Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
October 16, 2026 at 12:31 PM
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
Turned on the coffee maker this morning and went to wait for the coffee to finish brewing.
That "wait" turned into a four-hour nap.
The coffee should be done now, right?
#ChronicFatigue #ChronicIllness #fibromyalgia #SjorgrensDisease
That "wait" turned into a four-hour nap.
The coffee should be done now, right?
#ChronicFatigue #ChronicIllness #fibromyalgia #SjorgrensDisease
October 15, 2026 at 7:22 PM
Turned on the coffee maker this morning and went to wait for the coffee to finish brewing.
That "wait" turned into a four-hour nap.
The coffee should be done now, right?
#ChronicFatigue #ChronicIllness #fibromyalgia #SjorgrensDisease
That "wait" turned into a four-hour nap.
The coffee should be done now, right?
#ChronicFatigue #ChronicIllness #fibromyalgia #SjorgrensDisease
I actually had a good energy day today and I made the most of it.
I'm pleased but naturally waiting for the crash and burn now.
#chronicfatigue #chronicallyill
I'm pleased but naturally waiting for the crash and burn now.
#chronicfatigue #chronicallyill
October 16, 2026 at 9:09 PM
I actually had a good energy day today and I made the most of it.
I'm pleased but naturally waiting for the crash and burn now.
#chronicfatigue #chronicallyill
I'm pleased but naturally waiting for the crash and burn now.
#chronicfatigue #chronicallyill
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
October 14, 2026 at 6:30 PM
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
#chronicpain #anxiety #pain #panicattack #spoonie #fibromyalgia #chronicfatigue #painrelief #chronicpainwarrior #spoonielife #mindbody #mentalhealth
October 14, 2026 at 1:01 PM
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
October 13, 2026 at 10:30 PM
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
"The #disease swallowed up the next 6 mths..Unlike [ #ChronicFatigue ]..it wasn’t a case of us asking & #asking for help & still being #sick. It was a clear-cut #diagnosis that our #community could see & help with.": buff.ly/u0v422N
by chronicallycrosscultural
#diagnosis #ChronicIllness #disability
by chronicallycrosscultural
#diagnosis #ChronicIllness #disability
3 different types of diagnosis experiences
Undiagnosed, Quick clear-cut diagnosis, and something that fits neither category.
buff.ly
October 13, 2026 at 8:30 PM
"The #disease swallowed up the next 6 mths..Unlike [ #ChronicFatigue ]..it wasn’t a case of us asking & #asking for help & still being #sick. It was a clear-cut #diagnosis that our #community could see & help with.": buff.ly/u0v422N
by chronicallycrosscultural
#diagnosis #ChronicIllness #disability
by chronicallycrosscultural
#diagnosis #ChronicIllness #disability
"we’re #exhausted. Not just from the #PEM. From explaining it over & over to people who think they know better..Which, if you think about it, is rather the whole problem.": buff.ly/tydQbXg
by @darthfoo.bsky.social
#ChronicFatigue #ableism #disabled #NEisVoid #ChronicPain #ChronicallyIll
by @darthfoo.bsky.social
#ChronicFatigue #ableism #disabled #NEisVoid #ChronicPain #ChronicallyIll
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
buff.ly
October 12, 2026 at 10:30 PM
"we’re #exhausted. Not just from the #PEM. From explaining it over & over to people who think they know better..Which, if you think about it, is rather the whole problem.": buff.ly/tydQbXg
by @darthfoo.bsky.social
#ChronicFatigue #ableism #disabled #NEisVoid #ChronicPain #ChronicallyIll
by @darthfoo.bsky.social
#ChronicFatigue #ableism #disabled #NEisVoid #ChronicPain #ChronicallyIll
Same. Suspected AuDHD, only diagnosed autistic, and my executive function is a mess. I can deal with being a hermit and doing nothing but feeding my hyperfixations, but it would be so much better if I could actually do my chores before settling into them?
#PMOS #ChronicFatigue doesn’t help either.
#PMOS #ChronicFatigue doesn’t help either.
I'm only suspected here, but executive dysfunction is probably it with me.
I'm also not sure if my anxiety/depression/insomnia is also from it, but the insomnia used to get so bad I'd have hallucinations and just kinda end up feeling drunk with overtiredness.
