#vEDS
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mandolineace.bsky.social
Sense halpe! Imb as tha veds! Flerkin 🐾
November 28, 2025 at 3:59 PM
ehlers-danlos.com
Vascular Ehlers-Danlos syndrome (vEDS) is a heritable connective tissue disorder that makes the connective tissue very fragile, particularly in the blood vessels and hollow organs. vEDS can cause life-threatening complications. Learn more about #vEDS: www.ehlers-danlos.com/veds/

#VascularEDS
Infographic from The Ehlers-Danlos Society titled "What is Vascular Ehlers-Danlos Syndrome (vEDS)?" The graphic explains that vascular Ehlers-Danlos syndrome (vEDS) is a rare inherited connective tissue disorder that makes connective tissue, especially in blood vessels and hollow organs, extremely fragile. It notes that vEDS can lead to life-threatening complications including aneurysms, arterial dissections and ruptures, and bowel rupture. The infographic lists key features of vEDS: Easy, unusual, or unexplained bruising Arterial aneurysm, dissection, and rupture, particularly before age 40 Carotid-cavernous sinus fistula occurring without trauma Bowel perforation, most commonly in the sigmoid colon Spontaneous pneumothorax Uterine rupture during the third trimester of pregnancy Characteristic facial features, including prominent eyes, a narrow nose, thin lips, and attached or absent earlobes The design features a white background with subtle gray wave patterns, The Ehlers-Danlos Society logo at the top, and the title highlighted in dark pink.
July 7, 2026 at 10:44 AM
panndder.bsky.social
🔥 www.youtube.com/watch?v=veDs...
April 10, 2025 at 10:30 PM
bubbaprog.xyz
"It is a suicidal attitude."

The Pope, on conservatives:

www.youtube.com/watch?v=VEdS...
POPE
www.youtube.com
May 19, 2024 at 11:52 PM
ehlers-danlos.com
❤️Help us raise awareness of vEDS today - Comment below with where in the world you're joining in from and share your photos!

Learn more about vEDS here www.ehlers-danlos.com/veds/

#vEDS #VascularEDS #Vascular #VascularEhlersDanlosSyndrome #EhlersDanlosSyndrome #MyEDSChallenge #EDSawarenessmonth
vEDS - The Ehlers Danlos Society
Learn about Vascular Ehlers-Danlos Syndrome (vEDS) and it's signs and symptoms. Navigate the body map to learn more about the condition.
www.ehlers-danlos.com
May 16, 2025 at 5:26 AM
ehlers-danlos.com
With awareness, we can ensure earlier diagnosis and monitoring to improve and save lives.

With awareness, we can increase the number of research studies into vEDS, working towards treatments and therapies to improve and save lives.
vEDS - The Ehlers Danlos Society
Learn about Vascular Ehlers-Danlos Syndrome (vEDS) and it's signs and symptoms. Navigate the body map to learn more about the condition.
www.ehlers-danlos.com
May 16, 2025 at 5:26 AM
sedsconnective.org
Vascular Ehlers-Danlos syndrome ( vEDS ) is a rare type, maybe 1/100,000 and can be genetically tested looking for the COL3AI gene mutation but here are some key markers
#vEDS
vascern.bsky.social VASCERN | European Reference Network @vascern.bsky.social · Mar 24
Do you know the red flags for vascular #EhlersDanlos syndrome? Our clinical pathway outlines red flags, diagnostic steps, and essential follow-up for patients with vEDS.

Learn more 👉 bit.ly/4hEn7en

#RareDiseases #vEDS #PatientPathway #vascularhealth
April 15, 2025 at 5:49 AM
broadwaybabyto.bsky.social
When I was diagnosed with vEDS I was crushed. I was angry it took over 3 decades to figure out because of the harm that had been done to me

My solace was that nieces & nephews would have the benefit of my knowledge

Some are in the US & won’t consider preventative care before MAHA kicks in. Tips?
February 14, 2025 at 9:24 PM
thezebraalliance.bsky.social
Arterial Fragility is a real thing: vEDS is the subtype more likely to suffer from arterial rupture, but it can happen to any subtype due to collagen abnormalities. EDS is FAR more than being bendy 🩵🦓🩵

