Day 507 of #GeorgiaProtests
"Give the medicine to children!" — at today’s march, people demand the regime procures medicine for children affected by Duchenne Muscular Dystrophy (DMD).
📷 MOSE
"Give the medicine to children!" — at today’s march, people demand the regime procures medicine for children affected by Duchenne Muscular Dystrophy (DMD).
📷 MOSE
April 18, 2026 at 6:11 PM
Day 507 of #GeorgiaProtests
"Give the medicine to children!" — at today’s march, people demand the regime procures medicine for children affected by Duchenne Muscular Dystrophy (DMD).
📷 MOSE
"Give the medicine to children!" — at today’s march, people demand the regime procures medicine for children affected by Duchenne Muscular Dystrophy (DMD).
📷 MOSE
Little girl with muscular dystrophy gets an assistance puppy. #AGoodPlace
Source: www.reddit.com/r/MadeMeSmil...
Source: www.reddit.com/r/MadeMeSmil...
May 1, 2025 at 10:51 PM
Little girl with muscular dystrophy gets an assistance puppy. #AGoodPlace
Source: www.reddit.com/r/MadeMeSmil...
Source: www.reddit.com/r/MadeMeSmil...
Another successful weekend at 5 Alarm. 50 players came to the mountains to play some AoS and raise 6800$ for muscular dystrophy. Love this community
October 1, 2026 at 4:19 AM
Another successful weekend at 5 Alarm. 50 players came to the mountains to play some AoS and raise 6800$ for muscular dystrophy. Love this community
Honored to accept an award from Parent Project Muscular Dystrophy for my bipartisan work to accelerate research and treatments for muscular dystrophy.
The advocates and families tirelessly working to improve the quality of life for their loved ones inspire us to keep fighting.
The advocates and families tirelessly working to improve the quality of life for their loved ones inspire us to keep fighting.
March 10, 2026 at 5:33 PM
Honored to accept an award from Parent Project Muscular Dystrophy for my bipartisan work to accelerate research and treatments for muscular dystrophy.
The advocates and families tirelessly working to improve the quality of life for their loved ones inspire us to keep fighting.
The advocates and families tirelessly working to improve the quality of life for their loved ones inspire us to keep fighting.
She had spinal muscular atrophy. That’s similar to muscular dystrophy but different. Come on, NYT. Do better.
November 15, 2025 at 10:12 PM
She had spinal muscular atrophy. That’s similar to muscular dystrophy but different. Come on, NYT. Do better.
Russia released footage of its soldiers returning from captivity - well-fed and energetic, they quickly boarded buses.
In contrast, Ukrainian POWs return with significant weight loss, suffering from dystrophy, ulcers, vision loss, musculoskeletal damage, heart disease, and digestive problems.
In contrast, Ukrainian POWs return with significant weight loss, suffering from dystrophy, ulcers, vision loss, musculoskeletal damage, heart disease, and digestive problems.
June 19, 2025 at 2:44 PM
Russia released footage of its soldiers returning from captivity - well-fed and energetic, they quickly boarded buses.
In contrast, Ukrainian POWs return with significant weight loss, suffering from dystrophy, ulcers, vision loss, musculoskeletal damage, heart disease, and digestive problems.
In contrast, Ukrainian POWs return with significant weight loss, suffering from dystrophy, ulcers, vision loss, musculoskeletal damage, heart disease, and digestive problems.
Early clinical programs are testing CRISPR-based approaches for rare neurological diseases, including MECP2 duplication syndrome and Duchenne muscular dystrophy
September 26, 2026 at 7:20 PM
Early clinical programs are testing CRISPR-based approaches for rare neurological diseases, including MECP2 duplication syndrome and Duchenne muscular dystrophy
I might make a more in depth post about it later (my diagnosis story?), but
today is Limb Girdle Muscular Dystrophy awareness day.
be aware of me.
(beware of me? that’s a threat?)
💚
today is Limb Girdle Muscular Dystrophy awareness day.
be aware of me.
(beware of me? that’s a threat?)
💚
September 30, 2026 at 1:44 PM
I might make a more in depth post about it later (my diagnosis story?), but
today is Limb Girdle Muscular Dystrophy awareness day.
be aware of me.
(beware of me? that’s a threat?)
💚
today is Limb Girdle Muscular Dystrophy awareness day.
be aware of me.
(beware of me? that’s a threat?)
💚
Day 507 of uninterrupted protests in Georgia.
Today's march is in solidarity with families of children with Duchenne muscular dystrophy—a fatal genetic disease—who have been desperately seeking state-funded medication for months.
