#Cysticfibrosis
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gmj-georgia.bsky.social
New research shows CFTR modulators reduce anxiety in children with cystic fibrosis AND their parents. Better l…

#Anxietymentalhealth #CFTRmodulators #Chronicdiseasemanagement #Cysticfibrosis #Paediatricrespiratorydisease

#Anxietymentalhealth #CFTRmodulators #Chronicdiseasemanagement #Cysticfibr…
CFTR Modulators Cut Anxiety in CF Kids & Parents
New research shows CFTR modulators reduce anxiety in children with cystic fibrosis AND their parents. Better l… #Anxietymentalhealth #CFTRmodulators #Chronicdiseasemanagement #Cysticfibrosis #Paediatricrespiratorydisease
news.gmj.ge
October 5, 2026 at 11:26 AM
healthcare-europe.bsky.social
To fight #cysticfibrosis at the source, scientists have both identified a key #infection mechanism and a way to correct the defect. Their insights could help limit serious complications in #CF patients.
Cystic fibrosis: restoring the respiratory protective barrier
A team at the University of Geneva (UNIGE) has succeeded in restoring the defective respiratory protective barrier in people with the rare genetic disease.
healthcare-in-europe.com
October 5, 2026 at 4:52 AM
soumya-goblue.bsky.social
actually very similar to what @ranaawdish.bsky.social described 2 days ago. a close friend with #cysticfibrosis died of #renalfailure, which she found out is a horrible way to die. But we learned in #medicalschool that #uremia is a good way to die…because patients are quiet to doctors and nurses
October 1, 2026 at 3:15 PM
cysticfibrosis.org.uk
Over the past two years, the Translational Innovation Hub Network for CF Lung Health and Infection has brought together researchers, clinicians, people with #cysticfibrosis and partners across the UK and beyond to make real progress against CF lung infections.

➡️ www.cysticfibrosis.org.uk/network
October 1, 2026 at 2:01 PM
primrlab.bsky.social
(2) EN: 3) ~70% of CF alleles carry a three-base deletion (F508del), with the remaining cases caused by many rarer variants. Together, these findings launched molecular diagnosis and research in CF.

#CysticFibrosis #Genetics #ScienceHistory #tbt
October 1, 2026 at 11:27 AM
newsuluruspace.bsky.social
Były Wallaby z Cystic Fibrosis zdiagnozowany z MND

https://news.uluru.space/article/26370?utm_source=bluesky&utm_medium=social&utm_campaign=auto #Rugby #Choroby #Mnd #CysticFibrosis
September 30, 2026 at 11:20 PM
chrisvandergast.bsky.social
Great to see this finally out

Impact of #trikafta/#kaftrio on respiratory microbiomes of adults with #cysticfibrosis from UK,US,& Canada

Also shows negative selective impacts of azithromycin on #CF pathogens & #microbiome

A need to reevaluate CF polypharmacy in the #CFTR modulator era?
microbiomej.bsky.social Microbiome @microbiomej.bsky.social · 7d
In #Microbiome🦠

Remodelling of cystic fibrosis respiratory microbiota in response to extended elexacaftor–tezacaftor–ivacaftor therapy

Read more➡️ doi.org/rqj6 #Microbes
September 28, 2026 at 3:42 PM
cfricurecf.bsky.social
Weeks away. Seats filling. Join us at CFRI's A Breath of Fresh Air Gala to honor Jacquelyn Spano, DNP, RN of Stanford - Luxury auction, dinner & dancing, all for #CysticFibrosis research. 📅 Saturday October 17th @ 5:30-10:30pm📍 Hillsborough Racquet Club curecf.cfri.org/Gala2026
September 28, 2026 at 7:18 AM
mlopes0811.bsky.social
Our new paper, "Phage Therapy in People with Cystic Fibrosis: A Systematic Review," has been published (a few months ago) in the International Journal of Infectious Diseases 👨🏻‍🔬🦠💊

#PhageTherapy #CysticFibrosis #SystematicReview

🔗 doi.org/10.1016/j.ij...
Redirecting
doi.org
September 26, 2026 at 12:37 PM
lifearc.bsky.social
What makes #CysticFibrosis research such a rewarding career? In this article, researchers from across the CF Lung Health Network reflect on the experiences that are shaping their work and helping drive progress for the future.

https://bit.ly/4hs8XPz
What makes cystic fibrosis research such a rewarding career? - LifeArc
Over the last decade, advances in treatments have transformed outcomes for many people living with cystic fibrosis (CF). But significant challenges remain, including chronic lung infections and exacer...
www.lifearc.org
September 24, 2026 at 8:00 AM
rachelrollo.bsky.social
Excited to be attending the second Global Antimicrobial Resistance Innovators Conference (GAMRIC) in sunny Lisbon this week.

Come see my research on #antibiotic #potentiators against #pseudomonas #aeruginosa infections in people with #cysticfibrosis at poster 031!

