Hippymum
@hippymum.bsky.social
Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
Stop Musk’s Space base actions.eko.org/a/stop-musk-...
Stop Musk’s Space base
Every year, tens of millions of birds fly thousands of miles across North America, stopping at Pecan Island to rest and feed along their epic migration.Snow geese arrive in enormous flocks. Endangered
actions.eko.org
September 14, 2026 at 10:46 PM
Stop Musk’s Space base actions.eko.org/a/stop-musk-...
Reposted by Hippymum
For me, it comes down to this: when compounding crises threaten our water supply, do we want corporations and billionaires in control of it?
September 14, 2026 at 5:19 PM
For me, it comes down to this: when compounding crises threaten our water supply, do we want corporations and billionaires in control of it?
💷 10,000+ people have signed this petition already.
A windfall tax on banks to fund a social tariff would cut typical bills by up to £520 a year.
I’ve signed. Will you? 👇 www.megaphone.org.uk/petitions/ta...
A windfall tax on banks to fund a social tariff would cut typical bills by up to £520 a year.
I’ve signed. Will you? 👇 www.megaphone.org.uk/petitions/ta...
Tax the banks — cut our bills!
Getting banks to pay more tax on their profits to help us with the cost of living is common sense. They’re raking in billions while the rest of us are struggling.
We've seen this pattern before. The h...
www.megaphone.org.uk
September 13, 2026 at 12:45 PM
💷 10,000+ people have signed this petition already.
A windfall tax on banks to fund a social tariff would cut typical bills by up to £520 a year.
I’ve signed. Will you? 👇 www.megaphone.org.uk/petitions/ta...
A windfall tax on banks to fund a social tariff would cut typical bills by up to £520 a year.
I’ve signed. Will you? 👇 www.megaphone.org.uk/petitions/ta...
I’ve just signed @foecymrucydd.bsky.social’s petition about pollution left behind by Wales’s industrial past. Forever chemicals and heavy metals can harm people and wildlife, and thousands of sites could still be contaminated. Demand action now: action.friendsoftheearth.uk/petition/dem...
Demand action on contaminated land in Wales
Add my name We should have the right to know if contaminated land is putting our health and nature at risk. Communities shouldn’t have to live with pollution they didn’t create – or pay the price for ...
action.friendsoftheearth.uk
September 10, 2026 at 5:24 AM
I’ve just signed @foecymrucydd.bsky.social’s petition about pollution left behind by Wales’s industrial past. Forever chemicals and heavy metals can harm people and wildlife, and thousands of sites could still be contaminated. Demand action now: action.friendsoftheearth.uk/petition/dem...
Reposted by Hippymum
Most #ME patients experience no accommodation for their ME related needs within the NHS and any engagement sets us back rather than helping. @tessamunt.bsky.social
has written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs.
has written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs.
Too many #pwME tell me of NHS services where there is no accommodation for their ME related needs, and engagement sets them back rather than helping. I’ve written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs - a sensible low cost measure
September 6, 2026 at 10:42 AM
Most #ME patients experience no accommodation for their ME related needs within the NHS and any engagement sets us back rather than helping. @tessamunt.bsky.social
has written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs.
has written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs.
Reposted by Hippymum
We can #EndMalnutritioninME with:
🔹Social care support
🔹Early recognition of nutrition and hydration problems
🔹Early intervention
🔹Artificial feeding
🔹Home Enteral Nutrition Service #Dietitians
🔹Social care support
🔹Early recognition of nutrition and hydration problems
🔹Early intervention
🔹Artificial feeding
🔹Home Enteral Nutrition Service #Dietitians
September 7, 2026 at 8:34 AM
We can #EndMalnutritioninME with:
🔹Social care support
🔹Early recognition of nutrition and hydration problems
🔹Early intervention
🔹Artificial feeding
🔹Home Enteral Nutrition Service #Dietitians
🔹Social care support
🔹Early recognition of nutrition and hydration problems
🔹Early intervention
🔹Artificial feeding
🔹Home Enteral Nutrition Service #Dietitians
Reposted by Hippymum
!["You never leave the house anymore. You don’t return texts or calls. What are you doing in that house that’s so important?"
