Former Olympian sprinter Beth Dobbin, 32, has written to Andy Burnham demanding more research funding for ME after her life was ripped apart by the illness | The Times | 31 October 2026 (cutting below👇)
#BethDobbin #Olympian #LettertoAndy #mecfs #m/cfs #MyalgicEncephalomyelitis #LongCovid
#BethDobbin #Olympian #LettertoAndy #mecfs #m/cfs #MyalgicEncephalomyelitis #LongCovid
October 31, 2026 at 10:56 AM
Former Olympian sprinter Beth Dobbin, 32, has written to Andy Burnham demanding more research funding for ME after her life was ripped apart by the illness | The Times | 31 October 2026 (cutting below👇)
#BethDobbin #Olympian #LettertoAndy #mecfs #m/cfs #MyalgicEncephalomyelitis #LongCovid
#BethDobbin #Olympian #LettertoAndy #mecfs #m/cfs #MyalgicEncephalomyelitis #LongCovid
This has been the biggest #mecfs story circulating in the UK in the past two weeks. It began with a report from BBC Sport on 17th October and continues to have legs, forgive the pun, until today. #BethDobbin #Olympian #LettertoAndy #m/cfs #MyalgicEncephalomyelitis #LongCovid
October 31, 2026 at 10:56 AM
This has been the biggest #mecfs story circulating in the UK in the past two weeks. It began with a report from BBC Sport on 17th October and continues to have legs, forgive the pun, until today. #BethDobbin #Olympian #LettertoAndy #m/cfs #MyalgicEncephalomyelitis #LongCovid
I’m thinking about Sam M. Schofield.
How he was 20, trans, and part of the generation that we want to see make it past SO much more than 30.
He died of Myalgic Encephalomyelitis (ME) in August.
Below is a comment from one of his last posts, “ME/CFS Vs. The AIDS Crisis.”
How he was 20, trans, and part of the generation that we want to see make it past SO much more than 30.
He died of Myalgic Encephalomyelitis (ME) in August.
Below is a comment from one of his last posts, “ME/CFS Vs. The AIDS Crisis.”
November 1, 2026 at 8:38 PM
I’m thinking about Sam M. Schofield.
How he was 20, trans, and part of the generation that we want to see make it past SO much more than 30.
He died of Myalgic Encephalomyelitis (ME) in August.
Below is a comment from one of his last posts, “ME/CFS Vs. The AIDS Crisis.”
How he was 20, trans, and part of the generation that we want to see make it past SO much more than 30.
He died of Myalgic Encephalomyelitis (ME) in August.
Below is a comment from one of his last posts, “ME/CFS Vs. The AIDS Crisis.”
Fresh of publication in PNAS
Stress-inducible WASF3 regulates brain metabolism and cognitive function
Abu M. Syed, Jin Ma, Ping-yuan Wang, +8 , and Paul M. Hwang
#ME/CFS #WASF3 🧠 💪🏻💪🏻 🫘
www.pnas.org/doi/10.1073/...
Stress-inducible WASF3 regulates brain metabolism and cognitive function
Abu M. Syed, Jin Ma, Ping-yuan Wang, +8 , and Paul M. Hwang
#ME/CFS #WASF3 🧠 💪🏻💪🏻 🫘
www.pnas.org/doi/10.1073/...
Stress-inducible WASF3 regulates brain metabolism and cognitive function | PNAS
Wiskott–Aldrich syndrome protein family member 3 (WASF3) disrupts mitochondrial respiration
and is induced in association with endoplasmic reticulu...
www.pnas.org
October 28, 2026 at 3:54 PM
Fresh of publication in PNAS
Stress-inducible WASF3 regulates brain metabolism and cognitive function
Abu M. Syed, Jin Ma, Ping-yuan Wang, +8 , and Paul M. Hwang
#ME/CFS #WASF3 🧠 💪🏻💪🏻 🫘
www.pnas.org/doi/10.1073/...
Stress-inducible WASF3 regulates brain metabolism and cognitive function
Abu M. Syed, Jin Ma, Ping-yuan Wang, +8 , and Paul M. Hwang
#ME/CFS #WASF3 🧠 💪🏻💪🏻 🫘
www.pnas.org/doi/10.1073/...
