When someone tells me to behave like a "good sick person".
#EDSAWARENESSMONTH #disabled #mobilityaids #EDS #hEDS #crainalinstability
#EDSAWARENESSMONTH #disabled #mobilityaids #EDS #hEDS #crainalinstability
May 17, 2026 at 12:56 AM
When someone tells me to behave like a "good sick person".
#EDSAWARENESSMONTH #disabled #mobilityaids #EDS #hEDS #crainalinstability
#EDSAWARENESSMONTH #disabled #mobilityaids #EDS #hEDS #crainalinstability
Made myself a new zebra PNG for #EDSAwarenessMonth and I love it 🤣🤣
Catch me live on Twitch most Tuesdays, Wednesdays, Thursdays and Sundays!
Twitch.tv/deviant_nails_
#vtuber #twitch #edsawarenessmonth #hsdawarenessmonth @ehlersdanlos.bsky.social
Catch me live on Twitch most Tuesdays, Wednesdays, Thursdays and Sundays!
Twitch.tv/deviant_nails_
#vtuber #twitch #edsawarenessmonth #hsdawarenessmonth @ehlersdanlos.bsky.social
May 16, 2026 at 5:33 AM
Made myself a new zebra PNG for #EDSAwarenessMonth and I love it 🤣🤣
Catch me live on Twitch most Tuesdays, Wednesdays, Thursdays and Sundays!
Twitch.tv/deviant_nails_
#vtuber #twitch #edsawarenessmonth #hsdawarenessmonth @ehlersdanlos.bsky.social
Catch me live on Twitch most Tuesdays, Wednesdays, Thursdays and Sundays!
Twitch.tv/deviant_nails_
#vtuber #twitch #edsawarenessmonth #hsdawarenessmonth @ehlersdanlos.bsky.social
Moving Mountains is published in Canada today! You can now support disabled nature writers and buy Canadian [from a wonderful Canadian indie bookstore] at the same time 😜 #NatureWriting #DisabledWriters #DisabilityWrites #TheChronicLife #BookSky #EDSAwarenessMonth
Happy Publication Day CANADA!
It was great to speak to fellow bendy writer Alyssa Graybeal recently about MOVING MOUNTAINS.
Read my interview in full
[also read Floppy - &link in the post to last year's event with @pollyrowena.bsky.social & @beewyld.bsky.social]
open.substack.com/pub/alyssagr...
It was great to speak to fellow bendy writer Alyssa Graybeal recently about MOVING MOUNTAINS.
Read my interview in full
[also read Floppy - &link in the post to last year's event with @pollyrowena.bsky.social & @beewyld.bsky.social]
open.substack.com/pub/alyssagr...
An Interview with Louise Kenward
"Everything that perpetuates capitalism is founded on ableist ideas." Moving Mountains released in paperback in the U.S. and Canada today!
open.substack.com
May 6, 2025 at 7:37 PM
Moving Mountains is published in Canada today! You can now support disabled nature writers and buy Canadian [from a wonderful Canadian indie bookstore] at the same time 😜 #NatureWriting #DisabledWriters #DisabilityWrites #TheChronicLife #BookSky #EDSAwarenessMonth
“ #EDS affects everything. Skin, joints, blood vessels, digestion, autonomic systems—you name it. It’s a #medical hydra, and most doctors just aren’t prepared to face it.”: buff.ly/aoj7qTP
#spoonies #EhlersDanlos #ChronicPain
by @unremarkableme.bsky.social
#spoonies #EhlersDanlos #ChronicPain
by @unremarkableme.bsky.social
"EDS Misdiagnosis: A Comedy of Errors (That’s Still Not Funny)"
Picture this: you’ve spent years visiting doctors, rattling off symptoms that sound like a shopping list for a medical horror movie. Chronic pain? Check. Joints that pop out like a party trick?…
buff.ly
May 10, 2025 at 7:41 AM
May 4, 2025 at 5:05 PM
4 more from this year's #edsawarenessmonth the first is my absolute favorite
November 11, 2024 at 10:01 PM
4 more from this year's #edsawarenessmonth the first is my absolute favorite
