I hope everybody is doing okayish.
Today is a bad pain day for me.
Pencil us in for #SpoonieChat next week,
@ 8PM ET / 5PM PT. Please take very good care.
#Disability #DisCo
Today is a bad pain day for me.
Pencil us in for #SpoonieChat next week,
@ 8PM ET / 5PM PT. Please take very good care.
#Disability #DisCo
February 13, 2025 at 12:09 AM
Follow Dawn! #SpoonieChat was the inspiration for #MigraineChat and it wouldn’t be what it is without her community as a model.
If #migraine isn’t specifically your thing, but another chronic illness/disability is, her community is incredibly welcoming. Let’s help it grow!
If #migraine isn’t specifically your thing, but another chronic illness/disability is, her community is incredibly welcoming. Let’s help it grow!
Hi. This is Dawn from Spoonie Chat.
November 21, 2024 at 1:59 AM
Follow Dawn! #SpoonieChat was the inspiration for #MigraineChat and it wouldn’t be what it is without her community as a model.
If #migraine isn’t specifically your thing, but another chronic illness/disability is, her community is incredibly welcoming. Let’s help it grow!
If #migraine isn’t specifically your thing, but another chronic illness/disability is, her community is incredibly welcoming. Let’s help it grow!
One of the things that can be so hard when living with a chronic illness is accepting post-exertional malaise (PEM). Today, I went to get a click-and-collect from 5 mins down the road. This has been followed by an hour (still ongoing) of just sitting here staring into space 🤪🫠🙃
#SpoonieChat
#SpoonieChat
May 14, 2025 at 10:07 AM
One of the things that can be so hard when living with a chronic illness is accepting post-exertional malaise (PEM). Today, I went to get a click-and-collect from 5 mins down the road. This has been followed by an hour (still ongoing) of just sitting here staring into space 🤪🫠🙃
#SpoonieChat
#SpoonieChat
Share this thread with your friends who have #migraine. Let them know about #MigraineChat and how using the hashtag can connect them with a network of others who get it.
Learn about the other ways to stay connected, too.
#NEISvoid #SpoonieChat
Learn about the other ways to stay connected, too.
#NEISvoid #SpoonieChat
Updating my pinned 🧵 :
I'm not active on Twitter anymore, so I'm rebuilding the #migraine and #MigraineChat community here. A few ways to connect....
The original MigraineChat feed stopped working, so like and pin this one. It works the same.
I'm not active on Twitter anymore, so I'm rebuilding the #migraine and #MigraineChat community here. A few ways to connect....
The original MigraineChat feed stopped working, so like and pin this one. It works the same.
February 10, 2025 at 6:08 PM
Share this thread with your friends who have #migraine. Let them know about #MigraineChat and how using the hashtag can connect them with a network of others who get it.
Learn about the other ways to stay connected, too.
#NEISvoid #SpoonieChat
Learn about the other ways to stay connected, too.
#NEISvoid #SpoonieChat
Monday's #MigraineChat questions are now posted for those who like to prepare ahead of time! Check the link in the post below 👇🏻.
Like, repost, tag a friend with #migraine or really any chronic illness. The questions aren't migraine specific. All welcome!
#NEISvoid #SpoonieChat
Like, repost, tag a friend with #migraine or really any chronic illness. The questions aren't migraine specific. All welcome!
#NEISvoid #SpoonieChat
We’re going to experiment and try holding #MigraineChat here on BlueSky. What is MigraineChat? It is an hour-long interactive chat where I post questions and you answer. Learn more at bit.ly/MigraineChat and mark your calendar for Mon., Dec., 2nd @ 2pm ET (note the special time).
#MigraineChat
Welcome to the homepage for the #MigraineChat. This started as monthly chat, taking place on the first Monday of each month from 1-2pm ET (convert timezone). Each month, the chat focuses on one tim…
bit.ly
November 30, 2024 at 3:43 PM
Monday's #MigraineChat questions are now posted for those who like to prepare ahead of time! Check the link in the post below 👇🏻.
Like, repost, tag a friend with #migraine or really any chronic illness. The questions aren't migraine specific. All welcome!
#NEISvoid #SpoonieChat
Like, repost, tag a friend with #migraine or really any chronic illness. The questions aren't migraine specific. All welcome!
#NEISvoid #SpoonieChat
One of the many crappy things about having M.E. is that sometimes the things you need to do for your mental health - in this case going for two long sunny walks with my dog - means that I’m now utterly physically wiped out. #ME #CFS #MECFS #disability #chronicillness #spoonie #spooniechat
February 3, 2025 at 1:08 PM
One of the many crappy things about having M.E. is that sometimes the things you need to do for your mental health - in this case going for two long sunny walks with my dog - means that I’m now utterly physically wiped out. #ME #CFS #MECFS #disability #chronicillness #spoonie #spooniechat
Q1. If you were on Twitter/X, were you part of a chronic illness community over there; e.g., the NEISvoid, SpoonieChat, or #MIgraineChat?
What did that community mean to you? #MigraineChat
What did that community mean to you? #MigraineChat
December 2, 2024 at 7:06 PM
Q1. If you were on Twitter/X, were you part of a chronic illness community over there; e.g., the NEISvoid, SpoonieChat, or #MIgraineChat?
