Very true. FYI, 2 yrs ago, LongCovidMoonShot people were actively pursing Congress for money which included LC & ME. At the same time @LongCovidAP people were aggressively pushing for mainly LC funding. Big clash between groups. Personally, I don't care what you call it. It's a commendable start.
September 3, 2026 at 4:48 AM
Very true. FYI, 2 yrs ago, LongCovidMoonShot people were actively pursing Congress for money which included LC & ME. At the same time @LongCovidAP people were aggressively pushing for mainly LC funding. Big clash between groups. Personally, I don't care what you call it. It's a commendable start.
"I subsist on teaspoons of life”
#LongCovid essay by @jessielosch.bsky.social on @literaryhub.bsky.social with shout-outs to @patientled.bsky.social & #LongCovidMoonshot!
(also featuring one of my favorite public libraries in niu yor 💜)
#LongCovid essay by @jessielosch.bsky.social on @literaryhub.bsky.social with shout-outs to @patientled.bsky.social & #LongCovidMoonshot!
(also featuring one of my favorite public libraries in niu yor 💜)
Very grateful to have my essay about living with #longcovid, and the many missings it has wrought, up on @literaryhub.bsky.social.
A Single Ray of Light: On Ray Bradbury’s “All Summer in a Day” and Living in the Shadow of Long COVID
“My first well Day—since many ill— I asked to go abroad, And take the Sunshine in my hands, And see the things in Pod—” —Emily Dickinson, 574 * When I was a child, I spent many long afternoons at J…
lithub.com
April 6, 2025 at 1:01 AM
"I subsist on teaspoons of life”
#LongCovid essay by @jessielosch.bsky.social on @literaryhub.bsky.social with shout-outs to @patientled.bsky.social & #LongCovidMoonshot!
(also featuring one of my favorite public libraries in niu yor 💜)
#LongCovid essay by @jessielosch.bsky.social on @literaryhub.bsky.social with shout-outs to @patientled.bsky.social & #LongCovidMoonshot!
(also featuring one of my favorite public libraries in niu yor 💜)
A year after the senate hearing on #LongCovid it is frustrating the #LongCovidMoonshot has been lost in the congressional shuffle.
Thankful these panelists will try again to inform decision makers and keep our hope alive!
Thankful these panelists will try again to inform decision makers and keep our hope alive!
Excited to see this Long Covid Congressional Briefing on Feb 26 held by the American Association of Immunologists - with amazing panelists @virusesimmunity.bsky.social, @ejohnwherry.bsky.social, and @lisamccorkell.bsky.social! Just contacted all my congresspeople to suggest they send their staffers.
The American Association of Immunologists - AAI Congressional Briefing (February 2025)
www.aai.org
February 13, 2025 at 3:11 AM
A year after the senate hearing on #LongCovid it is frustrating the #LongCovidMoonshot has been lost in the congressional shuffle.
Thankful these panelists will try again to inform decision makers and keep our hope alive!
Thankful these panelists will try again to inform decision makers and keep our hope alive!
Yesterday #LongCOVIDMoonShot and all #LongCOVID research were wholly mothballed. We warned you in May of last year the re-election of Hitler would make matters worse. We despise being evidenced that our fearporn was right.
We seethe with anger, to have to say, we told you so.
x.com/RealCheckMar...
We seethe with anger, to have to say, we told you so.
x.com/RealCheckMar...
January 28, 2025 at 5:02 PM
Yesterday #LongCOVIDMoonShot and all #LongCOVID research were wholly mothballed. We warned you in May of last year the re-election of Hitler would make matters worse. We despise being evidenced that our fearporn was right.
We seethe with anger, to have to say, we told you so.
x.com/RealCheckMar...
We seethe with anger, to have to say, we told you so.
x.com/RealCheckMar...
Having proof of #LongCovid’s damage will hopefully lead to treatment.
The study used a 7T MRI.
NIH: Due to costs and high-level requirements for maintenance, 7T MRI is available in only a few specialized centers in the world.
@sanders.senate.gov Don’t forget about #LongCovidMoonshot
The study used a 7T MRI.
