#WorldMeAlliance
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emilyesfraser.bsky.social
#MEAwareness
#MillionsMissing
#DisabilitySOS
#WorldMEDay
#GreatestMEdicalScandal

@meactnet.bsky.social
@thesicktimes.bsky.social
@berlin-buyers-club.bsky.social
@notjustfatigue.bsky.social
@johnvsjonvsme.bsky.social
@openmedf.bsky.social
@patientled.bsky.social
@polybiorf.bsky.social

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Follow & share people with M.E.’s stories to help us break out of the echo chamber: #MEAwareness #MillionsMissing #DisabilitySOS #WorldMEDay #GreatestMEdicalScandal #MyalgicEncephalomyelitis #MECFS #LongCovid Follow these patient-led/approved groups: @meactnet @worldmealliance @thesicktimes @berlin_buyers_club @notjustfatigue @johnvsjonvsme @openmedf @patientled @polybio.rf
May 11, 2025 at 7:26 PM
solveme.bsky.social
May is #MEAwarenessMonth & 5.12 is #WorldMEDay! Let's change the narrative around #ME & get the facts right! Help challenge myths & champion facts w/the
@WorldMEAlliance custom poster maker!💙
ow.ly/vRpW50VLrB6
#MEAwareness #MECFS
A women lies in bed with a sign on her chest that reads #MillionsMissing Mexco #MillonesAusentes Fact: ME is a biological illness that disrupts the metabolism and impairs the brain, immune system and autonomic nervous system.
May 1, 2025 at 4:18 PM
millionsmissingfr.bsky.social
#MillionsMissing #MillionsMissingFrance #EncéphalomyéliteMyalgique #EM #MECFS #EMSFC #JeDisEM #WorldMeAlliance #WMEA #WorldMeDay #journeeinternationaleEM #OMS #Organisationmondialesante #GlobalVoiceForME
May 7, 2024 at 7:20 AM
wamesmecfs.bsky.social
As we approach World ME Day, May 12th WAMES is joining @WorldMEAlliance to shed light on 6 pervasive myths surrounding ME & revealing facts that challenge them. Prepare to join us as we debunk these misconceptions & amplify voices ppl living with ME #WorldMEDay #MEAwareness
tinyurl.com/7nzmfe9x
World ME Day 2025: Dispelling 6 ME myths
Six myths and facts everyone should know about Myalgic Encephalomyelitis (ME)    Myalgic encephalomyelitis (ME), also known as ME/CFS, is a debilitating illness that affects millions of people…
tinyurl.com
May 1, 2025 at 2:39 PM
actionforme.bsky.social
Read more about Severe ME Day on the @worldmealliance website 👇

worldmealliance.org/what-is-me/s...

#SevereMEDay #SevereME #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis
August 8, 2025 at 11:01 AM
solveme.bsky.social
In the lead-up to #WorldMEDay on May 12th, the @WorldMEAlliance highlights 6 pervasive myths surrounding ME & the facts that challenge them.
Read more here:
ow.ly/EPQT50VCvFq
#WorldMEDay #Fact #FactOfTheDay #MyalgicE #MECFS
A young child with curly hair sleeps, cuddled up in blankets with floral and heart patterns. The text "Myth vs Fact" is written at the top in bold white letters. Below the child, the logo and text read "World ME Day" with the "ME" encircled. The date "12th May 2025" is displayed underneath. In the bottom left corner, the logo and name of the organization "Solve M.E." are shown.
April 17, 2025 at 4:11 PM
diatoma.bsky.social
Thinking also of @WorldMEAlliance images for safer hospital care for people with #SevereME

worldmealliance.org/2024/08/safe...
Safer Hospital Care for Severe ME - #SevereMEDay 2024 - World ME Alliance
Severe ME Day, held on the 8th of August each year, is a significant occasion for the World ME Alliance and the global community affected by Myalgic Encephalomyelitis (ME). This day is dedicated to sh...
worldmealliance.org
December 9, 2024 at 11:36 PM
moerakijo.bsky.social
World ME Day - ANZMES

#TransformingLives #WorldMEDay #MEAction #DisabilityJustice #MECFS #LongCOVID #BustingMythsWithFacts #WorldMEAlliance #ANZMES #Fact #MECFSAwareness #GreatestMEdicalScandal #MillionsMissing #DisabilitySOS
#transforminglives #worldmeday #meaction #disabilityjustice #mecfs… | ANZMES (Associated NZ ME Society Inc.)
Ange: "Today, on World ME Day, we come together to bust the myths and share the truth about ME/CFS. This illness affects over 65,000 Kiwis and steals lives, opportunities, and dignity." Anna...
www.linkedin.com
May 11, 2025 at 11:30 PM
soraasteria.bsky.social
#SoraMECFS

x.com/i/status/195...

Heute, am 08.08., ist #SevereMEDay. Ein Tag, der an alle schwer & schwerst #MECFS Betroffene erinnern soll. Ich kann heute leider nichts neues dazu verfassen & bekomme das Vid nicht außerhalb X gesucht, da mein Hirn es nicht mitmacht, aber angehängt ein kurzes
🧵
World ME Alliance (@WorldMEAlliance) on X
What if your body couldn’t bear light, sound, movement — or even touch? Today, #SevereMEDay, we ask you to imagine living that way not just for a day… but for years. For people living with Very Seve...
x.com
August 8, 2026 at 9:32 PM
ftww.bsky.social
As part of #SevereMEWeek, we are cautiously optimistic that we may finally be turning a corner and have hope for the future.

@decodemestudy.bsky.social has published findings from their research, and WorldMEAlliance has released vital guidance to clinicians.
Eight genetic signals have been identified. As DNA doesn’t change with ME/CFS onset, these findings reflect causes rather than effects of ME/CFS. The signals discovered are involved in the immune and the nervous systems, indicating immunological and neurological causes to this poorly understood disease. At least two of the signals relate to the body’s response to infection. Other signals point to the nervous system, one of which researchers previously found in people experiencing chronic pain, reinforcing neurological contributions to ME/CFS. These signals align with how people with ME/CFS describe their illness. “Most of us with ME have had our symptoms and experiences minimised, dismissed, and questioned, by medical professionals, employers, and even those close to us. I personally feel vindicated and hopeful for future developments in diagnostic tests, treatments, and cures (which currently don't exist). Any doubters can now have this research put in front of them.” Dee - FTWW Engagement Coordinator and Volunteer ME Champion The World ME Alliance has also published new vital guidance for clinicians, designed to support self-advocacy when people with Severe ME may be too unwell to speak for themselves, and to guide healthcare professionals toward safer, more appropriate care. (a screenshot of the document)
August 8, 2025 at 12:21 PM
acafssc.bsky.social
🩺 Cal millorar la #formació mèdica, la sensibilització social i l’equitat en l’accés als recursos de salut. Només així podrem avançar en justícia i reconeixement per a milions de persones invisibilitzades.
#WorldMEDay #MEAwareness #MECFS #EMSFC #WorldMEAlliance #training #MillionsMissing
May 4, 2025 at 6:34 AM