Later this year will mark the 15th year since i got the pneumonia that triggered my ME/CFS. Still no FDA approved treatments, no cure and very little research. #MECFSawarenessmonth
May 14, 2026 at 9:18 PM
Later this year will mark the 15th year since i got the pneumonia that triggered my ME/CFS. Still no FDA approved treatments, no cure and very little research. #MECFSawarenessmonth
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting +/or liking this 12-minute documentary which features @whitneydafoe.bsky.social & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting +/or liking this 12-minute documentary which features @whitneydafoe.bsky.social & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
Invisible Illness - Stories of Chronic Fatigue Syndrome
YouTube video by Palo Alto Online
www.youtube.com
May 11, 2026 at 11:58 AM
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting +/or liking this 12-minute documentary which features @whitneydafoe.bsky.social & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting +/or liking this 12-minute documentary which features @whitneydafoe.bsky.social & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
May is #MECFSAwarenessMonth
Together with @openmedf.bsky.social, @meactnet.bsky.social, and @solveme.bsky.social, we’re working to raise awareness and expand understanding of ME/CFS.
Add #UnitedForME to your posts and be part of the collective effort this month.
#MECFSAwareness #MECFSAwarenessDay
Together with @openmedf.bsky.social, @meactnet.bsky.social, and @solveme.bsky.social, we’re working to raise awareness and expand understanding of ME/CFS.
Add #UnitedForME to your posts and be part of the collective effort this month.
#MECFSAwareness #MECFSAwarenessDay
May 6, 2026 at 6:12 PM
May is #MECFSAwarenessMonth
Together with @openmedf.bsky.social, @meactnet.bsky.social, and @solveme.bsky.social, we’re working to raise awareness and expand understanding of ME/CFS.
Add #UnitedForME to your posts and be part of the collective effort this month.
#MECFSAwareness #MECFSAwarenessDay
Together with @openmedf.bsky.social, @meactnet.bsky.social, and @solveme.bsky.social, we’re working to raise awareness and expand understanding of ME/CFS.
Add #UnitedForME to your posts and be part of the collective effort this month.
#MECFSAwareness #MECFSAwarenessDay
Wer darin einen „Krankheitsgewinn“
erkennen will,
hat ME/CFS nicht verstanden.
www.spiegel.de/gesundheit/d...
#MECFS
#PEM
#MECFSAwarenessMonth
#pwME
#MillionsMissing
#MEAwareness
#DGN #DGPPN #DGPM
erkennen will,
hat ME/CFS nicht verstanden.
www.spiegel.de/gesundheit/d...
#MECFS
#PEM
#MECFSAwarenessMonth
#pwME
#MillionsMissing
#MEAwareness
#DGN #DGPPN #DGPM
(S+) ME/CFS: »Es ist unfassbar, welche Demütigungen diese Menschen ertragen müssen«
Manche Betroffene können nicht mal mehr das Bett verlassen: Doch die Ursachen der Krankheit ME/CFS sind kaum erforscht, es gibt viele Falschannahmen. Eine Psychotherapeutin sagt, was sie über Patiente...
www.spiegel.de
May 2, 2026 at 7:21 AM
Wer darin einen „Krankheitsgewinn“
erkennen will,
hat ME/CFS nicht verstanden.
www.spiegel.de/gesundheit/d...
#MECFS
#PEM
#MECFSAwarenessMonth
#pwME
#MillionsMissing
#MEAwareness
#DGN #DGPPN #DGPM
erkennen will,
hat ME/CFS nicht verstanden.
www.spiegel.de/gesundheit/d...
