All of that!
I would never have known about EDS, Dysautomonia, Craniocervical Instability, among handfuls of other conditions I was diagnosed with at 39: My health issues started before Kindergarten. Responsible "Sickfluencers" actually save lives! 🩵🦓🩵
I would never have known about EDS, Dysautomonia, Craniocervical Instability, among handfuls of other conditions I was diagnosed with at 39: My health issues started before Kindergarten. Responsible "Sickfluencers" actually save lives! 🩵🦓🩵
October 10, 2026 at 3:02 PM
All of that!
I would never have known about EDS, Dysautomonia, Craniocervical Instability, among handfuls of other conditions I was diagnosed with at 39: My health issues started before Kindergarten. Responsible "Sickfluencers" actually save lives! 🩵🦓🩵
I would never have known about EDS, Dysautomonia, Craniocervical Instability, among handfuls of other conditions I was diagnosed with at 39: My health issues started before Kindergarten. Responsible "Sickfluencers" actually save lives! 🩵🦓🩵
PICL for Craniocervical Instability: Promise, Plausibility, and the Evidence Gap www.ifmsynergy.com/picl-for-cra...
PICL for Craniocervical Instability: Promise, Plausibility, and the Evidence Gap
PICL for Craniocervical Instability:
Promise, Plausibility, and the Evidence Gap
Yoon Hang Kim, MD, MPH
Board-Certified in Preventive Medicine | Integrative & Functional Medicine Physician
October...
www.ifmsynergy.com
October 9, 2026 at 9:30 PM
PICL for Craniocervical Instability: Promise, Plausibility, and the Evidence Gap www.ifmsynergy.com/picl-for-cra...
Hello, You may not know Jennifer Brea was later diagnosed with Craniocervical Instability and after surgery made a full recovery. I reviewed UNREST in 2017 when it came out. Am a writer, have had ME since 1983 post-Coxsackie B4 virus. velo-gubbed-legs.blogspot.com/2017/10/my-t... Thank you.
My thoughts on UNREST (2017) ★ ★ ★ ★
*Update, September 2019 : My review below is based on my careful viewing - twice - of UNREST in autumn 2017, I was sent the screener by Jen...
velo-gubbed-legs.blogspot.com
October 4, 2026 at 1:47 PM
Hello, You may not know Jennifer Brea was later diagnosed with Craniocervical Instability and after surgery made a full recovery. I reviewed UNREST in 2017 when it came out. Am a writer, have had ME since 1983 post-Coxsackie B4 virus. velo-gubbed-legs.blogspot.com/2017/10/my-t... Thank you.
Thank you!! ♥️ I’m sorry you deal with that too.
It’s now affecting my whole spine. I’ve lost so much feeling. I don’t see how I won’t though, especially if it is craniocervical instability like I’ve suspected. But I don’t know what’s causing the back EMG results so just a lot of questions LOL!
It’s now affecting my whole spine. I’ve lost so much feeling. I don’t see how I won’t though, especially if it is craniocervical instability like I’ve suspected. But I don’t know what’s causing the back EMG results so just a lot of questions LOL!
September 30, 2026 at 4:51 PM
Thank you!! ♥️ I’m sorry you deal with that too.
It’s now affecting my whole spine. I’ve lost so much feeling. I don’t see how I won’t though, especially if it is craniocervical instability like I’ve suspected. But I don’t know what’s causing the back EMG results so just a lot of questions LOL!
It’s now affecting my whole spine. I’ve lost so much feeling. I don’t see how I won’t though, especially if it is craniocervical instability like I’ve suspected. But I don’t know what’s causing the back EMG results so just a lot of questions LOL!
Chiari I malformation is diagnosed via MRI
http://dlvr.it/TVfls1
http://dlvr.it/TVfls1
September 26, 2026 at 3:35 PM
Chiari I malformation is diagnosed via MRI
http://dlvr.it/TVfls1
http://dlvr.it/TVfls1
The "Clogged Drain" of the Brain: Demystifying the Complex Triad of Intracranial Hypertension, Jugular Compression, and Craniocervical Instability www.ifmsynergy.com/the-clogged-...