May is EDS (Ehlers Danlos Syndrome) Awareness Month. Please share our video and help spread much needed awareness about this condition. Thank you ❤️🦓
Big THANK YOU to Jess & Blaise for putting this video together ❤️
#SpeirGorm #EDS #EhlersDanlosSyndrome #EDSAwarenessMonth #May #EDSAwarenessIrelannd
Big THANK YOU to Jess & Blaise for putting this video together ❤️
#SpeirGorm #EDS #EhlersDanlosSyndrome #EDSAwarenessMonth #May #EDSAwarenessIrelannd
May 1, 2025 at 11:54 AM
May is EDS (Ehlers Danlos Syndrome) Awareness Month. Please share our video and help spread much needed awareness about this condition. Thank you ❤️🦓
Big THANK YOU to Jess & Blaise for putting this video together ❤️
#SpeirGorm #EDS #EhlersDanlosSyndrome #EDSAwarenessMonth #May #EDSAwarenessIrelannd
Big THANK YOU to Jess & Blaise for putting this video together ❤️
#SpeirGorm #EDS #EhlersDanlosSyndrome #EDSAwarenessMonth #May #EDSAwarenessIrelannd
Dr. Clair Francomano explains how connective tissue and collagen play a key role in the Ehlers-Danlos syndromes (EDS). Watch the video now on YouTube: youtu.be/w2BIlqVqSgc?...
#EDSAwarenessMonth #ehlersdanlossyndrome #ehlersdanlossyndromes
#EDSAwarenessMonth #ehlersdanlossyndrome #ehlersdanlossyndromes
What are Connective Tissue and Collagen? | Ehlers-Danlos Syndromes
YouTube video by Doctor Clair
youtu.be
May 3, 2026 at 10:32 AM
Dr. Clair Francomano explains how connective tissue and collagen play a key role in the Ehlers-Danlos syndromes (EDS). Watch the video now on YouTube: youtu.be/w2BIlqVqSgc?...
#EDSAwarenessMonth #ehlersdanlossyndrome #ehlersdanlossyndromes
#EDSAwarenessMonth #ehlersdanlossyndrome #ehlersdanlossyndromes
Knowing and loving the zebras in our lives #edsawarenessmonth #ehlersdanlos
May 15, 2025 at 3:51 PM
Knowing and loving the zebras in our lives #edsawarenessmonth #ehlersdanlos
Amongst everything I keep forgetting to post for #EDSAwarenessMonth & it's almost over. Thankfully my books are out there doing the work without me. This month I heard from a GP in Canada who bought #TheCompanyOfOwls for the owls but found it gave him new understanding of his patients with #EDS.
May 25, 2025 at 1:44 PM
Amongst everything I keep forgetting to post for #EDSAwarenessMonth & it's almost over. Thankfully my books are out there doing the work without me. This month I heard from a GP in Canada who bought #TheCompanyOfOwls for the owls but found it gave him new understanding of his patients with #EDS.
1/2 #ONLINE arte Mediathek I arte YouTube Kanal
Dokumentation, 92 Minuten
#ChronischKrank - #ChronischIgnoriert
Würde mich freuen, wenn Ihr zum #MEAwarenessMonth #EDSAwarenessMonth ##LymeAwarenessMonth nochmals auf die 92 Minuten Dokumentation aufmerksam macht 🙏
www.youtube.com/watch?v=YnnD...
Dokumentation, 92 Minuten
#ChronischKrank - #ChronischIgnoriert
Würde mich freuen, wenn Ihr zum #MEAwarenessMonth #EDSAwarenessMonth ##LymeAwarenessMonth nochmals auf die 92 Minuten Dokumentation aufmerksam macht 🙏
www.youtube.com/watch?v=YnnD...
Chronisch krank, chronisch ignoriert | Doku HD | ARTE
YouTube video by ARTEde
www.youtube.com
May 6, 2025 at 12:08 PM
1/2 #ONLINE arte Mediathek I arte YouTube Kanal
Dokumentation, 92 Minuten
#ChronischKrank - #ChronischIgnoriert
Würde mich freuen, wenn Ihr zum #MEAwarenessMonth #EDSAwarenessMonth ##LymeAwarenessMonth nochmals auf die 92 Minuten Dokumentation aufmerksam macht 🙏
www.youtube.com/watch?v=YnnD...