What did that community mean to you? #MigraineChat
What did that community mean to you? #MigraineChat
Would love to connect with more disabled and/or chronically ill academics on here (and disabled peeps generally). Any tips for how to best do that? Not sure I’ve got the hang of bsky hashtags yet… #disability #MECFS #disabledscholars #disabledacademic #spooniechat #spoonie
November 18, 2024 at 10:53 AM
Would love to connect with more disabled and/or chronically ill academics on here (and disabled peeps generally). Any tips for how to best do that? Not sure I’ve got the hang of bsky hashtags yet… #disability #MECFS #disabledscholars #disabledacademic #spooniechat #spoonie
A couple of people have asked me today why I push myself to do stuff like my workshop recording giveaway when I'm feeling so ropey (and today I feel like the ropiest of ropes), so an explanation (for anyone who's interested) of how this helps me cope (yes, this is #SpoonieChat)...
December 14, 2025 at 5:12 PM
A couple of people have asked me today why I push myself to do stuff like my workshop recording giveaway when I'm feeling so ropey (and today I feel like the ropiest of ropes), so an explanation (for anyone who's interested) of how this helps me cope (yes, this is #SpoonieChat)...
I hope everybody is doing okayish.
Today is a bad pain day for me.
Pencil us in for #SpoonieChat next week,
@ 8PM ET / 5PM PT. Please take very good care.
#Disability #DisCo
Today is a bad pain day for me.
Pencil us in for #SpoonieChat next week,
@ 8PM ET / 5PM PT. Please take very good care.
#Disability #DisCo
February 5, 2025 at 5:27 PM
I hope everybody is doing okayish.
Today is a bad pain day for me.
Pencil us in for #SpoonieChat next week,
@ 8PM ET / 5PM PT. Please take very good care.
#Disability #DisCo
Today is a bad pain day for me.
Pencil us in for #SpoonieChat next week,
@ 8PM ET / 5PM PT. Please take very good care.
#Disability #DisCo
I was part of the NEISvoid community and occasionally dipped my toe into SpoonieChat or #MigraineChat. It was nice knowing there were people who knew what the challenges I face and how complicated life can be with chronic illness.
December 2, 2024 at 7:30 PM
I was part of the NEISvoid community and occasionally dipped my toe into SpoonieChat or #MigraineChat. It was nice knowing there were people who knew what the challenges I face and how complicated life can be with chronic illness.
I made my account private but haven't left yet. I'm conflicted because I learned SO MUCH from #NEISvoid, #SpoonieChat, #DisabilityTwitter, etc.
And I hate that we are losing that incredible knowledge base b/c people are deleting content. I get it, but I wish there were a way to save it.
And I hate that we are losing that incredible knowledge base b/c people are deleting content. I get it, but I wish there were a way to save it.
November 17, 2024 at 6:45 AM
I made my account private but haven't left yet. I'm conflicted because I learned SO MUCH from #NEISvoid, #SpoonieChat, #DisabilityTwitter, etc.
And I hate that we are losing that incredible knowledge base b/c people are deleting content. I get it, but I wish there were a way to save it.
And I hate that we are losing that incredible knowledge base b/c people are deleting content. I get it, but I wish there were a way to save it.
So glad to see you and #SpoonieChat here!
December 5, 2024 at 1:54 AM
So glad to see you and #SpoonieChat here!
This Bodega cat is a shoe in for employee of the month!
Image: A grey and white cat faces the camera from a shelf of ramen noodles. The cat's legs are stretched out in front, showing its toe beans.
#SpoonieChat #DisCo #Caturday
Image: A grey and white cat faces the camera from a shelf of ramen noodles. The cat's legs are stretched out in front, showing its toe beans.
#SpoonieChat #DisCo #Caturday
November 26, 2024 at 4:33 PM
This Bodega cat is a shoe in for employee of the month!
Image: A grey and white cat faces the camera from a shelf of ramen noodles. The cat's legs are stretched out in front, showing its toe beans.
#SpoonieChat #DisCo #Caturday
Image: A grey and white cat faces the camera from a shelf of ramen noodles. The cat's legs are stretched out in front, showing its toe beans.
#SpoonieChat #DisCo #Caturday
Looking forward to seeing more #SpoonieChat ppl here.
November 24, 2024 at 3:01 PM
Looking forward to seeing more #SpoonieChat ppl here.
On a personal note, I have been 36 for two weeks and it has been *horrible* so far.
There's no actual correlation between my birthday and this whole slew of shenanigans but it does feel like salt in the wound.
Missing my #neisvoid, #spooniechat, & #chronicillness communities from the bad place. ❤️🩹
There's no actual correlation between my birthday and this whole slew of shenanigans but it does feel like salt in the wound.
Missing my #neisvoid, #spooniechat, & #chronicillness communities from the bad place. ❤️🩹
September 11, 2024 at 4:31 AM
On a personal note, I have been 36 for two weeks and it has been *horrible* so far.
There's no actual correlation between my birthday and this whole slew of shenanigans but it does feel like salt in the wound.