#ehlersdanlossyndrome #ehlersdanlos #EDS #vEDS #chronicillness #raredisease
November 11, 2025 at 8:32 PM
sasquatchewan.bsky.social
Oh, you mean my mother who decided she has vEDS (she doesn’t, we both have plain ole hEDS) and then when she did genetic testing and the geneticist and my EDS provider both told her she has plain ole hEDS, not life threatening vEDS, got Claude to assure her she was right and she has vEDS? 😭
May 17, 2026 at 11:05 PM
markelindsay.bsky.social
Thoracic aortic enlargement is only present in less than 10% of people with COL3A1 deficiency, ie you can’t screen for vEDS with an echocardiogram, please don’t try this at home consult a professional
July 29, 2025 at 9:20 PM
ehlers-danlos.com
🌟 Did you know there are many types of #EhlersDanlossyndrome (EDS) and #hypermobilityspectrumdisorder (HSD), each with their own distinct signs and symptoms?
This image is a medical information graphic focusing on signs and symptoms of vEDS (Vascular Ehlers-Danlos Syndrome) and its effect on the cardiovascular system. The layout is divided into three main sections: 1. **Left Sidebar:** A vertical menu lists different body systems or areas affected by vEDS, including: - Cardiovascular (highlighted in blue) - Chest and Lungs - Gastrointestinal - Skin - Musculoskeletal - Eyes - Mouth and Throat - Feet - Pregnancy 2. **Center:** A human body diagram shows the cardiovascular system in red (arteries) and blue (veins). Major arteries are clearly illustrated, emphasizing the vascular network throughout the body. 3. **Right Panel:** Informational text under the cardiovascular section details symptoms related to the cardiovascular system: - **Arterial aneurysm** (not expanded) - **Arterial dissection** (expanded): Describes arterial dissection as a tear in the artery wall, which separates its layers, leading to potential life-threatening leakage. Specific mention is made of "aortic dissection" as a severe condition. - ⚠️ A warning note highlights that arterial dissection can be life-threatening and requires emergency medical treatment. - **Arterial rupture** and **Early onset varicose veins** are collapsed options. The overall design uses clean lines, bold headings, and color coding to emphasize the cardiovascular system, with blue and red highlighting veins and arteries.
May 9, 2025 at 3:40 PM
haoyin.bsky.social
Arterial vs Aortic Events in #HeritableThoracicAorticDisease
N=1790
#VascularEhlersDanlosSyndrome
#LoeysDietzSyndrome
#MarfanSyndrome

Risk by 40 y/o
Arterial
♂️vEDS>LDS~MFS
♀️vEDS~LDS>MFS

Aortic
TGFBR2>FBN1>TGFBR1~TGFB2>COL3A1~SMAD3

#AortaEd
#JACC 2025
www.sciencedirect.com/science/arti...
June 25, 2025 at 7:23 PM
sealpupper.bsky.social
I remember seeing somebody on Vent who was dying from vEDS and one day they just suddenly stopped posting. I still think about them. I hope that they've found peace, wherever they are
March 19, 2025 at 4:25 PM
tlgibson.bsky.social
“Two years of daily irbesartan, a long-acting oral blood pressure medication, reduced the risk of severe arterial events by 50% in adults with vascular Ehlers-Danlos syndrome (vEDS).”

ehlersdanlosnews.com/news/blood-p...
Blood pressure medicine combination cuts vEDS arterial events in...
Two years of daily irbesartan, a long-acting blood pressure medicine, reduced the risk of severe arterial events by 50% in adults with vEDS.
ehlersdanlosnews.com
March 1, 2025 at 4:56 PM
sedsconnective.org
Today is RARE Disease DAY 2025!💜

EDS has 13 types—12 can be genetically tested.
But are we rare or just rarely diagnosed?

🧬Do you have a rare type like Classical (cEDS) or Vascular EDS (VEDS)?

