#MEResearchUK
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thewestonmale.bsky.social
Sister Faye's fundaising page for more medical research funded by @meresearchuk.bsky.social has now reached the heady heights of £16,605 - donated by 514 supporters. Stuff of legend, thank you!
www.justgiving.com/page/faye-do...
#BethDobbin #LettertoAndy #mecfs #LongCovid #MEResearchUK
November 3, 2026 at 7:04 AM
mefoggydog.bsky.social
Video script - Today is BED for Severe M.E Day.

We are fundraising for two M.E. charities,
@MEResearchUK and @SmileForMEUK
Both do incredible work for the M.E. community.

JustGiving's minimum donation is £2. Every pound donated is gratefully received.

Please donate via
1/
#BedForSevereME
October 29, 2026 at 10:44 AM
msargyllsnowdrop.bsky.social
Whoop Whoop! 🎉 John Jackson cycled 664 miles is 8 days from West - Ardnamurchan distillery ➡️ East - Southwold distillery 🚴‍♂️🥃 Raising awareness for our work & @MEResearchUK 🌟💚 Huge achievement – proud of you John! 🙌 Donate: givestar.io/gs/ardnamurcha…
September 14, 2025 at 4:15 PM
hopefoundinme.bsky.social
#BlueSundayForME #TeaPartyForME2025
I have donated to @smileforme and @meresearchuk - two proactive voices for the ME Community.💙

Thank to Anna of @theslowlane.me for this incredible initiative which has so far raised £100,000. for ME Charities.

And enjoy your cuppa!
☕️🍰😋
May 18, 2025 at 3:06 PM
longcovidcan-co.bsky.social
#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem #me

Source: @ meresearchuk
September 25, 2025 at 5:15 PM
scotjess.bsky.social
Please nominate @meresearchuk.bsky.social fly them to get £1000 funding.
x.com/MEResearchUK...
x.com
x.com
January 26, 2025 at 2:47 PM
pennyhampson.bsky.social
Read a book and help a good cause!
Dark Scotland ~ Stories with a twist
‘From the poignant to the downright creepy’
All royalties go to @MEResearchUK & @TheHFGlasgow
mybook.to/darkscotland
#pwme #homeless #kindleunlimited @darkstrokedark
💙📚
November 20, 2023 at 3:39 PM
marcveld.bsky.social
The piece from MEResearchUK deals with this paper in PNAS: bsky.app/profile/marc...

Which is well explained and contains the limitations and the author's line “it remains unknown whether this state is a driver of pathology or a consequence of prior triggering events”.

Excekllent communication!
marcveld.bsky.social Marc Veldhoen @marcveld.bsky.social · Dec 3
Transcriptional reprogramming primes CD8+ T cells toward exhaustion in Myalgic encephalomyelitis/chronic fatigue syndrome

Are T cells are inherently different in ME? Yes, but this is likely a consequence, not the cause.

www.pnas.org/doi/10....
1/10
January 13, 2025 at 7:14 PM
marcveld.bsky.social
In it the MEResearchUK refers to a highlight / public information piece from August 2023: www.pennmedicine.org/news/publica...

This is a well-written piece about T cells, by an expert, and also names the concept of T cell exhaustion as seen in cancer and chronic conditions such as autoimmunity.
What is T Cell Exhaustion?
A phenomenon known as “T cell exhaustion” has stymied some efforts to develop powerful immune-based therapies. Through decades of discovery, Penn Medicine researchers are learning why and what to do a...
www.pennmedicine.org
January 13, 2025 at 7:14 PM
valebodi.bsky.social
And this is when you are at the moderate level on the disease’s spectrum.

For reference see @meresearchuk.bsky.social

www.meresearch.org.uk/living-with-...
Infographic from @MEResearchUK based on the revised 2021 ME/CFS guidelines The 2021 NICE guidelines state that people with the following severities of ME/CFS are likely to be able to: Mild • Care for themselves. • Do some light domestic tasks (sometimes needing support). • May have difficulties with mobility. • Most still working or in education but to do this have probably stopped all leisure and social pursuits. • Often reduced hours, take days off and use the weekend to manage. Severe • Unable to do any activity for themselves/can only carry out minimal daily tasks. • Severe cognitive difficulties. • May depend on a wheelchair. • Often unable to leave the house. • May spend most of time in bed. • Often extremely sensitive to light and sound. Moderate • Restricted in all activities of daily living. • Reduced mobility. • Peaks and troughs in their level of symptoms. • Usually stopped work or education, and need rest periods, often resting in the afternoon for 1 or 2 hours. • Sleep at night generally poor quality and disturbed. Very severe • In bed all day. • Dependent on care. • Need help with personal hygiene and eating. • Very sensitive to sensory stimuli. • May not be able to swallow and may need to be tube fed.
May 23, 2026 at 6:34 PM
valebodi.bsky.social
“diagnosis should not be made without it”

@meresearchuk .bsky.social website explains Dr. Ramsay’s definition for ME.

www.meresearch.org.uk/ramsay-defin...

