#APSresearch
LightNews LightNews
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #travel #travelinsurance #travelsafety #travelingwithmedicine #traveltips #TravelSmart #medicine
June 12, 2025 at 6:49 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
July 1, 2025 at 11:11 AM
apssupportuk.bsky.social
Rosetrees Trust co-funded PhD studentship: submissions close 19 Jan 2026: aps-support.org.uk/about-aps-support/research/rosetrees-trust-phd-studentship
More about our research funding so far: aps-support.org.uk/about-aps-support/research/progress-so-far #APSResearch #ResearchFunding #APSSupportUK
January 15, 2026 at 8:55 PM
apsfaorg.bsky.social
Today, we'll discuss the symptoms of a stroke.

Share your story in the comments below!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #stroke #strokeawareness #neurology #awareness #prevention
June 13, 2025 at 12:52 PM
apsfaorg.bsky.social
to be enjoying your vacation!

If you have other #travel tips to share, please do so in the comments.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #travel #TravelSafety #traveltips #travelsafetytips
June 12, 2025 at 10:43 AM
apsfaorg.bsky.social
antiphospholipid syndrome.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #collaboration #teamwork
June 9, 2025 at 6:24 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #exercise
June 29, 2025 at 1:16 AM
apsfaorg.bsky.social
#apsresearch #WTD25 #raredisease #charity #donate #prevention #selfcaretips #selfcare #education #Facts #SelfcareMatters #vaccination #prevention #rheumaticdiseases
June 13, 2025 at 6:38 PM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #medicalert #emergencypreparedness #alertjewelry
June 7, 2025 at 6:17 PM
apssupportuk.bsky.social
We're delighted to support Megan Preece and Catherine Ducker from @imperialcollegeldn.bsky.social with APS Support UK travel grants to attend #ISTH2026 in Paris (11–15 July). We wish them every success and look forward to hearing about the congress: www.isthcongress.org #APSResearch
ISTH Congress | Thrombosis and Hemostasis Conference
The Congress is the premier international medical and scientific conference for experts in the fields of thrombosis, hemostasis and vascular biology. Join us July 11-15 in Washington, D.C., for this m...
www.isthcongress.org
July 10, 2026 at 1:43 PM
apsfaorg.bsky.social
or the emergency room.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #DVT #bloodclot
June 28, 2025 at 6:44 PM
apsfaorg.bsky.social
We thank you for supporting us for 20 wonderful years!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #twentyyearanniversary
June 9, 2025 at 10:24 AM
apsfaorg.bsky.social
your stories in the comments.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #women #reproductive #obstetrics #ReproductiveHealthCare #miscarriages #Pregnant #pregnancyloss #stillborn
June 11, 2025 at 10:08 AM
apsfaorg.bsky.social
Raise your hand if you will raise money for the APSFA in June.

Fifty percent (50%) of the money raised goes towards research! 

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD26 #raredisease #charity #donate #APS #APSAM26
May 31, 2026 at 5:03 PM
apsfaorg.bsky.social
Raise Your Hand: Raise your hand if you will raise money for the APSFA in June. Fifty percent (50%) of the money raised goes towards research!

#APS #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters
#apsresearch #apsawarenessmonth #antiphospholipidsyndrome #APS
May 31, 2025 at 11:41 PM
apsfaorg.bsky.social
during pregnancy and plan your pregnancy ahead of time.

Any words of wisdom to share, ladies?

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS
June 11, 2025 at 8:48 PM
apsfaorg.bsky.social
Comment below with your tips and tricks for getting out of the fog!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #brainfog #invisibleIllness #invisibleillnesses #spoonielife #spoonie #raiseawareness
June 14, 2025 at 10:34 AM
apsfaorg.bsky.social
the stage is yours....... Please, also share in the comments below.

We may even publish yours in our #newsletter.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #storytime #apsawarenessmonth #apsresearch #WTD25 #personalstory #mystory
June 10, 2025 at 12:25 PM
apsfaorg.bsky.social
Symptoms of heart valve disease may resemble those of other medical conditions.

Always see your doctor for a diagnosis.

#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #cardiac #heart #cardiology #heartvalvedisease #irregularbets #HeartHealth #HeartValveSurgery
June 8, 2025 at 6:10 PM
apsfaorg.bsky.social
Clinical Features of APS: APS Awareness Month - Day 1:

Today we bring you the clinical features of #APS. Have you experienced any of the symptoms listed?

#GoBurgundy #APSMatters #apsresearch #APSFA #antiphospholipidsyndrome #apsawarenessmonth
June 1, 2025 at 6:09 PM
apsfaorg.bsky.social
There are some #statistics you can say out loud. How rare is #APS? Not so rare anymore. It really was misdiagnosed & underdiagnosed.

However, there is now the problem of overdiagnosing.

#AntiphospholipidSyndrome #APSAwareness #APSMatters #APSFA #apsawareness #apsresearch
June 2, 2025 at 6:50 PM
apsfaorg.bsky.social
Learn More
Visit apsfa.org for trusted information, patient resources, and ways to connect with others who understand.

#WTD25 #raredisease #charity #donate #newdiagnosis #newlydiagnosed #AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch
APS Foundation of America, Inc. | Antiphospholipid Syndrome - APS
apsfa.org
June 29, 2025 at 1:45 PM
apsfaorg.bsky.social
Myth: Only older or sick people get blood clots

Fact: Anyone can get a blood clot, even if they are young - that includes children and healthy people.

When did you first start clotting?

#AntiphospholipidSyndrome #APSAwareness #apsawarenessmonth #apsresearch #WTD25 #raredisease #APS
June 27, 2025 at 7:54 PM
apssupportuk.bsky.social
New 2025 review highlights why early recognition of #AntiphospholipidSyndrome matters—incl. appropriate antibody testing (and repeat testing) and risks of delayed diagnosis. Encouraging to see wider clinician training: cutt.ly/RtnlpBl2 #APSresearch #Awareness #APS
Branded APS Support UK “Latest Research” graphic. A stylised browser window shows the headline “APS increasingly discussed in healthcare training, new review suggests” with “Full study link in post” in the search bar. Alongside is a close-up photo of a gloved hand holding three blood sample tubes labelled “Anticardiolipin IgG”, “Lupus Anticoagulant”, and “Anti-beta2-glycoprotein-1”. APS Support UK logo at the bottom left, with a soft background of red blood cells.
February 10, 2026 at 6:56 PM
apssupportuk.bsky.social
New study in treated obstetric APS pregnancies: standard aspirin + LMWH supports live births, but some risks (anaemia, lower birth weight, newborn jaundice/infection) may need extra monitoring: pubmed.ncbi.nlm.nih.gov/41451085/
#APS #Pregnancy #ObstetricAPS #APSResearch #AntiphospholipidSyndrome
Frontiers | Maternal and neonatal outcomes in obstetric antiphospholipid syndrome: a retrospective case-control study
ObjectiveThe combination of low-dose aspirin (LDA) and low-molecular-weight heparin (LMWH) is the standard of care for obstetric antiphospholipid syndrome (O...
doi.org
March 19, 2026 at 2:37 PM