#MEAwarenessWeek
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meassociation.org.uk
Please share with us how you're celebrating Blue Sunday, whether it's a bake sale, tea party, wearing something blue, or enjoying a cup of tea in a blue mug - we hope you enjoy yourselves and have a tea-riffic time!  

#BlueSunday2026 #pwME #MEAwarenessWeek
May 17, 2026 at 8:02 AM
meassociation.org.uk
1/4: What if something as simple as a seed could bring us together?

This season, we're inviting our whole community to grow a sunflower, and you can be part of it from wherever you are.

#SeedsOfHopeForME #MECFS #pwME #LongCovid #MEAwarenessWeek
IMAGE DESCRIPTION: Graphic of a sunflower growing from a small seed to a full flower in bloom. Heading - 'Grow a Seed of Hope for people with ME/CFS'. ME Association and Seeds of Hope logos
May 14, 2026 at 12:30 PM
meassociation.org.uk
Dr Charles Shepherd interviewed for ME Awareness Week on UCB Radio - Listen in!

Listen in to the interview on Catch Up (available for the next 30 days) via the link in our blog: https://meassociation.org.uk/0fwy

#MECFS #SevereME #MyalgicE #MEAwarenessWeek #MEAwareness
Dr Charles Shepherd interviewed for ME Awareness Week on UCB Radio - Listen in! - The ME Association
On the 13th May, Dr Charles Shepherd, MEA Hon. Medical […]
meassociation.org.uk
May 14, 2026 at 8:49 AM
meassociation.org.uk
Blue Sunday is this Sunday (17th) - and a perfect opportunity to raise awareness of ME/CFS and to raise funds so we can continue to do our vital work for the ME/CFS community.

#MECFS #BlueSunday #BlueSunday2026 #MEAW2026 #MEAwarenessWeek
IMAGE DESCRIPTION: Photo of a table set up with cakes, plates, and cups. With Blue flags and bunting with the ME Association logo. Wording reads: Get ready for Blue Sunday! Download our free fundraising pack - perfect for Blue Sunday tea parties and bake sales.
May 13, 2026 at 2:10 PM
meassociation.org.uk
The Sick Times: Thousands “lie in” for German ME protests 

Read more: https://thesicktimes.org/2026/05/12/thousands-lie-in-for-german-me-protests/ 

#pwME #MECFS #MEAwarenessWeek #MEAW2026 #MEAwarenessDay
Thousands “lie in” for German ME protests - The Sick Times
The demonstrations, organized by the group #LiegendDemo, took place in 42 cities across the country. Advocates demanded an end to “psychosomatic treatment of ME,” mandatory training for medical professionals, and large scale public health campaigns, and more. To mark International Myalgic Encephalomyelitis (ME) Awareness Day, advocates participated in marches and “lie in” protests in 42
thesicktimes.org
May 13, 2026 at 10:32 AM
meassociation.org.uk
This week (11th-16th May) is ME Awareness Week, a chance to raise awareness of the debilitating, multi-system condition Myalgic Encephalomyelitis (encephalopathy) also known to as Chronic Fatigue Syndrome (CFS). 

#MEAW2026 #MEAW #MEAwarenessWeek
IMAGE DESCRIPTION: Photo of a person lying in bed with an eye mask over their eyes. Wording reads: This week is ME Awareness Week. 11th-16th May 2026. MEA awareness logo and ribbon.
May 11, 2026 at 7:03 AM
meassociation.org.uk
Booklet: Management: 10 Key Aspects

This booklet brings together the 10 most important aspects to managing your ME/CFS and is consistent with the NICE Guideline on ME/CFS.

meassociation.org.uk/literature/i...

#pwME #MECFS #MyalgicEncephalomyelits #MEAwarenessWeek #MEAW2025
Management - Ten Key Aspects - The ME Association
This booklet brings together the 10 most important aspects to […]
meassociation.org.uk
May 18, 2025 at 12:57 PM
meassociation.org.uk
ME World Alliance Myth v's Fact

Myth: Long COVID is entirely different from ME.

Fact: Many Long COVID patients have symptoms that match ME.

