In other news Kleenex seem to have added scent to tissues that previously were unscented and it doesn't say on the box they're scented so now we have tissues that actually make me sneeze. Just another daily #enshittification. #TheChronicLife
August 27, 2025 at 11:39 AM
In other news Kleenex seem to have added scent to tissues that previously were unscented and it doesn't say on the box they're scented so now we have tissues that actually make me sneeze. Just another daily #enshittification. #TheChronicLife
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers:
Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email george at monbiot dot info. Thanks.
Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email george at monbiot dot info. Thanks.
September 21, 2026 at 1:07 PM
June 25, 2025 at 4:41 PM
What's that bebe? You made it to the @wainwrightprize for Nature Writing longlist in splendid company?
Congrats everyone, especially to all our nonhuman co-writers. #NatureWriting #EcoWriting #TheChronicLife #TheCompanyOfOwls #BeMoreOwlet #Owlets #TawnyOwls
wainwrightprize.com/wainwright-p...
Congrats everyone, especially to all our nonhuman co-writers. #NatureWriting #EcoWriting #TheChronicLife #TheCompanyOfOwls #BeMoreOwlet #Owlets #TawnyOwls
wainwrightprize.com/wainwright-p...
July 3, 2025 at 11:40 AM
What's that bebe? You made it to the @wainwrightprize for Nature Writing longlist in splendid company?
Congrats everyone, especially to all our nonhuman co-writers. #NatureWriting #EcoWriting #TheChronicLife #TheCompanyOfOwls #BeMoreOwlet #Owlets #TawnyOwls
wainwrightprize.com/wainwright-p...
Congrats everyone, especially to all our nonhuman co-writers. #NatureWriting #EcoWriting #TheChronicLife #TheCompanyOfOwls #BeMoreOwlet #Owlets #TawnyOwls
wainwrightprize.com/wainwright-p...
September 19, 2026 at 8:47 AM
Every time I think I might at last be able to 'draw breath' and have a 'normal' day, something new happens to set me back again. For friends and anyone who's missed me here, I'm likely to be only sporadically present for a while yet ...
Take care.
#TheChronicLife
Take care.
#TheChronicLife
October 18, 2025 at 9:02 AM
Every time I think I might at last be able to 'draw breath' and have a 'normal' day, something new happens to set me back again. For friends and anyone who's missed me here, I'm likely to be only sporadically present for a while yet ...
Take care.
#TheChronicLife
Take care.
#TheChronicLife
As I say again and again - no one expects quite the horrific mix of indescribable tedium and intolerable body horror that is ongoing illness and how the tedium is a key component of the horror. #TheChronicLife
Chronic pain is like being trapped in constant conversation with the biggest bumptious bore on earth; just keeps going on, won’t let you attend to anything else or exit the conversation
January 7, 2025 at 5:51 PM
As I say again and again - no one expects quite the horrific mix of indescribable tedium and intolerable body horror that is ongoing illness and how the tedium is a key component of the horror. #TheChronicLife
Another week another man reaching out to the bookshop to tell us face masks are dangerous with links to conspiracy theories as evidence. THANKS SO MUCH FOR YOUR INPUT. 🙃 😷#TheChronicLife #InfectionIsNotInevitable
August 26, 2025 at 2:23 PM
Another week another man reaching out to the bookshop to tell us face masks are dangerous with links to conspiracy theories as evidence. THANKS SO MUCH FOR YOUR INPUT. 🙃 😷#TheChronicLife #InfectionIsNotInevitable
"You will burn and you will burn out; but you will be healed and come back again."
~ Fyodor Dostoevsky
The Spring at Veneux-Nadon
🎨 Alfred Sisley (1882)
~ Fyodor Dostoevsky
The Spring at Veneux-Nadon
🎨 Alfred Sisley (1882)
April 16, 2026 at 2:57 PM
Books received in the post today (without the aid of a tripod—sorry).
#ReadingPoets
#TheChronicLife
@honnopress.bsky.social @serenbooks.bsky.social @littletollerbooks.bsky.social
#NatureWriting
#BookSky
#ReadingPoets
#TheChronicLife
@honnopress.bsky.social @serenbooks.bsky.social @littletollerbooks.bsky.social
#NatureWriting
#BookSky
March 25, 2026 at 2:26 PM
Books received in the post today (without the aid of a tripod—sorry).
#ReadingPoets
#TheChronicLife
@honnopress.bsky.social @serenbooks.bsky.social @littletollerbooks.bsky.social
#NatureWriting
#BookSky
#ReadingPoets
#TheChronicLife
@honnopress.bsky.social @serenbooks.bsky.social @littletollerbooks.bsky.social
#NatureWriting
#BookSky
Moving Mountains is published in Canada today! You can now support disabled nature writers and buy Canadian [from a wonderful Canadian indie bookstore] at the same time 😜 #NatureWriting #DisabledWriters #DisabilityWrites #TheChronicLife #BookSky #EDSAwarenessMonth
Happy Publication Day CANADA!
