#autoimmuneillness
This is incredible!! #disabled #autoimmuneillness #IBD
January 15, 2025 at 11:26 PM
When you see cute, delicate #medicalidbracelets but you have so many illnesses going on that you’d basically look like a rapper with major #bling
#chronicillness
#autoimmuneillness
#chronicpain
November 25, 2024 at 2:04 AM
January 19, 2025 at 1:31 AM
Daily Spoon Count 7/10
Pain Level 2/10
2nd baseline day in a row. Overall I'm in better shape than I was a year ago, but I'm not going to be complacent. An #autoimmuneillness can change on a dime, staying healthy is a balancing act. Be a work in progress today and everyday #ibd #spoonie #disability
May 19, 2026 at 9:32 AM
Hey doctors with #chronic illness patients! If your patient is not responding to a medication. The medication failed them. Nothing infuriates a #disabled, chronically ill person more than being told that we failed a drug. No. We fucking didn't. #IBD #autoimmuneillness
February 1, 2025 at 6:53 PM
Daily Spoon Count: 7/10. Baseline day. I have stuff to do, Costco, Walmart, that's going to sack the spoons, but it must be done. Oh well, I'll be back in bed by noon. Have a great day folks. #disabled #chronicillness #autoimmuneillness #immunecompromised
December 4, 2024 at 10:50 AM
April 23, 2025 at 2:40 PM
Sending love to all who are immobilised, silenced or held too tightly by illness of any kind. 🩵💙

#chronicillness #chronicpain #ME/CFS #mecfs #disabled #mentalillness #invisibleillness #autoimmuneillness #neurologicalillness #chronicfatigue #spoonie #solidarity #creativity
June 20, 2026 at 11:29 AM
Every single time I interact with my medical providers, they want to know my pain level. “On a 0–10 scale,10 being the worst pain possible, how do you rate your pain?” I HATE THAT SCALE. It’s really not even framing the problem of chronic pain correctly. #chronicpain #autoimmuneillness
December 16, 2024 at 6:26 AM
*looking RFK Jr straight in the eye as I down a sertraline, a tramadol, 20mg of methotrexate and 90mg of etoricoxib*

[and thanking the universe I live in South Africa]

#AutoimmuneIllness
February 20, 2025 at 3:37 PM
Thankful for a health insurance that changed their original decision about covering continuous treatment costs for me when visiting Thailand after paying notice to my doc and myself. #helsana good work! #autoimmuneillness
October 4, 2023 at 1:25 PM
I'm not looking forward to tomorrow. Got a very early appointment with a gynaecologist to have a biopsy.
It just has to be done so we know wtf is going on, and what new diagnosis I can add to the long list I've already got 🙄
More importantly, treatment!
#tmi #chronicillness #autoimmuneillness
a woman in a pink dress is sitting in a chair with a sign that says be
Alt: a woman in a pink dress is sitting in a chair with a sign that says be
media.tenor.com
January 5, 2025 at 4:52 PM
Daily Spoon Count: 7/10 another baseline 'normal' day. I've been having bad fatigue for several years now, since around 2018, fatigue flares up my IBD, this is why I nap every day, and I'll nap today. I'm a 52yr old, little old man. LoL. #autoimmuneillness #IBD #chronicillness #spoon
November 23, 2024 at 10:47 AM
Hubby is taking Younger Daughter to the International Festival at UNCC this afternoon.

This makes it the second festival I've had to miss this season because of #chronicillness.

Ugh, my body sucks sometimes. 😭

#rheumatoidarthritis #autoimmuneillness
September 23, 2023 at 5:13 PM
October 11, 2023 at 12:20 AM
Getting more labs done tomorrow. For once, I’m thankful to be in a flareup. #autoimmuneillness #lupus
May 7, 2025 at 4:43 AM