Dokumentation, 92 Minuten
#ChronischKrank - #ChronischIgnoriert
Würde mich freuen, wenn Ihr zum #MEAwarenessMonth #EDSAwarenessMonth ##LymeAwarenessMonth nochmals auf die 92 Minuten Dokumentation aufmerksam macht 🙏
www.youtube.com/watch?v=YnnD...
YESSS!! Another zebra!!! This one really reminds me of my pony Moo 🤭🦓💖🦓 thank you Kevin!
#edsawarenessmonth #zebrastrong #eds
#edsawarenessmonth #zebrastrong #eds
A drawing I made of a Zebra and Tim Gravy for my friend, @sparklearts.bsky.social and EDS awareness month.
❤️🦓❤️
#ZebraStrongArt #EDSAwarenessMonth
❤️🦓❤️
#ZebraStrongArt #EDSAwarenessMonth
May 2, 2025 at 11:01 PM
YESSS!! Another zebra!!! This one really reminds me of my pony Moo 🤭🦓💖🦓 thank you Kevin!
#edsawarenessmonth #zebrastrong #eds
#edsawarenessmonth #zebrastrong #eds
Just found out that May is #EDSAwarenessMonth! I have #hEDS & was diagnosed in my late 20s, & have been fighting for my own advocacy. I tell my stories so someone else in similar shoes feels seen when they read them. That's how I started looking for answers.
#EDS is the zebra with many stripes.
#EDS is the zebra with many stripes.
May 5, 2026 at 6:08 PM
Just found out that May is #EDSAwarenessMonth! I have #hEDS & was diagnosed in my late 20s, & have been fighting for my own advocacy. I tell my stories so someone else in similar shoes feels seen when they read them. That's how I started looking for answers.
#EDS is the zebra with many stripes.
#EDS is the zebra with many stripes.
Stream is canceled tonight >~<
I've dislocated a bone and the pain is a little distracting so gonna take the night to rest and recoup for next week!!
#EDS #HEDS ##EDSAwarenessMonth
I've dislocated a bone and the pain is a little distracting so gonna take the night to rest and recoup for next week!!
#EDS #HEDS ##EDSAwarenessMonth
May 10, 2026 at 5:40 PM
Stream is canceled tonight >~<
I've dislocated a bone and the pain is a little distracting so gonna take the night to rest and recoup for next week!!
#EDS #HEDS ##EDSAwarenessMonth
I've dislocated a bone and the pain is a little distracting so gonna take the night to rest and recoup for next week!!
#EDS #HEDS ##EDSAwarenessMonth
#EDSAWARENESSMONTH #EDS #chronicillness #disabled
Just gonna put this here.
I'm 45. I got diagnosed with EDS in my 30s. My health has declined pretty badly since, mostly due to resources.
Cant tell you how many times people dismissed me, & that includes doctors.
Just gonna put this here.
I'm 45. I got diagnosed with EDS in my 30s. My health has declined pretty badly since, mostly due to resources.
Cant tell you how many times people dismissed me, & that includes doctors.
May 14, 2026 at 6:45 AM
#EDSAWARENESSMONTH #EDS #chronicillness #disabled
Just gonna put this here.
I'm 45. I got diagnosed with EDS in my 30s. My health has declined pretty badly since, mostly due to resources.
Cant tell you how many times people dismissed me, & that includes doctors.
Just gonna put this here.
I'm 45. I got diagnosed with EDS in my 30s. My health has declined pretty badly since, mostly due to resources.
Cant tell you how many times people dismissed me, & that includes doctors.
Just gonna set this here... For no reason whatsoever.
Oh btw our stickers are waterproof and super durable. ⭐
windywoodsdesigns.etsy.com/listing/4299...