[painting of woman in her death bed]
MyBodyIsTryingToKillMe.com](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreieuyxnh5w5rarephe7dohktjsbaovhgchijj5kbf6sqw7hewnyptu)
Brixton Market is being sold. Help Elaine stop it. the.organise.network/campaigns/ne...
Protect Brixton Market and its traders!
Add your name:
the.organise.network
September 7, 2026 at 8:36 PM
Brixton Market is being sold. Help Elaine stop it. the.organise.network/campaigns/ne...
Reposted by Hippymum
Crazy that we hear about Train Drivers who get £60,000 a year for driving a train.
But we never hear about the boss of Tesco who gets £30,000 a day and doesn't even pay tax in the UK.
Or the £250m a day that the likes of Amazon, Vodafone, BP and Shell don't pay in tax.
But we never hear about the boss of Tesco who gets £30,000 a day and doesn't even pay tax in the UK.
Or the £250m a day that the likes of Amazon, Vodafone, BP and Shell don't pay in tax.
September 4, 2026 at 5:50 PM
Crazy that we hear about Train Drivers who get £60,000 a year for driving a train.
But we never hear about the boss of Tesco who gets £30,000 a day and doesn't even pay tax in the UK.
Or the £250m a day that the likes of Amazon, Vodafone, BP and Shell don't pay in tax.
But we never hear about the boss of Tesco who gets £30,000 a day and doesn't even pay tax in the UK.
Or the £250m a day that the likes of Amazon, Vodafone, BP and Shell don't pay in tax.
Reposted by Hippymum
This, from my least favourite medical journal, is why proper palliative care should not be relegated to second place in debating assisted dying.
Death comes to everyone, #pwME #LongCovidME included. How we die is what matters.
We should all talk about it - why don't we? blogs.bmj.com/spcare/2026/...
Death comes to everyone, #pwME #LongCovidME included. How we die is what matters.
We should all talk about it - why don't we? blogs.bmj.com/spcare/2026/...
“Assisted dying” and the psychiatric reality of death – BMJ Supportive & Palliative Care
blogs.bmj.com
September 4, 2026 at 7:47 PM
This, from my least favourite medical journal, is why proper palliative care should not be relegated to second place in debating assisted dying.
Death comes to everyone, #pwME #LongCovidME included. How we die is what matters.
We should all talk about it - why don't we? blogs.bmj.com/spcare/2026/...
Death comes to everyone, #pwME #LongCovidME included. How we die is what matters.
We should all talk about it - why don't we? blogs.bmj.com/spcare/2026/...
British farming is in crisis. The government needs to urgently introduce short-term loans to enable farmers to plant next year's crops.
If you agree, tap the link and add your name. #BackBritishFarming
www.campaigns.nfuonline.com/page/199491/...
If you agree, tap the link and add your name. #BackBritishFarming
www.campaigns.nfuonline.com/page/199491/...
British farming is in crisis. The government needs to urgently introduce short-term loans to enable farmers to plant next year's crops.
Add your name
www.campaigns.nfuonline.com
September 4, 2026 at 10:30 PM
British farming is in crisis. The government needs to urgently introduce short-term loans to enable farmers to plant next year's crops.
If you agree, tap the link and add your name. #BackBritishFarming
www.campaigns.nfuonline.com/page/199491/...
If you agree, tap the link and add your name. #BackBritishFarming
www.campaigns.nfuonline.com/page/199491/...
Save Christmas Cards - Urge Royal Mail to introduce a 50p seasonal Christmas stamp - Sign the Petition! c.org/vRq4xxc9pF
c.org
September 3, 2026 at 1:41 AM
Save Christmas Cards - Urge Royal Mail to introduce a 50p seasonal Christmas stamp - Sign the Petition! c.org/vRq4xxc9pF
Reposted by Hippymum
Great to see this article. Wish we'd researched it all decades ago, or I could have the last 23 years of my life back. #MEcfs
What is being done vs #LongCovid and other post-viral serious chronic illness? Not enough.
www.nature.com/articles/d41...
www.nature.com/articles/d41...
