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apssupportuk.bsky.social
New research suggests some people diagnosed with #ObstetricAPS may experience a first #thrombosis years later. This small retrospective study cannot predict individual risk, but supports long-term, individualised follow-up: pubmed.ncbi.nlm.nih.gov/42333063/ #APSResearch #AntiphospholipidSyndrome
Longitudinal observation of thrombotic events in patients with obstetric antiphospholipid syndrome - PubMed
ObjectiveWe aimed to investigate the long-term thrombotic outcomes in patients with obstetric antiphospholipid syndrome (OAPS) who initially presented without thrombosis and to identify clinical featu...
pubmed.ncbi.nlm.nih.gov
July 27, 2026 at 9:10 AM
apssupportuk.bsky.social
At last: a long-term #ObstetricAPS study. Over a median 17-year follow-up, 15.7% of 114 participants with obstetric APS developed thrombotic APS. The authors highlight follow-up after pregnancy and the need for prevention research. pubmed.ncbi.nlm.nih.gov/42433136/ #APSResearch
Thrombotic Antiphospholipid Syndrome: A Long Term Follow-up of Patients With Recurrent Pregnancy Loss and Antiphospholipid Antibodies From the APS 1994 Study - PubMed
Patients with RPL and aPL who exhibit the identified risk factors should undergo subsequent follow-up after pregnancy. Further research is required to investigate the potential for thrombosis preventi...
pubmed.ncbi.nlm.nih.gov
July 14, 2026 at 5:08 PM
apssupportuk.bsky.social
We're delighted to support Megan Preece and Catherine Ducker from @imperialcollegeldn.bsky.social with APS Support UK travel grants to attend #ISTH2026 in Paris (11–15 July). We wish them every success and look forward to hearing about the congress: www.isthcongress.org #APSResearch
ISTH Congress | Thrombosis and Hemostasis Conference
The Congress is the premier international medical and scientific conference for experts in the fields of thrombosis, hemostasis and vascular biology. Join us July 11-15 in Washington, D.C., for this m...
www.isthcongress.org
July 10, 2026 at 1:43 PM
apssupportuk.bsky.social
New START-APS registry study: #thrombocytopenia was found in 13.6% overall, including 15.2% of APS patients and 10.1% of aPLA carriers. It was associated with triple positivity, livedo reticularis and cardiovascular involvement: link.springer.com/article/10.1...
#APS #APSResearch
Thrombocytopenia in carriers and patients with antiphospholipid syndrome: insights from the nationwide START-APS registry - Internal and Emergency Medicine
Patients with thrombotic antiphospholipid syndrome (APS) or subjects with persistent presence of antiphospholipid antibodies (aPLA), defined “carriers”, may develop thrombocytopenia. However, the prev...
link.springer.com
June 25, 2026 at 11:54 AM
apssupportuk.bsky.social
Some #APS cases don’t meet full criteria.

🩸 #Seronegative APS = symptoms, no antibodies
🧠 #NonCriteria APS = antibodies, no clots

Rare but real — and still being researched.

🔗 cutt.ly/non-criteria...

#APSAM26 #APSMatters #APSResearch #AntiphospholipidSyndrome
APS Support UK graphic for APS Awareness Month. Background shows close-up red blood cells. Top left: APS Support UK logo. A large panel reads ‘APS Awareness Fact’ with ‘#19’. Main text says some people with APS don’t meet all the criteria. It explains that some people test negative in all three blood tests but still fulfil the clinical criteria, while others test positive in some blood tests but lack certain symptoms. It adds that these patients, who meet one set of criteria but not the other, are sometimes referred to as having ‘non-criteria APS’. On the right is a pink medical clipboard and pen icon. Bottom text: ‘#APSAM26’ and ‘#APSMATTERS’.
June 19, 2026 at 5:00 AM
apsfaorg.bsky.social
Raise your hand if you will raise money for the APSFA in June.

Fifty percent (50%) of the money raised goes towards research! 

