#RDEB
LightNews LightNews
science.org
A new #ScienceTranslationalMedicine study reveals how S. aureus skews the skin immune response toward an inflammatory IL-17 signature involving CD4+ and MAIT cells in children with RDEB, and sheds light on the link between different strains and disease severity. https://scim.ag/4p30fu0
Immune response and clinical severity are shaped by skin-adapted Staphylococcus aureus in chronically infected patients
T cells produce IL-17 in RDEB-associated severe inflammatory dermatosis.
scim.ag
September 1, 2025 at 6:00 PM
jimswift.bsky.social
I also did an interview with Shane, where we talked about the profile I did of him and he tells readers in his own words about RDEB, his life, and his worries (and what you can do to help people like him.)

www.thebulwark.com/p/the-miracu...
The Miraculous Life of Shane DiGiovanna
The 26-year-old Ohioan has not let his rare genetic condition prevent him from having a rich life.
www.thebulwark.com
March 8, 2025 at 4:34 AM
drtimos.bsky.social
Signal or noise? > Abeona Expands ZEVASKYN Network as RDEB Launch Gains
Momentum - Yahoo Finance >> Comment below! #strategy #competitiveintelligence #marketing #competitivemarketing #pharmaceutical #biotech #healthcare #pharma
Abeona Expands ZEVASKYN Network as RDEB Launch Gains Momentum - Yahoo Finance
Abeona Expands ZEVASKYN Network as RDEB Launch Gains Momentum  Yahoo Finance
dlvr.it
September 22, 2026 at 9:58 AM
labwaggoner.bsky.social
T cells produce IL-17 in RDEB-associated severe inflammatory dermatosis
www.science.org/doi/10.1126/...
August 28, 2025 at 2:14 AM
debraireland.bsky.social
Huge congrats to Prof. Wenxin Wang @ucddublin.bsky.social on winning the 2025 NovaUCD Innovation Award!🎉

We're proud to support his gene-editing therapy for #RDEB - offering real hope to those living with #EB.🦋👏

#EBResearch #epidermolysisbullosa

👉 bit.ly/UCD-Wang-Nov...
May 13, 2025 at 1:18 PM
flipturns.bsky.social
The Long & Winding Road---Paul McCartney ( solo performance on video)

music.youtube.com/watch?v=rDEB...

#PaulMcCartney
#LegendaryLyrics
#SkyMusic
#LiveMusicVideo
#Relationships
#Journeys
Paul McCartney - The Long And Winding Road
YouTube video by raspberryyy
music.youtube.com
June 23, 2025 at 2:02 AM
shihcheng.bsky.social
Study on RDEB shows COL7A1 genotype-phenotype links. Key for clinical prognostication & therapy design. Dive into data for insights! PMID:41637086, JAMA Dermatol 2026 https://doi.org/10.1001/jamadermatol.2025.5723 #Medsky #Pharmsky #RNA #ASHG #ESHG 🧪
https://doi.org/10.1001/jamadermatol.2025.5723
No description available
doi.org
February 27, 2026 at 1:10 AM
jamadermatology.com
This systematic review and analysis of genotype-phenotype correlations in dystrophic epidermolysis bullosa reinforces known associations, identified novel variant hotspots, and highlights potential therapeutic targets. bit.ly/4tjXF4L
Table of Distribution of Homozygous and Compound Heterozygous COL7A1 Variant Combination Across Recessive Dystrophic Epidermolysis Bullosa (RDEB) Clinical Subtypes. RDEB variant combinations compared across RDEB-S, RDEB-I, RDEB-Inv, L-RDEB, RDEB-Pr, SI-RDEB, and DEB-CH.
February 5, 2026 at 3:00 PM
jackie-x.bsky.social
🎹

youtube.com/watch?v=rDEB...
Paul McCartney - The Long And Winding Road
YouTube video by raspberryyy
youtube.com
June 22, 2025 at 11:10 PM
debraireland.bsky.social
🧬Study funded by Debra Ireland and @charitydebra.bsky.social, led by Dr Yanling Liao, found that interleukin-1 drives inflammation, scarring, and cancer risk in #RDEB. Early targeting may help prevent or slow cancer development.

Read more👉 bit.ly/ImmuneSystemInvolvementRDEB

#HealthResearchMatters
January 28, 2025 at 12:47 PM
charitydebra.bsky.social
Whatever the social media platform, we're here for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘butterfly skin’.

Leave a butterfly emoji below to say hello! 👇🦋
Isla Grist smiles holding her dog, Pepper. Isla lives with recessive dystrophic epidermolysis bullosa (RDEB).
November 29, 2024 at 10:03 AM
8dx.bsky.social
Got a kid with RDEB yes that is just everyday wound care.
September 10, 2026 at 12:07 AM
charitydebra.bsky.social
🔬 Research highlight: Screening drugs to target RDEB cancer 🔬

Over 3,000 approved drugs will be screened to identify which kill skin cancer cells & could be repurposed to treat the aggressive form of skin cancer which frequently affects people with RDEB.

Read more now! 👇https://bit.ly/4nmzw9R
Screening drugs to target RDEB cancer
Identifying effective treatments for skin cancer in patients with RDEB. Learn about the promising findings that could lead to rapid clinical trials for safer, repurposed therapies.
www.debra.org.uk
October 5, 2025 at 2:50 PM
debraireland.bsky.social
Exciting #EBresearch!🔬

Researchers @fjobrien.bsky.social and Post-doc Marko Dobricic at @tissueengdublin.bsky.social @rcsi.bsky.social are developing a gene-activated patch to improve wound healing for individuals impacted by #RDEB.🦋🧬

👉 www.debra.ie/news/a-break...