Geht auch anders: filmpluskritik.com/2026/05/12/m...
ME/CFS-Film "Hello new body, how are you today?": Interview mit Laura Kansy
Regisseurin Laura Kansy ist an ME/CFS erkrankt, ihren neuen Alltag hielt sie in einem Film fest, der diese Tage beim DOK.fest Premiere feiert: Ein Interview
filmpluskritik.com
October 22, 2026 at 1:51 PM
Geht auch anders: filmpluskritik.com/2026/05/12/m...
I belive in this. One day we´ll all meet again. But I´m not in a hurry at all, I love my life, in spite of 4 auto immune diseases, osteoporosis & ME/CFS. By then I have my memories, I also dream of my 3 angels very often...
💖💖💖
@soxanddlt.bsky.social
💖💖💖
@soxanddlt.bsky.social
October 24, 2026 at 7:08 AM
I belive in this. One day we´ll all meet again. But I´m not in a hurry at all, I love my life, in spite of 4 auto immune diseases, osteoporosis & ME/CFS. By then I have my memories, I also dream of my 3 angels very often...
💖💖💖
@soxanddlt.bsky.social
💖💖💖
@soxanddlt.bsky.social
New Study: Blood Pressure, Combined with This, Seriously Influences Dementia Risk.
I measured 103/75 earlier, also are my cholesterol values perfect, and due to #SLE I´m chronic underweight and due to ME/CFS I sleep for 10+ hours...
www.thehealthy.com/alzheimers/n...
I measured 103/75 earlier, also are my cholesterol values perfect, and due to #SLE I´m chronic underweight and due to ME/CFS I sleep for 10+ hours...
www.thehealthy.com/alzheimers/n...
New Study: Blood Pressure, Combined with This, Seriously Influences Dementia Risk
A leading professor of geriatric medicine finds "high-level evidence" for two things to add to your life—plus two to avoid—to maintain memory.
www.thehealthy.com
October 25, 2026 at 4:03 AM
New Study: Blood Pressure, Combined with This, Seriously Influences Dementia Risk.
I measured 103/75 earlier, also are my cholesterol values perfect, and due to #SLE I´m chronic underweight and due to ME/CFS I sleep for 10+ hours...
www.thehealthy.com/alzheimers/n...
I measured 103/75 earlier, also are my cholesterol values perfect, and due to #SLE I´m chronic underweight and due to ME/CFS I sleep for 10+ hours...
www.thehealthy.com/alzheimers/n...
www.youtube.com/shorts/zEsPN...
How to slow down cognitive decline.
I got ME/CFS in 07/22, so I sleep for 10+ hours, but still don´t fell refreshed in the day, only #REM phases, no #DeepSleep.
I´m lacto-veggie, but single. So my social activities´re limited to Bluesky.
@clevelandclinic.bsky.social
How to slow down cognitive decline.
I got ME/CFS in 07/22, so I sleep for 10+ hours, but still don´t fell refreshed in the day, only #REM phases, no #DeepSleep.
I´m lacto-veggie, but single. So my social activities´re limited to Bluesky.
@clevelandclinic.bsky.social
Slowing cognitive decline.
YouTube video by Cleveland Clinic
www.youtube.com
October 23, 2026 at 3:52 AM
www.youtube.com/shorts/zEsPN...
How to slow down cognitive decline.
I got ME/CFS in 07/22, so I sleep for 10+ hours, but still don´t fell refreshed in the day, only #REM phases, no #DeepSleep.
I´m lacto-veggie, but single. So my social activities´re limited to Bluesky.
@clevelandclinic.bsky.social
How to slow down cognitive decline.
I got ME/CFS in 07/22, so I sleep for 10+ hours, but still don´t fell refreshed in the day, only #REM phases, no #DeepSleep.
I´m lacto-veggie, but single. So my social activities´re limited to Bluesky.
@clevelandclinic.bsky.social
Thanks for the shout-out! The Pacing Guide and the Mayo Clinic Proceedings paper are both good intros for a medical provider who wants to learn more 👍
There is a Clinician's pacing guide as well, which is cited. You can find them all here: www.meaction.net/pacing-and-m...
There is a Clinician's pacing guide as well, which is cited. You can find them all here: www.meaction.net/pacing-and-m...
