You're devastated right now." End image description
November 19, 2024 at 12:09 AM
paintedzebra.bsky.social
Zebra Strong! 💪🦓
This painting sketch was done to raise awareness of Rare Disease fighters.
Medium: Ink and Watercolor
#artist #art #watercolorartist #watercolorart #inkandwatercolor #ink #inkart #zebrastrong #rarediseaseawareness
June 1, 2025 at 1:59 PM
merula.bsky.social
Ich bin jetzt offiziell auch ein autistisches 🦓. Und das unten zitierte beschreibt ziemlich genau wie ich zu diesen Diagnosen stehe. #hEDS #ehlersdanlos #autistic #chronicill #zebrastrong #maskup #teamvorsicht
October 31, 2025 at 11:44 AM
samluegger.bsky.social
Today is International Day of the Zebra for not only the animal but also for Medical Zebras. 🦓🩵 Learn more at @thezebraalliance.bsky.social and
@ehlersdanlos.bsky.social

#EDS #HSD #ehlersdanlossyndrome #zebrastrong
January 31, 2025 at 5:37 PM
mariannequilez.bsky.social
✨ You’re allowed to take up space in your care.
To ask questions. To advocate for yourself.
Your care should include your voice. 💛

#ChronicIllness #SpeakUpToolkit #Spoonie #InvisibleIllness #Hypermobile #EDS #POTS #MCAS #ChronicPain #MedicalGaslighting #MTHFR #MarianneQuilez #zebrastrong
July 2, 2025 at 10:50 PM
mariannequilez.bsky.social
Hi, I'm Marianne 😊 After years of dismissive care, I’m building tools to help patients speak up, feel prepared, and be heard. We deserve better.

#EDS #MTHFR #PatientAdvocate #spoonie #heds #zebrastrong #medicalgaslighting #speakuptoolkit #chronicillnesswarrior #ehlersdanlossyndrome #hypermobility
June 5, 2025 at 10:02 PM
krakenviara.bsky.social
FUCKING. THIS.

People don't fake this shit. They accept these shitty diagnoses because nothing else fits. And they deal with it. And try to make the best of it.

#disabled #actuallydisabled #disability #invisibledisability #eds #heds #zebrastrong #fibromyalgia #pots
Screenshot of a tumblr post by byjove. It reads: nobody is faking POTS, fibromyalgia or ME/CFS for attention because nobody gives a fuck if you have POTS, fibromyalgia or ME/CFS. these are three conditions people are always accused of faking online (largely because they’re common chronic illnesses and young women are disproportionately effected by them 😃) and it’s like…..look around bitch. when was the last time you saw a fund for a cure CFS walkathon? you ever see a Google banner for fibromyalgia? these are illnesses that suck to have and that you are often treated like absolute dogshit by the medical community and pop culture at large if you do have them. you don’t get positive attention, or any attention at all, if you’re at home laying down 85% of your life. There are 8,056 reshares and 12,657 hearts
December 11, 2025 at 5:13 AM
zebrabande.bsky.social
Auch das ist Teil einer seltenen Erkrankung.
Leider.

#SelteneErkrankung #RareDisease #RareDiseaseDay #TagDerSeltenenErkranung #SeltenSindViele #ZebraStrong #hEDS #EhlersDanlosSyndrom #MCAS #Gastroparese #SlowTransitConstipation #SmallFiberNeuropathie #SFN #Endometriose #ADHS #DIS #Autismus #PTBS
March 1, 2025 at 10:12 PM