It was great to speak to fellow bendy writer Alyssa Graybeal recently about MOVING MOUNTAINS.
Read my interview in full
[also read Floppy - &link in the post to last year's event with @pollyrowena.bsky.social & @beewyld.bsky.social]
open.substack.com/pub/alyssagr...
It was great to speak to fellow bendy writer Alyssa Graybeal recently about MOVING MOUNTAINS.
Read my interview in full
[also read Floppy - &link in the post to last year's event with @pollyrowena.bsky.social & @beewyld.bsky.social]
open.substack.com/pub/alyssagr...
An Interview with Louise Kenward
"Everything that perpetuates capitalism is founded on ableist ideas." Moving Mountains released in paperback in the U.S. and Canada today!
open.substack.com
May 6, 2025 at 7:37 PM
Moving Mountains is published in Canada today! You can now support disabled nature writers and buy Canadian [from a wonderful Canadian indie bookstore] at the same time 😜 #NatureWriting #DisabledWriters #DisabilityWrites #TheChronicLife #BookSky #EDSAwarenessMonth
More on this in light of Winn's rebuttal. 1. There is a lot of pressure on memoirists to simplify narratives. 2. As I write about in #SomeOfUsJustFall, diagnosis is an ongoing process, especially with complex chronic conditions. Theories are posed; the body concurs, or doesn't. #TheChronicLife
There were lots of other comments but probably the one that tipped me right over the edge was ' find a solution. Don't be a victim'. Friend, the solution is writing about it and continuing to exist. There's much more to this story, but the most pertinent bit just now is what happened next.
July 10, 2025 at 10:23 AM
More on this in light of Winn's rebuttal. 1. There is a lot of pressure on memoirists to simplify narratives. 2. As I write about in #SomeOfUsJustFall, diagnosis is an ongoing process, especially with complex chronic conditions. Theories are posed; the body concurs, or doesn't. #TheChronicLife
Please someone give me a gold star! Over 6 months after realising a cock up over appointments meant I fell off the list for my quarterly bloods, I finally managed to psyche myself up enough during the correct hours to ring the day hospital and get bloods booked in. #TheChronicLife #Haemochromatosis
January 22, 2025 at 4:01 PM
Please someone give me a gold star! Over 6 months after realising a cock up over appointments meant I fell off the list for my quarterly bloods, I finally managed to psyche myself up enough during the correct hours to ring the day hospital and get bloods booked in. #TheChronicLife #Haemochromatosis
Having my little at-home on-sofa protest in Grasmere this lunchtime. It's remote, virtual, and you can all join in with me from wherever you are if you can't get to one of these in-person ones. #CripsAgainstCuts #WelfareNotWarfare #DisabilityRights #TheChronicLife
Crips against cuts protests planned for this weekend. Please follow the QR for details and please please please repost on your accounts 💜
@crips-against-cuts.bsky.social
@crips-against-cuts.bsky.social
March 22, 2025 at 12:13 PM
Having my little at-home on-sofa protest in Grasmere this lunchtime. It's remote, virtual, and you can all join in with me from wherever you are if you can't get to one of these in-person ones. #CripsAgainstCuts #WelfareNotWarfare #DisabilityRights #TheChronicLife
Can I make a plea? If you know anyone whose chronic health condition has flared up in the hot weather, please remember that even when temperatures return to 'normal,' their condition may not do so for days or weeks. Thank you.
#InvisibleIllnessVisibleLives
#TheAbleistSociety
#TheChronicLife
#InvisibleIllnessVisibleLives
#TheAbleistSociety
#TheChronicLife
May 28, 2026 at 2:50 PM
Can I make a plea? If you know anyone whose chronic health condition has flared up in the hot weather, please remember that even when temperatures return to 'normal,' their condition may not do so for days or weeks. Thank you.
#InvisibleIllnessVisibleLives
#TheAbleistSociety
#TheChronicLife
#InvisibleIllnessVisibleLives
#TheAbleistSociety
#TheChronicLife
The Royal College of Psychiatrists Annual Conference. This terrible trio are speaking on #LongCovid. We are absolutely nowhere! They will spread their disinformation to hundreds of psychiatrists all of whom will most probably nod and smile. A psychiatrist friend is going. She’ll try to subvert.
April 16, 2026 at 11:22 AM
The current contents of my uk.bookshop.org shopping basket. I am paralysed by the knowledge that I can't possibly buy them all, now ...
