#musculardystrophy
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carlafowler16.bsky.social
My half marathon is just a few weeks away! I’m raising money again for the Muscular Dystrophy Association to give help and hope to so many families, including mine.

Please donate if you can. Simply sharing the link for others to see helps too!

Thank you 💜

mda.donordrive.com/participants...
I'm supporting Muscular Dystrophy Association
Join MDA and help me fund research for cures for MuscularDystrophy, ALS and related #neuromuscular diseases.
mda.donordrive.com
September 23, 2026 at 10:53 PM
jdavismallory.bsky.social
Lessons From a 39-Year-Old Girl Living with Muscular Dystrophy. If you want the full essay, click on the link in the comments below! #disability #musculardystrophy #personalessay #chronicillness,
September 16, 2026 at 5:32 AM
stemcellnetwork.ca
SCN researchers are working to better understand #MuscleStemCells and develop treatments for #MuscularDystrophy and other muscle diseases. From restoring muscle stem cell function to developing anti-fibrotic treatments that reduce scarring and support #TissueRegeneration,
September 11, 2026 at 4:00 PM
pathfindersnma.bsky.social
Our next PAE Session is Wednesday 23rd September, 6pm-7pm.

The next session will be an open discussion.

Sign up to our sessions: https://ow.ly/H9CT50ZBo2a

#MuscularDystrophy #DisabilitySupport #PAEmployer #PathfindersNMA
September 10, 2026 at 2:01 PM
francesleckie.bsky.social
This week's IL newsletter: Muscular Dystrophy UK is investing £1.5m in 10 new research projects, taking its current research commitment to more than £10m.

buff.ly/AAC6hVg
#MuscularDystrophy #RareDisease
September 10, 2026 at 12:01 PM
yokoono-inyourmind.bsky.social
ON THIS DAY IN 1972:
MY STORY:
John & Yoko bring Peace to the Labor Day Telethon…
September 4, 1972
madelinex.com/2017/09/04/j...

From:
In Your Mind - The Infinite Universe of Yoko Ono
inyourmindbook.com

#johnlennon #yokoono #jerrylewis #jerrylewistelethon #laborday #musculardystrophy
JOHN & YOKO BRING PEACE TO JERRY LEWIS’ LABOR DAY TELETHON - Madeline Bocaro
Worldwide TV appearances were a major platform for John and Yoko’s peace campaign and for their political messages. Having left London in 1971 for New York City, they commandeered the Mike Douglas Sho...
madelinex.com
September 4, 2026 at 3:00 PM
only1ciaranmather.bsky.social
#Fundraising walk for #MuscularDystrophy to pass through Kildare

#Health #Fundraiser #KildareNews
Fundraising walk for Muscular Dystrophy to pass through Kildare
The walking route will involve locations in counties Kildare, Dublin and Meath
www.leinsterleader.ie
September 3, 2026 at 4:16 PM
celebcharitycinema.bsky.social
#GalGadot ⭐ signed #WonderWoman ❤️💫 toy received by little girl Carmela 💛w/ #MuscularDystrophy
1/9/21 *5th anniversary

Video🎥here👉> youtu.be/MdTUItR-Ghs

#MuscularDystrophyUK
#CarmelaChilleryWatson #charity
#WonderWomanCharity #GalGadotCharity
by #CelebrityCharityCinema

@mdukcharity.bsky.social
September 1, 2026 at 6:06 PM
hassankhaderali.bsky.social
As chronically ill and/or disabled people,t's ok for us to take a pause or even to fall down but we must stand up and came back again stronger than before.
We need to help ourselves as much as we can first to encourage others to support us
#chronicillness
#MuscularDystrophy
August 31, 2026 at 8:35 PM
pathfindersnma.bsky.social
Our next PAE Session is Wednesday 9th September, 6pm-7pm.

The next topic is about Creating a Care Backup Plan.

Sign up to our sessions: https://ow.ly/gOWz50ZBnTb

#MuscularDystrophy #DisabilitySupport #PAEmployer #PathfindersNMA
August 26, 2026 at 10:00 AM
pathfindersnma.bsky.social
Our next PAE Session is Wednesday 26th August, 6pm-7pm.

The next topic will be How to Organise Care on Holiday.

Sign up to our sessions: https://ow.ly/oubG50ZAqX5

#MuscularDystrophy #DisabilitySupport #PAEmployer #PathfindersNMA
August 19, 2026 at 11:00 AM
cissybgood67.bsky.social
New Treatment Shows Remarkable Motor Improvements in Boys with #MuscularDystrophy— in Just 12 Weeks

www.goodnewsnetwork.org/new-treatmen...
New Treatment Shows Remarkable Motor Improvements in Boys With Muscular Dystrophy—in Just 12 Weeks
Binghamton researchers show the drug Vamorolone can treat very young boys with Duchenne muscular dystrophy, preventing muscle loss.
www.goodnewsnetwork.org
August 16, 2026 at 2:59 AM
pathfindersnma.bsky.social
Our next PAE Session is tonight 10th August, 6pm-7pm.

The next topic will be what happens and who pays when my PA comes out with me?

Email Charley@pathfindersalliance.org.uk if you would like to join a session.