PACING & MANAGEMENT GUIDES | #MEAction
Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.
www.meaction.net
October 22, 2026 at 12:22 PM
Thanks for the shout-out! The Pacing Guide and the Mayo Clinic Proceedings paper are both good intros for a medical provider who wants to learn more 👍
There is a Clinician's pacing guide as well, which is cited. You can find them all here: www.meaction.net/pacing-and-m...
There is a Clinician's pacing guide as well, which is cited. You can find them all here: www.meaction.net/pacing-and-m...
We Asked 7 Experts About Healthy Brain Aging—and They All Said This One Habit Matters Most.
#FCKLongevity
I´m multiply chronic sick, 1 of my chronic diseases is ME/CFS that comes with temporary #BrainFog.
🤬🤬🤬
www.thehealthy.com/habits/best-...
#FCKLongevity
I´m multiply chronic sick, 1 of my chronic diseases is ME/CFS that comes with temporary #BrainFog.
🤬🤬🤬
www.thehealthy.com/habits/best-...
We Asked 7 Experts About Healthy Brain Aging—and They All Said This One Habit Matters Most
While their top advice stood out, they also pointed to a handful of other daily decisions that make a difference over time.
www.thehealthy.com
October 22, 2026 at 3:30 AM
We Asked 7 Experts About Healthy Brain Aging—and They All Said This One Habit Matters Most.
#FCKLongevity
I´m multiply chronic sick, 1 of my chronic diseases is ME/CFS that comes with temporary #BrainFog.
🤬🤬🤬
www.thehealthy.com/habits/best-...
#FCKLongevity
I´m multiply chronic sick, 1 of my chronic diseases is ME/CFS that comes with temporary #BrainFog.
🤬🤬🤬
www.thehealthy.com/habits/best-...
Wenn es nur Frust wäre...
Mit Immundefekt, ME/CFS u. v. m. ist meine Kraft aufgebraucht.
Gebetsmühlenartige Erklärungen kann und will ich mir nicht mehr leisten.
Etwas mehr Verständnis sollte man von Erwachsenen erwarten können.
Mit Immundefekt, ME/CFS u. v. m. ist meine Kraft aufgebraucht.
Gebetsmühlenartige Erklärungen kann und will ich mir nicht mehr leisten.
Etwas mehr Verständnis sollte man von Erwachsenen erwarten können.
October 19, 2026 at 3:06 PM
Wenn es nur Frust wäre...
Mit Immundefekt, ME/CFS u. v. m. ist meine Kraft aufgebraucht.
Gebetsmühlenartige Erklärungen kann und will ich mir nicht mehr leisten.
Etwas mehr Verständnis sollte man von Erwachsenen erwarten können.
Mit Immundefekt, ME/CFS u. v. m. ist meine Kraft aufgebraucht.
Gebetsmühlenartige Erklärungen kann und will ich mir nicht mehr leisten.
Etwas mehr Verständnis sollte man von Erwachsenen erwarten können.
This interview with Guardian columnist George Monbiot about the poor treatment of people with ME/CFS has been viewed 32,000+ times!!
www.youtube.com/watch?v=Maae...
www.youtube.com/watch?v=Maae...
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
www.youtube.com
October 18, 2026 at 12:35 AM
This interview with Guardian columnist George Monbiot about the poor treatment of people with ME/CFS has been viewed 32,000+ times!!
www.youtube.com/watch?v=Maae...
www.youtube.com/watch?v=Maae...
This 91-Year-Old’s Life Reveals Two Longevity Lessons: Stay True to Yourself and Keep Playing.
#FCKLongevity, I have 4 auto immune diseases, osteoporosis, ME/CFS & other health issues. I´m not quite 56 and can be grateful if I´ll make it to 60 at all.
🤬🤬🤬
www.thehealthy.com/aging/health...
#FCKLongevity, I have 4 auto immune diseases, osteoporosis, ME/CFS & other health issues. I´m not quite 56 and can be grateful if I´ll make it to 60 at all.
🤬🤬🤬
www.thehealthy.com/aging/health...
October 19, 2026 at 3:50 AM
This 91-Year-Old’s Life Reveals Two Longevity Lessons: Stay True to Yourself and Keep Playing.
