#EuropeanHealthDataSpace
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theevidencebase.bsky.social
Ensuring patient readiness for the #EuropeanHealthDataSpace: interview with Milana Trucl, @lanatrucl.bsky.social| Becaris Publishing becarispublishing.com/digital-cont...

#DataSavesLives #DSL #patients #healthdata #EHDS #patientengagement #empowerment #digitalhealthliteracy #digitaldivide
Ensuring patient readiness for the European Health Data Space: interview with Milana Trucl, European Patients' Forum | Becaris Publishing
becarispublishing.com
April 10, 2025 at 1:07 PM
theevidencebase.bsky.social
Building trust in the #EuropeanHealthDataSpace: legal, clinical, and #PatientPerspectives on #privacy, #AI, and #ethics | Becaris Publishing becarispublishing.com/digital-cont...
Building trust in the European Health Data Space: legal, clinical, and patient perspectives on privacy, AI, and ethics | Becaris Publishing
becarispublishing.com
June 30, 2025 at 12:38 PM
forschungsdaten.info
Zustimmung des EU Parlament zur Einrichtung des Europäischen Gesundheitsdatenraums.

forschungsdaten.info/nachrichten/...

#Forschungsdaten #Forschungsdatenmanagement #OpenScience #EHDS #EuropeanHealthDataSpace #FDM #RDM
May 2, 2024 at 9:20 AM
ihieurope.bsky.social
🔒 IMI/IHI projects provide a neutral platform where #HealthData from public/private sources can be shared within a secure environment, making them a perfect testing ground for implementing the #EuropeanHealthDataSpace
👉 europa.eu/!BbTPDt
#EHDS #IHITransformingHealth #IHISummerOfScience #HorizonEU
IHI and IMI: Laying the foundations of the European Health Data Space
IMI and IHI projects provide a neutral platform where public and private datasets can be shared within a secure environment. This means that IHI and IMI projects are the perfect testing ground for ful...
europa.eu
August 22, 2025 at 8:34 AM
epha-eu.bsky.social
The #EuropeanHealthDataSpace Regulation has been published!

We reiterate our call to strengthen trust in European health systems by improving digital health literacy, ensuring transparency across all member states, ceasing fear-based communication and more: www.thelancet.com/journals/lan...
Moving forward with the European health data space: the need to restore trust in European health systems
The European institutions reached an agreement on the regulation of European Health Data Space (EHDS) on March 15th, 2024, after three months of intense negotiations that prolonged beyond the original...
www.thelancet.com
March 6, 2025 at 2:46 PM
simsus.social.tchncs.de.ap.brid.gy
Private Krankenversicherung: „Wir haben bewusst auf die eGK verzichtet“ | heise online https://www.heise.de/hintergrund/PKV-Chef-ueber-die-Digitalisierung-des-Gesundheitswesens-fuer-Privatversicherte-11283114.html #digitalisierung #digitalization #digitalhealth #EHDS #EuropeanHealthDataSpace […]
Original post on social.tchncs.de
social.tchncs.de
May 9, 2026 at 8:50 AM
mrfrischhut.bsky.social
Out now: Kessissoglou, I. A., et al. (2024). Are EU member states ready for the #EuropeanHealthDataSpace? Lessons learnt on the secondary use of health data from the TEHDAS Joint Action. EJPH, 34(6), 1102–1108. doi.org/10.1093/eurp...
Are EU member states ready for the European Health Data Space? Lessons learnt on the secondary use of health data from the TEHDAS Joint Action
Abstract. The proposal for a regulation on the European Health Data Space (EHDS) contains provisions that would significantly change health data management
doi.org
December 11, 2024 at 8:37 AM
theevidencebase.bsky.social
TEHDAS2 joint action has launched a public consultation seeking feedback on draft guidelines and technical specifications critical for implementing the newly adopted #EuropeanHealthDataSpace regulation.

becarispublishing.com/digital-cont...
TEHDAS2 opens public consultation on European Health Data Space implementation guidelines
becarispublishing.com
January 23, 2025 at 10:51 AM
theevidencebase.bsky.social
The Council of the European Union's adoption of the #EuropeanHealthDataSpace regulation marks a milestone, giving citizens control over their #electronichealthdata and fostering secure cross-border data sharing to advance healthcare across member states.

becarispublishing.com/digital-cont...
Historic milestone as EU council adopts regulation for European Health Data Space
becarispublishing.com
January 22, 2025 at 5:32 PM
theevidencebase.bsky.social
The #EuropeanHealthDataSpace regulation aims to transform EU healthcare and research by enabling secure, standardized access to #electronichealthdata.