#BookSky #NatureWriting #TheChronicLife
#BookSky #NatureWriting #TheChronicLife
March 3, 2026 at 9:11 AM
The current contents of my uk.bookshop.org shopping basket. I am paralysed by the knowledge that I can't possibly buy them all, now ...
#BookSky #NatureWriting #TheChronicLife
#BookSky #NatureWriting #TheChronicLife
Reading the Observer article I wondered if Moth's diagnosis shifted, as diagnoses often do, but Winn / editors decided that reality was too messy for narrative arc.
It's really important here to note that no one owes anyone disclosure of their condition. #DisabilityRights #TheChronicLife
It's really important here to note that no one owes anyone disclosure of their condition. #DisabilityRights #TheChronicLife
July 10, 2025 at 10:34 AM
Reading the Observer article I wondered if Moth's diagnosis shifted, as diagnoses often do, but Winn / editors decided that reality was too messy for narrative arc.
It's really important here to note that no one owes anyone disclosure of their condition. #DisabilityRights #TheChronicLife
It's really important here to note that no one owes anyone disclosure of their condition. #DisabilityRights #TheChronicLife
What is it they say? Slow it down and get a skeleton to sing it?
Me and my haunted piano possessed by a snippet of the new Florence and the Machine. #OneOfTheGreats #EverybodyScream #TheChronicLife #Piano #Halloween
Me and my haunted piano possessed by a snippet of the new Florence and the Machine. #OneOfTheGreats #EverybodyScream #TheChronicLife #Piano #Halloween
November 1, 2025 at 12:44 AM
What is it they say? Slow it down and get a skeleton to sing it?
Me and my haunted piano possessed by a snippet of the new Florence and the Machine. #OneOfTheGreats #EverybodyScream #TheChronicLife #Piano #Halloween
Me and my haunted piano possessed by a snippet of the new Florence and the Machine. #OneOfTheGreats #EverybodyScream #TheChronicLife #Piano #Halloween
8 days into the month and I’ve had 2 medical appointments that were for things with wrong timings that couldn’t/shouldnt happen because of human & computer & system errors. 2 wasted trips. Today’s at least was only in Ambleside but last weeks took out hours & totally wore me out. #TheChronicLife
Carpark adjacent bluebells at the doctors. Better than waiting in the stuffy waiting room.
April 8, 2025 at 5:24 PM
8 days into the month and I’ve had 2 medical appointments that were for things with wrong timings that couldn’t/shouldnt happen because of human & computer & system errors. 2 wasted trips. Today’s at least was only in Ambleside but last weeks took out hours & totally wore me out. #TheChronicLife
A gold star please for practicing what I preach for once and recognising I did not have capacity to go for a swim this afternoon as well as preparing for this evening's @openbookreading.bsky.social #ChronicIllness #CreativeWriting group. The pressure of everydayness is the enemy of #TheChronicLife.
May 12, 2025 at 4:19 PM
A gold star please for practicing what I preach for once and recognising I did not have capacity to go for a swim this afternoon as well as preparing for this evening's @openbookreading.bsky.social #ChronicIllness #CreativeWriting group. The pressure of everydayness is the enemy of #TheChronicLife.
Sometimes you do what you can and it just isn´t enough, never will be. #TheChronicLife
December 12, 2024 at 9:03 AM
Sometimes you do what you can and it just isn´t enough, never will be. #TheChronicLife
"Shoutout to everyone who has exactly two modes:
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
January 10, 2026 at 3:50 PM
"Shoutout to everyone who has exactly two modes:
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
1) Doing all the things
2) Doing absolutely nothing while recovering from doing all the things."
Image Credit: @PolydotLand
Source: kixxarse1986
#MySeveralWorlds #ChronicTruths #TheChronicLife
I can hear the whirr of next door's lawn mower, the sigh of the wind, the twitter of house sparrows, the song of a dunnock, the ticking of the clock. It's all very soporific. #TheChronicLife
April 12, 2026 at 9:09 AM
I can hear the whirr of next door's lawn mower, the sigh of the wind, the twitter of house sparrows, the song of a dunnock, the ticking of the clock. It's all very soporific. #TheChronicLife
All this kind of thing takes energy that I simply don't have, every single day.
It assumes that everyone is baseline 'able' at all times.
And we aren't.
#TheChronicLife #InvisibleIllnessVisibleLives
It assumes that everyone is baseline 'able' at all times.
And we aren't.
#TheChronicLife #InvisibleIllnessVisibleLives
April 25, 2026 at 11:09 AM
All this kind of thing takes energy that I simply don't have, every single day.
It assumes that everyone is baseline 'able' at all times.
And we aren't.
#TheChronicLife #InvisibleIllnessVisibleLives
It assumes that everyone is baseline 'able' at all times.
And we aren't.
#TheChronicLife #InvisibleIllnessVisibleLives