As of this morning, I am officially considered cured of chondrosarcoma. I will still need to do yearly visits with the oncologist because I'm BRCA+, but I won't have to go through all the testing!
February 7, 2025 at 3:21 PM
As of this morning, I am officially considered cured of chondrosarcoma. I will still need to do yearly visits with the oncologist because I'm BRCA+, but I won't have to go through all the testing!
This liver was mush soup when I cut into it yesterday. 🙃 Metastatic from the primary chondrosarcoma of the femur.
January 14, 2026 at 2:08 PM
This liver was mush soup when I cut into it yesterday. 🙃 Metastatic from the primary chondrosarcoma of the femur.
April 8, 2025 at 2:59 PM
Long noncoding RNA TUG1 is driving chondrosarcoma progression and promoting M2 macrophage polarization. This study sheds light on its role in tumor growth and immune modulation, opening doors for new therapeutic strategies. #Chondrosarcoma #lncRNA #Immunotherapy www.sciencedirect.com/science/arti...
January 7, 2025 at 12:06 PM
Long noncoding RNA TUG1 is driving chondrosarcoma progression and promoting M2 macrophage polarization. This study sheds light on its role in tumor growth and immune modulation, opening doors for new therapeutic strategies. #Chondrosarcoma #lncRNA #Immunotherapy www.sciencedirect.com/science/arti...
So the oncologist said "Huh. That's WEIRD".
Chondrosarcoma, which is rare, but set up in the head of the humerus, which is super weird to be in a long bone.
Best case is 2 to 5 more years with a tripod dog.
Also New Idiot Dog still loves treats.
Chondrosarcoma, which is rare, but set up in the head of the humerus, which is super weird to be in a long bone.
Best case is 2 to 5 more years with a tripod dog.
Also New Idiot Dog still loves treats.
November 7, 2025 at 12:19 AM
So the oncologist said "Huh. That's WEIRD".
Chondrosarcoma, which is rare, but set up in the head of the humerus, which is super weird to be in a long bone.
Best case is 2 to 5 more years with a tripod dog.
Also New Idiot Dog still loves treats.
Chondrosarcoma, which is rare, but set up in the head of the humerus, which is super weird to be in a long bone.
Best case is 2 to 5 more years with a tripod dog.
Also New Idiot Dog still loves treats.
You go! I have Chondrosarcoma. 80% chance to make 5 years. So far, so good.
March 10, 2025 at 5:21 PM
You go! I have Chondrosarcoma. 80% chance to make 5 years. So far, so good.
#MedSky🧪#CardioSky #COVIDheart .Nothing spare with #SARSCoV2 The detection of #viralpersistence in #endothelium & #macrophages as well as in #tumorcells of benign & #malignantcardiacneoplasms , the increase in the number of these tumors,
October 21, 2023 at 8:33 PM
#MedSky🧪#CardioSky #COVIDheart .Nothing spare with #SARSCoV2 The detection of #viralpersistence in #endothelium & #macrophages as well as in #tumorcells of benign & #malignantcardiacneoplasms , the increase in the number of these tumors,
Introduce yourself with what almost killed you:
Low grade chondrosarcoma
Low grade chondrosarcoma
Introduce yourself with what almost killed you:
Pillow Truck Luck
Pillow Truck Luck
January 2, 2026 at 3:54 AM
Introduce yourself with what almost killed you:
Low grade chondrosarcoma
Low grade chondrosarcoma
Chondrosarcoma Right Iliac Wing: www.ctisus.com/teachingfile...
February 3, 2025 at 8:58 PM
Chondrosarcoma Right Iliac Wing: www.ctisus.com/teachingfile...
A new #ScienceSignaling study sheds light on a mysterious mutation linked to chordoid glioma, providing unexpected insights that could redefine how scientists think about kinases and may inform efforts to treat this brain cancer. https://scim.ag/4nz4DPj
The chordoid glioma PRKCA D463H mutation is a kinase inactive, gain-of-function allele that induces early-onset chondrosarcoma in mice
A mutation in PKCα ablates kinase activity but amplifies signaling output through protein interactions.
