#PeripheralNeuropathy
#CIDP #PERIPHERALNeuropathy #GuillainBarre #IVIG
My mobile office during IVIG Infusions.
March 9, 2025 at 5:37 AM
November 26, 2024 at 7:20 PM
Lumia’s new Live Mode feature can power new dimensions of self discovery! ✨ Learn what raises or drops the blood flow to your head, to better self-manage #chronicillness like #pots #dysautonomia #syncope #longcovid #dysautonomia #orthostaticintolerance #peripheralneuropathy #pwme #sjogrens
Here I’m doing a live demonstration of what it’s like to live with POTS (or other forms of OI) using my Lumia. We look fine on the outside, but this is what’s happening inside. Remember blue is my HR and gray is blood flow to my head. Note: Lumia is not a medical device.
#wearlumia #pots #mecfs
February 18, 2025 at 8:14 PM
Proud to advocate for patients, clinicians and researchers who want to see better treatments and a cure for #peripheralneuropathy. The Foundation for PN has had massive growth over the last year, and moving toward an exciting 2027 symposium! 🧪🧪
March 13, 2026 at 12:23 AM
April 15, 2026 at 12:54 PM
#Medsky🧪#Neurosky @jama.com
#Peripheralneuropathy (PN) , defined as damage to PN , affects ~ 1% of adults worldwide. More than 200 causes of PN exist, with symptoms ranging in severity from mild toe numbness to debilitating symptoms that can require a wheelchair…
jamanetwork.com/journals/jam...
Peripheral Neuropathy: A Review
This review discusses the pathophysiology, clinical presentation, diagnosis, and treatment of length-dependent peripheral neuropathy.
jamanetwork.com
November 22, 2025 at 6:14 AM
"Monash University #scientists have developed a new (preclinical) method to distinguish between #ChronicPain subtypes, such as #fibromyalgia and #PeripheralNeuropathy.": buff.ly/MAesiPd

via @monashuniversity.bsky.social
#MedSky
buff.ly
April 8, 2025 at 9:30 AM
𝐏𝐫𝐚𝐜𝐭𝐢𝐜𝐞 𝐂𝐡𝐚𝐧𝐠𝐞 𝐓𝐢𝐩𝐬 𝐅𝐫𝐨𝐦 𝐎𝐮𝐫 𝐌𝐞𝐦𝐛𝐞𝐫𝐬: “𝐏𝐞𝐫𝐢𝐩𝐡𝐞𝐫𝐚𝐥 𝐍𝐞𝐮𝐫𝐨𝐩𝐚𝐭𝐡𝐲” 𝐌𝐨𝐝𝐮𝐥𝐞

What are some common things that our members want to change about their practice?

Read more: bit.ly/4tGFaXJ

#FMPE #PeripheralNeuropathy, #ClinicalPractice, #PracticeImprovement, #MedicalEducation, #ContinuingMedicalEducation
April 13, 2026 at 7:30 PM
Doctors say there is no cure for nerve pain.

I am living my life now after microdosing.

#TrigeminalNeuralgia #PeripheralNeuropathy
#phantompain
August 18, 2026 at 5:52 PM
Discover the urgent need for increased research funding for peripheral neuropathy: www.foundationforpn.org/advocating-f...
#PNadvocacy #neuropathy #peripheralneuropathy #peripheralneuropathyresearch #PNresearch
March 27, 2025 at 8:20 PM
Awareness week is about a month away!
You can help raise awareness of neuropathy and the need for more research | connect on social:
linktr.ee/tffpn
#pnawareness #pnawarenessweek #neuropathyawareness #neuropathy #peripheralneuropathyawarenessweek #peripheralneuropathy
April 7, 2025 at 2:27 PM
Did you just find out you have peripheral neuropathy?
We know it can be scary and confusing. We have information to guide you. Our resources can help you understand neuropathy and what to do next https://www.foundationforpn.org/newly-diagnosed/

#neuropathy #peripheralneuropathy #neuropathydiagnosis
September 16, 2025 at 11:00 PM
Congrats to all involved with this study associating mono-allelic POLR3A variants with #peripheralneuropathy.

So good to catch up with some of the key players at #ESHG2025 Milan where Jevin Parmar presented the study on behalf of the collaborative team #raredisease #CMT
July 20, 2025 at 10:10 AM
Love how doctors diagnose you by literally just,,,triggering your disorder :) a neurologist just paralysed my hand #Spoonie #HNPP #PeripheralNeuropathy #Disabled #Disability #ChronicallyIll #ChronicIllness
January 31, 2025 at 1:10 PM
Are you wearing purple this week? Do you have a PN shirt to show off? Post a pic on social and TAG US!

#neuropathy #peripheralneuropathyawarenessweek #peripheralneuropathy #foundationforpn
May 4, 2025 at 9:00 PM
Neuropathic pain management can be tricky. What works for one person may not work for another. Learn about options for managing pain and the future of pain therapy. Register now: register.gotowebinar.com/register/771...
#peripheralneuropathy #peripheralneuropathywebinar
April 2, 2025 at 1:54 PM
Hey, y’all!! I hope you are having a splendid Monday. Today is day #30 and the 10th month of my IVIG... continued.

www.facebook.com/share/p/19bx...

#sleepytime ✌🏽
#PrayForEljah
#NeuropathyTreatment #peripheralneuropathy #immunodeficiency #autoimmunedisease #autoimmunewarrior
#antibodies
#IVIG
March 10, 2025 at 2:12 PM
Hey, y’all!! I hope you are having a splendid Monday and New Year. Today is day #20 and the 9th month of... continued.

www.facebook.com/share/18nYQQ...

#sleepytime
#PrayForEljah
#NeuropathyTreatment #peripheralneuropathy #immunodeficiency #autoimmunedisease #autoimmunewarrior
#antibodies
#IVIG
January 7, 2025 at 5:46 PM
Hey y’all!! It’s day #6 & my second month of IVIG transfusions. Things are going but after the 4th day my body wasn’t reacting very well… continued.

www.facebook.com/share/p/HYXK...

#sleepytime.
#NeuropathyTreatment #IVIG #peripheralneuropathy #immunodeficiency #autoimmunedisease #antibodies
April 26, 2024 at 3:27 PM
This is what it is like living with chronic pain, Fibromyalgia or chronic peripheral neuropathy. Such a great comic, by a talented artist.
#chronicpain #peripheralneuropathy #chronicillness #fibromyalgia #fibro
April 10, 2024 at 1:16 PM
Patient stories help put a face on the invisible condition that is PN. From daily challenges to how they keep on living life to it's fullest, our community shows up strong.
https://www.foundationforpn.org/blog/?category=stories #neuropathy

#peripheralneuropathyawarenessweek #peripheralneuropathy
May 10, 2025 at 1:00 PM
TOMORROW
There are many ways to treat nerve pain. Learn about treatments, limitations and possible costs for neuropathic pain. Register today
https://register.gotowebinar.com/register/5575628310413031255
#peripheralneuropathy #peripheralneuropathywebinar #neuropathicpain
July 9, 2025 at 4:00 PM