#chronicfatigue
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smartpatient.bsky.social
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie
October 31, 2026 at 5:30 PM
foolishsteve.bsky.social
PSA

If you know someone who lives with chronic pain and fatigue, and they tell you they don't have the strength to text right now, please believe them. It's just as difficult to admit as it is to endure.

#ChronicIllness #ChronicPain #ChronicFatigue #Fibromyalgia #ChronicPainSyndrome
#Disability
October 29, 2026 at 10:45 PM
mollyandthecat.bsky.social
Oh my gosh!!!! The local bookstore has requested a copy of “Coming of Age: An Anthology” to review as the next step in their process for shelving local authors’ works! 😱

#BookSky #neurodivergent #autism #ADHD #depression #PTSD #WriterSky #anthology #chronicpain #chronicfatigue #TraumaRecovery
November 2, 2026 at 6:01 PM
alsnewstoday.bsky.social
Post-rest can still feel exhausting when your body doesn’t recover the way it used to.

#ChronicFatigue
November 2, 2026 at 9:30 PM
mgnews.bsky.social
A softer plan for bodies that shift: https://bit.ly/3ZELxh8

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
Bracing for interruptions from MG fatigue
Tina Hancock, who has myasthenia gravis, shares how she manages fatigue and finds joy in small victories each day.
bit.ly
November 2, 2026 at 8:31 PM
smartpatient.bsky.social
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie
November 2, 2026 at 1:31 AM
smartpatient.bsky.social
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie
November 2, 2026 at 4:00 PM
sharrow.eurosky.social
Gods I've come to hate these storm they play havoc with the #chronicpain and #chronicfatigue.
October 26, 2026 at 3:11 PM
amberglowbug.bsky.social
I am so tired
I do not remember a time when I was not tired
I got woken up by a playful puppy at 5am
Doesn't she know I have chronic insomnia?
This isn't fair
I just want to exist

#ChronicFatigue #ChronicIllness
October 27, 2026 at 2:30 PM
elsewherekittin.bsky.social
I'm exceptionally exhausted today. 🥰
You can find me in my sofa nest.

#chronicfatigue
October 26, 2026 at 12:22 PM
smartpatient.bsky.social
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie
October 23, 2026 at 10:30 PM
elsewherekittin.bsky.social
Went to the nearby store for lunch and got watering eyes from tiredness and a fever. I guess it's another sofa day for me. I wanted to be creative 😭

#chronicfatigue #chronicallyill
October 23, 2026 at 1:07 PM
germainehypher.bsky.social
Two readers’ responses to Crafting a Path Through Illness. Reading them brings me such joy. Please keep your responses and reviews coming!

#chronicillness #chronicpain #chronicfatigue #invisibleillness #disabled #autoimmunedisease #mecfs #ME/CFS #CraftSky
🧶 🎨 🪡 ✍🏻 ✂️ 🎵 💃 🌱 🧁 🧵 📷 🖼️ 💙📚 📖
On a jade green background is the front cover of the book Crafting a Path Through Illness - exploring creativity while chronically ill by Germaine Hypher. Beside and below this, cream coloured text reads: READERS’ RESPONSES Tremendous book. So impressive and interesting. - Ruth Braham Gentle but persuasive in a most reassuring way. Whether you are living with physical, psychological or emotional struggles, I believe that any reader of this book could not help but feel heartened and strengthened by its words. - Marion Gibbons
October 24, 2026 at 12:55 PM
sharrow.eurosky.social
When I was well the walk to my GPS was an easy 10 min stroll. Now it's a 20 min slow walk.