Download and share any of the Myth v's Fact images here:

https://worldmealliance.org/worldmeday/

#MECFS #pwME #MEAwarenessWeek #WorldMEDay #MEAW
IMAGE DESCRIPTION: Photo of a woman wearing a face mask and holding her head. Wording - Myth vs Fact, the Myalgic Encephalomyelitis Edition. Myth: Long COVID is entirely different from ME. Fact: Many Long COVID patients have symptoms that match ME. What facts do you want toe world to understand this World ME Day?
May 18, 2025 at 9:30 AM
meassociation.org.uk
Help us this ME Awareness Week, by sharing these real stories & reminding people with ME/CFS that they are not alone. 
https://meassociation.org.uk/what-is-MECFS/

*If sensitive to sound, please turn down the volume as the video has music'* 

#MEAW #MEAW2025 #MEAwarenessWeek #MECFS
May 17, 2025 at 7:02 AM
meassociation.org.uk
Millions are affected by ME/CFS—a debilitating and often invisible illness. Yet despite its profound impact, it continues to be misunderstood and underfunded.

Help us make a difference this ME Awareness Week: https://meassociation.org.uk/nc65

#MECFS #pwME #HiddenCrisis #MEAW2025 #MEAwarenessWeek
IMAGE DESCRIPTION: Photo of three teenage students walking out of the school gates. The image of the girl on the left is greyed out. Wording - ME/CFS: The Hidden Crisis. "ME/CFS stole my daughter’s education" ME Awareness week 12th - 18th May.
May 15, 2025 at 1:30 PM
meassociation.org.uk
The ME Association has a range of graphics and posters you can download and share on your social media account to raise awareness of ME/CFS.

Help us bring attention to this debilitating illness this ME Awareness Week: https://meassociation.org.uk/me-awareness-week/

#MECFS #pwME#MEAwarenessWeek
IMAGE DESCRIPTION: Heading - Can you help us raise awareness of ME/CFS this ME Awareness Week? 12th – 18th May 2025. Images - three photos of real people with ME/CFS from our Real ME campaign. Left photo - a woman looking unwell lying in bed with her covers drawn up around her. Middle - a middle aged man in glasses lying down in bed. Right - a young woman wearing an eye mask sleeping in bed in daylight.
May 14, 2025 at 1:20 PM
meassociation.org.uk
WAMES: Proposed Senedd debate on ME highlighting the plight of severe and very severe ME **TW: Hyperlinked: Upsetting Content**

Please consider writing to your MS asking them to support this motion (template letter included):

wames.org.uk/cms-english/...

#MECFS #SevereME #MEAwarenessWeek
Securing a Senedd debate on ME – the journey continues
Proposed Senedd debate on ME highlighting the plight of severe and very severe ME   The motion (or request) for a debate in the Senedd was tabled on 24th April 2025 by Adam Price MS. Unfortuna…
wames.org.uk
May 13, 2025 at 12:22 PM
meassociation.org.uk
This #MEAwarenessWeek we're proud to support the incredible work of the UK ME/CFS Biobank

The CureME team's new campaign is offering free biological samples and data to researchers through a special competition.

Apply here: https://tinyurl.com/mp96zzwp

#MECFS #MEAwarenessWeek2025 #MEAW2025
IMAGE DESCRIPTION: Photo of a female scientist holding up a vial with a red liquid.
May 12, 2025 at 2:03 PM
meassociation.org.uk
We're kicking off ME Awareness Week with International ME Awareness Day - 12th May 2025

Take a moment to learn more about ME/CFS—and help us create a better future for those affected: https://meassociation.org.uk/what-is-mecfs/

#MEAwarenessWeek #MEAwarenessWeek2025 #MEAwarenessDay #MECFS #pwME
IMAGE DESCRIPTION: Photo of a woman with ME/CFS lying in be, which was contributed as part of the Real ME Campaign. Heading - 12 May 2025 - International ME Awareness Day. ME Association logo. IMAGE DESCRIPTION: Photo of a man with ME/CFS lying in bed, which was contributed through the Real ME Campaign. Wording - International ME Awareness Day. ME/CFS is a debilitating illness impacting millions worldwide, leaving many bedbound and unseen. IMAGE DESCRIPTION: Photo of a young woman with ME/CFS lying in bed, which was contributed through the Real ME Campaign. Wording - International ME Awareness Day - Despite this, research, recognition and medical support are desperately lacking. Wording - Help us to raise awareness this International ME Awareness Day. Find out more about ME/CFS on our website. Images - along the bottom of the image are the social media icons for Instagram, Facebook, X, LinkedIn, Youtube, Threads and BlueSky
May 12, 2025 at 9:30 AM
meassociation.org.uk
Aberdeen Live: Aberdeen's Marischal College to join UK landmarks shining blue for invisible illness

"On Monday, May 12, buildings across Scotland will turn blue in solidarity with those living with (ME/CFS).

