#JTube
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whitneydafoe.bsky.social
A great example of how our health care system fails chronically sick people: My Jtube clogged... A Jtube breaking or clogging is an emergency. You would not even leave a dog stuck in a house with no food or water.

New post on my blog:
www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid
Health Care Failings
A Jtube breaking or clogging is an emergency - it means a person cannot eat or take meds…Yet our system treats it like a casual, routine issue that can be dealt with whenever. Most people treat dogs ...
www.whitneydafoe.com
December 15, 2024 at 4:18 PM
nowhalle.bsky.social
“go with your gut” man, I have gastroparesis

#GP #Gastroparesis #Spoonie #JTube #FeedingTube #Tubie #TubieLife #ChronicIllnessHumor #POTS #Dysautonomia
December 2, 2024 at 5:05 AM
whitneydafoe.bsky.social
My Jtube broke and I have to go to the hospital and I’m feeling stressed...
It is so hard seeing the real world and feeling it and then coming back to my room and closing all the doors...

Read the whole piece on my blog:
www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid
Remembering What Real Life Is Like
My Jtube broke finally and I have to go to the hospital tomorrow and I’m feeling stressed...It is so hard seeing the real world and really feeling it and then coming back to my room and closing all th...
www.whitneydafoe.com
August 27, 2025 at 3:29 PM
american.partisan.social
Press Secretary Karoline Leavitt's feeble rebuttal of her boss's involvement in the #EpsteinFiles has been to insist that Trump has never used the word "enigma".

Wrong.

www.youtube.com/watch?v=p0dO...
"Ben Carson is an Enigma to me" - Donald Trump
YouTube video by JTube
www.youtube.com
September 10, 2025 at 3:09 PM
jebzalis.bsky.social
what is jtube
January 25, 2025 at 8:09 PM
eleanorfox.w10.site
Nope :(
Had to download jtube :3
January 25, 2025 at 4:57 PM
nowhalle.bsky.social
Had another tube change today. I must get up, clean the area, and put a fresh dressing on.

However, have you considered I 👏🏻 don’t 👏🏻 wanna 👏🏻

#NEISVoid #Gastroparesis #GastroparesisAwarenessMonth #GP #FeedingTube #TubeFed #JTube #ChronicIllness #Spoonie #Disabled #Disability
August 8, 2025 at 3:35 PM
nowhalle.bsky.social
Visited the medical vampires today and had 10 tubes of blood taken ⚕️🧛🏾‍♀️

#NEISVoid #Disabled #Spoonie #ChronicIllnessLife #POTS #EDS #MCAS #Gastroparesis #Tubie #TubeFed #JTube #FeedingTube
January 16, 2025 at 6:36 PM
nowhalle.bsky.social
cw: medical talk

Feeding tube win: my previous button tubes kept leaking when I drank anything by mouth. I’ve switched back to a dangle tube and the leakage is basically 99% resolved. I CAN ENJOY TEA AGAIN ☕️

#Gastroparesis #FeedingTube #JTube #Tubie #TubieLife #NEISVoid #Spoonie #Disabled
January 14, 2025 at 8:05 PM
nowhalle.bsky.social
Any #Gastroparesis warriors out there? Or #Tubie peeps I can become mutuals with?

See also: #EDS, #MCAS, or #POTSie pals?

Leave a comment!

♿️❤️‍🩹⚕️

#GP #Spoonie #ChronicIllness #NEISVoid #GastroparesisWarrior #SpoonieWarrior #POTS #Dysautonomia #ChronicallyComplex #TubeFed #FeedingTube #JTube
November 21, 2024 at 2:18 AM
kultofmany.bsky.social
You know they didn't say shit about the jtube one because they KNOW they fucked me up every step of the way
January 20, 2026 at 2:22 AM
nowhalle.bsky.social
Omw to the hospital for an emergency tube change. Happy #FeedingTubeAwarenessWeek to me ))))):

#FTAW2026 #FeedingTube #Gastroparesis #JTube #GTube #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #EDS #EhlersDanlosSyndrome #MCAS #MastCellActivationSyndeome #EosinophilicEsophagitis #EOE
February 6, 2026 at 3:03 PM
nowhalle.bsky.social
Doc: I’ve been here 10 years and never seen that before

(Regarding how my feeding tube is broken)

Story of my life 😭

#NEISVoid #FeedingTube #Gastroparesis #Disabled #Disability #ChronicIllness #Spoonie #JTube #GTube
February 6, 2026 at 5:21 PM
nowhalle.bsky.social
I'm having FEELINGS bc it's almost the second anniversary of my J-tube surgery and what turned into a four-week hospitalization (instead of their estimated three days).

I'm also in the process of switching brain therapists atm, which is Rough.

#Gastroparesis #FeedingTube #JTube #Tubie #NEISVoid
July 18, 2025 at 8:06 PM
nowhalle.bsky.social
I’ve talked with my insurance, pharmacy, and dr’s office so much in the last two weeks!