Today's march is in solidarity with families of children with Duchenne muscular dystrophy—a fatal genetic disease—who have been desperately seeking state-funded medication for months.
April 18, 2026 at 4:49 PM
Day 507 of uninterrupted protests in Georgia.
Today's march is in solidarity with families of children with Duchenne muscular dystrophy—a fatal genetic disease—who have been desperately seeking state-funded medication for months.
Today's march is in solidarity with families of children with Duchenne muscular dystrophy—a fatal genetic disease—who have been desperately seeking state-funded medication for months.
I’ve worked with families and advocates at Parent Project Muscular Dystrophy for years to accelerate research and treatments for muscular dystrophy.
We’ve made real progress—but we won’t stop until every family has a cure. Grateful for this award recognizing that work.
We’ve made real progress—but we won’t stop until every family has a cure. Grateful for this award recognizing that work.
March 11, 2026 at 5:19 PM
I’ve worked with families and advocates at Parent Project Muscular Dystrophy for years to accelerate research and treatments for muscular dystrophy.
We’ve made real progress—but we won’t stop until every family has a cure. Grateful for this award recognizing that work.
We’ve made real progress—but we won’t stop until every family has a cure. Grateful for this award recognizing that work.
(For those of you who dont know yet, I have muscular dystrophy)
May 22, 2025 at 9:33 PM
(For those of you who dont know yet, I have muscular dystrophy)
Alice Wong, a writer and activist who was born with muscular dystrophy and who fought relentlessly for equal rights and access for people with disabilities, died on Friday. She was 51. nyti.ms/4r9WqEr
November 15, 2025 at 9:33 PM
Alice Wong, a writer and activist who was born with muscular dystrophy and who fought relentlessly for equal rights and access for people with disabilities, died on Friday. She was 51. nyti.ms/4r9WqEr
Today, I'm thinking of one of our best friends, James. He lived with Muscular Dystrophy and died of COVID. More than that, he taught me strength, resilience, hope – and could make me laugh almost as hard as my husband. Miss you, Jamie.
March 18, 2025 at 4:48 PM
Today, I'm thinking of one of our best friends, James. He lived with Muscular Dystrophy and died of COVID. More than that, he taught me strength, resilience, hope – and could make me laugh almost as hard as my husband. Miss you, Jamie.
I have a friend at the NIH who works on studying and treating the rare disease, muscular dystrophy. His contract expires today on Easter. Tomorrow, he may not have a job. His work will be lost, and patients with muscular dystrophy will have to wait that much longer for relief. 1/11🧪
April 20, 2025 at 3:10 PM
I have a friend at the NIH who works on studying and treating the rare disease, muscular dystrophy. His contract expires today on Easter. Tomorrow, he may not have a job. His work will be lost, and patients with muscular dystrophy will have to wait that much longer for relief. 1/11🧪
Regenxbio $RGNX says gene therapy strengthened boys with Duchenne muscular dystrophy
Pivotal study started, top-line data could come early 2026. FDA accelerated approval filing to follow.
www.statnews.com/2024/11/18/d... $SRPT
Pivotal study started, top-line data could come early 2026. FDA accelerated approval filing to follow.
www.statnews.com/2024/11/18/d... $SRPT
Regenxbio says gene therapy strengthened boys with Duchenne muscular dystrophy
Based on a small trial with positive muscle performance data, Regenxbio is expected to pursue approval of its gene therapy for Duchenne muscular dystrophy.
www.statnews.com
November 18, 2024 at 12:19 PM
Regenxbio $RGNX says gene therapy strengthened boys with Duchenne muscular dystrophy
Pivotal study started, top-line data could come early 2026. FDA accelerated approval filing to follow.
www.statnews.com/2024/11/18/d... $SRPT
Pivotal study started, top-line data could come early 2026. FDA accelerated approval filing to follow.
www.statnews.com/2024/11/18/d... $SRPT
...Haraldur Thorleifsson, or @iamharaldur, an Icelandic national hero who suffers from muscular dystrophy. Musk also fired the team that fought against coordinated propaganda campaigns by countries such as Russia, China and Saudi Arabia. Research by Darren Linvill et al...
15/23
15/23
November 19, 2024 at 1:51 PM
...Haraldur Thorleifsson, or @iamharaldur, an Icelandic national hero who suffers from muscular dystrophy. Musk also fired the team that fought against coordinated propaganda campaigns by countries such as Russia, China and Saudi Arabia. Research by Darren Linvill et al...
15/23
15/23
dystrophy, ulcers, vision problems, musculoskeletal disorders, cardiovascular disease, and digestive issues.
