#progressiveillness
There are too many unfinished projects.

#progressiveillness
March 3, 2026 at 12:01 AM
Another from that series for #BlueskyArtShow #horizontal

The symptoms are shown in stacked horizontal bands depending on location.

#sciart #neuro #progressiveillness #symptomology
Tracking a Movement Disorder n.4 (2018 from Temporal Dichotomy series)

Colored pencil and ink on paper

#TradArt #SciArt #neuro #drawing #symptoms #chronicillness
March 14, 2026 at 4:38 PM
Ok. So “i haven’t done shark hat in a while” collided with “i haven’t done a PT/health video update in a while”

And now we have:
Mickey in Shark Hat shows you how their core (almost) works!

#progressiveillness #musculardegeneration #raredisorder #sharkhat
March 28, 2026 at 9:23 PM
Release (2025)

Sono Una Fotografia
On body, progressive illness, letting go, and identity

#eastcoastkin #chronicillness #artofselfportraiture #progressiveillness #mortality #humansofbluesky
November 8, 2025 at 9:38 PM
Just made this one a public post. It is a part 2, so not much text. Just the images.

#chronicillness #degenerative #art #mixedmedia #progressiveillness

www.patreon.com/posts/126654...
Capturing the Feeling: chronic illness and personhood | Sara Barcus
Get more from Sara Barcus on Patreon
www.patreon.com
September 11, 2025 at 5:04 PM
Just a Little Pin Prick
(Lumbar puncture 2025)

Sono Una Fotografia

On body, searching, degeneration, and identity

#eastcoastkin #photography #ArtofSelfPortraiture #chronicillness #progressiveillness #HumansofBluesky
December 24, 2025 at 6:48 PM
"Normal platitudes, which can mostly be summed up as "This too shall pass", don't apply when you have a treatment-resistant, severely disabling disease that will last your entire life."
Credit @alexandrite113
#DisablingDisease #LifeWithDisability
#ProgressiveIllness #DisabledLife #MySeveralWorlds
November 10, 2025 at 3:39 AM
“I’m not trying to compare the #grief of #loss of ability with the grief of losing a loved one. I’m simply saying both are to be expected and acknowledged as important #emotions": https://buff.ly/4gDjm8i #RareDisease #ProgressiveIllness by @jeantw.bsky.social
When losing our abilities to FA, the feeling of grief is real
Grief is real whether it's for a lost function or for a lost loved one, columnist Jean Walsh has found in her life with FA.
buff.ly
February 11, 2025 at 8:30 PM
The change and threats built into #ADAP have truly changed peoples lives in incalculable and CRUEL ways! #AISH was already a straightjacket for most disabled people unable to work. Why? Various reasons, #braininjury #physicalimpairment, #disease #accidents, #progressiveillness #mental #physical
June 12, 2026 at 12:14 AM