NIH: Due to costs and high-level requirements for maintenance, 7T MRI is available in only a few specialized centers in the world.
@sanders.senate.gov Don’t forget about #LongCovidMoonshot
Brain abnormalities in people with #myalgicencephalomyelitis
journals.plos.org/plosone/arti...
29 fulfilled ME-ICC and/or ME/CFS-CCC
"These findings suggest that hippocampal alterations may contribute to the neurocognitive impairment experienced by long COVID and ME/CFS patients."
#longcovid
Hippocampal subfield volume alterations and associations with severity measures in long COVID and ME/CFS: A 7T MRI study
Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients share similar symptoms including post-exertional malaise, neurocognitive impairment, and memory loss. The neurocogni...
journals.plos.org
January 14, 2025 at 8:54 PM
Having proof of #LongCovid’s damage will hopefully lead to treatment.
The study used a 7T MRI.
NIH: Due to costs and high-level requirements for maintenance, 7T MRI is available in only a few specialized centers in the world.
@sanders.senate.gov Don’t forget about #LongCovidMoonshot
The study used a 7T MRI.
NIH: Due to costs and high-level requirements for maintenance, 7T MRI is available in only a few specialized centers in the world.
@sanders.senate.gov Don’t forget about #LongCovidMoonshot
We assume Dr. Topol is aspiring for favour with the incoming POTUS. We noticed he'd been collaborating quite a bit with Dr. Ziyad Al-Aly on #LongCOVID projects where he wasn't posting as much nonsense and Dr. Al-Aly is quiet of late. The incoming administration is likely to quash #LongCovidMoonShot
January 7, 2025 at 6:34 PM
We assume Dr. Topol is aspiring for favour with the incoming POTUS. We noticed he'd been collaborating quite a bit with Dr. Ziyad Al-Aly on #LongCOVID projects where he wasn't posting as much nonsense and Dr. Al-Aly is quiet of late. The incoming administration is likely to quash #LongCovidMoonShot
The list of what I miss from my old life is longggggggg.
The list of what I’ve put into recovering just fraction of my life is longgggggggggg.
With a new senate and the #LongCovidMoonshot far from final, keep sharing the affects of #LongCovid.
My story: www.sueponcin.com
a.co/d/iIOhl6b
The list of what I’ve put into recovering just fraction of my life is longgggggggggg.
With a new senate and the #LongCovidMoonshot far from final, keep sharing the affects of #LongCovid.
My story: www.sueponcin.com
a.co/d/iIOhl6b
January 6, 2025 at 10:30 PM
The list of what I miss from my old life is longggggggg.
The list of what I’ve put into recovering just fraction of my life is longgggggggggg.
With a new senate and the #LongCovidMoonshot far from final, keep sharing the affects of #LongCovid.
My story: www.sueponcin.com
a.co/d/iIOhl6b
The list of what I’ve put into recovering just fraction of my life is longgggggggggg.
With a new senate and the #LongCovidMoonshot far from final, keep sharing the affects of #LongCovid.
My story: www.sueponcin.com
a.co/d/iIOhl6b
@allyann.bsky.social
C19LAP
COVID-19 Longhauler Advocacy Project
IACC
Infection-Associated Chronic Conditions
Long COVID Associated Conditions
Longhauler
LongCOVIDAdvocacy
LongCOVIDMoonshot
LongCOVIDWducation
LongCOVIDAwareness
COVIDConscious
C19LAP
COVID-19 Longhauler Advocacy Project
IACC
Infection-Associated Chronic Conditions
Long COVID Associated Conditions
Longhauler
LongCOVIDAdvocacy
LongCOVIDMoonshot
LongCOVIDWducation
LongCOVIDAwareness
COVIDConscious
November 13, 2024 at 6:24 AM
@allyann.bsky.social
C19LAP
COVID-19 Longhauler Advocacy Project
IACC
Infection-Associated Chronic Conditions
Long COVID Associated Conditions
Longhauler
LongCOVIDAdvocacy
LongCOVIDMoonshot
LongCOVIDWducation
LongCOVIDAwareness
COVIDConscious
C19LAP
COVID-19 Longhauler Advocacy Project
IACC
Infection-Associated Chronic Conditions
Long COVID Associated Conditions
Longhauler
LongCOVIDAdvocacy
LongCOVIDMoonshot
LongCOVIDWducation
LongCOVIDAwareness
COVIDConscious
From Sen. Sanders: "Let’s be clear. The impact of long COVID-19 is not just a health issue. It’s an economic one as well. It’s estimated that as many as 4 million Americans are out of work due to long COVID-19."