#russiaMustPay
#russiaMustFall
#StandWithUkraine
#russiaMustPay
#russiaMustFall
#StandWithUkraine
June 19, 2025 at 3:05 PM
dystrophy, ulcers, vision problems, musculoskeletal disorders, cardiovascular disease, and digestive issues.
#russiaMustPay
#russiaMustFall
#StandWithUkraine
#russiaMustPay
#russiaMustFall
#StandWithUkraine
Sorry you were with muscular dystrophy, you should have been less coddled in the womb!
May 9, 2025 at 5:51 PM
Sorry you were with muscular dystrophy, you should have been less coddled in the womb!
My dad is a former teacher who had to take early retirement because of his muscular dystrophy you piece of shit
July 15, 2025 at 6:25 PM
My dad is a former teacher who had to take early retirement because of his muscular dystrophy you piece of shit
It's been a long 6 weeks.
Polo died.
Harris-Walz lost by a narrow margin.
My mom is dealing with severe corneal dystrophy.
Someone hit Eliza the feral cat & she may have permanent paralysis in her rear legs.
But, I'm still here. We're all on Bluesky. We're strong. We're resistant.
Polo died.
Harris-Walz lost by a narrow margin.
My mom is dealing with severe corneal dystrophy.
Someone hit Eliza the feral cat & she may have permanent paralysis in her rear legs.
But, I'm still here. We're all on Bluesky. We're strong. We're resistant.
December 5, 2024 at 9:48 PM
It's been a long 6 weeks.
Polo died.
Harris-Walz lost by a narrow margin.
My mom is dealing with severe corneal dystrophy.
Someone hit Eliza the feral cat & she may have permanent paralysis in her rear legs.
But, I'm still here. We're all on Bluesky. We're strong. We're resistant.
Polo died.
Harris-Walz lost by a narrow margin.
My mom is dealing with severe corneal dystrophy.
Someone hit Eliza the feral cat & she may have permanent paralysis in her rear legs.
But, I'm still here. We're all on Bluesky. We're strong. We're resistant.
#GGACPCARES Since, it's #GivingTuesday, be a mensch and donate to the Gilbert Gottfried Myotonic Dystrophy Type 2 Research Fund! bit.ly/3ODZ96Q
@franksantopadre.bsky.social
@franksantopadre.bsky.social
December 3, 2024 at 11:41 PM
#GGACPCARES Since, it's #GivingTuesday, be a mensch and donate to the Gilbert Gottfried Myotonic Dystrophy Type 2 Research Fund! bit.ly/3ODZ96Q
@franksantopadre.bsky.social
@franksantopadre.bsky.social
My dad, a scientist, once went to a political event where a Republican candidate said to the crowd "can you believe we are spending $5 million studying zebrafish eyes" and everyone laughed
And then my dad said "ok but we are probably gonna cure muscular dystrophy" medicalxpress.com/news/2024-01...
And then my dad said "ok but we are probably gonna cure muscular dystrophy" medicalxpress.com/news/2024-01...
Zebrafish's eye muscles give hope for people with muscular dystrophy diseases
Muscular dystrophies are a group of diseases in which proteins in the muscles do not function properly, either through inherited or spontaneous mutations. This, in turn, leads to muscle tissue breakin...
medicalxpress.com
March 17, 2025 at 3:23 AM
My dad, a scientist, once went to a political event where a Republican candidate said to the crowd "can you believe we are spending $5 million studying zebrafish eyes" and everyone laughed
And then my dad said "ok but we are probably gonna cure muscular dystrophy" medicalxpress.com/news/2024-01...
And then my dad said "ok but we are probably gonna cure muscular dystrophy" medicalxpress.com/news/2024-01...
5K Fun Run for Muscular Dystrophy-ass liquor.
September 16, 2024 at 12:21 AM
5K Fun Run for Muscular Dystrophy-ass liquor.
One man in CECOT "doesn’t even know that his child’s been born," his lawyer said. Another has muscular dystrophy affecting his right arm, per a court filing. The facts fit "every definition of an enforced disappearance under international law," an attorney told me.
www.huffpost.com/entry/cecot-...
www.huffpost.com/entry/cecot-...
Lawyers Are Sounding The Alarm About Trump Disappearing People
There’s a real risk that hundreds of people sent to a brutal prison camp will never be free.
www.huffpost.com
April 12, 2025 at 12:22 AM
One man in CECOT "doesn’t even know that his child’s been born," his lawyer said. Another has muscular dystrophy affecting his right arm, per a court filing. The facts fit "every definition of an enforced disappearance under international law," an attorney told me.
www.huffpost.com/entry/cecot-...
www.huffpost.com/entry/cecot-...