📞 35 calls
💬 ~20 portal messages

All to get ONE med 💊

Being disabled is a full time job 😮‍💨

#PostOp #NEISVoid #Disabled #Disability #ChronicIllness #Spooine #Gastroparesis #FeedingTube #JTube #GTube #EDS
October 23, 2025 at 7:02 PM
nowhalle.bsky.social
My BP decided to go woosh 📉 (75/47) while I was standing to get Kit’s morning meds… I managed to safely set up fluids and I’m now horizontal once more ❤️‍🩹

#OrthostaticHypotension #Dysautonomia #POTS #Disabled #Disability #ChronicIllness #Spoonie #NEISVoid #EDS #Gastroparesis #Tubie #JTube #MCAS
September 14, 2025 at 2:38 PM
nowhalle.bsky.social
How I feel trying to rally and get things done when my body decides it’s had enough 😭

#NEISVoid #Spoonie #Disabled #DisabledSky #ChronicMigraine #POTS #EDS #Gastroparesis #TubeFed #FeedingTube #JTube
chronicillness.bsky.social Chronic Illness Humor @chronicillness.bsky.social · Jan 31
It's not even me against the world. It's me against my chronic illnesses.
January 31, 2025 at 4:18 PM
nowhalle.bsky.social
Tube feeds ✔️
Nutrition supplement ✔️

Chronic illness doesn’t take a day off. Take care of yourselves today!

#NEISVoid #Gastroparesis #JTube #Tubie #Spoonie
November 28, 2024 at 4:42 PM
nowhalle.bsky.social
Why is my hr 110 when I’m lying down 🥲😭

Might need to run some fluids before starting my day💧

#POTS #POTSie #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #InappropriateSinusTachycardia #IST #Disabled #DisabledSky #Disability #Spoonie #SpoonieSky #JTube #Tubie #FeedingTube #ChronicIllness
February 12, 2025 at 2:53 PM
nowhalle.bsky.social
Started #GastroparesisAwarenessMonth with a tube change ➰

#Gastroparesis (also called #DelayedGastricEmptying) is a #RareDisease.

Ask me about #GP and I’ll let you know about my experience!

#Awareness #Disabled #Disability #Spoonie #ChronicIllness #FeedingTube #JTube #TubeFed #Tubie #NEISVoid
Noelle, a white person with braided blonde hair and glasses, is wearing a hospital gown and smiling at the camera.
August 1, 2025 at 4:14 PM
nowhalle.bsky.social
I have both physical therapy AND brain therapy tomorrow morning. Ya girl is gonna be Tired!

(I should probably set up fluids now so I don’t have to do it at 6am….)

#NEISVoid #ChronicallyIll #Spoonie #Disabled #DisabledSky #EhlersDanlosSyndrome #EDS #POTS #Gastroparesis #TubeFed #JTube #Tubie
January 7, 2025 at 1:31 AM
nowhalle.bsky.social
I’m a little frustrated because I’m finally in the right headspace to clean my room and my body is saying No Thank You /:

#OrthostaticHypotension #Dysautonomia #ADHD #Neurodivergent #POTS #EDS #Gastroparesis #Tubie #JTube #TubeFed #Disabled #NEISVoid #Disability #ChronicIllness #Spoonie
nowhalle.bsky.social Noelle @nowhalle.bsky.social · Sep 14
My BP decided to go woosh 📉 (75/47) while I was standing to get Kit’s morning meds… I managed to safely set up fluids and I’m now horizontal once more ❤️‍🩹

#OrthostaticHypotension #Dysautonomia #POTS #Disabled #Disability #ChronicIllness #Spoonie #NEISVoid #EDS #Gastroparesis #Tubie #JTube #MCAS
September 14, 2025 at 4:04 PM
nowhalle.bsky.social
My new feeding tube formula trial starts today and ya girl is nervous 😬

Fingers crossed and all the good vibes that I tolerate this one better 🍀

#NEISVoid #Disabled #Disability #Gastroparesis #FeedingTube #JTube #Tubie #Spoonie #ChronicIllness
November 14, 2025 at 5:14 PM
nowhalle.bsky.social
Me (to myself): why am I hungry?

Also me: it’s because you haven’t connected to feeds you silly goose 🤣🪿

#TubeFed #KateFarms #FeedingTube #Tubie #Gastroparesis #FedIsBest #JTube #NEISVoid #EDS #EhlersDanlosSyndrome #Spoonie #Disabled #Disability #ChronicIllness
October 19, 2025 at 3:30 PM
nowhalle.bsky.social
Honestly, thank goodness I have a feeding tube because I hate the flavor of grape Gatorade (but with my tube, it goes straight into my intestines)!

#Gastroparesis #FeedingTube #JTube #Tubie #Disabled #Disability #Spoonie #POTS #PosturalOrthostaticTachycardiaSyndrome #EDS #EhlersDanlosSyndrome
April 30, 2025 at 3:25 AM