#LongCOVID #LongCOVIDMoonshot
#MECFS
tinyurl.com/36b2b8p3
#LongCOVID #LongCOVIDMoonshot
#MECFS
tinyurl.com/36b2b8p3
Bernie Sanders: America Must Confront Its Long COVID Crisis
Long COVID is real. It is negatively impacting tens of millions of people throughout the United States and the world. We can no longer ignore it, or its sufferers’ treatment needs.
tinyurl.com
September 12, 2024 at 4:17 PM
From Sen. Sanders: "Let’s be clear. The impact of long COVID-19 is not just a health issue. It’s an economic one as well. It’s estimated that as many as 4 million Americans are out of work due to long COVID-19."
#LongCOVID #LongCOVIDMoonshot
#MECFS
tinyurl.com/36b2b8p3
#LongCOVID #LongCOVIDMoonshot
#MECFS
tinyurl.com/36b2b8p3
When the Ryan White Act part that you advocated for is funding your/your buddies' orgs...
When you spend years crafting/giving feedback on/pushing "#LongCovid" legislation that you're going to $$$ from...
A grotesque abuse of #pwLC, ethics & duty
@SenSanders #LongCovidMoonshot
When you spend years crafting/giving feedback on/pushing "#LongCovid" legislation that you're going to $$$ from...
A grotesque abuse of #pwLC, ethics & duty
@SenSanders #LongCovidMoonshot
February 4, 2025 at 4:29 AM
When the Ryan White Act part that you advocated for is funding your/your buddies' orgs...
When you spend years crafting/giving feedback on/pushing "#LongCovid" legislation that you're going to $$$ from...
A grotesque abuse of #pwLC, ethics & duty
@SenSanders #LongCovidMoonshot
When you spend years crafting/giving feedback on/pushing "#LongCovid" legislation that you're going to $$$ from...
A grotesque abuse of #pwLC, ethics & duty
@SenSanders #LongCovidMoonshot
USA 2024 Budget = 6.9T
"Healthcare" spending is 26% of that at ~1.8T
~10% of Americans have #LongCovid, but @SenSanders @PatientLed @LCMoonshot's #LongCovidMoonshot $1B/yr for #pwLC + IACC is only 0.0001% of USA's budget?
That is NOT justifiable from ANY perspective
"Healthcare" spending is 26% of that at ~1.8T
~10% of Americans have #LongCovid, but @SenSanders @PatientLed @LCMoonshot's #LongCovidMoonshot $1B/yr for #pwLC + IACC is only 0.0001% of USA's budget?
That is NOT justifiable from ANY perspective
February 4, 2025 at 4:35 AM
USA 2024 Budget = 6.9T
"Healthcare" spending is 26% of that at ~1.8T
~10% of Americans have #LongCovid, but @SenSanders @PatientLed @LCMoonshot's #LongCovidMoonshot $1B/yr for #pwLC + IACC is only 0.0001% of USA's budget?
That is NOT justifiable from ANY perspective
"Healthcare" spending is 26% of that at ~1.8T
~10% of Americans have #LongCovid, but @SenSanders @PatientLed @LCMoonshot's #LongCovidMoonshot $1B/yr for #pwLC + IACC is only 0.0001% of USA's budget?