#MECFS
#PEM
#MECFSAwarenessMonth
#pwME
#MillionsMissing
#MEAwareness
#DGN #DGPPN #DGPM
Today is the last day of #MECFSawarenessmonth 💙
✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!
www.zeffy.com/en-US/fundra... ... #MECFS #RenegadeResearch
✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!
www.zeffy.com/en-US/fundra... ... #MECFS #RenegadeResearch
May 31, 2025 at 9:19 PM
Today is the last day of #MECFSawarenessmonth 💙
✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!
www.zeffy.com/en-US/fundra... ... #MECFS #RenegadeResearch
✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!
www.zeffy.com/en-US/fundra... ... #MECFS #RenegadeResearch
There is so much in me begging to get out! I want to work, sweat, toil and exhaust myself working towards dreams and goals and see them become real in front of me!
Oh, but I forgot, I don't want any of that, you're right Simon Wessely I love this, please repress me more.
#MECFSAwarenessMonth
Oh, but I forgot, I don't want any of that, you're right Simon Wessely I love this, please repress me more.
#MECFSAwarenessMonth
May 22, 2025 at 7:54 PM
There is so much in me begging to get out! I want to work, sweat, toil and exhaust myself working towards dreams and goals and see them become real in front of me!
Oh, but I forgot, I don't want any of that, you're right Simon Wessely I love this, please repress me more.
#MECFSAwarenessMonth
Oh, but I forgot, I don't want any of that, you're right Simon Wessely I love this, please repress me more.
#MECFSAwarenessMonth
#MECFSAwarenessMonth – Day 22: Conclusion
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.
May 22, 2025 at 5:17 AM
#MECFSAwarenessMonth – Day 22: Conclusion
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.
Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.
May is #MECFSAwarenessMonth!
✅️ Accelerate research and care for ME/CFS + Long COVID
Donations of any size are greatly appreciated. 💙 Please like + share this message to help create awareness. Thank you! #MECFS
www.zeffy.com/en-US/fundra...
✅️ Accelerate research and care for ME/CFS + Long COVID
Donations of any size are greatly appreciated. 💙 Please like + share this message to help create awareness. Thank you! #MECFS
www.zeffy.com/en-US/fundra...
May 21, 2025 at 2:17 PM
May is #MECFSAwarenessMonth!
✅️ Accelerate research and care for ME/CFS + Long COVID
Donations of any size are greatly appreciated. 💙 Please like + share this message to help create awareness. Thank you! #MECFS
www.zeffy.com/en-US/fundra...
✅️ Accelerate research and care for ME/CFS + Long COVID
Donations of any size are greatly appreciated. 💙 Please like + share this message to help create awareness. Thank you! #MECFS
www.zeffy.com/en-US/fundra...
#MECFSAwarenessMonth – Day 21
2021: After a comprehensive review, NICE finds all evidence for Graded Exercise Therapy and CBT to be of low or very low quality. GET is found to be harmful and is no longer recommended. CBT is downgraded to supportive use only.
2021: After a comprehensive review, NICE finds all evidence for Graded Exercise Therapy and CBT to be of low or very low quality. GET is found to be harmful and is no longer recommended. CBT is downgraded to supportive use only.
May 21, 2025 at 5:19 AM
#MECFSAwarenessMonth – Day 21
2021: After a comprehensive review, NICE finds all evidence for Graded Exercise Therapy and CBT to be of low or very low quality. GET is found to be harmful and is no longer recommended. CBT is downgraded to supportive use only.
2021: After a comprehensive review, NICE finds all evidence for Graded Exercise Therapy and CBT to be of low or very low quality. GET is found to be harmful and is no longer recommended. CBT is downgraded to supportive use only.
#MECFSAwarenessMonth – Day 20
2018: Emma Shorter tells the Scottish Parliament how Graded Exercise Therapy left her needing a wheelchair. Prof. Jonathan Edwards submits evidence saying patients were vilified but they were right — the science was poor quality.
2018: Emma Shorter tells the Scottish Parliament how Graded Exercise Therapy left her needing a wheelchair. Prof. Jonathan Edwards submits evidence saying patients were vilified but they were right — the science was poor quality.
May 20, 2025 at 7:07 AM
#MECFSAwarenessMonth – Day 20
2018: Emma Shorter tells the Scottish Parliament how Graded Exercise Therapy left her needing a wheelchair. Prof. Jonathan Edwards submits evidence saying patients were vilified but they were right — the science was poor quality.