Join the conversation: #RareDiseaseDay
#EDS #HSD #VEDS #CEDS #hEDS
February 28, 2025 at 5:34 PM
unremarkableme.bsky.social
Understanding vEDS – A severe form of EDS affecting blood vessels, organs, and skin, with life-threatening risks. Early diagnosis is vital. To learn more check out the resources at UnremarkableMe.com
#vEDS #EhlersDanlos #RareDisease

www.unremarkableme.com/post/veds-ge...
vEDS, Genetics, Biomarkers, and How to Live Life Like a Tissue Paper Superhero
Vascular Ehlers-Danlos Syndrome (vEDS) isn’t your average connective tissue disorder. Nope, it’s the drama queen of Ehlers-Danlos Syndrome (EDS), shaking up your blood vessels, organs, and skin with t...
www.unremarkableme.com
February 20, 2025 at 10:05 AM
markelindsay.bsky.social
The Marfan Foundation just published activity and exercise guidelines for people living with Marfan syndrome, LDS, vEDS and related disorders developed by experts from the professional advisory board
marfan.org/resource-lib...
Physical Activity Resource - Marfan Foundation
Exercise & Physical Activity With the right guidance, children and adults living with Marfan syndrome, Loeys-Dietz syndrome (LDS), or Vascular Ehlers-Danlos syndrome (VEDS) can — and should — safely i...
marfan.org
May 6, 2026 at 2:55 PM
ehlers-danlos.com
🌎It’s Day 2 of the 2025 International Scientific Symposium here in Toronto, Canada! Today, sessions will cover classical EDS (cEDS), vascular EDS (vEDS), and research into rarer types of EDS.
September 18, 2025 at 8:11 PM
kdbedell.bsky.social
I wish i could help, but even pre MAH(ell)A, vEDS care is limited. I am trying to figure out how to get my 2 vEDS babies out of this country
February 14, 2025 at 9:32 PM
ehlers-danlos.com
Join the #REDS4VEDS campaign today Friday, May 16, and help to raise awareness of vascular Ehlers-Danlos syndrome (vEDS).⁠ ⁠
⁠
To take part simply:⁠
⁠
🔴Wear something red⁠
⁠
🤳 Post a picture on social media with the hashtag #REDS4VEDS⁠
⁠
A group photo of diverse individuals from The Ehlers-Danlos Society, many of whom are wearing red clothing, standing in front of a red background with a heart-shaped logo containing a zebra head. Above the group is white text that reads, "The Ehlers-Danlos Society wears #REDS4VEDS," promoting awareness for Vascular Ehlers-Danlos Syndrome (VEDS).
May 16, 2025 at 5:26 AM
shunuko.bsky.social
Dalton has a twin sister now!! Her name is Remy and she has vEDS, unfortunately making hed dad Jik view her as a failure of an experiment. Remy and Dalton both try to keep each other safe from their horrid dad.

[ #ocsky ] [ #shundraws ]
December 26, 2025 at 10:08 PM
thezebraalliance.bsky.social
Day 16 – Wear Red 4 vEDS ❤️
"Global REDS4VEDS Day! A day dedicated to raising awareness of vascular #EhlersDanlosSyndrome: show support for people living with #vEDS. 👉 Wear red, take a selfie, and post it on social media + #REDS4VEDS
Info: @ehlersdanlos.bsky.social
#VascularEDS #EDS #raredisease
What is vEDS? vEDS is a genetic connective tissue disorder that causes the blood vessels and organs to be fragile and prone to tearing. The complications of vEDS can be life-threatening and include aneurysm, dissection, and rupture of the arteries and rupture of organs. vEDS may also cause a variety of other symptoms, including extensive bruising and spontaneous pneumothorax.
May 16, 2025 at 1:05 PM
ehlers-danlos.com
#VascularEhlersDanlossyndrome (vEDS) is a heritable connective tissue disorder that makes the connective tissue very fragile, particularly in the blood vessels and hollow organs.

youtu.be/hL2uWv1z7vc?... #Healthcare #HealthProfessionals #Vascular #vEDS
A Doctor’s Guide to Vascular EDS: Recognizing the Signs for Early Diagnosis
YouTube video by Doctor Clair
youtu.be
September 26, 2025 at 1:13 PM