That is NOT justifiable from ANY perspective
More facts that you'll never hear from anyone associated with or pushing the piddly $1B/yr for 10yrs #LongCovidMoonshot who is working to UNDERFUND YOU BY $420 BILLION DOLLARS OVER THE NEXT DECADE
https://x.com/AlbaDocherty/status/1827534504564809923
https://x.com/AlbaDocherty/status/1827534504564809923
February 4, 2025 at 4:53 AM
More facts that you'll never hear from anyone associated with or pushing the piddly $1B/yr for 10yrs #LongCovidMoonshot who is working to UNDERFUND YOU BY $420 BILLION DOLLARS OVER THE NEXT DECADE
https://x.com/AlbaDocherty/status/1827534504564809923
https://x.com/AlbaDocherty/status/1827534504564809923
How @LisaAMcCorkell @PatientLed @MichaelPelusoMD @LCMoonshot ridiculously underfunded $1B/yr #LongCovidhashtag/LongCovidMoonshot" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#LongCovidMoonshot compares to HIV funding after already having decades of research & ~50 Rx on the market →when #LongCovid has ZERO approved Rx & ZERO EAUs...
1985 HIV budget = $190M for 15,527 ppl w/HIV. That's $12,337 PP. Adj for inflation = $35,215 PP. Comparable #LongCovid funding = $704B/yr
@LCLMoonshot saying $50 PP (but less, b/c IACC) is close to HIV 1985, & that an Act that has existed for 34 yrs needs "groundwork" is 💯💩
@LCLMoonshot saying $50 PP (but less, b/c IACC) is close to HIV 1985, & that an Act that has existed for 34 yrs needs "groundwork" is 💯💩
February 4, 2025 at 4:41 AM
How @LisaAMcCorkell @PatientLed @MichaelPelusoMD @LCMoonshot ridiculously underfunded $1B/yr #LongCovidhashtag/LongCovidMoonshot" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#LongCovidMoonshot compares to HIV funding after already having decades of research & ~50 Rx on the market →when #LongCovid has ZERO approved Rx & ZERO EAUs...
Dr Cutler's response to #LongCovidhashtag/LongCovidMoonshot" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#LongCovidMoonshot $1B/yr, originally just for research (no legislation), was that #LongCovid RESEARCH ONLY needs to be AT LEAST $28B/yr
tft they have now added other illnesses + $1B of "services" to this, without adding a penny to cover the adds, is 🤯😡
tft they have now added other illnesses + $1B of "services" to this, without adding a penny to cover the adds, is 🤯😡
February 4, 2025 at 4:29 AM
Dr Cutler's response to #LongCovidhashtag/LongCovidMoonshot" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#LongCovidMoonshot $1B/yr, originally just for research (no legislation), was that #LongCovid RESEARCH ONLY needs to be AT LEAST $28B/yr
tft they have now added other illnesses + $1B of "services" to this, without adding a penny to cover the adds, is 🤯😡
tft they have now added other illnesses + $1B of "services" to this, without adding a penny to cover the adds, is 🤯😡
The HEAL Legislation is NOT the same as Dr Cutler's response to the idiotic $1B/yr #LongCovidMoonshot: no less than $28B/yr for LC research "There's no amount that's overdoing it."
Hence #LongCovidAP's action to DECLARE LONG COVID A NATIONAL EMERGENCY...
Hence #LongCovidAP's action to DECLARE LONG COVID A NATIONAL EMERGENCY...
February 4, 2025 at 4:47 AM
The HEAL Legislation is NOT the same as Dr Cutler's response to the idiotic $1B/yr #LongCovidMoonshot: no less than $28B/yr for LC research "There's no amount that's overdoing it."
Hence #LongCovidAP's action to DECLARE LONG COVID A NATIONAL EMERGENCY...
Hence #LongCovidAP's action to DECLARE LONG COVID A NATIONAL EMERGENCY...