From the website:

“Drawing on his clinical experience and broader observations, Dr Ramsay described the core features he believed defined ME
Ramsay definition for ME
In 1986, Dr Melvin Ramsay, a British physician renowned for his research and advocacy on myalgic encephalomyelitis (ME), published Postviral Fatigue Syndrome: The Saga of Royal Free Disease (later tit...
www.meresearch.org.uk
April 4, 2026 at 9:03 PM
valebodi.bsky.social
The pulse of the situation in the UK for #pwME and their carers:

“Nothing #ME/CFS specific, no ring-fenced funding, no attempt to redress historic underfunding of ME/CFS biomedical research, and no plan.”

x.com/meresearchuk...
x.com
November 12, 2025 at 5:36 PM
valebodi.bsky.social
Muscle fatigue – underlying mechanisms and potential therapies
Brain and nervous system – structural and functional changes
Immune system – autoimmunity and the role of specific antibodies
Metabolomics and the search for diagnostic biomarkers
@MEResearchUK
www.technologynetworks.com/applied-scie...
What’s the Current State of ME/CFS Research?
Dr. Emma Slack, Science Writer at ME Research UK, updates <i>Technology Networks</i> on the latest chronic fatigue illness research advancements.
www.technologynetworks.com
August 23, 2024 at 12:58 PM
longcovidadvoc.com
💸 Want to support our work?

We're 100% volunteer-led. All profit goes to @MEResearchUK + @polybioRF

Donate or subscribe here:
☕ Kofi: tinyurl.com/ycyjdan4
📬 Patreon: tinyurl.com/37yykuwx
📨 Substack: tinyurl.com/rvrwaeft
💰 Paypal: tinyurl.com/3t3nfsc2 16/18
A sloth with a red flower in its mouth appears beneath bold text thanking supporters and highlighting donation information for longcovidadvoc.com.
April 22, 2025 at 8:27 AM
mecfsscience.org
1) In a new genetics project supported by @MEResearchUK, Dr Alkisti Manousaki from the University of Leicester will study X chromosome inactivation in ME/CFS.

This could help clarify why females are approximately 4 times more likely to develop ME/CFS than males.
August 21, 2025 at 10:16 AM
mecfsscience.org
Here's the link to the video of Yarred Younger:
www.youtube.com/watc...

And here's the video by Kiana Kothe. This study is funded by @MEResearchUK
www.meresearch.org.u...
067 - New results: The ME/CFS brain is inflamed
Here are new positron emission tomography (PET) results showing abnormal microglia activation in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The study was funded by the National Institutes of Health (NIH). Brain images come from the Harvard Whole Brain Atlas: https://www.med.harva
www.youtube.com
August 14, 2025 at 3:43 PM
stevendevote.bsky.social
This month, ME Research UK was delighted to announce that we awarded funding to Prof. Bhupesh Prusty at Riga Stradins University in Latvia for a project investigating the role of autoimmunity in ME/CFS.

#ME #meresearchUK #autoimmunity #ME/CFS

www.meresearch.org.uk/research/pru...
Understanding the mechanism and role of autoimmunity in ME/CFS
Listen to this article Researcher Prof. Bhupesh Prusty Institution Riga Stradins University, Riga, Latvia Start date August 2025 Funding ME Research UK Background Our immune system is responsible for ...
www.meresearch.org.uk
November 28, 2025 at 12:22 PM
lucibee.bsky.social
Good that Cardiff Council announced it on their IG page: www.instagram.com/cardiff_coun...