scim.ag
November 5, 2025 at 4:00 PM
A new #ScienceSignaling study sheds light on a mysterious mutation linked to chordoid glioma, providing unexpected insights that could redefine how scientists think about kinases and may inform efforts to treat this brain cancer. https://scim.ag/4nz4DPj
I'm hoping this may have some relevance to treating my own cancer, an inoperable head and neck chondrosarcoma, though mine is soft and in such a difficult location to reach that I am typically not a good candidate for trials. Thank you for your work @sitcancer.bsky.social . #MedSky #CanSky #research
New Journal for ImmunoTherapy of Cancer ( #JITC ) article: Tumor-specific CD8+ T cells from the bone marrow resist exhaustion and exhibit increased persistence in tumor-bearing hosts as compared with tumor-infiltrating lymphocytes bit.ly/3XsXllV
#MedSky #CanSky #research
#MedSky #CanSky #research
March 6, 2025 at 1:50 PM
I'm hoping this may have some relevance to treating my own cancer, an inoperable head and neck chondrosarcoma, though mine is soft and in such a difficult location to reach that I am typically not a good candidate for trials. Thank you for your work @sitcancer.bsky.social . #MedSky #CanSky #research
World Cancer Day?
Yeah, I see you beautiful #cansky people out there. Here's what Chondrosarcoma looked like before a badass surgeon cut it the fuck out of me. Turns out I didn't NEED that shoulder blade anyway....
#sarcoma #worldcancerday #OncoSky #CancerBS
#worldcancerday #fuckcancer
Yeah, I see you beautiful #cansky people out there. Here's what Chondrosarcoma looked like before a badass surgeon cut it the fuck out of me. Turns out I didn't NEED that shoulder blade anyway....
#sarcoma #worldcancerday #OncoSky #CancerBS
#worldcancerday #fuckcancer
February 4, 2025 at 11:41 PM
World Cancer Day?
Yeah, I see you beautiful #cansky people out there. Here's what Chondrosarcoma looked like before a badass surgeon cut it the fuck out of me. Turns out I didn't NEED that shoulder blade anyway....
#sarcoma #worldcancerday #OncoSky #CancerBS
#worldcancerday #fuckcancer
Yeah, I see you beautiful #cansky people out there. Here's what Chondrosarcoma looked like before a badass surgeon cut it the fuck out of me. Turns out I didn't NEED that shoulder blade anyway....
#sarcoma #worldcancerday #OncoSky #CancerBS
#worldcancerday #fuckcancer
US Chondrosarcoma Market Size, Industry Growth 2035 www.marketresearchfuture.com/reports/us-c...
US Chondrosarcoma Market Size, Industry Growth 2035
US Chondrosarcoma Market share register 168 USD Million in 2024, projected to grow 6.50 % CAGR to reach USD Million 336 during the forecast period 2025 - 2035.
www.marketresearchfuture.com
September 23, 2026 at 6:40 AM
US Chondrosarcoma Market Size, Industry Growth 2035 www.marketresearchfuture.com/reports/us-c...
In early 2017 I’d never heard the word chondrosarcoma. Thanks to the sort of research funded by Sarcoma UK I’m still alive to tell you that.
3 in 4 people have never heard of sarcoma.
Angela Barnes is helping change that in the BBC Lifeline Appeal for Sarcoma UK.
📺 BBC Two Sun 21 Sept, 2:20pm
📺 BBC One Sun 28 Sept, 2:15pm
www.bbc.co.uk/programmes/m...
#SarcomaAwareness #BBCLifeline
Angela Barnes is helping change that in the BBC Lifeline Appeal for Sarcoma UK.
📺 BBC Two Sun 21 Sept, 2:20pm
📺 BBC One Sun 28 Sept, 2:15pm
www.bbc.co.uk/programmes/m...
#SarcomaAwareness #BBCLifeline
September 20, 2025 at 10:51 AM
In early 2017 I’d never heard the word chondrosarcoma. Thanks to the sort of research funded by Sarcoma UK I’m still alive to tell you that.
Long noncoding RNA TUG1 is driving chondrosarcoma progression and promoting M2 macrophage polarization. This study sheds light on its role in tumor growth and immune modulation, opening doors for new therapeutic strategies. #Chondrosarcoma #lncRNA #Immunotherapy www.sciencedirect.com/science/arti...
January 7, 2025 at 12:06 PM
Long noncoding RNA TUG1 is driving chondrosarcoma progression and promoting M2 macrophage polarization. This study sheds light on its role in tumor growth and immune modulation, opening doors for new therapeutic strategies. #Chondrosarcoma #lncRNA #Immunotherapy www.sciencedirect.com/science/arti...
Sarcoma Awareness Month
July 2021 surgery to remove chondrosarcoma and a chunk of bones in my upper chest wall.
July 2025 today a 3.3 mile trail run through the Cleveland National forest.
July 2021 surgery to remove chondrosarcoma and a chunk of bones in my upper chest wall.