#WormOnAString #ExistenceIsPain #EDSAwarenessMonth #hEDS #kEDS #DisabilityPride
Oh btw our stickers are waterproof and super durable. ⭐
windywoodsdesigns.etsy.com/listing/4299...
#WormOnAString #ExistenceIsPain #EDSAwarenessMonth #hEDS #kEDS #DisabilityPride
May 1, 2025 at 4:27 PM
Just gonna set this here... For no reason whatsoever.
Oh btw our stickers are waterproof and super durable. ⭐
windywoodsdesigns.etsy.com/listing/4299...
#WormOnAString #ExistenceIsPain #EDSAwarenessMonth #hEDS #kEDS #DisabilityPride
Oh btw our stickers are waterproof and super durable. ⭐
windywoodsdesigns.etsy.com/listing/4299...
#WormOnAString #ExistenceIsPain #EDSAwarenessMonth #hEDS #kEDS #DisabilityPride
I didn’t have the energy to make #MEAwarenessDay or #EDSAwarenessMonth posts or celebrate my birthday, I was so crashed out this past month
Please consider this my awareness post! There’s a chance I can get out of #SevereME for good if more donations help me get neurosurgeries
Please consider this my awareness post! There’s a chance I can get out of #SevereME for good if more donations help me get neurosurgeries
Neurosurgery update! Please read, donate, share
Good news: I’m approved for 2 more major lifesaving surgeries
Bad news: There’s more physical damage, surgeries are costly & not covered in full by Medicare, I need more donations for this lifesaving care
www.gofundme.com/f/help-emily...
Good news: I’m approved for 2 more major lifesaving surgeries
Bad news: There’s more physical damage, surgeries are costly & not covered in full by Medicare, I need more donations for this lifesaving care
www.gofundme.com/f/help-emily...
Donate to We've got your back! Get Emily spine and brain care, organized by Jess Smolinski
*PLEASE SHARE even if you can't donate*
Hello, everyone! This f… Jess Smolinski needs your support for We've got your back! Get Emily spine and brain care
www.gofundme.com
May 19, 2026 at 6:38 AM
I didn’t have the energy to make #MEAwarenessDay or #EDSAwarenessMonth posts or celebrate my birthday, I was so crashed out this past month
Please consider this my awareness post! There’s a chance I can get out of #SevereME for good if more donations help me get neurosurgeries
Please consider this my awareness post! There’s a chance I can get out of #SevereME for good if more donations help me get neurosurgeries
#EDSAwarenessMonth
Many of us with EDS have to crowdfund for various reasons. We can’t work & many of us get little to no support from the govt. It is embarrassing & humiliating having to ask for handouts. Many of us feel like we lose dignity, and we certainly have no autonomy. #ChronicIllness
Many of us with EDS have to crowdfund for various reasons. We can’t work & many of us get little to no support from the govt. It is embarrassing & humiliating having to ask for handouts. Many of us feel like we lose dignity, and we certainly have no autonomy. #ChronicIllness
May 2, 2024 at 11:59 PM
#EDSAwarenessMonth
Many of us with EDS have to crowdfund for various reasons. We can’t work & many of us get little to no support from the govt. It is embarrassing & humiliating having to ask for handouts. Many of us feel like we lose dignity, and we certainly have no autonomy. #ChronicIllness
Many of us with EDS have to crowdfund for various reasons. We can’t work & many of us get little to no support from the govt. It is embarrassing & humiliating having to ask for handouts. Many of us feel like we lose dignity, and we certainly have no autonomy. #ChronicIllness
I had a ton of fun getting wet for charity raising money for @ehlersdanlos.bsky.social @powerwashsimulator.co.uk with @asahearts.bsky.social and @admrrlblue.vtubers.social for EDS & HSD Awareness Month
#vtubercollab #charitystream #edsawarenessmonth #hsdawarenessmonth
#vtubercollab #charitystream #edsawarenessmonth #hsdawarenessmonth
May 9, 2026 at 9:47 AM
I had a ton of fun getting wet for charity raising money for @ehlersdanlos.bsky.social @powerwashsimulator.co.uk with @asahearts.bsky.social and @admrrlblue.vtubers.social for EDS & HSD Awareness Month
#vtubercollab #charitystream #edsawarenessmonth #hsdawarenessmonth
#vtubercollab #charitystream #edsawarenessmonth #hsdawarenessmonth
Its International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day!!
