#MyalgicEncephaloMyelitis
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tomkindlon.bsky.social
He is also on IG with the same username

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #meawareness #mecfsawareness
October 6, 2026 at 1:23 PM
litsadremousis.bsky.social
I'm
so
fucking
tired
of
living
like
this.

#MyalgicEncephalomyelitis #pwME
September 30, 2026 at 7:48 PM
tomkindlon.bsky.social
This is up to 223,000 views now

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · 20d
YouTuber @skallagrim.bsky.social with 1.63M followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views

www.youtube.com/watch?v=GILP...

See next post for a few quick thoughts

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS
1/
Screenshot of a YouTube video with a man talking to camera What ME/CFS Is, and How It's Wrecking Me Skallagrim Skallagrim 1.63m subscribers Join Subscribe 5.4k Share Save Thanks 170,621 views 9 Sept 2026 Hardly anyone knows about this (even some people who have it themselves), so I figured this might be educational. It's definitely a life altering condition, and a difficult, frustrating journey to find anything that helps. In my opinion "Myalgic Encephalomyelitis" is the better term. "Chronic Fatigue Syndrome" ends up sort of downplaying the severity and might make you think it's "just being tired". If only that was all there is to it...
October 1, 2026 at 6:48 PM
hopefullizzy.bsky.social
#myalgicencephalomyelitis #MECFS
October 12, 2025 at 10:11 AM
niksterbum.bsky.social
#MEcfs
#PEM
#myalgicencephalomyelitis
#LongCovid
November 21, 2024 at 6:42 PM
tomkindlon.bsky.social
Includes three-minute video clip
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
July 27, 2025 at 1:03 PM
tomkindlon.bsky.social
From @mayalongcovid.bsky.social

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis
June 3, 2026 at 4:18 PM
rfh1955.bsky.social
The Tennessean, US. 13th December 2005.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
December 13, 2025 at 8:18 AM
tomkindlon.bsky.social
7/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
7/ Impact of fatigue in ME/CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
October 6, 2026 at 3:10 PM
rfh1955.bsky.social
Thirty-six years ago today. The Gazette, Montreal, Canada. 15th November 1988. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 15, 2024 at 12:04 PM
tomkindlon.bsky.social
#PwME #MyalgicEncephalomyelitis
December 22, 2023 at 1:03 PM
rfh1955.bsky.social
The Times, Shreveport, US. 28th February 2024. #longcovid #cfsme #myalgicencephalomyelitis #myalgice
February 28, 2025 at 10:18 PM
tomkindlon.bsky.social
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
December 17, 2023 at 7:36 PM
tomkindlon.bsky.social
Highly recommended 👏 #MyalgicEncephalomyelitis #PwME #ChronicFatigueSyndrome #MEcfs #CFS
mecfsscience.org ME/CFS Science @mecfsscience.org · Dec 30
1) We’ve just published our review of the most interesting ME/CFS studies of 2025.

It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.

A brief overview of the studies that caught our eye.
December 30, 2025 at 5:15 PM
danwyke.bsky.social
Birthdays have a sadness all of their own. #MyalgicEncephalomyelitis #MECFS #LongCovid
January 25, 2026 at 7:31 AM
tomkindlon.bsky.social
2/
Photo of Esther Rantzen

#MyalgicE #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Photo of Esther Rantzen
October 3, 2026 at 2:35 PM
diatoma.bsky.social
#MEKills #SevereME #GreatestMEdicalScandal #MyalgicEncephalomyelitis
swastrosarah.bsky.social sarah boothby @swastrosarah.bsky.social · Jul 31
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
July 31, 2025 at 9:42 PM
rfh1955.bsky.social
From Bristol's Evening Post (England) on this day thirty-eight years ago - 7th January 1987. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
January 7, 2025 at 12:15 AM
diatoma.bsky.social
Friends with #LongCovid and #MyalgicEncephalomyelitis in the US:
December 9, 2024 at 10:19 PM
tomkindlon.bsky.social
Credit to themsbloke. A high-energy video that might require pacing!

He has multiple sclerosis himself rather than ME/CFS.

Note that the F word is used.

#MEcfs #PwME #MyalgicEncephalomyelitis
May 25, 2026 at 12:53 AM
rfh1955.bsky.social
The Star-Gazette, New York. 4th February 1992. #cfsme #mecfs #myalgice #myalgicencephalomyelitis
February 4, 2025 at 9:15 PM
fioname.bsky.social
Absolutely this 👏 #mecfs #MyalgicEncephalomyelitis
broadwaybabyto.bsky.social Kelly @broadwaybabyto.bsky.social · Nov 13
When you’re chronically ill - your baseline is everything. You will protect it at all costs.

Non disabled people can’t understand how much independence and autonomy means to us. Whatever small amount we have left - is priceless.

That’s why we don’t take necessary risks. We know what’s at stake.
November 16, 2024 at 12:43 AM
danwyke.bsky.social
Three deaths in three days. How many more #MyalgicEncephalomyelitis patients must die before governments, health agencies and medical professionals do something? #MECFS
February 2, 2026 at 11:59 AM
rfh1955.bsky.social
The Tennessean, US. 13th December 2005. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
December 13, 2024 at 8:53 PM
tomkindlon.bsky.social
Life shrinks with ME/CFS.
Found on the CFS community on Reddit

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
"Life shrinks with ME/CFS" which highlights different severities of ME/CFS and how they affect patients.
March 31, 2025 at 5:39 PM