#FCKLongevity, I have 4 auto immune diseases, osteoporosis, ME/CFS & other health issues. I´m not quite 56 and can be grateful if I´ll make it to 60 at all.
🤬🤬🤬
www.thehealthy.com/aging/health...
#FCKLongevity, I have 4 auto immune diseases, osteoporosis, ME/CFS & other health issues. I´m not quite 56 and can be grateful if I´ll make it to 60 at all.
🤬🤬🤬
www.thehealthy.com/aging/health...
Fall Living Planet Magazine.
Sorry, no time due to ME/CFS, I´m currently speedposting to work up at least half of the latest, important newsletters.
wwf.ca/wp-content/u...
@wwfcanada.org
Sorry, no time due to ME/CFS, I´m currently speedposting to work up at least half of the latest, important newsletters.
wwf.ca/wp-content/u...
@wwfcanada.org
October 17, 2026 at 8:59 AM
Fall Living Planet Magazine.
Sorry, no time due to ME/CFS, I´m currently speedposting to work up at least half of the latest, important newsletters.
wwf.ca/wp-content/u...
@wwfcanada.org
Sorry, no time due to ME/CFS, I´m currently speedposting to work up at least half of the latest, important newsletters.
wwf.ca/wp-content/u...
@wwfcanada.org
Watch the full video (24 mins)
David Tuller interview with George Monbiot:
youtu.be/MaaeQ7crLz4?...
George Monbiot’s recent article:
www.theguardian.com/commentisfre...
David Tuller interview with George Monbiot:
youtu.be/MaaeQ7crLz4?...
George Monbiot’s recent article:
www.theguardian.com/commentisfre...
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
youtu.be
October 13, 2026 at 6:40 AM
Watch the full video (24 mins)
David Tuller interview with George Monbiot:
youtu.be/MaaeQ7crLz4?...
George Monbiot’s recent article:
www.theguardian.com/commentisfre...
David Tuller interview with George Monbiot:
youtu.be/MaaeQ7crLz4?...
George Monbiot’s recent article:
www.theguardian.com/commentisfre...
“By combining genetic research with cell models, we can get closer to understanding why some people do not recover normally from a viral infection. Genetic tools can also uncover previously unrecognized disease mechanisms”.
#Genetics #LongCOVID #ME/CFS #Fibromyalgia #PAIS
#Genetics #LongCOVID #ME/CFS #Fibromyalgia #PAIS
Award-winning genetic study sheds light on risk factors for long COVID | HiLIFE – Helsinki Institute of Life Science | University of Helsinki
The 2026 Medix Prize has been awarded to a research team led by Hanna M. Ollila for a study identifying genetic variants associated with the risk of long COVID. The large international study, led by t...
www.helsinki.fi
October 13, 2026 at 3:23 PM
“By combining genetic research with cell models, we can get closer to understanding why some people do not recover normally from a viral infection. Genetic tools can also uncover previously unrecognized disease mechanisms”.
#Genetics #LongCOVID #ME/CFS #Fibromyalgia #PAIS
#Genetics #LongCOVID #ME/CFS #Fibromyalgia #PAIS
en.wikipedia.org/wiki/Myalgic...
I woke up at 3.17 am German time due to ME/CFS yet, with a heavy headache. Showered, washed & blow-dried my hair.
BP 99/72, body temperature 35,7°C, outside it cooled down to 11,5°C (you may google it in F, I´m too lazy).
Happy #ManicMonday meowing.
😱😱😱
I woke up at 3.17 am German time due to ME/CFS yet, with a heavy headache. Showered, washed & blow-dried my hair.
BP 99/72, body temperature 35,7°C, outside it cooled down to 11,5°C (you may google it in F, I´m too lazy).
Happy #ManicMonday meowing.
😱😱😱
October 12, 2026 at 2:18 AM
en.wikipedia.org/wiki/Myalgic...
I woke up at 3.17 am German time due to ME/CFS yet, with a heavy headache. Showered, washed & blow-dried my hair.
BP 99/72, body temperature 35,7°C, outside it cooled down to 11,5°C (you may google it in F, I´m too lazy).
Happy #ManicMonday meowing.
😱😱😱
I woke up at 3.17 am German time due to ME/CFS yet, with a heavy headache. Showered, washed & blow-dried my hair.
BP 99/72, body temperature 35,7°C, outside it cooled down to 11,5°C (you may google it in F, I´m too lazy).
Happy #ManicMonday meowing.
😱😱😱
バベル教授は、ロングCOVIDとPACVSの両方が、以下のような症状において共通点が見られることを強調しました。
慢性疲労
運動後倦怠感（PEM）
ブレインフォグ
息切れ
神経障害
動悸
頻脈（心拍数の増加）
…など（なお、ロングCOVIDには200以上の症状があるとされており、すべての患者に同じ症状が現れるわけではないことに留意すべきです※参照→ www.meresearch.org.uk/estimating-m... ）
#PACVS
#LongVax
#コロナ後遺症
#ワクチン後遺症
#コロナ
#Covid19
#コロナワクチン
#ME/CFS
#線維筋痛症
#慢性疲労症候群
慢性疲労
運動後倦怠感（PEM）
ブレインフォグ
息切れ
神経障害
動悸
頻脈（心拍数の増加）
…など（なお、ロングCOVIDには200以上の症状があるとされており、すべての患者に同じ症状が現れるわけではないことに留意すべきです※参照→ www.meresearch.org.uk/estimating-m... ）
#PACVS
#LongVax
#コロナ後遺症
#ワクチン後遺症
#コロナ
#Covid19
#コロナワクチン
#ME/CFS
#線維筋痛症
#慢性疲労症候群
The experience of post-exertional malaise – part 2
This is the second of a two-part series discussing research from 2020 by Barbara Stussman and colleagues exploring the experiences of post-exertional malaise (PEM) in 43 individuals who reported havin...
www.meresearch.org.uk
October 13, 2026 at 8:15 AM
31 Haunting Halloween Books That Will Keep You Up at Night
www.rd.com/list/hallowe...
I´m just reading one of 2 Agatha Raisin crime stories, but due to the ME/CFS I don´t really get forward with it... Maybe I can read for 10-15 minutes the day, only.
😱😱😱
www.rd.com/list/hallowe...
I´m just reading one of 2 Agatha Raisin crime stories, but due to the ME/CFS I don´t really get forward with it... Maybe I can read for 10-15 minutes the day, only.
😱😱😱
25 Spine-Tingling Halloween Books That Will Keep You Up at Night
Read these Halloween Books by jack-o'-lantern light
www.rd.com
October 12, 2026 at 3:33 AM
31 Haunting Halloween Books That Will Keep You Up at Night
www.rd.com/list/hallowe...
I´m just reading one of 2 Agatha Raisin crime stories, but due to the ME/CFS I don´t really get forward with it... Maybe I can read for 10-15 minutes the day, only.
😱😱😱
www.rd.com/list/hallowe...
I´m just reading one of 2 Agatha Raisin crime stories, but due to the ME/CFS I don´t really get forward with it... Maybe I can read for 10-15 minutes the day, only.
😱😱😱
@davetuller1.bsky.social interviews George Monbiot: about investigation of patient mistreatment, medical dismissal, outdated treatment approaches, & failure to translate scientific progress into better care. www.youtube.com/watch?v=Maae...
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
www.youtube.com
October 10, 2026 at 2:52 AM
@davetuller1.bsky.social interviews George Monbiot: about investigation of patient mistreatment, medical dismissal, outdated treatment approaches, & failure to translate scientific progress into better care. www.youtube.com/watch?v=Maae...
CFS/ME problems: my week went M, T, (mumble), F. Tuesday was stressful and painful, so W, T got skipped.
October 9, 2026 at 1:37 PM
CFS/ME problems: my week went M, T, (mumble), F. Tuesday was stressful and painful, so W, T got skipped.
(2/3) After this point there was no excuse for this gross level of negligence, already spanning decades before, especially considering it was costing tens of billions $ in economic losses every year, not to mention the suffering involved. The inept bungling by the NIH and CDC have cost us all.
October 10, 2026 at 8:30 AM
(2/3) After this point there was no excuse for this gross level of negligence, already spanning decades before, especially considering it was costing tens of billions $ in economic losses every year, not to mention the suffering involved. The inept bungling by the NIH and CDC have cost us all.