But let's see if we can get them a few more "likes"...
CardiffCouncil on Instagram: "Cardiff Castle will shine bright blue this evening in support of #MEAwarenessDay, raising awareness for Myalgic Encephalomyelitis (ME). 💙 @MEResearchUK #InternationalME...
11 likes, 1 comments - cardiff_council on May 12, 2025: "Cardiff Castle will shine bright blue this evening in support of #MEAwarenessDay, raising awareness for Myalgic Encephalomyelitis (ME). 💙 @ME...
www.instagram.com
May 13, 2025 at 2:09 PM
meresearchuk.bsky.social
In 2024, @MEResearchUK initiated the “Founders’ Science Writing Award”. This year, early career scientists are invited to discuss heterogeneity in ME/CFS research populations. Cash prizes for winning entries.

More info: bit.ly/4tHXlwr

#MECFS #MEresearch
May 12, 2026 at 1:22 PM
stevenshorrock.bsky.social
My brother is taking on one of Britain’s most demanding endurance challenges for @meresearchuk.bsky.social

ME/CFS can leave people unable to work, study, socialise, or manage ordinary daily activities.

ME Research UK commissions and funds high-quality biomedical research into ME/CFS.

Thank you🙏🏻
Photo of a runner in the top right and a woman in bed in the dark in bottom left. With fundraising text. My brother Gary Shorrock is taking on one of Britain’s most demanding endurance challenges for @MEResearchUK : the Bob Graham Round in the Lake District To complete it, he must cover around 66 miles, summit 42 fells, and climb more than 8,200 metres (approximately 26,900 feet of ascent) all within 24 hours. Gary has previously undertaken major endurance events and fundraising challenges, raising over £20,000 for an Alder Hey children’s hospital. This time, he is taking on the Bob Graham Round to raise money for a devastating yet underfunded condition. ME/CFS (myalgic encephalomyelitis/ chronic fatigue syndrome) is a serious, disabling, life-altering illness. It can leave people unable to work, study, socialise, or manage ordinary daily activities. In severe and very severe cases, it confines people to their beds. Research has shown that quality of life for people with ME/CFS can be among the worst reported for any medical condition. Scientific research is increasingly identifying objective biological abnormalities in ME/CFS, including in blood, immune and metabolic function. Yet despite its severity, the illness has remained profoundly underfunded for decades. The funds raised through this challenge will go to ME Research UK, a charity that commissions and funds high-quality biomedical research into the causes, consequences, and treatment of ME/CFS. The work of @MEResearchUK reflects the urgent need for better scientific understanding of a disease that affects hundreds of thousands of people in the UK and leaves many housebound or bedbound, with their lives on hold. Support for this fundraiser will help contribute to urgently needed research into a devastating and neglected illness. Any donation would be greatly appreciated, and sharing the page would also make a big difference. https://www.justgiving.com/page/gary-shorrock
April 27, 2026 at 7:53 AM
walk4me.bsky.social
We would love you to join Walk for ME 2026 and help increase awareness of ME along with raising funds for desperately needed biomedical research!
www.justgiving.com/team/walkforme2026
More info
www.facebook.com/events/2013016925929255
or
www.walkforme.co.uk
#W4ME #IIME #meresearchuk #ME
February 1, 2026 at 6:34 PM
walk4me.bsky.social
A huge welcome to this year’s #W4ME to Alison who is taking on an epic challenge and walking the 177 mile Offa’s Dyke! Alison is raising money for @meresearchuk.bsky.social biomedical research into ME/CFS. www.justgiving.com/.../alisons-me-offas-dyke

#meresearchuk #MECFS #MEAwareness #MEResearch
June 10, 2025 at 4:05 PM
walk4me.bsky.social
As we reach the end of ME Awareness month we wanted to say a huge thank you to everyone who has taken part in and supported #W4ME 2025. You've raised an amazing £5640 for biomedical research so far!
#mecfsawareness #meresearchuk #MECFS #MEawarenessmonth #IIME
May 31, 2025 at 3:30 PM
walk4me.bsky.social
As we enter May the #W4ME team target is a whopping £3,000! Thank you so much to everyone involved!
There’s still plenty of time if you want to join our team. More at: www.walkforme.co.uk or www.justgiving.com/team/walkforme2025.
#MEAwareness #meresearchuk #IIME
May 3, 2025 at 9:22 AM
walk4me.bsky.social
A huge welcome to this years #W4ME to the wonderful Elizabeth, who is doing a walk on behalf of her sister who has ME. Elizabeth is raising funds for @meresearchuk.bsky.social Thank you Elizabeth! 💙
www.justgiving.com/page/elizabe...

#meresearchuk #ME #MECFS #pwME #MEAwareness
May 2, 2025 at 10:30 AM