From @meresearchuk.bsky.social
Whilst every individual’s experience is unique, it is striking how many shared themes emerge across the PEM survey responses. When people from all walks of life describe similar physical experiences, it offers a powerful insights into ME/CFS.
tinyurl.com/PEMimpactME
Whilst every individual’s experience is unique, it is striking how many shared themes emerge across the PEM survey responses. When people from all walks of life describe similar physical experiences, it offers a powerful insights into ME/CFS.
tinyurl.com/PEMimpactME
October 1, 2026 at 7:40 AM
🧵#CovidLong et #EMsfc, une réalité alarmante qui émerge enfin sous les projecteurs.
🔗 www.republik.ch/2025/01/08/l...
🔗 www.republik.ch/2025/01/08/l...
January 8, 2025 at 3:39 PM
🧵#CovidLong et #EMsfc, une réalité alarmante qui émerge enfin sous les projecteurs.
🔗 www.republik.ch/2025/01/08/l...
🔗 www.republik.ch/2025/01/08/l...
Première sortie depuis 8 jours : 10 minutes avec canne pour voir le printemps urbain et les Magnolias 🩷
#photography
#UnJourUnePhotographie
#EMSFC
#photography
#UnJourUnePhotographie
#EMSFC
March 21, 2025 at 5:51 PM
Première sortie depuis 8 jours : 10 minutes avec canne pour voir le printemps urbain et les Magnolias 🩷
#photography
#UnJourUnePhotographie
#EMSFC
#photography
#UnJourUnePhotographie
#EMSFC
ME/CFS Awareness Week 2025: May 6-12. Exciting events including a new podcast season, Journalism Awards, and an online Symposium on May 7 at 2pm AEST.
Register today - vist.ly/3mzt9fk. Stay tuned for more details!
Register today - vist.ly/3mzt9fk. Stay tuned for more details!
April 14, 2025 at 5:35 AM
February 7, 2025 at 9:13 AM
January 31, 2025 at 11:23 AM
June 9, 2026 at 1:04 PM
February 10, 2025 at 8:14 AM
#Challengephoto a day
2025 03 février
C comme Canne qui me permet l'équilibre...
et l'économie d'énergie.
#fmspad
#photography
#EMSFC
2025 03 février
C comme Canne qui me permet l'équilibre...
et l'économie d'énergie.
#fmspad
#photography
#EMSFC
February 3, 2025 at 8:29 AM
#Challengephoto a day
2025 03 février
C comme Canne qui me permet l'équilibre...
et l'économie d'énergie.
#fmspad
#photography
#EMSFC
2025 03 février
C comme Canne qui me permet l'équilibre...
et l'économie d'énergie.
#fmspad
#photography
#EMSFC
February 21, 2025 at 8:25 AM
January 30, 2025 at 10:15 AM
Est ce que vous avez une reco pour un·e #psy ttc en visio pour un #CovidLong /#EMsfc alité les 3/4 du temps depuis plus de 5 ans ?
#MastoMed
#MastoMed
September 29, 2026 at 7:08 AM
Est ce que vous avez une reco pour un·e #psy ttc en visio pour un #CovidLong /#EMsfc alité les 3/4 du temps depuis plus de 5 ans ?
#MastoMed
#MastoMed
#UnJourUnePhoto
#Photobruary
27 février
Beau.
La Lozère
(Comme avant l'Encéphalomyelite Myalgique, et que je pouvais encore partir en vacances)
#Photography
#EMSFC
#Photobruary
27 février
Beau.
La Lozère
(Comme avant l'Encéphalomyelite Myalgique, et que je pouvais encore partir en vacances)
#Photography
#EMSFC
February 27, 2025 at 8:23 AM
#UnJourUnePhoto
#Photobruary
27 février
Beau.
La Lozère
(Comme avant l'Encéphalomyelite Myalgique, et que je pouvais encore partir en vacances)
#Photography
#EMSFC
#Photobruary
27 février
Beau.
La Lozère
(Comme avant l'Encéphalomyelite Myalgique, et que je pouvais encore partir en vacances)
#Photography
#EMSFC
"Aucun traitement, maltraitance et abus médicaux"
L'encéphalomyélite myalgique rendue visible lors de la manif pour les droits des femmes le 8 mars à Paris 💜💙
1/2
#mecfs #encephalomyelitemyalgique #emsfc #SevereME #maladiechronique #handicap #féminisme
L'encéphalomyélite myalgique rendue visible lors de la manif pour les droits des femmes le 8 mars à Paris 💜💙
1/2
#mecfs #encephalomyelitemyalgique #emsfc #SevereME #maladiechronique #handicap #féminisme
March 11, 2025 at 7:26 AM
Lancement du second module de formation pour médecins du NHS sur l'#EMSFC ....En France on attend toujours le 1er....
NHS England Launches the Second E-learning Module on ME/CFS!