Missing my #neisvoid, #spooniechat, & #chronicillness communities from the bad place. ❤️🩹
There's no actual correlation between my birthday and this whole slew of shenanigans but it does feel like salt in the wound.
Missing my #neisvoid, #spooniechat, & #chronicillness communities from the bad place. ❤️🩹
T-minus 15 minutes. Will you be joining #MigraineChat?
Remember, asynchronous participation is welcomed, too. So if you see this later, feel free to add your thoughts.
Share with you friends with #migraine!
Tagging in #NEISvoid and #SpoonieChat.
Remember, asynchronous participation is welcomed, too. So if you see this later, feel free to add your thoughts.
Share with you friends with #migraine!
Tagging in #NEISvoid and #SpoonieChat.
See you in one hour (2pm ET) for our first BlueSky #MigraineChat where we will get acquainted and talk about what the transition from Twitter/X has been like (for those who moved over).
This will be an experiment, so bear with me!
Preview questions and chat tips here: bit.ly/MigraineChat
This will be an experiment, so bear with me!
Preview questions and chat tips here: bit.ly/MigraineChat
#MigraineChat
Welcome to the homepage for the #MigraineChat. This started as monthly chat, taking place on the first Monday of each month from 1-2pm ET (convert timezone). Each month, the chat focuses on one tim…
bit.ly
December 2, 2024 at 6:47 PM
T-minus 15 minutes. Will you be joining #MigraineChat?
Remember, asynchronous participation is welcomed, too. So if you see this later, feel free to add your thoughts.
Share with you friends with #migraine!
Tagging in #NEISvoid and #SpoonieChat.
Remember, asynchronous participation is welcomed, too. So if you see this later, feel free to add your thoughts.
Share with you friends with #migraine!
Tagging in #NEISvoid and #SpoonieChat.
The most annoying question has to be “what do you want for Christmas?” as an adult! I don’t even know what I want/need on a daily basis apart from medication, comfy pj’s & peace 😂 #spooniechat #spoonielife
December 9, 2024 at 3:40 PM
The most annoying question has to be “what do you want for Christmas?” as an adult! I don’t even know what I want/need on a daily basis apart from medication, comfy pj’s & peace 😂 #spooniechat #spoonielife
We’ll chat about the experience of transitioning to BlueSky and (re)establishing our communities. The questions aren’t necessarily specific to #MigraineChat so if you are part of the #NEISvoid or #SpoonieChat communities and want to join, please come! (12/2, 2pm ET). See ⬆️.
November 29, 2024 at 3:49 PM
We’ll chat about the experience of transitioning to BlueSky and (re)establishing our communities. The questions aren’t necessarily specific to #MigraineChat so if you are part of the #NEISvoid or #SpoonieChat communities and want to join, please come! (12/2, 2pm ET). See ⬆️.
November 21, 2024 at 2:09 AM
Quick rant: if I, a disabled person, am using disability-first language it’s because I meant to, not because I didn’t get the memo! So-called ‘person first’ language is fine if that’s your choice. It’s not mine. Now sit down. #disability
#spooniechat #disabled
#spooniechat #disabled
February 6, 2025 at 4:08 PM
Quick rant: if I, a disabled person, am using disability-first language it’s because I meant to, not because I didn’t get the memo! So-called ‘person first’ language is fine if that’s your choice. It’s not mine. Now sit down. #disability
#spooniechat #disabled
#spooniechat #disabled
#AlmostChristmas is starting now in the #ChronicLoaf stream
Hyperbeam.com/v/ChronicLoaf
#ChristmasinJuly #DisCo #neisvoid #SpoonieChat #MutualAidMovies
Hyperbeam.com/v/ChronicLoaf
#ChristmasinJuly #DisCo #neisvoid #SpoonieChat #MutualAidMovies
July 25, 2024 at 3:25 AM
#AlmostChristmas is starting now in the #ChronicLoaf stream
Hyperbeam.com/v/ChronicLoaf
#ChristmasinJuly #DisCo #neisvoid #SpoonieChat #MutualAidMovies
Hyperbeam.com/v/ChronicLoaf
#ChristmasinJuly #DisCo #neisvoid #SpoonieChat #MutualAidMovies
S1E1 of #ScavengersReign is starting now in the #ChronicLoaf stream
Hyperbeam.com/v/ChronicLoaf
#Criptober #KaijuChaos #DisCo #neisvoid #SpoonieChat #MutualAidMarathon #SaveEmSunday
Hyperbeam.com/v/ChronicLoaf
#Criptober #KaijuChaos #DisCo #neisvoid #SpoonieChat #MutualAidMarathon #SaveEmSunday
October 7, 2024 at 12:40 AM
S1E1 of #ScavengersReign is starting now in the #ChronicLoaf stream
Hyperbeam.com/v/ChronicLoaf
#Criptober #KaijuChaos #DisCo #neisvoid #SpoonieChat #MutualAidMarathon #SaveEmSunday
Hyperbeam.com/v/ChronicLoaf
#Criptober #KaijuChaos #DisCo #neisvoid #SpoonieChat #MutualAidMarathon #SaveEmSunday