I have some great news to share regarding my health! 😄 The new meds are working, and my inflammation in the spine has significantly decreased!! Just a few moments ago, I was able to stand although I was unsteady. I have graduated from a wheelchair to a walker. 🙏💪🥰
#health
#autoimmunedisorders
#health
#autoimmunedisorders
June 2, 2024 at 7:51 PM
I have some great news to share regarding my health! 😄 The new meds are working, and my inflammation in the spine has significantly decreased!! Just a few moments ago, I was able to stand although I was unsteady. I have graduated from a wheelchair to a walker. 🙏💪🥰
#health
#autoimmunedisorders
#health
#autoimmunedisorders
This is a sad truth, especially for women and even more so for minorities. The amount of medical gaslighting and incorrect or incomplete diagnosis fills me with rage. I fear it is only going to get worse. #chronicpain #lupus #autoimmunedisorders
November 20, 2024 at 1:13 PM
This is a sad truth, especially for women and even more so for minorities. The amount of medical gaslighting and incorrect or incomplete diagnosis fills me with rage. I fear it is only going to get worse. #chronicpain #lupus #autoimmunedisorders
Hot off the presses — our 2026 review of #CRISPR in #ClinicalTrials. Read here for the latest on CRISPR for #cancer, #HeartDisease, #AutoimmuneDisorders, #infections, #RareDisease, and more: https://ow.ly/XkI550YxSPv
March 24, 2026 at 3:15 PM
Hot off the presses — our 2026 review of #CRISPR in #ClinicalTrials. Read here for the latest on CRISPR for #cancer, #HeartDisease, #AutoimmuneDisorders, #infections, #RareDisease, and more: https://ow.ly/XkI550YxSPv
Jan 1: An Exercise in Balance
This photo is an acknowledgement that my spoons ARE limited and I cannot do everything I want - or even what I used to be able to do.
#photography #myphotography #autoimmunedisorders #temperance #spoonielife
This photo is an acknowledgement that my spoons ARE limited and I cannot do everything I want - or even what I used to be able to do.
#photography #myphotography #autoimmunedisorders #temperance #spoonielife
January 2, 2026 at 11:59 PM
Jan 1: An Exercise in Balance
This photo is an acknowledgement that my spoons ARE limited and I cannot do everything I want - or even what I used to be able to do.
#photography #myphotography #autoimmunedisorders #temperance #spoonielife
This photo is an acknowledgement that my spoons ARE limited and I cannot do everything I want - or even what I used to be able to do.
#photography #myphotography #autoimmunedisorders #temperance #spoonielife
I'm not the only one I guess #AddisonsDiseaseAwareness #disability #accessibility #notalone #autoimmunedisorders #covid #actuallysick #women #disabled #ableism #iwillnotdieofignorance
Here’s a short piece I wrote on the extra burden facing the #disabled &/or #immunocompromised since the advent of COVID and how so many healthy (for now) folks simply don’t give a damn.
Also, lit journal 25:05 is new and taking chances🎉
#WriterSky #MyalgicEncephalomyelitis #Cancer #pwME
Also, lit journal 25:05 is new and taking chances🎉
#WriterSky #MyalgicEncephalomyelitis #Cancer #pwME
Litsa Dremousis describes her work as “part memoir, part Molotov cocktail on behalf of the disabled.” Read “On Behalf of the Tens of Millions of Us Who are Immunocompromised” here: 2505magazine.weebly.com/issue-1-loud...
#memoir #2505mag
@litsadremousis.bsky.social
#memoir #2505mag
@litsadremousis.bsky.social
March 20, 2026 at 9:17 PM
I'm not the only one I guess #AddisonsDiseaseAwareness #disability #accessibility #notalone #autoimmunedisorders #covid #actuallysick #women #disabled #ableism #iwillnotdieofignorance
For those of you who are on Plaquenil for autoimmune issues, this is up on TeePublic as stickers, pins, etc ( tinyurl.com/m7xprxpz ) or Etsy as tees, hoodies, mugs ( tinyurl.com/43ph3cny ).
#autoimmune #autoimmunedisease #autoimmunedisorders #lupus #mctd #uctd #ra #rheumatoidarthritis #plaquenil
#autoimmune #autoimmunedisease #autoimmunedisorders #lupus #mctd #uctd #ra #rheumatoidarthritis #plaquenil
![black background I've got 99 problems but malaria ain't one
[picture of Plaquenil pill bottle]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreidr22buceoxmrydjiaxddmquic6fhuzqzfvcqbcpjkjw4kenftnlu)
August 26, 2024 at 10:06 PM
For those of you who are on Plaquenil for autoimmune issues, this is up on TeePublic as stickers, pins, etc ( tinyurl.com/m7xprxpz ) or Etsy as tees, hoodies, mugs ( tinyurl.com/43ph3cny ).