Fulvia Raffaelli & Owe Langfeldt from @ec.europa.eu outlined its framework, key safeguards, and timeline.

becarispublishing.com/digital-cont...
European Health Data Space (EHDS): Experts discuss enhancing healthcare, research, and data governance across the EU | Becaris Publishing
becarispublishing.com
March 12, 2025 at 3:20 PM
theevidencebase.bsky.social
Elsan partners with Promptly Health to advance #RealWorldData research and support the #EuropeanHealthDataSpace | Becaris Publishing becarispublishing.com/digital-cont...
Elsan partners with Promptly Health to advance real-world data research and support the European Health Data Space | Becaris Publishing
Elsan partners with Promptly Health to advance real-world data research and support the European Health Data Space
becarispublishing.com
September 15, 2025 at 3:42 PM
vitalsignsnews.bsky.social
Inside EU Health:
💄 @cancerleagues.bsky.social urge MEPs to reject weaker cosmetic safety rules;
📈 EU pharmaceutical exports hits record high;
💻 #EHDS #EuropeanHealthDataSpace consultations
#Cancer #ChemicalsOmnibus #CosmeticProductsRegulation
www.vitalsigns.news/inside-eu-he...
Inside EU Health: Chemicals Omnibus; EU Pharma exports hit record high; EHDS
Cancer leagues urge MEPs to reject weaker cosmetic safety rules; Ireland leads EU pharmaceutical exports as trade surplus hits record high; European digital identity wallets and cross-border health da...
www.vitalsigns.news
April 14, 2026 at 9:52 AM
gmds-ev.bsky.social
🌍 GMDS gründet neue Projektgruppe zum European Health Data Space (EHDS)

Um die fachliche Auseinandersetzung mit diesem wichtigen Thema weiter zu stärken, hat die GMDS eine neue Projektgruppe EHDS ins Leben gerufen. Die virtuelle Kick-off-Sitzung fand am 11.06.2026 statt.

Mehr: tinyurl.com/bdeuehck
#gmds #ehds #europeanhealthdataspace #digitalhealth #healthdata #medizinischeinformatik #gesundheitsdaten #forschung #interoperabilität #healthcareinnovation | Deutsche Gesellschaft für Medizinische I...
🌍 GMDS gründet neue Projektgruppe zum European Health Data Space (EHDS) Mit der am 26. März 2025 in Kraft getretenen EU-Verordnung zum European Health Data Space (EHDS) hat die Europäische Union eine...
tinyurl.com
June 16, 2026 at 6:45 AM
icon-plc.bsky.social
From interoperability to regulatory compliance, EHDS is changing how real-world evidence studies are designed and delivered. Learn more: https://ow.ly/APfN50ZxmgL

#EuropeanHealthDataSpace #EvidenceGeneration #HealthcareInnovation
September 2, 2026 at 9:00 AM
simsus.social.tchncs.de.ap.brid.gy
Datenpannen im Gesundheitswesen: „Ich habe mehr Angst vor der Dunkelziffer“ | heise online https://www.heise.de/news/Mehr-Datenpannen-mehr-Zugriffsmoeglichkeiten-Wer-schuetzt-Gesundheitsdaten-11416941.html #digitalisierung #digitalization #dsgvo #gdpr #EuropeanHealthDataSpace #EHDS […]
Original post on social.tchncs.de
social.tchncs.de
August 26, 2026 at 2:29 PM
eortc.org
How can Europe maximise the value of health data while protecting innovation?

EORTC shares key recommendations for the successful implementation of #EHDS. ⬇️
🔗 https://www.eortc.org/blog/2026/07/08/eortc-position-ehds/

European Commission
#EHDS #EuropeanHealthDataSpace #CancerResearch
July 8, 2026 at 8:38 AM
safestsurgery.bsky.social
SAFEST NOVA NSPH team participated in “Dados que contam” organised by @ENSP_UNL to empower Portuguese patient associations using the SAFEST project as an example

#EuropeanHealthDataSpace #PatientEmpowerment #HealthData #PatientInvolvement #SAFESTProject #PatientSafety #PerioperativeCare
July 9, 2025 at 9:03 AM
bbmrieric.bsky.social
📖 Read 6 key recommendations from BBMRI-ERIC's Stakeholder Forum – Patients and Citizens Pillar on how to implement the opt-out process for the secondary use of #HealthData under #EHDS regulation.

🔗 Full position paper here: buff.ly/IgJkFQW

#EuropeanHealthDataSpace #DataGovernance #DataPrivacy
November 12, 2025 at 10:32 AM
mskbayreuth.bsky.social
Zweiter Teil unseres Seminars zur #Datenspende. Heute stehen die Regelung des #Datenaltruismus unter dem #DataGovernanceAct #DGA, die #EuropeanHealthDataSpace-Regulation #EHDS sowie die Frage auf dem Programm, ob sich die Datenspende tatsächlich überhaupt als #Schenkung organisieren läßt.
July 11, 2025 at 5:19 AM
bauvens.bsky.social
🇪🇺+⚕️
Présentation succincte de l' #EspaceEuropéenDesDonnéesDeSanté ou #EuropeanHealthDataSpace #EHDS #DonnéesDeSanté

ec.europa.eu/commission/p...
Première page de présentation succincte de l'Espace Européen des Données de Santé par la Commission Européenne exposant les objectifs puis le potentiel de croissance de l'économie fondée sur les données de santé. Seconde page de présentation succincte de l'Espace Européen des Données de Santé par la Commission Européenne exposant les avantages pour les citoyens, les professionnels de santé, les chercheurs, les autorités de règlementation et les décideurs, et pour les entreprises.
April 29, 2024 at 4:48 PM