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD26 #raredisease #charity #donate #APS #APSAM26
May 31, 2026 at 5:03 PM
apssupportuk.bsky.social
New study in treated obstetric APS pregnancies: standard aspirin + LMWH supports live births, but some risks (anaemia, lower birth weight, newborn jaundice/infection) may need extra monitoring: pubmed.ncbi.nlm.nih.gov/41451085/
#APS #Pregnancy #ObstetricAPS #APSResearch #AntiphospholipidSyndrome
Frontiers | Maternal and neonatal outcomes in obstetric antiphospholipid syndrome: a retrospective case-control study
ObjectiveThe combination of low-dose aspirin (LDA) and low-molecular-weight heparin (LMWH) is the standard of care for obstetric antiphospholipid syndrome (O...
doi.org
March 19, 2026 at 2:37 PM
apssupportuk.bsky.social
New 2025 review highlights why early recognition of #AntiphospholipidSyndrome matters—incl. appropriate antibody testing (and repeat testing) and risks of delayed diagnosis. Encouraging to see wider clinician training: cutt.ly/RtnlpBl2 #APSresearch #Awareness #APS
Branded APS Support UK “Latest Research” graphic. A stylised browser window shows the headline “APS increasingly discussed in healthcare training, new review suggests” with “Full study link in post” in the search bar. Alongside is a close-up photo of a gloved hand holding three blood sample tubes labelled “Anticardiolipin IgG”, “Lupus Anticoagulant”, and “Anti-beta2-glycoprotein-1”. APS Support UK logo at the bottom left, with a soft background of red blood cells.
February 10, 2026 at 6:56 PM
apssupportuk.bsky.social
Rosetrees Trust co-funded PhD studentship: submissions close 19 Jan 2026: aps-support.org.uk/about-aps-support/research/rosetrees-trust-phd-studentship
More about our research funding so far: aps-support.org.uk/about-aps-support/research/progress-so-far #APSResearch #ResearchFunding #APSSupportUK
January 15, 2026 at 8:55 PM
activebrainuc.bsky.social
👈#ThrowbackThursday: Andrew, one of our AB staff researchers, presented the #Endometriosis, #Pain and #PhysicalActivity study at the UCRISE Winter Research Showcase a month ago ❄️ For more information about the study, contact apsresearch@canberra.edu.au 📥

#ActiveBrainUC #UniCanberra #AcademicSky
August 28, 2025 at 7:30 AM
activebrainuc.bsky.social
#InTheMedia: Tino has been popular, promoting a study investigating #PainProcessing in those with and without #Endometriosis. Check out ABC Radio or The Canberra Times for more information or reach out to apsresearch@canberra.edu.au to get involved 🙋‍♀️

#ActiveBrainUC #UniCanberra #AcademicSky
August 8, 2025 at 7:30 AM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
July 1, 2025 at 11:11 AM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #coping #CopingMechanisms #copingmethods
June 29, 2025 at 7:29 PM
apsfaorg.bsky.social
Learn More
Visit apsfa.org for trusted information, patient resources, and ways to connect with others who understand.

#WTD25 #raredisease #charity #donate #newdiagnosis #newlydiagnosed #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch
APS Foundation of America, Inc. | Antiphospholipid Syndrome - APS
apsfa.org
June 29, 2025 at 1:45 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #exercise
June 29, 2025 at 1:16 AM
apsfaorg.bsky.social
or the emergency room.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #DVT #bloodclot
June 28, 2025 at 6:44 PM
apsfaorg.bsky.social
#APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #pain #fever #migraines #headache #fatigue #dizziness #sweeling #brainfog
June 28, 2025 at 12:35 PM
apsfaorg.bsky.social
Myth: Only older or sick people get blood clots

Fact: Anyone can get a blood clot, even if they are young - that includes children and healthy people.

When did you first start clotting?

#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #WTD25 #raredisease #APS
June 27, 2025 at 7:54 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
June 27, 2025 at 12:47 PM
apsfaorg.bsky.social
Do you have one of these diseases besides Lupus?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #RaynaudsSyndrome #raynaudsphenomenon
June 26, 2025 at 6:42 PM
apsfaorg.bsky.social
great to see people working together globally to bring awareness to APS!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #sle
June 26, 2025 at 3:00 PM
apsfaorg.bsky.social
For more information, please click here: www.apsfa.org/caps.htm

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #microclotting #multiorgan #multiorganclotting
www.apsfa.org
June 25, 2025 at 6:15 PM
apsfaorg.bsky.social
#apsresearch #WTD25 #raredisease #charity #donate #noncriteria #rheumatology #hematology #labs #labatory #labatorytesting #listentothepatient
June 25, 2025 at 1:50 PM
apsfaorg.bsky.social
#apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #noncriteria #rheumatology #hematology #labs #labatory #labatorytesting #listentothepatient
June 25, 2025 at 1:38 PM
apsfaorg.bsky.social
If you think you have a clot, please see your doctor or go to the ER.**

So, what are the trigger signs you need to head to the EER?

#AntiphospholipidSyndrome #APSAwareness #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #musclecramps #legcramps #whentogo
June 24, 2025 at 6:24 PM