#autoimmune #autoimmunedisease #autoimmunedisorders #lupus #mctd #uctd #ra #rheumatoidarthritis #plaquenil
#autoimmune #autoimmunedisease #autoimmunedisorders #lupus #mctd #uctd #ra #rheumatoidarthritis #plaquenil
#ASHSlideSaturday 🩸: Analyze this blood smear from the #ASHImageBank, and share your insights in the comments.
Tune in tomorrow for the answer!
#ASHEducation #BloodEducation #Microlearning #MedEd #Hemesky #Bloodsky #Hematology #GiantPlatelet #AutoimmuneDisorders #Lupus #ITP #Macrothromocytopenia
Tune in tomorrow for the answer!
#ASHEducation #BloodEducation #Microlearning #MedEd #Hemesky #Bloodsky #Hematology #GiantPlatelet #AutoimmuneDisorders #Lupus #ITP #Macrothromocytopenia
March 22, 2025 at 12:00 PM
#ASHSlideSaturday 🩸: Analyze this blood smear from the #ASHImageBank, and share your insights in the comments.
Tune in tomorrow for the answer!
#ASHEducation #BloodEducation #Microlearning #MedEd #Hemesky #Bloodsky #Hematology #GiantPlatelet #AutoimmuneDisorders #Lupus #ITP #Macrothromocytopenia
Tune in tomorrow for the answer!
#ASHEducation #BloodEducation #Microlearning #MedEd #Hemesky #Bloodsky #Hematology #GiantPlatelet #AutoimmuneDisorders #Lupus #ITP #Macrothromocytopenia
I’m happy to report that I actually got some shit done today. As usual it required that I take medication but it’s better than being too fatigued to do what needs to be done. #disability #longCOVID #fibromyalgia #autoimmunedisorders
October 9, 2025 at 5:23 AM
I’m happy to report that I actually got some shit done today. As usual it required that I take medication but it’s better than being too fatigued to do what needs to be done. #disability #longCOVID #fibromyalgia #autoimmunedisorders
Chronic Illness Flare: 1
Bee: 0
#EDS #ehlersdanlossyndrome #POTS #CFS/ME #autoimmunedisorders #RheumatoidArthritis #chronicillnesswarrior #chronicillnesssucks
Bee: 0
#EDS #ehlersdanlossyndrome #POTS #CFS/ME #autoimmunedisorders #RheumatoidArthritis #chronicillnesswarrior #chronicillnesssucks
January 30, 2025 at 11:48 AM
Chronic Illness Flare: 1
Bee: 0
#EDS #ehlersdanlossyndrome #POTS #CFS/ME #autoimmunedisorders #RheumatoidArthritis #chronicillnesswarrior #chronicillnesssucks
Bee: 0
#EDS #ehlersdanlossyndrome #POTS #CFS/ME #autoimmunedisorders #RheumatoidArthritis #chronicillnesswarrior #chronicillnesssucks
Lacking the energy to finish creative work is truly the most frustrating #songwriting #autoimmunedisorders #create #fatigue
June 7, 2025 at 12:09 AM
Lacking the energy to finish creative work is truly the most frustrating #songwriting #autoimmunedisorders #create #fatigue
Hey 👋 Friends
Today’s Chronic Illness awareness post is on Lupus. It’s an Autoimmune Disorder that can have fatal complications.
Here’s a couple of information sheets on Lupus.
#ChronicIllnessSucks #DisabilityPrideMonth #AutoimmuneDisorders #ChronicIllness
Today’s Chronic Illness awareness post is on Lupus. It’s an Autoimmune Disorder that can have fatal complications.
Here’s a couple of information sheets on Lupus.
#ChronicIllnessSucks #DisabilityPrideMonth #AutoimmuneDisorders #ChronicIllness
July 18, 2026 at 9:27 PM
Hey 👋 Friends
Today’s Chronic Illness awareness post is on Lupus. It’s an Autoimmune Disorder that can have fatal complications.
Here’s a couple of information sheets on Lupus.
#ChronicIllnessSucks #DisabilityPrideMonth #AutoimmuneDisorders #ChronicIllness
Today’s Chronic Illness awareness post is on Lupus. It’s an Autoimmune Disorder that can have fatal complications.
Here’s a couple of information sheets on Lupus.
#ChronicIllnessSucks #DisabilityPrideMonth #AutoimmuneDisorders #ChronicIllness
Thanks for participating in #ASHSlideSaturday 🩸!
Did you guess correctly?
Check out other slides from the #ASHImageBank: ow.ly/ejsy50ULq0Q
#ASHEducation #BloodEducation #Hematology #Hematopathology #GiantPlatelet #AutoimmuneDisorders #Lupus #ITP #Macrothromocytopenia #MedEd #Hemesky
Did you guess correctly?
