I’ve talked with my insurance, pharmacy, and dr’s office so much in the last two weeks!

📞 35 calls
💬 ~20 portal messages

All to get ONE med 💊

Being disabled is a full time job 😮‍💨

#PostOp #NEISVoid #Disabled #Disability #ChronicIllness #Spooine #Gastroparesis #FeedingTube #JTube #GTube #EDS

@siouxsiestardust.bsky.social I'm so glad you found The Thriving Spooine, too! And I totally get the getting used to & mourning the loss of what you could do. Just know that you're STILL resilient - it just looks different now. Hang in tehre! ❤️