Total US HIV budget 2022 = $43B, $35,833 PP w/HIV. HEAL legislation includes similar +services for #pwLC
HIV research-only budget 2024 = $3.8B, $3,194 PP. Dr Cutler's "no less than $28B/yr" #LongCovid research = ≥$1,400 PP w/LC
$1B/yr #LongCovidMoonshot = ≤$50 PP LC + IACC
HIV research-only budget 2024 = $3.8B, $3,194 PP. Dr Cutler's "no less than $28B/yr" #LongCovid research = ≥$1,400 PP w/LC
$1B/yr #LongCovidMoonshot = ≤$50 PP LC + IACC
February 4, 2025 at 4:29 AM
Total US HIV budget 2022 = $43B, $35,833 PP w/HIV. HEAL legislation includes similar +services for #pwLC
HIV research-only budget 2024 = $3.8B, $3,194 PP. Dr Cutler's "no less than $28B/yr" #LongCovid research = ≥$1,400 PP w/LC
$1B/yr #LongCovidMoonshot = ≤$50 PP LC + IACC
HIV research-only budget 2024 = $3.8B, $3,194 PP. Dr Cutler's "no less than $28B/yr" #LongCovid research = ≥$1,400 PP w/LC
$1B/yr #LongCovidMoonshot = ≤$50 PP LC + IACC
'LCAP has proposed legislation that does much more [than #LongCovidMoonshot] to address Covid & Long Covid:
· Focus on antiviral Tx & biomarkers
• Focus on immediate clinical trials
· Focus on prevention & equity
· Focus on care'
Tell lawmakers here ↓
https://tinyurl.com/yuus3utk
· Focus on antiviral Tx & biomarkers
• Focus on immediate clinical trials
· Focus on prevention & equity
· Focus on care'
Tell lawmakers here ↓
https://tinyurl.com/yuus3utk
February 4, 2025 at 5:39 AM
'LCAP has proposed legislation that does much more [than #LongCovidMoonshot] to address Covid & Long Covid:
· Focus on antiviral Tx & biomarkers
• Focus on immediate clinical trials
· Focus on prevention & equity
· Focus on care'
Tell lawmakers here ↓
https://tinyurl.com/yuus3utk
· Focus on antiviral Tx & biomarkers
• Focus on immediate clinical trials
· Focus on prevention & equity
· Focus on care'
Tell lawmakers here ↓
https://tinyurl.com/yuus3utk
Weitere Details zum Vorschlag von Bernie Sanders:
www.sanders.senate.gov/press-releas...
www.sanders.senate.gov/wp-content/u...
#LongCovidAwareness #MECFS #MECFSAwareness #COVID19 #SARSCoV2 #CovidIsNotOver #Coronavirus #LongCovidKids #LongCovidMoonshot
www.sanders.senate.gov/press-releas...
www.sanders.senate.gov/wp-content/u...
#LongCovidAwareness #MECFS #MECFSAwareness #COVID19 #SARSCoV2 #CovidIsNotOver #Coronavirus #LongCovidKids #LongCovidMoonshot
April 9, 2024 at 10:26 PM
Weitere Details zum Vorschlag von Bernie Sanders:
www.sanders.senate.gov/press-releas...
www.sanders.senate.gov/wp-content/u...
#LongCovidAwareness #MECFS #MECFSAwareness #COVID19 #SARSCoV2 #CovidIsNotOver #Coronavirus #LongCovidKids #LongCovidMoonshot
www.sanders.senate.gov/press-releas...
www.sanders.senate.gov/wp-content/u...
#LongCovidAwareness #MECFS #MECFSAwareness #COVID19 #SARSCoV2 #CovidIsNotOver #Coronavirus #LongCovidKids #LongCovidMoonshot
#longcovid is a womens matter
♀️The highest risk is for women in their mid 40's
♀️That's alot of mums
♀️Yet we are being ignored, dismissed and not getting the care and support we need
🌕🚀We deserve better
🌕🚀We need a #longcovidmoonshot
♀️The highest risk is for women in their mid 40's
♀️That's alot of mums
♀️Yet we are being ignored, dismissed and not getting the care and support we need
🌕🚀We deserve better
🌕🚀We need a #longcovidmoonshot
March 10, 2024 at 8:52 AM
#longcovid is a womens matter
♀️The highest risk is for women in their mid 40's
♀️That's alot of mums
♀️Yet we are being ignored, dismissed and not getting the care and support we need
🌕🚀We deserve better
🌕🚀We need a #longcovidmoonshot
♀️The highest risk is for women in their mid 40's
♀️That's alot of mums
♀️Yet we are being ignored, dismissed and not getting the care and support we need
🌕🚀We deserve better
🌕🚀We need a #longcovidmoonshot
Worth bookmarking, in addition to downloading the "Get the facts" #LongCovidMoonshot fact sheet:
longcovidmoonshot.com
longcovidmoonshot.com
Long Covid Moonshot
longcovidmoonshot.com
January 20, 2024 at 2:07 AM
Worth bookmarking, in addition to downloading the "Get the facts" #LongCovidMoonshot fact sheet:
longcovidmoonshot.com
longcovidmoonshot.com
Dr. Ziyad Al-Aly is extraordinary. What a stunning, clear, moving, and fact-packed testimony before the U.S. Senate today.