When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes
Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.
www.nature.com
September 2, 2026 at 3:10 PM
Great to see this article. Wish we'd researched it all decades ago, or I could have the last 23 years of my life back. #MEcfs
Reposted by Hippymum
Billionaires like Elon Musk are racing to replace humans with AI. Join me to stop the race to replace: action.eko.org/a/support-pr...
Stop the billionaire race to replace humanity
Billionaires like Elon Musk and Sam Altman are racing to see who can conquer AI first – at all costs. They're treating the entire world as a laboratory, and we are their test subjects. But AI was bui
action.eko.org
September 3, 2026 at 1:06 AM
Billionaires like Elon Musk are racing to replace humans with AI. Join me to stop the race to replace: action.eko.org/a/support-pr...
Mexico: Empty the tanks! actions.eko.org/a/mexico-emp...
actions.eko.org
September 2, 2026 at 3:32 AM
Mexico: Empty the tanks! actions.eko.org/a/mexico-emp...
Reposted by Hippymum
The Senedd needs to take urgent action so those with Severe Myalgic Encephalomyelitis (M.E.) in Wales are no longer left without vital medical care. Please sign the petition #mecfs #myalgicEncephalomyelitis #pwME #severeME #petitions #Senedd #NHS #Wales
petitions.senedd.wales/signatures/2...
petitions.senedd.wales/signatures/2...
Petition: Take urgent action so those with Severe Myalgic Encephalomyelitis in Wales are no longer left without vital medical care
Service provision for people with Myalgic Encephalomyelitis (ME) remains inconsistent across Wales. In particular, major concerns persist regarding access for those with the severe form of the conditi...
petitions.senedd.wales
August 29, 2026 at 10:48 AM
The Senedd needs to take urgent action so those with Severe Myalgic Encephalomyelitis (M.E.) in Wales are no longer left without vital medical care. Please sign the petition #mecfs #myalgicEncephalomyelitis #pwME #severeME #petitions #Senedd #NHS #Wales
petitions.senedd.wales/signatures/2...
petitions.senedd.wales/signatures/2...
Reposted by Hippymum
As we come to the end of Severe ME Awareness month, we want to share so much love to each member of our community - whether you can be online or whether we know your story - we hold you in love. We fight for you. We show up over and over determined to create change.
#PwME #SevereME
#PwME #SevereME
August 29, 2026 at 6:06 PM
Reposted by Hippymum
Artist: @chronically.char on Insta
August 29, 2026 at 10:00 PM
Artist: @chronically.char on Insta
🤔Could the £250k of public money spent on the Clacton by-election be put to better use? If you agree Reform UK should match that amount with a £250k donation to NHS charities, sign the petition now 🏥👇 you.38degrees.org.uk/petitions/re...
Farage: give the Clacton by-election money to the NHS
🫰The Clacton by-election cost us £250,000. 🏥This petition calls on Reform to donate that amount to the NHS. Add your name now if you agree👇
you.38degrees.org.uk
August 30, 2026 at 3:19 AM
🤔Could the £250k of public money spent on the Clacton by-election be put to better use? If you agree Reform UK should match that amount with a £250k donation to NHS charities, sign the petition now 🏥👇 you.38degrees.org.uk/petitions/re...
Germany: Protect the North Sea and its harbour porpoises! actions.eko.org/a/germany-pr...
actions.eko.org
August 29, 2026 at 5:02 AM
Germany: Protect the North Sea and its harbour porpoises! actions.eko.org/a/germany-pr...
Reposted by Hippymum
August 22, 2026 at 3:02 PM
What happened to Friday and Saturday? Just woke up and it's officially Sunday!
August 23, 2026 at 1:26 AM
What happened to Friday and Saturday? Just woke up and it's officially Sunday!
Reposted by Hippymum
This is really interesting #pwME
New preprint by some big names in #EDS #MECFS #LongCovid #MESpine spaces proposing new framework/spectrum called Neuro-EDS.
(Makes total sense! We all know there’s so much overlap, so should the medical field!)
www.preprints.org/manuscript/2...
(Makes total sense! We all know there’s so much overlap, so should the medical field!)
www.preprints.org/manuscript/2...
August 22, 2026 at 6:42 PM
This is really interesting #pwME