Please note that this is my experience with the condition, but I've tried to create a bite sized introduction to ME/CFS!
#MyalgicEncephalomyelitis ##ChronicFatigueSyndrome #ME #CFS #edsawarenessmonth
Please note that this is my experience with the condition, but I've tried to create a bite sized introduction to ME/CFS!
#MyalgicEncephalomyelitis ##ChronicFatigueSyndrome #ME #CFS #edsawarenessmonth
May 12, 2026 at 6:36 PM
Its International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day!!
Please note that this is my experience with the condition, but I've tried to create a bite sized introduction to ME/CFS!
#MyalgicEncephalomyelitis ##ChronicFatigueSyndrome #ME #CFS #edsawarenessmonth
Please note that this is my experience with the condition, but I've tried to create a bite sized introduction to ME/CFS!
#MyalgicEncephalomyelitis ##ChronicFatigueSyndrome #ME #CFS #edsawarenessmonth
May is Hypermobility awareness month and today's challenge is to share one tool that helps us the most.
Creatine is a great supplement for energy and mental clarity.
Check out our ParaMotion blog for more info.
#hypermobility
#edsawarenessmonth
Creatine is a great supplement for energy and mental clarity.
Check out our ParaMotion blog for more info.
#hypermobility
#edsawarenessmonth
May 9, 2026 at 8:02 PM
May is Hypermobility awareness month and today's challenge is to share one tool that helps us the most.
Creatine is a great supplement for energy and mental clarity.
Check out our ParaMotion blog for more info.
#hypermobility
#edsawarenessmonth
Creatine is a great supplement for energy and mental clarity.
Check out our ParaMotion blog for more info.
#hypermobility
#edsawarenessmonth
The cutest zebra support 🥹💖🦓💖 thank you sweet Rylan!! #edsawarenessmonth #ehlersdanlos #edsawareness
May 3, 2025 at 7:03 PM
The cutest zebra support 🥹💖🦓💖 thank you sweet Rylan!! #edsawarenessmonth #ehlersdanlos #edsawareness
Today is one of those days that every step is taken with caution because I can't trust my own body to support me
#EDSAwarenessMonth #EDS #hEDS #EhlersDanlosSyndrome
#EDSAwarenessMonth #EDS #hEDS #EhlersDanlosSyndrome
May 3, 2025 at 8:43 AM
Today is one of those days that every step is taken with caution because I can't trust my own body to support me
#EDSAwarenessMonth #EDS #hEDS #EhlersDanlosSyndrome
#EDSAwarenessMonth #EDS #hEDS #EhlersDanlosSyndrome
A drawing I made of a Zebra and Tim Gravy for my friend, @sparklearts.bsky.social and EDS awareness month.
❤️🦓❤️
#ZebraStrongArt #EDSAwarenessMonth
❤️🦓❤️
#ZebraStrongArt #EDSAwarenessMonth
May 2, 2025 at 10:58 PM
A drawing I made of a Zebra and Tim Gravy for my friend, @sparklearts.bsky.social and EDS awareness month.
❤️🦓❤️
#ZebraStrongArt #EDSAwarenessMonth
❤️🦓❤️
#ZebraStrongArt #EDSAwarenessMonth
It's May nowwww which means it's also #EDSAwarenessMonth! @berryfoxes.bsky.social and I are doing a fundraiser for The Ehlers Danlos Society which provides support for people like Jess and I, as well as advancing research for these still largely unknown diseases. Sharing is the best way to support!
EDS and HSD Awareness Month 2025
edsandhsdawarenessmonth2025.funraise.org
May 2, 2025 at 4:52 AM
It's May nowwww which means it's also #EDSAwarenessMonth! @berryfoxes.bsky.social and I are doing a fundraiser for The Ehlers Danlos Society which provides support for people like Jess and I, as well as advancing research for these still largely unknown diseases. Sharing is the best way to support!