#HealthResearchMatters #EB
March 11, 2025 at 6:44 PM
desertcactus621.bsky.social
youtube.com/watch?v=Rdeb...

This history is for white ‘bitches’ or those who want to be… 😂 Great interview, Steph!
Joy Reid UNCENSORED! Takes Aim at Right-Wing Trolls Live on CNN Panel
YouTube video by Political Voices Network
youtube.com
July 8, 2025 at 7:14 AM
drtimos.bsky.social
Thoughts on this? >> INmune Bio's Game-Changing Partnership Accelerates CORDStrom
Production for 4,000 RDEB Patients - Stock Titan >> Comment below! #strategy #competitiveintelligence #marketing #healthcare #biotech #competitivemarketing #pharma #pharmaceutical
INmune Bio's Game-Changing Partnership Accelerates CORDStrom Production for 4,000 RDEB Patients - Stock Titan
INmune Bio's Game-Changing Partnership Accelerates CORDStrom Production for 4,000 RDEB Patients  Stock Titan
dlvr.it
April 14, 2025 at 1:30 PM
secwatch.bsky.social
🚨 JUST IN: $INMB
MHRA aligns with INmune Bio on regulatory path for Ebstrocel in RDEB; UK MAA planned in 2026

#SEC #stocks #investing #INMB #Regulatory
🔗 secwatch.observer
MHRA aligns with INmune Bio on regulatory path for Ebstrocel in RDEB; UK MAA planned in 2026
June 23, 2026 at 8:21 PM
dnadetective.bsky.social
www.globenewswire.com/news-release...

It’s been an absolute privilege to have been involved in bringing pz-cel from benchtop, to clinical trials, and now to FDA approval! The team at Abeona Therapeutics is truly outstanding and I’m so proud of what we’ve all accomplished!
U.S. FDA Approves ZEVASKYN™ (prademagene zamikeracel), the First and Only Cell-Based Gene Therapy for Patients with Recessive Dystrophic Epidermolysis Bullosa (RDEB)
- ZEVASKYN fills a critical need for people living with RDEB, a debilitating dermatological condition with no cure - - Approval based on the pivotal Phase...
www.globenewswire.com
May 1, 2025 at 10:51 AM
drtimos.bsky.social
Thoughts on this? >> Lurie Children’s Becomes First Treatment Center for Zevaskyn
Gene Therapy in Patients with RDEB - Dermatology Times >> Comment below! #strategy #competitiveintelligence #marketing #competitivemarketing #pharmaceutical #healthcare #biotech #pharma
Lurie Children’s Becomes First Treatment Center for Zevaskyn Gene Therapy in Patients with RDEB - Dermatology Times
Lurie Children’s Becomes First Treatment Center for Zevaskyn Gene Therapy in Patients with RDEB  Dermatology Times
dlvr.it
May 16, 2025 at 12:30 AM
terojarvinen.bsky.social
Fragile skin may benefit from decoration: Molecular Therapy Advances www.cell.com/molecular-th...
Fragile skin may benefit from decoration
Recessive dystrophic epidermolysis bullosa (RDEB) is a severe hereditary blistering disorder characterized by fragility of the skin and mucous membranes due to mutations in the COL7A1 gene, which enco...
www.cell.com
August 15, 2026 at 4:34 AM
newdealer.bsky.social
You might also like this short video on the successes of the Great Society, prepared for the LBJ Library:
www.youtube.com/watch?v=rDeB...
LBJ Documentary "The Great Society"
Archival film and illuminating interviews capture President Lyndon Johnson's remarkable domestic policy achievements in this short documentary.
www.youtube.com
June 6, 2024 at 2:01 AM
terojarvinen.bsky.social
"Fragile skin may benefit from decoration" commentary on
@nystromlab.bsky.social publication on the potential of decorin-based therapeutics for the treatment of RDEB. @matrixbiologie.bsky.social @epidermophyte.bsky.social @charitydebra.bsky.social Take a look www.sciencedirect.com/science/arti...
Fragile skin may benefit from decoration
All content on this site: Copyright © 2026 Elsevier B.V., its licensors, and contributors. All rights are reserved, including those for text and data mining, AI training, and similar technologies. For all open access content, the relevant licensing terms apply.
www.sciencedirect.com
August 16, 2026 at 4:38 PM
kevdudeula.bsky.social
#ICE #DHS #HaniDuglof #RDEB #RareGeneticDisease #ICECuffedHisAnklesWhileHeIsInHospitalBed #Minnesota #Libya

KSTP - Twin Cities - Minnesota

kstp.com/kstp-news/to...
Minnesota family worried as ICE detains man with rare disease
The loved one is 32-year-old Hani Duglof, who is now being treated at M Health Fairview Southdale Hospital while still in ICE custody, after his family says he could not safely remain in a detention f...
kstp.com
January 13, 2026 at 7:15 PM
ucddublin.bsky.social
Dr Jing Lyu, UCD School of Medicine

Industry partner: Branca Bunús Ltd.

Project: Development of A New Knot Polymeric Gene Transfection Reagent Towards Recessive Dystrophic Epidermolysis Bullosa (RDEB) Treatment
February 7, 2025 at 2:37 PM