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How long did it take for you to get diagnosed with #APS?

#antiphospholipid #autoimmune #spoonie #APSFA
September 26, 2026 at 5:04 PM
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Things you shouldn't say to a person with a chronic illness. Go!

#spoonie #aps #Antiphospholipid #apsfa #ChronicIllness
April 13, 2026 at 2:01 AM
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Credit to @positivelyrheumatoid

Sometimes it’s just easier to smile than to explain the whole story.

#chronicillness #autoimmune #aps #apsfa #antiphospholipid
May 7, 2026 at 2:03 AM
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#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #travel #travelinsurance #travelsafety #travelingwithmedicine #traveltips #TravelSmart #medicine
June 12, 2025 at 6:49 PM
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APSFA Awareness Fundraiser Travel Mug, Supporting APS Foundation of America, Inc. customink.com/fundraising/apsfa-mug via @customink

17 need to go to print. Order by April 30th.
April 23, 2025 at 3:35 PM
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Credit to @oh_chronicpain

You are not a burden.

#antiphospholipid #aps #apsfa #ChronicIllness #spoonie
April 24, 2026 at 6:32 AM
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#Antiphospholipid antibodies and #cardiovascular #thrombosis, now in @NatRevCardiol :
dlvr.it/TRQCr6

Systematic summary across various conditions. In some cases, they challenge the old conventional thinking.

This is a paper the #APSFA helped fund.
April 6, 2026 at 1:50 PM
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Do you see a #cure in your future for #APS?

#autotimmune #antiphospholipid #APSFA
September 19, 2026 at 4:02 PM
apsfaorg.bsky.social
Today, we'll discuss the symptoms of a stroke.

Share your story in the comments below!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #stroke #strokeawareness #neurology #awareness #prevention
June 13, 2025 at 12:52 PM
apsfaorg.bsky.social
make a difference and bring more attention and awareness to #APS!!

Also, a HUGE shout out to the #APSFA volunteers!!
You all are awesome! Please share...one more time...today's!

Thank You for sharing on all social media platforms with our hashtags.
July 1, 2025 at 11:11 AM
apsfaorg.bsky.social
The 3 key blood tests for diagnosing #Antiphospholipid Syndrome (#APS) include the lupus anticoagulant, anticardiolipin antibody & anti-beta2 glycoprotein I antibody tests. #Awareness is crucial for better understanding and support! Let’s keep spreading the word together!

#APSFA #WTD26 #APSAM26
April 9, 2026 at 3:05 PM
apsfaorg.bsky.social
Raise your hand if you will raise money for the APSFA in June.

Fifty percent (50%) of the money raised goes towards research! 

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD26 #raredisease #charity #donate #APS #APSAM26
May 31, 2026 at 5:03 PM
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to be enjoying your vacation!

If you have other #travel tips to share, please do so in the comments.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #travel #TravelSafety #traveltips #travelsafetytips
June 12, 2025 at 10:43 AM
apsfaorg.bsky.social
antiphospholipid syndrome.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #collaboration #teamwork
June 9, 2025 at 6:24 PM
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When my chronic illness bestie shows me their new pajamas set.

#chronicillness #spoonie #humor #apsfa #aps
May 7, 2026 at 9:04 PM
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Credit to @millionsmissingvoice Repost from @bendybunny81

Morning thought with Chronic Pain

#chronicpain #chronicillness #autoimmune #spoonie #apsfa
May 9, 2026 at 10:42 AM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #exercise
June 29, 2025 at 1:16 AM
apsfaorg.bsky.social
The APSFA Newsletter is Here

The Spring/Summer 2026 volume of our newsletter, "Antiphospho...What??" is ready for download. You can download it at the following link: https://apsfa.org/new/wp-content/uploads/2026/05/APSFAVol35SprSum2026.pdf

#antiphospholipid #apsfa #newsletter #aps #autoimmune
May 26, 2026 at 2:33 AM
apsfaorg.bsky.social
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #medicalert #emergencypreparedness #alertjewelry
June 7, 2025 at 6:17 PM
apsfaorg.bsky.social
or the emergency room.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #APS #DVT #bloodclot
June 28, 2025 at 6:44 PM
apsfaorg.bsky.social
On behalf of the APS Foundation of America, Inc. (APSFA), we stand in solidarity with the millions of individuals and families worldwide observing Rare Disease Day.

#ShowYourStripes #RareDiseaseAwarenessMonth #AntiphospholipidSyndrome
February 28, 2026 at 4:17 PM
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We thank you for supporting us for 20 wonderful years!

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #twentyyearanniversary
June 9, 2025 at 10:24 AM
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Credit to @fibroindiangirl

They call us weak.
We survive what would break them.

Share if you’re done explaining. 🔥

#chronicillness #chronicillnessawareness #chronicillnesswarrior #chronicillnesslife #apsfa
May 7, 2026 at 2:04 PM
apsfaorg.bsky.social
Some days I can conquer the world.
Other days it takes me 3 hours to convince myself to bathe.

#spoonie #chronicillness #autoimmune #chronicpain #apsfa
May 4, 2026 at 8:02 PM
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your stories in the comments.

#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #women #reproductive #obstetrics #ReproductiveHealthCare #miscarriages #Pregnant #pregnancyloss #stillborn
June 11, 2025 at 10:08 AM