The "Clogged Drain" of the Brain: Demystifying the Complex Triad of Intracranial Hypertension, Jugular Compression, and Craniocervical Instability
NEUROLOGY & NEUROSURGERY
A multidisciplinary expert panel from Northwell Health breaks down how three interconnected conditions create a vicious cycle — and what the latest surgical thinking looks l...
www.ifmsynergy.com
September 25, 2026 at 8:58 PM
The "Clogged Drain" of the Brain: Demystifying the Complex Triad of Intracranial Hypertension, Jugular Compression, and Craniocervical Instability www.ifmsynergy.com/the-clogged-...
Looking for advice since there’s no specialists in Ontario who know or can treat craniocervical instability : from those who have it, or any professionals who treat them, are there any recommendations for high quality pillows that assist with CCI ?
September 16, 2026 at 10:45 AM
Looking for advice since there’s no specialists in Ontario who know or can treat craniocervical instability : from those who have it, or any professionals who treat them, are there any recommendations for high quality pillows that assist with CCI ?
David emphasizes that #MECFS is a cluster disorder whereby you meet enough criteria you get the label and doesn't necessarily point to specific pathogenicity. (He's not saying it's not pathological, he's saying we don't wholly understand that the pathology for each person is obvious or the same.)
September 11, 2026 at 6:34 PM
David emphasizes that #MECFS is a cluster disorder whereby you meet enough criteria you get the label and doesn't necessarily point to specific pathogenicity. (He's not saying it's not pathological, he's saying we don't wholly understand that the pathology for each person is obvious or the same.)
i'm still mad how expensive ketamine treatment for anything is and how hard it is to get any insurance coverage 😤 i could be out here not getting absolutely bodied by my OCD and craniocervical pain anD YET
i had my last neurology appointment (😭) right after my psych appt and god it sucks being broke bc apparently ketamine for pain management is basically done the same frequency style as what u do for ocd, i guess that's just how it is across the board, but it would be an infusion. AND apparently there
September 10, 2026 at 5:14 PM
i'm still mad how expensive ketamine treatment for anything is and how hard it is to get any insurance coverage 😤 i could be out here not getting absolutely bodied by my OCD and craniocervical pain anD YET
Have you ruled out craniocervical instability?
September 2, 2026 at 9:55 PM
Have you ruled out craniocervical instability?
seriously though I would not be at all surprised if I have intracranial pressure issues downstream of my craniocervical instability caused by my EDS
September 2, 2026 at 1:45 AM
seriously though I would not be at all surprised if I have intracranial pressure issues downstream of my craniocervical instability caused by my EDS
Designed for radiology residents and early-career neuroradiologists, this video provides a practical framework for evaluating high-energy cervical trauma using CT, with a focus on accuracy, pattern recognition, and anatomical clarity.
CT Evaluation of Osseous Trauma at the Craniocervical Junction: A Pattern-Based Overview
ABSTRACT Osseous trauma of the craniocervical junction (CCJ) can present with subtle imaging findings that demand a structured and confident approach to CT interpretation. This video article presents a pattern-based overview of traumatic bony injuries affecting the CCJ, illustrated through multiplanar CT imaging and 3D anatomical models. Common injury types, including craniocervical dissociation, occipital condyle fractures, atlas fractures, odontoid process fractures, and axis spondylolysis are reviewed with emphasis on their appearance in axial, sagittal, and coronal planes. Fracture patterns and alignment abnormalities are reinforced with educational illustrations that complement real CT datasets, helping viewers internalize spatial relationships and diagnostic features. Designed for radiology residents and early-career neuroradiologists, this video provides a practical framework for evaluating high-energy cervical trauma using CT, with a focus on accuracy, pattern recognition, and anatomical clarity.
Video
Video 1.
Osseous trauma of the craniocervical junction (CCJ) can present with subtle imaging findings that demand a structured and confident approach to CT interpretation. This video article presents a pattern-based overview of traumatic bony injuries affecting the CCJ, illustrated through multiplanar CT imaging and 3D anatomical models. Common injury types, including craniocervical dissociation, occipital condyle fractures, atlas fractures, odontoid process fractures, and axis spondylolysis are reviewed with emphasis on their appearance in axial, sagittal, and coronal planes. Fracture patterns and alignment abnormalities are reinforced with educational illustrations that complement real CT datasets, helping viewers internalize spatial relationships and diagnostic features. Designed for radiology residents and early-career neuroradiologists, this video provides a practical framework for evaluating high-energy cervical trauma using CT, with a focus on accuracy, pattern recognition, and anatomical clarity.
www.ajnr.org
August 31, 2026 at 2:30 PM
Designed for radiology residents and early-career neuroradiologists, this video provides a practical framework for evaluating high-energy cervical trauma using CT, with a focus on accuracy, pattern recognition, and anatomical clarity.