#MuscularDystrophy #DisabilitySupport #PAEmployer #PathfindersNMA
August 10, 2026 at 12:01 PM
pathfindersnma.bsky.social
The University of Salford is looking for young men living with Duchenne Muscular Dystrophy (DMD) and their carers to take part in a study exploring experiences of counselling.

Interested? Email a.iqbal50@edu.salford.ac.uk or scan the QR code.

#Duchenne #MuscularDystrophy #DisabilityResearch
August 4, 2026 at 4:01 PM
ribomedicine.bsky.social
New research from my group: treatment timing with peptide-conjugated exon skipping drugs makes a big difference to therapeutic effects in a DMD mouse model. Starting treatment early is more effective.

#OxfordPaediatrics #IDRMOxford #DMD #MuscularDystrophy #ExonSkipping #dystrophin
August 3, 2026 at 9:40 AM
despinakarras.com
MDA's 2025 tax returns have been posted - just not on their site. Read more in my latest on @medium.com

#nonprofit #mda #musculardystrophy

I just published The Muscular Dystrophy Association’s 2025 Taxes: Disappointing, But Not Surprising medium.com/p/the-muscul...
The Muscular Dystrophy Association’s 2025 Taxes: Disappointing, But Not Surprising
As many of you know, I have had issues with the dishonest way the Muscular Dystrophy Association has conducted business in the last few…
medium.com
July 28, 2026 at 12:53 PM
gmj-georgia.bsky.social
A 20-year body of controlled trials shows creatine supplementation is safe in children—even at 28g daily in infants with brain injury. Yet regu…

#Clinicalevidence #Creatine #Musculardystrophy #Pediatricneurology #Supplementsafety

#Clinicalevidence #Creatine #Musculardystrophy #Pediatricneurolog…
Creatine in Children: Evidence Shows Safety, Not Risk
A 20-year body of controlled trials shows creatine supplementation is safe in children—even at 28g daily in infants with brain injury. Yet regu… #Clinicalevidence #Creatine #Musculardystrophy #Pediatricneurology #Supplementsafety
news.gmj.ge
July 25, 2026 at 1:30 AM
francesleckie.bsky.social
This week's IL newsletter: New MDUK grant fund – A new fund from #MDUK could help people with muscle wasting conditions access essential equipment and home adaptations. #MuscularDystrophy #HomeAdaptations #DisabilityGrants #IndependentLiving #ILcommunity
buff.ly/SE9t9nI
July 10, 2026 at 8:01 AM
dhsc-answers.bsky.social
A question on #MuscularDystrophy #MedicalTreatments tabled by Shockat Adam on 29-06-2026 has been answered by Preet Kaur Gill. https://questions-statements.parliament.uk/written-questions/detail/2026-06-29/14068
July 6, 2026 at 11:50 AM
rollingwithranda.bsky.social
Happy Disability Pride Month everyone! My first drawing of the month is a self-portrait "Beautifully Broken". It's inspired by Frida Kahlo's "The Broken Pillar".
#disabilitypridemonth #fridakahlo #disabledartist #digitalart #digitalartist #pride #selfportrait #MuscularDystrophy #mentalhealth
July 3, 2026 at 6:55 AM
nmd4c.ca
Registration is now open for the 2026 LGMD Scientific Summit, hosted by The Speak Foundation
Date: Friday, July 31, 2026
Time: 11:00 AM to 3:00 PM EDT
Format: Virtual
🔗 Register here: lp.constantcontactpages.com/ev/reg/md2vj6u

#LGMD #MuscularDystrophy #ClinicalTrials #RareDisease #MedicalResearch
June 30, 2026 at 12:01 PM
jdavismallory.bsky.social
I talk about how nobody teaches you how to talk about your disability. See my thoughts in the comments below! #disability #personalessay #musculardystrophy
Nobody Teaches You How to Tell People You're Disabled
June 22, 2026 at 4:03 AM
doctorsbeardpod.bsky.social
April 22, 1989 - Daily Post the Paper for Wales - Jon Pertwee appears for the latest drive to raise money for muscular dystrophy.
#JonPertwee
#MuscularDystrophy
#CharityDrive
#Fundraising
#DailyPostWales
#Wales
#1989
#DoctorWho
#CelebrityCharity
#RetroNews
June 21, 2026 at 10:00 AM
bsrajput.bsky.social
Tags:
Duchenne Muscular Dystrophy, Free DMD Treatment, Bone Marrow Cellular Transplant, Dr B S Rajput, Muscular Dystrophy Treatment, Neuromuscular Disorder Treatment, Raj Hospital Ranchi, Regenerative Medicine India, DMD Awareness, Cellular Therapy

#DMDTreatment #MuscularDystrophy #DrBSRajput
June 20, 2026 at 9:00 AM
bsrajput.bsky.social
Tags:
Free DMD Treatment, Jharkhand CM Relief Fund, Bone Marrow Cellular Transplant, Dr B S Rajput, Muscular Dystrophy Treatment, Neuromuscular Disorder Treatment, Raj Hospital Ranchi, Regenerative Medicine India, DMD Awareness, Cellular Therapy

#DMDTreatment #MuscularDystrophy #DrBSRajput
June 17, 2026 at 9:32 AM