#sicklecell 
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frrms.blacksky.app
Great news! #SickleCell
propcazhpm.bsky.social Citizen.Coping @propcazhpm.bsky.social · Mar 21
Tatyana Thompson said when she became pregnant with her son, her pain from sickle cell intensified. She was repeatedly in the hospital with a sharp pain, which she compared to being cut by a knife.

After experimental treatment requiring bone marrow from her brother, she is pain-free.
#BlackSky 🌱🙏🏾
Woman Diagnosed with Sickle Cell Disease at 2-Months-Old Wakes Up with No Pain for the First Time in Her Life After New Treatment
Tatyana Thompson, who was diagnosed with sickle cell disease when she was 2 months old, was successfully cured of the disease after she participated in Johns Hopkins research on sickle cell treatment.
people.com
March 21, 2026 at 2:46 PM
frrms.blacksky.app
Blood donors help #SickleCell patients like me survive. Every drop counts!
travtufts.bsky.social Travis @travtufts.bsky.social · Sep 7
At Children’s for my 16 week double red appointment and they are looking for AB plasma donors. If that’s you, come on down!
www.halfpints.childrenshospital.org/index.cfm?gr...
Sticker on a fridge at the Boston Children’s Hospital blood donor center. Give pints for half-pints halfpints.childrenshospital.org Boston Children's Blood Donor Hospital Center
September 7, 2025 at 5:08 PM
leonesse8.bsky.social
Posted @withregram • @chronicillnesshumor #chronicillness #chronicpain #invisibleillness #lupus #fibromyalgia #lphs #autoimmunedisease #ms #rheumatoidarthritis #arthritis #ankylosingspondylitis #crps #ulcerativecolitis #endometriosis #scleroderma #sicklecell #fibrosis #gastroparesis #cancersucks
November 24, 2024 at 8:07 PM
jbberrygirl.bsky.social
Getting proper treatment for sickle cell disease can be life-changing. Storylines like this help people understand what it’s like to live with the condition, which is really valuable.
#sicklecell #blackhealthcare #thepitt
April 14, 2025 at 2:08 AM
luminosity.bsky.social
Y'all! Y'all! Look at this!
#SickleCell
New Orleans man becomes first in Louisiana functionally cured of sickle cell disease
Daniel Cressy, 23, underwent gene therapy at Manning Family Children’s Hospital.
www.fox8live.com
June 25, 2026 at 3:07 AM
bylines.scot
This is great news. Amazing scientists working for humankind!

#SickleCell
A major breakthrough in gene therapy for the treatment of sickle cell disease
CRISPR/Cas9, a powerful gene-editing technology has been successfully used to treat sickle cell disease, a painful life-threatening inherited blood disorder
bylines.scot
February 26, 2025 at 7:50 AM
ash.hematology.org
ASH urges the House to reject the current reconciliation package that jeopardizes care for patients with #SickleCell disease.

Join ASH in helping to protect access to care: https://bit.ly/43ns1aB

#Fight4Hematology #HemeSky #MedSky
May 20, 2025 at 8:21 PM
bylines.scot
A wonderful response to this article yesterday folks. Thanks for liking and reposting! It was so great to have some good news...

#SickleCell
#GeneTherapy
A major breakthrough in gene therapy for the treatment of sickle cell disease
CRISPR/Cas9, a powerful gene-editing technology has been successfully used to treat sickle cell disease, a painful life-threatening inherited blood disorder
bylines.scot
February 27, 2025 at 7:49 AM
ash.hematology.org
#ASH24 News: Researchers Report New Opportunities to Improve Quality of Life for People with Non-Malignant Blood Disorders: bit.ly/3ZrV7TZ

#Sicklecell #ConquerSCD #HemeSky #Hematology
December 7, 2024 at 5:35 PM
drmiguelperales.bsky.social
On my way to @ash-hematology.bsky.social #ASH24 & sharing this starterpack for HCT, #CARTcells & #genetherapy - > 100 members DM/comment if I missed someone #bmtsm #mmsm #leusm #lymsm #sicklecell #mpnsm #medsky

go.bsky.app/7xxh8WW
December 5, 2024 at 12:32 PM
ash.hematology.org
💝 This #ValentinesDay, we want improved access to high-quality outpatient care for individuals living with #SickleCell.