#GAMRIC2026
@escmid.bsky.social
September 22, 2026 at 12:37 PM
wellatschool.bsky.social
Check out our free advice on supporting someone with CF at school.
https://www.wellatschool.org/conditions/cystic-fibrosis

 #cysticfibrosis #cysticfibrosiswarrior #cysticfibrosisawareness #cysticfibrosissucks #geneticcondition #lungs #digestivesystem #UKSchools #ukteachers #ukteachersofig #EduChat
September 22, 2026 at 11:02 AM
cmri.bsky.social
CMRI’s Dr Mark Graham, Dr Nader Aryamanesh and Dr Lee Marshall contributed specialist proteomics and bioinformatics expertise to a collaborative study exploring how children with #cysticfibrosis respond to triple therapy. Read the research: https://doi.org/10.1016/j.isci.2026.117321
Man wearing a grey shirt, smiling confidently with arms crossed in a bright laboratory setting.
September 22, 2026 at 5:54 AM
070online.bsky.social
Team Haagse Bluf rijdt Carbage Run voor Stichting TAAI 070online.nl/2026/09/21/t... #TeamHaagseBluf #CarbageRun #StichtingTAAI #CysticFibrosis #CF #DenHaag #Scandinavië #Zweden #Noorwegen #GoedeDoel
Team Haagse Bluf rijdt Carbage Run voor Stichting TAAI
Team Haagse Bluf rijdt in februari 2027 met een oude Subaru door Scandinavië tijdens de Carbage Run en zamelt geld in voor Stichting TAAI.
070online.nl
September 21, 2026 at 12:59 PM
copdcanada.bsky.social
Ontario Health wants to hear from people with #Bronchiectasis, #COPD, or #CysticFibrosis who have used airway clearance devices (e.g., Aerobika, Acapella, Flutter). Take the survey: redcap.link/ic981auw. Caregivers are also welcome to participate.
September 21, 2026 at 12:26 PM
twitter-exile.bsky.social
#Albo @albomp.bsky.social :

$25. That's how much you'll pay for life saving medicines on the #PBS.

#AUSPOL #Medicines #Drugs #PharmaceuticalBenefitScheme #CysticFibrosis #Melanoma #LifeSavingDrugs #Medicare #EndPrivatisation #Health #HealthCare #PutOneNationLast #Albanese #ALP #AnthonyAlbanese
September 18, 2026 at 12:07 AM
nordrare.bsky.social
This course uses #CysticFibrosis and #KrabbeDisease as case studies to explore the science and experiences behind rare disease research, with real impacted families sharing their stories alongside seasoned researchers from the NORD Rare Disease Centers of Excellence who speak on their career paths.
September 17, 2026 at 3:19 PM
cysticfibrosis.org.uk
Thank you to all those researchers, doctors, statisticians and members of the CF community who have helped us ensure that our research studies are of the highest standard.

Thank you all so much for helping us on our way towards achieving a life without limits for everyone with #cysticfibrosis
September 17, 2026 at 8:00 AM
sautter.bsky.social
NOVA, The Battle to Breathe .
Once a death sentence, cystic fibrosis now has a life-saving treatment. Follow the decades-long scientific quest, fueled by desperate parents, that led to this revolutionary breakthrough. 53m 34s .

#science | #health | #CysticFibrosis | #CF | #PBS | #NOVA .
The Battle to Breathe
Once a death sentence, cystic fibrosis now has a life-saving treatment. Follow the decades-long scientific quest, fueled by desperate parents, that led to this revolutionary breakthrough.
www.pbs.org
September 17, 2026 at 1:07 AM
lifearc.bsky.social
Why choose a career in cystic fibrosis research?

4 researchers from across the CF Lung Health Network share what motivates them and the difference they hope to make for people living with CF.

#CysticFibrosis #ResearchCareer
September 16, 2026 at 8:00 AM
wotantx.bsky.social
Ya know, I'll give Boomer a lot of slack. I, too, have a child with #cysticfibrosis.
September 15, 2026 at 2:16 AM
microbesinfo.bsky.social
🫁🦠 @Wound-healing @peptides reduced @bacterial colonization in #CysticFibrosis airway models, pointing to a potential way to strengthen the @lung barrier against chronic @infections.

#Microbes #Bacteria #Health #Biomed #Microsky via @sciencex.bsky.social

medicalxpress.com/news/2026-09...
Wound-healing peptides curb bacterial colonization in cystic fibrosis airway models
Cystic fibrosis, one of the most common genetic diseases in Switzerland, promotes chronic bacterial infections by impairing the protective barrier of the airways. Scientists at the University of…
medicalxpress.com
September 15, 2026 at 1:30 AM
copdcanada.bsky.social
Ontario Health wants to hear from people with #Bronchiectasis, #COPD, or #CysticFibrosis who have used airway clearance devices (e.g., Aerobika, Acapella, Flutter). Take the survey: redcap.link/ic981auw. Caregivers are also welcome to participate.
September 12, 2026 at 12:48 PM
gairdnerawards.bsky.social
For people living with #cysticfibrosis, a longer life also means imagining a future.

Michael Welsh (2025 Gairdner laureate) reflects on patients who go to college, get married, have children & make plans they once never thought possible.

Full episode: youtu.be/_FzCywreBCs
September 9, 2026 at 7:00 PM
journalneurooph.bsky.social
Jugular Vein Occlusion-Induced Intracranial Hypertension Mimicking CF Transmembrane Conductance Regulator (CFTR) Modulator-Assc Intracranial Hypertension: A Diagnostic Pitfall: JNO
Article: bit.ly/JNO_CF_JV_Oc...
#Neurology #NeuroOphth #Ophthalmology #Medicine #cysticfibrosis #papilledema
September 8, 2026 at 4:02 PM