Having done my trip to the go and chemist I will be resting for the rest of the day, hoping I haven't eaten into tomorrows spoons. #longcovid #chronicpain #chronicfatigue
October 22, 2026 at 2:30 PM
smartpatient.bsky.social
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie
October 21, 2026 at 8:02 PM
mgnews.bsky.social
A softer plan for bodies that shift: https://bit.ly/3ZELxh8

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
Bracing for interruptions from MG fatigue
Tina Hancock, who has myasthenia gravis, shares how she manages fatigue and finds joy in small victories each day.
bit.ly
October 23, 2026 at 5:32 PM
achronicvoice.com
"People with #ChronicPain experience #fatigue at levels that people without #pain will never understand..[it] is not like #tiredness from a work day..you’d have to go 3 days without any sleep and then try to function.": buff.ly/OWIGR1B

by sarahlynn358
#ChronicFatigue #InvisibleIllness #disabled
Five Things I Took For Granted Before Pain
Chronic pain changes you and impacts everything you do because before doing a task people with pain have to think about how that activity is going to affect their pain levels. Some people with Spin…
buff.ly
October 21, 2026 at 7:30 PM
achronicvoice.com
"Depending on self-#understanding — It’s my #sickness that stops me from #working and playing. I’m not lazy or unreliable. I’m still tired after a night of sleep": buff.ly/XNX22rU

by Katherine
#ChronicIllness #ChronicPain #ChronicFatigue #disabled #InvisibleIllness
Chiasmus of Chronic Illness
When effort doesn’t lead to ability
buff.ly
October 20, 2026 at 8:30 PM
smartpatient.bsky.social
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie
October 21, 2026 at 1:30 AM
lightningduck.bsky.social
Do you ever feel like you're burning spoons doing absolutely nothing? Some days I feel like do nothing and still wear out as the day goes by

#chronicillness #Spoons #Spoonies #ChronicFatigue
October 20, 2026 at 7:43 AM
lattesdotter.bsky.social
Are you tired of waiting a whole day for a request to be approved? Try Chronic Fatigue(TM)!! You'll sleep most of the day and the day after. You may only vaguely remember making the request and will be surprised at the fast response! /snark #CFS #ChronicFatigue
October 18, 2026 at 9:59 PM
cwengaard.bsky.social
🎯🎯🎯

#health #illness #chronicillness #invisibleillness #pain #chronicpain #fatigue #chronicfatigue #spoonie #ME #CFS #Endometriosis #Adenomyosis #Fibromyalgia #Sjøgren #youarenotalone
October 18, 2026 at 5:00 PM
germainehypher.bsky.social
“When Planted In a Bed”
Materials: magazine pages, paper napkin, flower seeds.

When planted in a bed
Drop your roots deep
Keep growing
And when being cut back
Feels too brutal
Drop the seeds of
Seasons to come

#chronicillness #chronicpain #chronicfatigue #invisibleillness #ME/CFS #mecfs #collage
“When Planted In a Bed” A college comprised of three beds cut from magazines, each witha sunflower looking like it’s tucked up with its head on the pillow. Torn pieces of brown paper napkin under the beds represents soil, over which magazine images of roots have been stuck as of growing down from the bases of the beds. Scattered throughout and stuck to the soil area few real flower seeds. Above the beds, as of on the wall isa picture frame with the following words hand written inside: When planted in a bed Drop your roots deep Keep growing And when being cut back Feels too brutal Drop the seeds of Seasons to come. @craftingapaththroughillness
October 20, 2026 at 12:05 PM
talius2.bsky.social
Scientists may have found a “#unifying #theory” of #chronicfatigue

Groundbreaking study reveals 5 chronic illnesses share a hidden biological network, offering a unified explanation for persistent fatigue & paving the way for targeted blood tests >> scitechupdates.com/s...
October 19, 2026 at 6:33 AM
serenebutterfly.bsky.social
Thank you so much @apainprincess.bsky.social for taking the time to share my blog post on the reality of living with #ChronicFatigue another debilitating symptom of life with #ChronicIllness. It’s much appreciated! 🫶
apainprincess.bsky.social Princess in the Tower @apainprincess.bsky.social · 17d
“Fatigue is an intangible presence that suddenly jumps out of the shadows, bleeding every ounce of energy I still possess. It's a crushing, soul-sucking exhaustion that leaves me feeling as if I'm failing at life.” https://buff.ly/3PRF39P @serenebutterfly #ChronicIllness #Fatigue #FND
October 17, 2026 at 9:16 PM