https://tinyurl.com/3vyf72pa

#MEAwarenessWeek #MECFS #pwME #Scotland
Aberdeen's Marischal College to join UK landmarks shining blue for invisible illness
Buildings across Scotland will turn blue in solidarity with those living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), including Marischal College.
tinyurl.com
May 6, 2025 at 9:27 AM
meassociation.org.uk
Belfast Media: NI: Major event to raise awareness around debilitating ME condition

ME Support Northern Ireland will be running an event at Black Mountain Shared Space on Thursday 9th May as part of ME Awareness Week

Find out more: https://tinyurl.com/5cd5f82m

#MECFS #pwME #MEAwarenessWeek
Major event to raise awareness around debilitating ME condition
A MAJOR event will be held in West Belfast this week to raise awareness around ME.
tinyurl.com
May 2, 2025 at 1:03 PM
meassociation.org.uk
In-person event for those with ME/CFS, Long Covid & related conditions. We welcome carers, friends & families of all ages

Sunday May 11th 
3-5pm
The Millstream Centre, Benson, OX10 6RL (South Oxon.)

Book at enquire.omega@gmail.com OR call 01491 838727 

#TeaPartyForME  #BlueSunday #MEAwarenessWeek
April 30, 2025 at 11:02 AM
natashajane.bsky.social
Thank you so much Mike for bringing this to Congress. This is something close to my heart and my health. It’s outstanding that #rcn25 have voted in support of this. Even more so, as it’s #MEawarenessweek this week. Thank you Mike!
May 15, 2025 at 10:45 AM
craftymissb.bsky.social
Remembering the ones we lost.
M.E Awareness Week
💙 May 12
#MEAwarenessWeek
#Art #Watercolour
#MyalgicEncephalomylitis
A painting of forget me nots
May 2, 2026 at 8:50 PM
franceyme.bsky.social
Horrible history of #MyalgicEncephalomyelitis - How medical misogyny & decades of medical malfeasance by a faction of psychiatry led to no treatments for #MECFS & #LongCOVID

My story here: illustratorinterrupted.blogspot.com/2021/05/i-caug…

#MEAwarenessWeek #MillionsMissing #12May #VeryLongHauler
October 6, 2023 at 4:41 AM
symptomodyssee.bsky.social
Der #MEAwarenessHour Feed gibt Posts und Replies aus, die #MEAwarenessHour, #MEAwarenessDay, #MEAwarenessWeek, #MEAwarenessMonth, #SevereMEDay und/oder #MillionsMissing enthalten.
September 21, 2023 at 10:06 AM
symptomodyssee.bsky.social
In addition to the #MEAwareness Feed, I made an #MEAwarenessHour feed that's bit less busy.

It searches for posts or replies containing #MEAwarenessHour, #MEAwarenessDay, #MEAwarenessWeek, #MEAwarenessMonth, #SevereMEDay and/or #MillionsMissing <2 years old.
September 21, 2023 at 9:53 AM
patientsafetylearning.org
This week is #MEAwarenessWeek. Featured on the hub, a briefing paper produced by @thereforme.bsky.social on delays to establishing NHS care for very severe ME. www.pslhub.org/learn/improv... #patientsafety
Delays to establishing NHS care for very severe ME (a briefing paper by #ThereForMe, March 2026)
It is estimated that around 1 in 4 people with Myalgic Encephalomyelitis (ME) are severely or very severely affected. In this briefing paper (attached), campaign group #ThereForMe explain that due to…
www.pslhub.org
May 11, 2026 at 10:23 AM
meownersclub.bsky.social
Yup - and NEGLECT is the polite word for what they’ve done.

Better words are ‘reckless disregard’ for science and ‘manslaughter’

The only bright side is that those of us they didn’t manage to un-alive are now activists and furious.

#MEAwarenessWeek
#MEAwarenessMonth
Cartoon about post-viral illness
May 16, 2026 at 10:47 AM
meownersclub.bsky.social
Give us the support and medications we need so we can get our lives back and be useful again!

#MEAwarenessWeek
#MEAwarenessMonth
#SimonWessely
The University of Edinburgh has been awarded £4.7m for genetic research into #ME In this cartoon a woman is kicking a football (with Simon Wessely’s head on it) into the Dustbin of History She is saying “and THAT professor Wessely is how you spend £4m on PROPER SCIENCE” Mousiest is pushing the dustbin lid closed so that once he’s in the dustbin of history he cannot escape ” The cartoon maker is #FanningTheFlames
May 16, 2026 at 8:16 AM