#LongCovidAwareness #LongCovidMoonshot
www.help.senate.gov/hearings/add...
#LongCovidAwareness #LongCovidMoonshot
www.help.senate.gov/hearings/add...
January 18, 2024 at 5:05 PM
Dr. Ziyad Al-Aly is extraordinary. What a stunning, clear, moving, and fact-packed testimony before the U.S. Senate today.
#LongCovidAwareness #LongCovidMoonshot
www.help.senate.gov/hearings/add...
#LongCovidAwareness #LongCovidMoonshot
www.help.senate.gov/hearings/add...
Hey Long COVID folks and allies! (And by allies I am addressing pretty much everybody! We need all hands on deck for this one!)
Sen. Sanders is holding a committee hearing this Thursday on Long COVID, research funding thereof, etc. This is huge, unprecedented attention from Congress on this issue.
Sen. Sanders is holding a committee hearing this Thursday on Long COVID, research funding thereof, etc. This is huge, unprecedented attention from Congress on this issue.
January 16, 2024 at 12:47 AM
Hey Long COVID folks and allies! (And by allies I am addressing pretty much everybody! We need all hands on deck for this one!)
Sen. Sanders is holding a committee hearing this Thursday on Long COVID, research funding thereof, etc. This is huge, unprecedented attention from Congress on this issue.
Sen. Sanders is holding a committee hearing this Thursday on Long COVID, research funding thereof, etc. This is huge, unprecedented attention from Congress on this issue.
Please join in & tell Congress & the White House we need a #LongCovidMoonshot of at least $1 billion per year for the next ten years for biomedical research
Calling guides & holiday card templates available at LongCovidMoonshot.com
Calling guides & holiday card templates available at LongCovidMoonshot.com
Long Covid Moonshot
LongCovidMoonshot.com
December 19, 2023 at 3:10 AM
Please join in & tell Congress & the White House we need a #LongCovidMoonshot of at least $1 billion per year for the next ten years for biomedical research
Calling guides & holiday card templates available at LongCovidMoonshot.com
Calling guides & holiday card templates available at LongCovidMoonshot.com
Long COVID research money is running out with no cure in sight. If you can spare a few minutes to contact your reps to ask them to push for more funding, those of us with Long COVID would appreciate it. #LongCovidMoonshot
You can find a guide here: longcovidmoonshot.com
You can find a guide here: longcovidmoonshot.com
Long Covid Moonshot
longcovidmoonshot.com
November 14, 2023 at 10:16 PM
Long COVID research money is running out with no cure in sight. If you can spare a few minutes to contact your reps to ask them to push for more funding, those of us with Long COVID would appreciate it. #LongCovidMoonshot
You can find a guide here: longcovidmoonshot.com
You can find a guide here: longcovidmoonshot.com
Long Covid research funding is about to run out and there are still zero FDA-approved treatments. Following an article in Nature that called for a #LongCovidMoonshot, patients and allies are asking for Congressional support. If you have a few extra mins to add this to yr call list, I’d be grateful 🙏🏻
Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝
Have you made your calls yet today?
Call guide here: longcovidmoonshot.com
Have you made your calls yet today?
Call guide here: longcovidmoonshot.com
November 14, 2023 at 9:53 PM
Long Covid research funding is about to run out and there are still zero FDA-approved treatments. Following an article in Nature that called for a #LongCovidMoonshot, patients and allies are asking for Congressional support. If you have a few extra mins to add this to yr call list, I’d be grateful 🙏🏻