Links:
www.e-lfh.org.uk/programmes/m...
meassociation.org.uk/2025/01/nhs-...
Discussion thread:
www.s4me.info/threads/nhs-...
Image from latest Science for ME update
#MEcfs #CFS
Links:
www.e-lfh.org.uk/programmes/m...
meassociation.org.uk/2025/01/nhs-...
Discussion thread:
www.s4me.info/threads/nhs-...
Image from latest Science for ME update
#MEcfs #CFS
January 26, 2025 at 8:26 PM
Lancement du second module de formation pour médecins du NHS sur l'#EMSFC ....En France on attend toujours le 1er....
Oh dear lord
Someone posted the handouts they received about pacing at a pain rehab clinic and 😬
Choice quotes:
“The key is to stick to the plan on a good day (when pain or discomfort is low) and on a bad day (when pain or discomfort is higher).”
#MECFS
Someone posted the handouts they received about pacing at a pain rehab clinic and 😬
Choice quotes:
“The key is to stick to the plan on a good day (when pain or discomfort is low) and on a bad day (when pain or discomfort is higher).”
#MECFS
December 9, 2025 at 11:24 AM
#MECFS & #LongCOVID are complex, but they share a unique feature called #PEM: a flare of symptoms after physical or even cognitive activity, like reading a complicated article or a thread imitating the style of one of your favorite news journalists.
#JohnVsJonVsME
@lastweektonight1.bsky.social
#JohnVsJonVsME
@lastweektonight1.bsky.social
October 24, 2025 at 5:53 AM
March 7, 2025 at 12:22 PM
“They are among the most underserved patient communities in the UK. The
sickest lie in darkened rooms, sometimes unable to move, speak or even
swallow. Those living with the most extreme forms of ME describe it as
not a life but a bare existence”
#MEcfs #PwME
sickest lie in darkened rooms, sometimes unable to move, speak or even
swallow. Those living with the most extreme forms of ME describe it as
not a life but a bare existence”
#MEcfs #PwME
Comment article in The Times by @helenmorganlibdem.bsky.social
“Plan to help ME sufferers has been delayed for too long
new. Ministers must show that care and research for these neglected patients is a priority.”
www.thetimes.com/comment/colu...
Archive: archive.ph/a3iYo
Thank you, Helen.
“Plan to help ME sufferers has been delayed for too long
new. Ministers must show that care and research for these neglected patients is a priority.”
www.thetimes.com/comment/colu...
Archive: archive.ph/a3iYo
Thank you, Helen.
February 19, 2025 at 3:12 PM
Challenge photo a Day
#fmspad
#UnJourUnePhoto
#photobruary
1er Février
Lettre A et Rouge
Comme Attente avec la petite chaise Rouge
#photography
#EMSFC
#fmspad
#UnJourUnePhoto
#photobruary
1er Février
Lettre A et Rouge
Comme Attente avec la petite chaise Rouge
#photography
#EMSFC
February 1, 2025 at 8:33 AM
Challenge photo a Day
#fmspad
#UnJourUnePhoto
#photobruary
1er Février
Lettre A et Rouge
Comme Attente avec la petite chaise Rouge
#photography
#EMSFC
#fmspad
#UnJourUnePhoto
#photobruary
1er Février
Lettre A et Rouge
Comme Attente avec la petite chaise Rouge
#photography
#EMSFC
🧵
Being awake when others are asleep, being asleep when others are awake, feeling exhausted but not sleepy, waking up several times a night, waking up in the morning feeling unrefreshed...sleep dysfunction manifests in countless ways in ME/CFS
www.meresearch.org.uk/the-experien...
#MEcfs #PwME
1/
Being awake when others are asleep, being asleep when others are awake, feeling exhausted but not sleepy, waking up several times a night, waking up in the morning feeling unrefreshed...sleep dysfunction manifests in countless ways in ME/CFS
www.meresearch.org.uk/the-experien...
#MEcfs #PwME
1/
September 22, 2026 at 9:34 AM
"Arte TV will broadcast Chronically Ill – Chronically Ignored on 25 February 2025 at 10.35pm CET. Dahrendorf has not been able to confirm with the broadcaster, but hopes Arte TV will add the documentary to its Youtube channel, with English subtitles in due course"
Thank you. Save the date.
Thank you. Save the date.
'Chronically Ill - Chronically Ignored': a new documentary on ME/CFS
Investigative documentary Chronically Ill - Chronically Ignored is set to give voice to the ME/CFS community in a groundbreaking piece of work #ChronicIllness #MEcfs #Disability
www.thecanary.co/global/world...
Investigative documentary Chronically Ill - Chronically Ignored is set to give voice to the ME/CFS community in a groundbreaking piece of work #ChronicIllness #MEcfs #Disability
www.thecanary.co/global/world...
February 18, 2025 at 9:48 AM
February 1, 2025 at 8:25 AM