2018: Emma Shorter tells the Scottish Parliament how Graded Exercise Therapy left her needing a wheelchair. Prof. Jonathan Edwards submits evidence saying patients were vilified but they were right — the science was poor quality.
#MECFSAwarenessMonth – Day 19
2018: A re-analysis of the PACE trial, using the authors’ original plan, finds the results were inflated and that GET and CBT are not effective. If the authors had kept to their original plan, the PACE trial could not have been reported as a success.
2018: A re-analysis of the PACE trial, using the authors’ original plan, finds the results were inflated and that GET and CBT are not effective. If the authors had kept to their original plan, the PACE trial could not have been reported as a success.
May 19, 2025 at 6:03 AM
#MECFSAwarenessMonth – Day 19
2018: A re-analysis of the PACE trial, using the authors’ original plan, finds the results were inflated and that GET and CBT are not effective. If the authors had kept to their original plan, the PACE trial could not have been reported as a success.
2018: A re-analysis of the PACE trial, using the authors’ original plan, finds the results were inflated and that GET and CBT are not effective. If the authors had kept to their original plan, the PACE trial could not have been reported as a success.
#MECFSAwarenessMonth – Day 18
2018: MP Carol Monaghan leads the first of 3 UK Parliament debates on ME, including one about the PACE trial. She highlights patient harm and flawed research, calling it “one of the biggest medical scandals of the 21st century.”
2018: MP Carol Monaghan leads the first of 3 UK Parliament debates on ME, including one about the PACE trial. She highlights patient harm and flawed research, calling it “one of the biggest medical scandals of the 21st century.”
May 18, 2025 at 5:59 AM
#MECFSAwarenessMonth – Day 18
2018: MP Carol Monaghan leads the first of 3 UK Parliament debates on ME, including one about the PACE trial. She highlights patient harm and flawed research, calling it “one of the biggest medical scandals of the 21st century.”
2018: MP Carol Monaghan leads the first of 3 UK Parliament debates on ME, including one about the PACE trial. She highlights patient harm and flawed research, calling it “one of the biggest medical scandals of the 21st century.”
#MECFSAwarenessMonth – Day 17
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.
May 17, 2025 at 5:08 AM
#MECFSAwarenessMonth – Day 17
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.
2017: The CDC drops its recommendation for Graded Exercise Therapy and CBT — a major step away from the psychological model. An analysis of multiple treatment surveys finds over 50% of #MECFS patients report Graded Exercise Therapy made them worse.
#MECFSAwarenessMonth – Day 16
May 2017: Merryn Crofts dies of Severe ME. Merryn’s mum, Clare Norton, is very critical of the PACE trial and the NICE guideline, believing advice to slow down and rest earlier might have prevented her deterioration into Severe ME.
May 2017: Merryn Crofts dies of Severe ME. Merryn’s mum, Clare Norton, is very critical of the PACE trial and the NICE guideline, believing advice to slow down and rest earlier might have prevented her deterioration into Severe ME.
May 16, 2025 at 5:36 AM
#MECFSAwarenessMonth – Day 16
May 2017: Merryn Crofts dies of Severe ME. Merryn’s mum, Clare Norton, is very critical of the PACE trial and the NICE guideline, believing advice to slow down and rest earlier might have prevented her deterioration into Severe ME.
May 2017: Merryn Crofts dies of Severe ME. Merryn’s mum, Clare Norton, is very critical of the PACE trial and the NICE guideline, believing advice to slow down and rest earlier might have prevented her deterioration into Severe ME.
#MECFSAwarenessMonth – Day 14:
2015: Long-term PACE trial results show no long term benefit from CBT or GET compared to standard medical care. Yet authors still claimed effectiveness. The Science Media Centre backed the findings, and media reported success despite criticism.
2015: Long-term PACE trial results show no long term benefit from CBT or GET compared to standard medical care. Yet authors still claimed effectiveness. The Science Media Centre backed the findings, and media reported success despite criticism.
