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macala0902.bsky.social
#PEM
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rippermd41.bsky.social The Real McCoy @rippermd41.bsky.social · Oct 20
And what was the “overexertion” that put me into PEM?

Talking to extended family. Normally with resting I can do 20-25 mins.

🚫

Not anymore, or at least I can only do that with immediate family.

Forgot to add in the exertion cost of 6 people vs 2 🤦🏻‍♀️

#MECFS

#MECFS
October 20, 2025 at 5:34 AM
macala0902.bsky.social
#pwME
#ME
#EMcfs
#EMsfc
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Oct 9
Just dealing with an ME enquiry: a lot of people understandably want to know what they can do to help improve their health. But people also need to try to avoid making themselves worse. Pretty obvious for long-term patients, but can be an awkward topic to bring up.

#MEcfs #PwME #CFS
October 9, 2025 at 2:49 PM
macala0902.bsky.social
"No evito la actividad por miedo ni por falta de motivación. He intentado aumentar el movimiento antes, y me empeoró. Busco apoyo que se adapte a mi condición, no que la contrarreste.”

#EMcfs #CovidProlong #PEM #PwME #CFS #PASC
#pwME
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Jan 9
3/

“I’m not avoiding activity because of fear or lack of motivation. I’ve tried increasing movement before, and it made me worse. I’m looking for support that’s aligned with my condition, not working against it.”

#MEcfs #LongCovid #PEM #PwME #CFS #PASC
January 10, 2026 at 9:19 AM
macala0902.bsky.social
"Se les escapa por qué no puedes simplemente reunirte con ellos para comer, por qué no puedes trabajar a tiempo completo, por qué no puedes ser la persona que solías ser.”

#CovidProlong #EncefalomielitisMiálgica #SíndromeDeFatigaCrónica #EMcfs #SFC #PcEM
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Jan 27
‪6/‬
‪“(Contd) They’re missing why you can’t just meet them for a meal, why you can’t work full-time, why you can’t be the person you used to be.”‬

‪# #LongCovid‬ #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
January 27, 2026 at 9:33 AM
macala0902.bsky.social
"Me encantaba bailar tango y swing, pero desde que cumplí 34 años hace seis, necesito una silla de ruedas para salir, y algunos días doblar la ropa es la única actividad física que puedo hacer”."

#EncefalomielitisMiálgica
#EMcfs
#PEM
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Oct 27
‪2/‬
‪“I used to love dancing tango and swing, but since I turned 34 six years ago, I've needed a wheelchair when I go out, and some days the act of folding laundry is all the physical activity I can manage.”‬

‪ #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
October 28, 2025 at 6:21 AM