I'm also not sure if my anxiety/depression/insomnia is also from it, but the insomnia used to get so bad I'd have hallucinations and just kinda end up feeling drunk with overtiredness.
If you have ADHD (diagnosed or very strong suspicion) I have a question for you
What ADHD symptom/quirk/characteristic has been the most detrimental to your life to date?
For me, it’s my challenge w attention to detail & my terrible memory. I’ve lost more jobs than most ppl work their whole lives
What ADHD symptom/quirk/characteristic has been the most detrimental to your life to date?
For me, it’s my challenge w attention to detail & my terrible memory. I’ve lost more jobs than most ppl work their whole lives
October 16, 2026 at 2:05 PM
Same. Suspected AuDHD, only diagnosed autistic, and my executive function is a mess. I can deal with being a hermit and doing nothing but feeding my hyperfixations, but it would be so much better if I could actually do my chores before settling into them?
#PMOS #ChronicFatigue doesn’t help either.
#PMOS #ChronicFatigue doesn’t help either.
Thank you so much @apainprincess.bsky.social for taking the time to share my blog post on the reality of living with #ChronicFatigue another debilitating symptom of life with #ChronicIllness. It’s much appreciated! 🫶
“Fatigue is an intangible presence that suddenly jumps out of the shadows, bleeding every ounce of energy I still possess. It's a crushing, soul-sucking exhaustion that leaves me feeling as if I'm failing at life.” https://buff.ly/3PRF39P @serenebutterfly #ChronicIllness #Fatigue #FND
October 17, 2026 at 9:16 PM
Thank you so much @apainprincess.bsky.social for taking the time to share my blog post on the reality of living with #ChronicFatigue another debilitating symptom of life with #ChronicIllness. It’s much appreciated! 🫶
Post-rest can still feel exhausting when your body doesn’t recover the way it used to.
#ChronicFatigue
#ChronicFatigue
October 13, 2026 at 5:31 PM
Post-rest can still feel exhausting when your body doesn’t recover the way it used to.
#ChronicFatigue
#ChronicFatigue
{Alt text: white text on black background:
in english we say "i'm tired"
but in poetry we say:
i have been
holding up
entire skies
with hand
that were only
ever meant
to hold flowers
-sophia bray
🦋
#ChronicIllness #fatigue #ChronicFatigue #SpoonieSky
in english we say "i'm tired"
but in poetry we say:
i have been
holding up
entire skies
with hand
that were only
ever meant
to hold flowers
-sophia bray
🦋
#ChronicIllness #fatigue #ChronicFatigue #SpoonieSky
October 13, 2026 at 5:40 AM
{Alt text: white text on black background:
in english we say "i'm tired"
but in poetry we say:
i have been
holding up
entire skies
with hand
that were only
ever meant
to hold flowers
-sophia bray
🦋
#ChronicIllness #fatigue #ChronicFatigue #SpoonieSky
in english we say "i'm tired"
but in poetry we say:
i have been
holding up
entire skies
with hand
that were only
ever meant
to hold flowers
-sophia bray
🦋
#ChronicIllness #fatigue #ChronicFatigue #SpoonieSky
"I belong to that strange strain of #humanity that spends a lot of time #horizontal. By simply rotating down that 90-degree angle, life's possibilities flounder. I become flaky, distant, & unavailable.": buff.ly/POfTiZC
by @robinboardman.com
#NEisVoid #ChronicFatigue #pwME #ChronicIllness #spoonie
by @robinboardman.com
#NEisVoid #ChronicFatigue #pwME #ChronicIllness #spoonie
🛌 90 Degrees Down: A New Perspective
Even when lying down, the revolution doesn't end; it simply changes form, becoming a quiet act of survival measured in breaths between the pain.
buff.ly
October 11, 2026 at 10:30 AM
"I belong to that strange strain of #humanity that spends a lot of time #horizontal. By simply rotating down that 90-degree angle, life's possibilities flounder. I become flaky, distant, & unavailable.": buff.ly/POfTiZC
by @robinboardman.com
#NEisVoid #ChronicFatigue #pwME #ChronicIllness #spoonie
by @robinboardman.com
#NEisVoid #ChronicFatigue #pwME #ChronicIllness #spoonie
The Healing Odyssey Program for Empowerment (H.O.P.E.) is a journey designed to help you regulate your nervous system and reclaim your life.