Check out other slides from the #ASHImageBank: ow.ly/ejsy50ULq0Q
#ASHEducation #BloodEducation #Hematology #Hematopathology #GiantPlatelet #AutoimmuneDisorders #Lupus #ITP #Macrothromocytopenia #MedEd #Hemesky
March 23, 2025 at 4:00 PM
Thanks for participating in #ASHSlideSaturday 🩸!
Did you guess correctly?
Check out other slides from the #ASHImageBank: ow.ly/ejsy50ULq0Q
#ASHEducation #BloodEducation #Hematology #Hematopathology #GiantPlatelet #AutoimmuneDisorders #Lupus #ITP #Macrothromocytopenia #MedEd #Hemesky
Did you guess correctly?
Check out other slides from the #ASHImageBank: ow.ly/ejsy50ULq0Q
#ASHEducation #BloodEducation #Hematology #Hematopathology #GiantPlatelet #AutoimmuneDisorders #Lupus #ITP #Macrothromocytopenia #MedEd #Hemesky
I’m not sure how I feel about this yet. I’ve been processing for two days. Either way, I recommended it as your longread for tonight.
Mary Had Schizophrenia—Then Suddenly She Didn’t
Some psychiatric patients may actually have treatable autoimmune conditions. But what happens to the newly sane?
www.newyorker.com
July 23, 2025 at 5:08 PM
"Suffering from a mild #stroke at the age of 14, Sheryl was diagnosed with a rare #BloodClotting syndrome that set off a chain reaction of other #AutoimmuneDisorders including #lupus, #epilepsy, #Sjögrens syndrome & a heart rhythm disorder.": buff.ly/6zEaPxS
via LaurenSelfridge
via LaurenSelfridge
![This Is Not What I Ordered, The Podcast - Episode 47 Acceptance Is Power, with Sheryl Chan. [A photo features a girl smiling widely, looking sweaty with hair tied up, and a tiny blue parrotlet on her shoulder. She doesn't look ill but radiating with health.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:kmd3ofxk56mmj53nyark2jg3/bafkreihmumbbbxo6bulx4svd5g6sl7qjsawqs2sgzjt4rdpor3yeeugj4a)
July 3, 2025 at 7:30 AM
"Suffering from a mild #stroke at the age of 14, Sheryl was diagnosed with a rare #BloodClotting syndrome that set off a chain reaction of other #AutoimmuneDisorders including #lupus, #epilepsy, #Sjögrens syndrome & a heart rhythm disorder.": buff.ly/6zEaPxS
via LaurenSelfridge
via LaurenSelfridge
It's always a hoot when you get through the day and you're beyond exhausted, only to realize that you forgot your meds in the morning. Why am I this way.
The holidays are hard enough! Remember your meds! Drink water! 🫶
#autoimmunedisorders #chronicillness
The holidays are hard enough! Remember your meds! Drink water! 🫶
#autoimmunedisorders #chronicillness
December 3, 2024 at 1:40 AM
It's always a hoot when you get through the day and you're beyond exhausted, only to realize that you forgot your meds in the morning. Why am I this way.
The holidays are hard enough! Remember your meds! Drink water! 🫶
#autoimmunedisorders #chronicillness
The holidays are hard enough! Remember your meds! Drink water! 🫶
#autoimmunedisorders #chronicillness
#Sponsored by: ARS Pharma
Tune in to #FAACTsRoundtable #Podcast: Navigate Discussing Personal Health Information Online
Listen to #FAACT's Ep. 240:
www.buzzsprout.com/848314/episo...
#FoodAllergy #FoodAllergies #Allergy #MCAS #MastCell #POTS #Anaphylaxis #AutoImmune #AutoImmuneDisorders
Tune in to #FAACTsRoundtable #Podcast: Navigate Discussing Personal Health Information Online
Listen to #FAACT's Ep. 240:
www.buzzsprout.com/848314/episo...
#FoodAllergy #FoodAllergies #Allergy #MCAS #MastCell #POTS #Anaphylaxis #AutoImmune #AutoImmuneDisorders
July 16, 2025 at 12:01 PM
#Sponsored by: ARS Pharma
Tune in to #FAACTsRoundtable #Podcast: Navigate Discussing Personal Health Information Online
Listen to #FAACT's Ep. 240:
www.buzzsprout.com/848314/episo...
#FoodAllergy #FoodAllergies #Allergy #MCAS #MastCell #POTS #Anaphylaxis #AutoImmune #AutoImmuneDisorders
Tune in to #FAACTsRoundtable #Podcast: Navigate Discussing Personal Health Information Online
Listen to #FAACT's Ep. 240:
www.buzzsprout.com/848314/episo...
#FoodAllergy #FoodAllergies #Allergy #MCAS #MastCell #POTS #Anaphylaxis #AutoImmune #AutoImmuneDisorders