#HealthPolicyValentines #ConquerSCD #SickleCell #SCD #sicklecelldisease #FundHealth #DontCutCures
February 14, 2025 at 7:30 PM
robyncohenmd.bsky.social
So excited - not a hematologist but coming to #ASH2024 as a #sicklecell 🫁 doc in my new cranberry blazer! ❤️(Come find me at my poster Sunday night! 👏🏼)
marycushmanmd.bsky.social Mary Cushman 🫀🧠🩸 @marycushmanmd.bsky.social · Nov 27
Dear Hematologists with Style: What blood-related outfit will you be wearing at #ASH24?
November 27, 2024 at 4:30 PM
ash.hematology.org
#ASH24 News: ASH Newborn SCD Screening Program in Sub-Saharan Africa Found Feasible: bit.ly/4faSNXk 🩸🌍

#ConquerSCD #Sicklecell #HemeSky #Hematology
December 8, 2024 at 8:12 PM
paperwhispers.bsky.social
**Patients, carers and clinicians with lived experience of sickle cell in the UK**

A survey for shaping future sickle cell research if you are happy to participate
www.surveymonkey.com/r/sicklecell...
December 19, 2024 at 11:51 AM
bylines.scot
Previously on Bylines Scotland...

#SickleCell
#Health
#GeneTherapy
A major breakthrough in gene therapy for the treatment of sickle cell disease
CRISPR/Cas9, a powerful gene-editing technology has been successfully used to treat sickle cell disease, a painful life-threatening inherited blood disorder
bylines.scot
March 6, 2025 at 12:32 PM
bambosmp.bsky.social
A pleasure to officially open the #sicklecell & #thalassaemia Emergency Department Bypass Unit at North Middlesex hospital with Chief Nurse for London, Karen Bonner. Thank you to Evan Smith’s family and all who made the Unit happen, securing better outcomes for #sicklecell & #thalassemia patients
December 31, 2024 at 2:16 PM
b-avalos-md.bsky.social
Today I got to speak with ASH News TV at #ASH24 celebrating 10 years of ASH’s commitment to conquering sickle cell
disease and the new ASH Center for SCD Initiatives. Be sure to tune in! #sicklecell

#HemeSky #Hematology
December 6, 2024 at 9:58 PM
bylines.scot
Previously on Bylines Scotland ... a bit of good news!

#SickleCell
#GeneTherapy
A major breakthrough in gene therapy for the treatment of sickle cell disease
CRISPR/Cas9, a powerful gene-editing technology has been successfully used to treat sickle cell disease, a painful life-threatening inherited blood disorder
bylines.scot
March 11, 2025 at 2:45 PM
who.int
Today is #SickleCell Awareness Day 🩸

40% more people are living with sickle cell disease today than in 2000. It is a growing health challenge, affecting around 7.7 million people in the world today.

Read WHO’s new recommendations on care during pregnancy: bit.ly/446z3AV
Title reads 'Sickle cell disease is a group of genetic blood disorders.' Text reads 'Healthy red blood cells are round and flexible. Sickle cells are shaped like crescents. These can block blood flow, causing pain and illness.' Illustration of a microscope and blood cells.
June 19, 2025 at 11:06 AM
drzsicklecell.bsky.social
When a patient living with #SickleCell disease hits the ER with pain, they should get pain meds IMMEDIATELY. A hefty first dose of pain meds can result in better outcomes.

They do not need your narrative, suspicion or discrimination.

They need your help. Be a champion for them.
shematologist.medsky.social Shematologist, MD @shematologist.medsky.social · Nov 11
But the reality is that patients with SCD to this day continue to receive care, funding, and support that is less than.

It is UNACCEPTABLE.

And if we don’t talk about it, how are we ever going to fix it?

19/fin
November 11, 2024 at 8:35 PM
thezebraalliance.bsky.social
Do you live with Sickle Cell Disease, or have a loved one who does? What is one thing you wish people knew about SCD?

#sicklecell #sicklecelldisease #raredisease #chronicillness
February 18, 2026 at 5:43 PM
bylines.scot
A major breakthrough in gene therapy for the treatment of sickle cell disease.

#SickleCell
#Health
A major breakthrough in gene therapy for the treatment of sickle cell disease
CRISPR/Cas9, a powerful gene-editing technology has been successfully used to treat sickle cell disease, a painful life-threatening inherited blood disorder
bylines.scot
February 26, 2025 at 11:58 AM
thesickledoc.bsky.social
I’m reminded every day now that our work is protest. #SickleCell #SCD #DEI
February 20, 2025 at 1:16 AM
bylines.scot
A major breakthrough in gene therapy for the treatment of sickle cell disease | Dr Alan Porter

#GeneTherapy
#SickleCell
A major breakthrough in gene therapy for the treatment of sickle cell disease
CRISPR/Cas9, a powerful gene-editing technology has been successfully used to treat sickle cell disease, a painful life-threatening inherited blood disorder
bylines.scot
February 28, 2025 at 4:30 PM
rakhinaik.bsky.social
The fabulous Dr. Tola Fatola presenting her ASH HIP Award project at #ASH24. What a phenomenal presentation!! True heme superstar! 🩸⭐️🩸

#ProudMentor #SickleCell
@ash-hematology.bsky.social @oslerresidency.bsky.social
December 8, 2024 at 5:17 AM