July 2025 today a 3.3 mile trail run through the Cleveland National forest.
July 8, 2025 at 7:04 PM
Sarcoma Awareness Month
July 2021 surgery to remove chondrosarcoma and a chunk of bones in my upper chest wall.
July 2025 today a 3.3 mile trail run through the Cleveland National forest.
July 2021 surgery to remove chondrosarcoma and a chunk of bones in my upper chest wall.
July 2025 today a 3.3 mile trail run through the Cleveland National forest.
So the cancer in this liver feels crumbly/crunchy because the primary cancer is cartilage/bone cancer. That’s how they know it’s metastatic because the liver has chondrosarcoma instead of a normal primary liver cancer.
January 14, 2026 at 4:08 PM
So the cancer in this liver feels crumbly/crunchy because the primary cancer is cartilage/bone cancer. That’s how they know it’s metastatic because the liver has chondrosarcoma instead of a normal primary liver cancer.
Major cranio-cervical instability.
Or eg compression at c1-2 requiring significant decompression eg chondrosarcoma or rheumatoid (seen much more frequently pre-disease modifying drugs) with unsuitability for c1-2 fixation alone.
Or eg compression at c1-2 requiring significant decompression eg chondrosarcoma or rheumatoid (seen much more frequently pre-disease modifying drugs) with unsuitability for c1-2 fixation alone.
October 27, 2025 at 11:05 PM
Major cranio-cervical instability.
Or eg compression at c1-2 requiring significant decompression eg chondrosarcoma or rheumatoid (seen much more frequently pre-disease modifying drugs) with unsuitability for c1-2 fixation alone.
Or eg compression at c1-2 requiring significant decompression eg chondrosarcoma or rheumatoid (seen much more frequently pre-disease modifying drugs) with unsuitability for c1-2 fixation alone.
At this moment, we are proceeding with the idea that I have an early-stage cancer that we were lucky to catch extremely early. A low-grade chondrosarcoma caught early has amazing outcomes. I'll be getting yearly scans, and when there's evidence that it is indeed this, I'll get surgery.
February 6, 2024 at 2:04 AM
At this moment, we are proceeding with the idea that I have an early-stage cancer that we were lucky to catch extremely early. A low-grade chondrosarcoma caught early has amazing outcomes. I'll be getting yearly scans, and when there's evidence that it is indeed this, I'll get surgery.
I’m gonna get a little personal for a second, probably more than I have on this account, but it feels important right now.
I have chondrosarcoma— Early detection caught it and made it so that I only have to get an MRI every six months, and get surgery when the time comes that it starts growing.
I have chondrosarcoma— Early detection caught it and made it so that I only have to get an MRI every six months, and get surgery when the time comes that it starts growing.
January 11, 2025 at 5:43 AM
I’m gonna get a little personal for a second, probably more than I have on this account, but it feels important right now.
I have chondrosarcoma— Early detection caught it and made it so that I only have to get an MRI every six months, and get surgery when the time comes that it starts growing.
I have chondrosarcoma— Early detection caught it and made it so that I only have to get an MRI every six months, and get surgery when the time comes that it starts growing.
It's inconclusive at the moment whether it's a benign tumor (enchondroma) or malignant tumor (chondrosarcoma). They present very similarly in the early stages of the tumor, and after the imagery and biopsy, they still are having trouble being able to tell what it is.
February 6, 2024 at 2:02 AM
It's inconclusive at the moment whether it's a benign tumor (enchondroma) or malignant tumor (chondrosarcoma). They present very similarly in the early stages of the tumor, and after the imagery and biopsy, they still are having trouble being able to tell what it is.
This is gonna sound weird but I feel like I got off lucky w/ cancer. Having a chondrosarcoma is scary and weird but like… My only life changes are getting it scanned every six months and getting surgery if it starts to grow / show signs of delocalizing to remove it.
May 10, 2024 at 6:58 AM
This is gonna sound weird but I feel like I got off lucky w/ cancer. Having a chondrosarcoma is scary and weird but like… My only life changes are getting it scanned every six months and getting surgery if it starts to grow / show signs of delocalizing to remove it.
Some tried to stop the freeze. Is the funding actually completely stopped now? I have Chondrosarcoma and some of my treatments could come from their findings.
February 9, 2025 at 1:08 PM
Some tried to stop the freeze. Is the funding actually completely stopped now? I have Chondrosarcoma and some of my treatments could come from their findings.
August 24, 2026 at 1:01 PM