Check out this #AJNR Video article ‘’CT Evaluation of Osseous Trauma at the Craniocervical Junction: A Pattern-Based Overview’’
This video article presents a pattern-based overview of traumatic bony injuries affecting the CCJ, illustrated through multiplanar CT imaging and 3D anatomical models.
This video article presents a pattern-based overview of traumatic bony injuries affecting the CCJ, illustrated through multiplanar CT imaging and 3D anatomical models.
August 31, 2026 at 2:30 PM
Check out this #AJNR Video article ‘’CT Evaluation of Osseous Trauma at the Craniocervical Junction: A Pattern-Based Overview’’
This video article presents a pattern-based overview of traumatic bony injuries affecting the CCJ, illustrated through multiplanar CT imaging and 3D anatomical models.
This video article presents a pattern-based overview of traumatic bony injuries affecting the CCJ, illustrated through multiplanar CT imaging and 3D anatomical models.
This sort of confirms what I suspected. It is AI but it’s genuinely been better than any doctor I’ve had in the last decade.
I just randomly spit random symptoms at it and it goes “Well actually, that links with this and that and builds a picture.
I can’t do that on command at a doc’s office
I just randomly spit random symptoms at it and it goes “Well actually, that links with this and that and builds a picture.
I can’t do that on command at a doc’s office
August 29, 2026 at 7:45 AM
This sort of confirms what I suspected. It is AI but it’s genuinely been better than any doctor I’ve had in the last decade.
I just randomly spit random symptoms at it and it goes “Well actually, that links with this and that and builds a picture.
I can’t do that on command at a doc’s office
I just randomly spit random symptoms at it and it goes “Well actually, that links with this and that and builds a picture.
I can’t do that on command at a doc’s office
New preprint by some big names in #EDS #MECFS #LongCovid #MESpine spaces proposing new framework/spectrum called Neuro-EDS.
(Makes total sense! We all know there’s so much overlap, so should the medical field!)
www.preprints.org/manuscript/2...
(Makes total sense! We all know there’s so much overlap, so should the medical field!)
www.preprints.org/manuscript/2...
August 22, 2026 at 4:44 PM
New preprint by some big names in #EDS #MECFS #LongCovid #MESpine spaces proposing new framework/spectrum called Neuro-EDS.
(Makes total sense! We all know there’s so much overlap, so should the medical field!)
www.preprints.org/manuscript/2...
(Makes total sense! We all know there’s so much overlap, so should the medical field!)
www.preprints.org/manuscript/2...
This mechanical basis stuff is quite complicated too:
This mentions that some doctors are having success rebuilding craniocervical junction integrity with mast cell stabilizers. Something I haven’t tried. (Timestamp 1:24:00) youtu.be/lIK7-mBA7Pc?...
This mentions that some doctors are having success rebuilding craniocervical junction integrity with mast cell stabilizers. Something I haven’t tried. (Timestamp 1:24:00) youtu.be/lIK7-mBA7Pc?...
Part 2: Mechanical Basis Model + Brainstem, Keys to Understanding MECFS? Part 2. Nov 1, 2024.
YouTube video by Renegade Research
youtu.be
August 17, 2026 at 5:31 PM
This mechanical basis stuff is quite complicated too:
This mentions that some doctors are having success rebuilding craniocervical junction integrity with mast cell stabilizers. Something I haven’t tried. (Timestamp 1:24:00) youtu.be/lIK7-mBA7Pc?...
This mentions that some doctors are having success rebuilding craniocervical junction integrity with mast cell stabilizers. Something I haven’t tried. (Timestamp 1:24:00) youtu.be/lIK7-mBA7Pc?...