May 14, 2025 at 6:36 AM
#MECFSAwarenessMonth – Day 14:
2015: Long-term PACE trial results show no long term benefit from CBT or GET compared to standard medical care. Yet authors still claimed effectiveness. The Science Media Centre backed the findings, and media reported success despite criticism.
2015: Long-term PACE trial results show no long term benefit from CBT or GET compared to standard medical care. Yet authors still claimed effectiveness. The Science Media Centre backed the findings, and media reported success despite criticism.
#MECFSAwarenessMonth – Day 13
2015: A landmark report in the US reviews 9,000+ studies and concludes ME/CFS is a “serious, chronic, complex” disease — not psychiatric. It identifies post-exertional malaise as a key diagnostic feature and helps shift understanding.
2015: A landmark report in the US reviews 9,000+ studies and concludes ME/CFS is a “serious, chronic, complex” disease — not psychiatric. It identifies post-exertional malaise as a key diagnostic feature and helps shift understanding.
May 13, 2025 at 7:09 AM
#MECFSAwarenessMonth – Day 13
2015: A landmark report in the US reviews 9,000+ studies and concludes ME/CFS is a “serious, chronic, complex” disease — not psychiatric. It identifies post-exertional malaise as a key diagnostic feature and helps shift understanding.
2015: A landmark report in the US reviews 9,000+ studies and concludes ME/CFS is a “serious, chronic, complex” disease — not psychiatric. It identifies post-exertional malaise as a key diagnostic feature and helps shift understanding.
#MECFSAwarenessMonth – Day 12
2011: Ian Gibson MP highlights a high-level block on biomedical #MECFS research. A study also reveals nurses’ frustration delivering psychological treatments — one supervisor reported a feeling of, “the bastards don’t want to get better.”
2011: Ian Gibson MP highlights a high-level block on biomedical #MECFS research. A study also reveals nurses’ frustration delivering psychological treatments — one supervisor reported a feeling of, “the bastards don’t want to get better.”
May 12, 2025 at 6:12 AM
#MECFSAwarenessMonth – Day 12
2011: Ian Gibson MP highlights a high-level block on biomedical #MECFS research. A study also reveals nurses’ frustration delivering psychological treatments — one supervisor reported a feeling of, “the bastards don’t want to get better.”
2011: Ian Gibson MP highlights a high-level block on biomedical #MECFS research. A study also reveals nurses’ frustration delivering psychological treatments — one supervisor reported a feeling of, “the bastards don’t want to get better.”
Das weiß ich leider aus eigener Erfahrung und früherer Recherche. 😔
#Rätselspaß
#pastpuzzle ME/CFS Awareness Day
#MECFS
#MECFSAwarenessMonth
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www.pastpuzzle.de
#Rätselspaß
#pastpuzzle ME/CFS Awareness Day
#MECFS
#MECFSAwarenessMonth
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www.pastpuzzle.de
past puzzle
Errate mithilfe von 4 historischen Ereignissen das gesuchte Jahr. Ein von Wordle und Geschichten aus der Geschichte inspiriertes Spiel.
www.pastpuzzle.de
May 12, 2025 at 1:48 AM
Das weiß ich leider aus eigener Erfahrung und früherer Recherche. 😔
#Rätselspaß
#pastpuzzle ME/CFS Awareness Day
#MECFS
#MECFSAwarenessMonth
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1/4 🥇
www.pastpuzzle.de
#Rätselspaß
#pastpuzzle ME/CFS Awareness Day
#MECFS
#MECFSAwarenessMonth
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www.pastpuzzle.de
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
Invisible Illness - Stories of Chronic Fatigue Syndrome
YouTube video by Palo Alto Online
www.youtube.com
May 11, 2025 at 12:36 PM
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
www.youtube.com/watch?v=9_Hw...
Day11
#PwME #SevereME
#mecfs @janetdafoe.bsky.social