Join the newsletter to get launch updates and early access at HealingWolfCoaching.com
#chronicpain #anxiety #pain #panicattack #fibromyalgia #chronicfatigue
Join the newsletter to get launch updates and early access at HealingWolfCoaching.com
#chronicpain #anxiety #pain #panicattack #fibromyalgia #chronicfatigue
October 13, 2026 at 9:11 PM
The Healing Odyssey Program for Empowerment (H.O.P.E.) is a journey designed to help you regulate your nervous system and reclaim your life.
Join the newsletter to get launch updates and early access at HealingWolfCoaching.com
#chronicpain #anxiety #pain #panicattack #fibromyalgia #chronicfatigue
Join the newsletter to get launch updates and early access at HealingWolfCoaching.com
#chronicpain #anxiety #pain #panicattack #fibromyalgia #chronicfatigue
A softer plan for bodies that shift: https://bit.ly/3ZELxh8
#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
Bracing for interruptions from MG fatigue
Tina Hancock, who has myasthenia gravis, shares how she manages fatigue and finds joy in small victories each day.
bit.ly
October 12, 2026 at 9:31 PM
A softer plan for bodies that shift: https://bit.ly/3ZELxh8
#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
October 9, 2026 at 8:00 PM
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
"As the decline [into Haemolytic #Anemia ] had been gradual, the impact did not seem too harsh. The everyday #nausea, lack of appetite and general #malaise had become my norm without me even realising it.": buff.ly/U8i0CVz
#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens
#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens
October 8, 2026 at 4:30 AM
"As the decline [into Haemolytic #Anemia ] had been gradual, the impact did not seem too harsh. The everyday #nausea, lack of appetite and general #malaise had become my norm without me even realising it.": buff.ly/U8i0CVz
#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens
#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens
7/
Impact of fatigue in ME/CFS
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
Impact of fatigue in ME/CFS
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
October 6, 2026 at 3:10 PM
7/
Impact of fatigue in ME/CFS
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
Impact of fatigue in ME/CFS
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
October 8, 2026 at 2:30 PM
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
"Then there is the #guilt that comes when we cannot keep up, when the #routines we are trying to force ourselves into, don’t work for us. These routines just become another source of pressure.": buff.ly/ezpevaz
by @beverleybutterfly.bsky.social
#ChronicPain #ChronicFatigue #disabled
by @beverleybutterfly.bsky.social
#ChronicPain #ChronicFatigue #disabled
Changing Routines So They Don't Tire You Out -
I love routine and having set things at set times but changing routines so they don’t tire you out is important too.
buff.ly
October 9, 2026 at 8:30 PM
"Then there is the #guilt that comes when we cannot keep up, when the #routines we are trying to force ourselves into, don’t work for us. These routines just become another source of pressure.": buff.ly/ezpevaz
by @beverleybutterfly.bsky.social
#ChronicPain #ChronicFatigue #disabled
by @beverleybutterfly.bsky.social
#ChronicPain #ChronicFatigue #disabled
Finally getting the coverage this disease deserves #endo #chronicfatigue #chronicpain
RTÉ News: Doctor calls for better #endometriosis care after surgery abroad www.rte.ie/news/investi...
RTÉ News: Doctor calls for better #endometriosis care after surgery abroad www.rte.ie/news/investi...
Doctor calls for better endometriosis care after surgery abroad
After more than a decade of symptoms, Dr Rachel O'Connor says she was told her endometriosis was "too severe" to treat in Ireland
www.rte.ie
October 8, 2026 at 8:31 AM
Finally getting the coverage this disease deserves #endo #chronicfatigue #chronicpain
RTÉ News: Doctor calls for better #endometriosis care after surgery abroad www.rte.ie/news/investi...
RTÉ News: Doctor calls for better #endometriosis care after surgery abroad www.rte.ie/news/investi...
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
October 7, 2026 at 1:30 PM
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
#EnergyManagement #ChronicFatigue #Spoonie
#EnergyManagement #ChronicFatigue #Spoonie
8/
What fatigue in ME/CFS feels like.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
What fatigue in ME/CFS feels like.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
October 6, 2026 at 3:06 PM
8/
What fatigue in ME/CFS feels like.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
What fatigue in ME/CFS feels like.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife