YouTuber @skallagrim.bsky.social with 1.63M followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views
www.youtube.com/watch?v=GILP...
See next post for a few quick thoughts
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS
1/
www.youtube.com/watch?v=GILP...
See next post for a few quick thoughts
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS
1/
October 1, 2026 at 6:48 PM
Thanks so much to the great science writer George Monbiot @georgemonbiot.bsky.social for once again covering the ongoing systemic neglect and abuse of patients w/ #MyalgicEncephalomyelitis
Essential reading for #pwME, #MedSky, and allies:
www.theguardian.com/commentisfre...
Essential reading for #pwME, #MedSky, and allies:
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 30, 2026 at 7:48 PM
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 28, 2026 at 6:31 PM
I take care of mahm #dogsofbluesky #pwME
February 21, 2026 at 10:12 PM
I take care of mahm #dogsofbluesky #pwME
Gather around kids!! Tell these fuckers that you want “Updated Sub-Lineage Covid Vaccines” or “Updated Covid Vaccines” or That it’s patriotic to vaxx & be heathy. We have till Friday at 11:59 to make comments on the shit they dropped today. This is on purpose.
www.regulations.gov/commenton/FD...
www.regulations.gov/commenton/FD...
May 21, 2025 at 7:14 PM
Worth listening #pwME
I talked this week about the mental health crisis afflicting young people, in particular the isolation and loneliness caused by the neoliberal smashing of society. Everyone needs community. Everyone needs belonging. We cannot survive without them.
September 27, 2026 at 10:24 AM
Worth listening #pwME
June 3, 2026 at 4:18 PM
Montreal City News: 'Montreal researchers make key discovery in chronic fatigue syndrome'
'The research team utilized and investigated the role of a protein called SMPDL3B as a therapeutic target.'
montreal.citynews.ca/2025/07/25/m...
'The research team utilized and investigated the role of a protein called SMPDL3B as a therapeutic target.'
montreal.citynews.ca/2025/07/25/m...
Montreal researchers make key discovery in chronic fatigue syndrome
Montreal researchers say they’ve made a breakthrough discovery in understanding a poorly understood illness – chronic fatigue syndrome – which has significant ties to post-COVID symptoms. Université d...
montreal.citynews.ca
July 27, 2025 at 1:03 PM
Action for ME have chosen to leave X & the 13,000+ followers they have there without consulting #pwME
#pwME are dependent on social media & as the contact between #pwME & the APPG for #ME & the Parliamentary Champions for #ME this is counterproductive.
AfME should have a presence where #pwME are
#pwME are dependent on social media & as the contact between #pwME & the APPG for #ME & the Parliamentary Champions for #ME this is counterproductive.
AfME should have a presence where #pwME are
November 15, 2024 at 11:59 AM
October 22, 2024 at 8:24 AM
November 13, 2024 at 1:31 PM
Thank you George for using your platform to make people aware of the #GreatestMEdicalScandal
It means a lot to #pwME !
It means a lot to #pwME !
September 24, 2026 at 7:13 AM
Thank you George for using your platform to make people aware of the #GreatestMEdicalScandal
It means a lot to #pwME !
It means a lot to #pwME !
Good news for pwME used to bad news!
July 30, 2025 at 5:07 PM
Good news for pwME used to bad news!
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 29, 2026 at 11:20 AM
April 19, 2026 at 2:41 PM
1) We’ve just published our review of the most interesting ME/CFS studies of 2025.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
December 30, 2025 at 5:15 PM
September 17, 2026 at 9:25 PM
People probably know this, but if you have a UK library card, you can use the Libby app to borrow ebooks and audio books for free, without physically going to the library. 📚🎧
January 29, 2025 at 10:36 PM
The Reality of Long COVID & ME Symptoms
YouTube video by Vlad's ME Diary
www.youtube.com
December 11, 2024 at 9:20 PM
December 22, 2023 at 1:03 PM