Folks, very bad news for #LongCOVID. Deep breath.
29 awarded grants to do with COVID and Long COVID have been rescinded by NIH. 🧪
www.science.org/content/arti...
29 awarded grants to do with COVID and Long COVID have been rescinded by NIH. 🧪
www.science.org/content/arti...
March 25, 2025 at 11:43 PM
February 3, 2025 at 11:58 AM
I support the everlasting fuck out of this. ✊️ #pwLC
Letter: "We are Volunteers for Paris 2024 and we resign due to the lack of Covid-19 measures"
blogs.mediapart.fr/volontaires-...
blogs.mediapart.fr/volontaires-...
July 24, 2024 at 8:09 PM
I support the everlasting fuck out of this. ✊️ #pwLC
April 27, 2025 at 2:09 AM
I think most abled people don't understand that being disabled is often a constant dance between rest and activity, trying to make sure you don't harm yourself further.
I know I didn't.
#LongCovid #pwLC
#ChronicIllness #neisVoid #mecfs
I know I didn't.
#LongCovid #pwLC
#ChronicIllness #neisVoid #mecfs
February 1, 2025 at 6:41 PM
I think most abled people don't understand that being disabled is often a constant dance between rest and activity, trying to make sure you don't harm yourself further.
I know I didn't.
#LongCovid #pwLC
#ChronicIllness #neisVoid #mecfs
I know I didn't.
#LongCovid #pwLC
#ChronicIllness #neisVoid #mecfs
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers:
Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email george at monbiot dot info. Thanks.
Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email george at monbiot dot info. Thanks.
September 21, 2026 at 12:19 PM
Follow along with #MEAction Scientific Director Jaime Seltzer in the thread below!
#RecoverTLC #pwME #LongCovid #pwLC
#RecoverTLC #pwME #LongCovid #pwLC
September 10, 2025 at 3:41 PM
Follow along with #MEAction Scientific Director Jaime Seltzer in the thread below!
#RecoverTLC #pwME #LongCovid #pwLC
#RecoverTLC #pwME #LongCovid #pwLC
Let’s make of this new home a better place for #pwME #pwLC #chronicallyill #disabled. #MECFS #MillionsMissing #NEISvoid
September 28, 2023 at 7:43 PM
Let’s make of this new home a better place for #pwME #pwLC #chronicallyill #disabled. #MECFS #MillionsMissing #NEISvoid
May 24, 2024 at 7:31 PM
June 7, 2025 at 1:34 PM
The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
May 9, 2025 at 8:48 PM
"Half a decade of neglect"
"Let 'er rip"
Solidarity with my fellow #PwLC
We're on our own.
#LongCovidAwarenessDay
#FiveYearsLater
"Let 'er rip"
Solidarity with my fellow #PwLC
We're on our own.
#LongCovidAwarenessDay
#FiveYearsLater
Demonstrations for International Long COVID Awareness Day have sparked around the globe. We reached out to international organizers for photos from their actions to document the demonstrations and highlight their demands. bit.ly/4im6qFk
March 16, 2025 at 12:15 AM
"Half a decade of neglect"
"Let 'er rip"
Solidarity with my fellow #PwLC
We're on our own.
#LongCovidAwarenessDay
#FiveYearsLater
"Let 'er rip"
Solidarity with my fellow #PwLC
We're on our own.
#LongCovidAwarenessDay
#FiveYearsLater
June 3, 2025 at 4:22 AM
Powerful moment at Sir Bob Geldof's event: Belinda & Brooke Nickeas (ME/CFS community) shared a letter outlining the history of ME/CFS. Touched by their courage, he shared these words 💙 On #MECFS Awareness Day, their act is a gift. You are seen. You matter.
May 12, 2025 at 12:31 PM
“It's the annihilation of possibility.”
A perfect description by Ed Yong.
#mecfs #longcovid #pwME #pwLC
A perfect description by Ed Yong.
#mecfs #longcovid #pwME #pwLC
Article in The Atlantic by Ed Yong | "Fatigue Can Shatter a Person"
"Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.”
Read here 👉 ow.ly/QpLh50W6hGL
"Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.”
Read here 👉 ow.ly/QpLh50W6hGL
Fatigue Can Shatter a Person
Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.
ow.ly
June 9, 2025 at 10:29 PM
“It's the annihilation of possibility.”
A perfect description by Ed Yong.
#mecfs #longcovid #pwME #pwLC
A perfect description by Ed Yong.
#mecfs #longcovid #pwME #pwLC
This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot
Chronic fatigue syndrome is as physiological as a broken leg. We must learn all we can from this tragic case, says Guardian columnist George Monbiot
www.theguardian.com
October 18, 2024 at 7:18 AM
I have never read anything quite like this about #MEcfs, the state of ME-research, and the causes of our abandonment.
#pwME #pwLC #LongCovid
#pwME #pwLC #LongCovid
A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️
theconversation.com/ignored-blam...
theconversation.com/ignored-blam...
Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical ‘scandal’
The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.
theconversation.com
October 21, 2024 at 2:12 PM
I have never read anything quite like this about #MEcfs, the state of ME-research, and the causes of our abandonment.
#pwME #pwLC #LongCovid
#pwME #pwLC #LongCovid
They found that pwLC exerted similar amounts of force but muscle activity was much higher. Therefore there is inefficient neuromuscular activity in pwLC (note, small study n=30-something, but still interesting).
They plan on looking at blood-brain permeability next. Looks interesting, but--
They plan on looking at blood-brain permeability next. Looks interesting, but--
January 14, 2025 at 7:43 PM
They found that pwLC exerted similar amounts of force but muscle activity was much higher. Therefore there is inefficient neuromuscular activity in pwLC (note, small study n=30-something, but still interesting).
They plan on looking at blood-brain permeability next. Looks interesting, but--
They plan on looking at blood-brain permeability next. Looks interesting, but--
November 10, 2024 at 11:39 AM
December 9, 2024 at 11:04 PM
Could those who had a bad reaction to contrast fill out this survey? I plan to share it with scientists in the field to help bring attention to the issue.
docs.google.com/forms/d/e/1F...
docs.google.com/forms/d/e/1F...
Adverse Reactions to CT/MRI Contrast in People with Long COVID
This survey aims to collect information from individuals experiencing Long COVID who have had adverse reactions to CT or MRI contrast agents. The goal is to better understand these reactions and contr...
docs.google.com
April 20, 2025 at 10:59 PM