From Sweden
Cerebrospinal fluid opening pressure in relation to symptomatology and craniocervical anatomy in patients with myalgic encephalomyelitis/chronic fatigue syndrome
www.frontiersin.org/journals/med...
Screenshot from latest Science for ME weekly update
#MEcfs #PwME
Cerebrospinal fluid opening pressure in relation to symptomatology and craniocervical anatomy in patients with myalgic encephalomyelitis/chronic fatigue syndrome
www.frontiersin.org/journals/med...
Screenshot from latest Science for ME weekly update
#MEcfs #PwME
![Cerebrospinal fluid opening pressure in relation to symptomatology and craniocervical anatomy in patients with myalgic encephalomyelitis/chronic fatigue syndrome — Jolley et al
"based on our radiological examinations, we could not identify any specific deviation in craniocervical anatomy that explained alterations in [opening pressure] among our individuals."
Article | Thread](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreid5nxs3gh3pyrpsceirvkxceosn7mtm6kpyqx7h3ywksqcaxcqcw4)
August 16, 2026 at 12:18 PM
From Sweden
Cerebrospinal fluid opening pressure in relation to symptomatology and craniocervical anatomy in patients with myalgic encephalomyelitis/chronic fatigue syndrome
www.frontiersin.org/journals/med...
Screenshot from latest Science for ME weekly update
#MEcfs #PwME
Cerebrospinal fluid opening pressure in relation to symptomatology and craniocervical anatomy in patients with myalgic encephalomyelitis/chronic fatigue syndrome
www.frontiersin.org/journals/med...
Screenshot from latest Science for ME weekly update
#MEcfs #PwME
I’m currently getting treatment for #IIH. Nothing to report other than a headache that’s gradually getting better.
The connection to #ME/CFS is so interesting! Another promising and underfunded avenue of research.
www.complexdisorders.org/coda-ccd
The connection to #ME/CFS is so interesting! Another promising and underfunded avenue of research.
www.complexdisorders.org/coda-ccd
August 15, 2026 at 3:47 PM
I’m currently getting treatment for #IIH. Nothing to report other than a headache that’s gradually getting better.
The connection to #ME/CFS is so interesting! Another promising and underfunded avenue of research.
www.complexdisorders.org/coda-ccd
The connection to #ME/CFS is so interesting! Another promising and underfunded avenue of research.
www.complexdisorders.org/coda-ccd
#Craniocervical flexor exercises may improve pain intensity and functional disability in adults with #ChronicNeckPain.
https://www.clinicalpainadvisor.com/news/craniocervical-flexor-exercises-chronic-neck-pain/
https://www.clinicalpainadvisor.com/news/craniocervical-flexor-exercises-chronic-neck-pain/
Craniocervical Flexor Exercises May Improve Outcomes in Patients With Chronic Neck Pain
Craniocervical flexor exercises may improve pain, function, and forward head posture in adults with chronic neck pain, a systematic review finds.
www.clinicalpainadvisor.com
August 14, 2026 at 4:05 PM
#Craniocervical flexor exercises may improve pain intensity and functional disability in adults with #ChronicNeckPain.
https://www.clinicalpainadvisor.com/news/craniocervical-flexor-exercises-chronic-neck-pain/
https://www.clinicalpainadvisor.com/news/craniocervical-flexor-exercises-chronic-neck-pain/
Anyone on here with craniocervical instability have any recommendations for pillows? Looking after a disabled family member with a CCI and there’s no dr’s or specialists in the province who are trained in CCI’s so hunting info as best I can to help with what I can.
August 12, 2026 at 3:40 PM
Anyone on here with craniocervical instability have any recommendations for pillows? Looking after a disabled family member with a CCI and there’s no dr’s or specialists in the province who are trained in CCI’s so hunting info as best I can to help with what I can.
Cerebrospinal fluid opening pressure in relation to symptomatology and craniocervical anatomy in patients with myalgic encephalomyelitis/chronic fatigue syndrome — Jolley et al
#MECFS
#MECFS
Article Link
www.frontiersin.org
August 10, 2026 at 12:22 AM
Cerebrospinal fluid opening pressure in relation to symptomatology and craniocervical anatomy in patients with myalgic encephalomyelitis/chronic fatigue syndrome — Jolley et al
#MECFS
#MECFS