A new paper by the NEW_LIVES group on criteria for gNBS program design and target disease selection, to which I made a small contribution as co-author, has appeared. I’m looking forward to a future pilot study! @ethicswinkler.bsky.social @aem-online.bsky.social
www.nature.com/articles/s41...
www.nature.com/articles/s41...
A multi-dimensional framework for establishing and managing a genomic newborn screening program - European Journal of Human Genetics
European Journal of Human Genetics - A multi-dimensional framework for establishing and managing a genomic newborn screening program
www.nature.com
March 3, 2026 at 2:07 PM
A new paper by the NEW_LIVES group on criteria for gNBS program design and target disease selection, to which I made a small contribution as co-author, has appeared. I’m looking forward to a future pilot study! @ethicswinkler.bsky.social @aem-online.bsky.social
www.nature.com/articles/s41...
www.nature.com/articles/s41...
NEW PUBLICATION: Part II of the paper I first-authored with the NEW_LIVES group is now out as well. In it, we outline a normative framework for genomic newborn screening and indicate some of its implications for gNBS program design. doi.org/10.1007/s004... @ethicswinkler.bsky.social
Towards genomic newborn screening, part II: outlining a normative framework - Ethik in der Medizin
Definition of problem Newborn screening (NBS) is an internationally successful program for the secondary prevention of rare congenital diseases. At present, most of the target conditions in NBS are di...
doi.org
September 6, 2025 at 4:18 PM
NEW PUBLICATION: Part II of the paper I first-authored with the NEW_LIVES group is now out as well. In it, we outline a normative framework for genomic newborn screening and indicate some of its implications for gNBS program design. doi.org/10.1007/s004... @ethicswinkler.bsky.social
I'm pleased two papers I first-authored with the NEW_LIVES group have been accepted for publication in Ethik in der Medizin: "Towards Genomic Newborn Screening, Part I: Mapping the Ethical Issues" and "Part II: Outlining a Normative Framework". They will open our special issue on the ethics of gNBS.
August 28, 2025 at 3:25 PM
I'm pleased two papers I first-authored with the NEW_LIVES group have been accepted for publication in Ethik in der Medizin: "Towards Genomic Newborn Screening, Part I: Mapping the Ethical Issues" and "Part II: Outlining a Normative Framework". They will open our special issue on the ethics of gNBS.
A new publication by the NEW_LIVES group in which we present some suggestions for revising and systematizing the classic Wilson-Jungner criteria for selecting target diseases in newborn screening. www.mdpi.com/2409-515X/10...
Wilson and Jungner Revisited: Are Screening Criteria Fit for the 21st Century?
Driven by technological innovations, newborn screening (NBS) panels have been expanded and the development of genomic NBS pilot programs is rapidly progressing. Decisions on disease selection for NBS ...
www.mdpi.com
September 16, 2024 at 10:44 PM
A new publication by the NEW_LIVES group in which we present some suggestions for revising and systematizing the classic Wilson-Jungner criteria for selecting target diseases in newborn screening. www.mdpi.com/2409-515X/10...
Call for Papers: Ethical Issues in Genomic Newborn Screening, special issue of "Ethik in der Medizin", flagship journal of @aem-online.bsky.social, guest edited by
@ethicswinkler.bsky.social and myself.
Please submit your abstracts until June 15!
www.klinikum.uni-heidelberg.de/en/new-lives...
@ethicswinkler.bsky.social and myself.
Please submit your abstracts until June 15!
www.klinikum.uni-heidelberg.de/en/new-lives...
Universitätsklinikum Heidelberg: NEW_LIVES: Genomic Newborn Screening Programs
www.klinikum.uni-heidelberg.de
May 23, 2024 at 3:16 PM
Call for Papers: Ethical Issues in Genomic Newborn Screening, special issue of "Ethik in der Medizin", flagship journal of @aem-online.bsky.social, guest edited by
@ethicswinkler.bsky.social and myself.
Please submit your abstracts until June 15!
www.klinikum.uni-heidelberg.de/en/new-lives...
@ethicswinkler.bsky.social and myself.
Please submit your abstracts until June 15!
www.klinikum.uni-heidelberg.de/en/new-lives...
My old job in medical ethics as scientific coordinator of NEW_LIVES is being readvertised - please share and apply! Working with @ethicswinkler.bsky.social and her team is a joy, I can only recommend it! DM me if you have any questions about the position.
We are hiring! Join our team in the ethics subproject of our interdisciplinary research project “NEW_LIVES: Genomic NEWborn Screening Programs – Legal Implications, Value, Ethics and Society” 👶🧬
Deadline Jan 3
#bioethics #ethics #medethics
karriere.klinikum.uni-heidelberg.de/index.php?ac...
Deadline Jan 3
#bioethics #ethics #medethics
karriere.klinikum.uni-heidelberg.de/index.php?ac...
December 15, 2023 at 3:30 PM
My old job in medical ethics as scientific coordinator of NEW_LIVES is being readvertised - please share and apply! Working with @ethicswinkler.bsky.social and her team is a joy, I can only recommend it! DM me if you have any questions about the position.
I regret this means I am leaving NEW_LIVES and my job at NCT Heidelberg prematurely, as working with my colleagues here has been thoroughly pleasant, but I believe it is a necessary decision given the arbitrary time constraints imposed on scientific career paths by the German academic system.
December 13, 2023 at 1:48 PM
I regret this means I am leaving NEW_LIVES and my job at NCT Heidelberg prematurely, as working with my colleagues here has been thoroughly pleasant, but I believe it is a necessary decision given the arbitrary time constraints imposed on scientific career paths by the German academic system.
Project NEW_LIVES: A multi-dimensional framework for establishing and managing a genomic newborn screening program. Eur J Hum Genet (2026). doi.org/10.1038/s414.... See the paper here by researchers Karla Alex and Eva Winkler of the IMDE & their collaboration partners! #genetics #bioethics
A multi-dimensional framework for establishing and managing a genomic newborn screening program - European Journal of Human Genetics
European Journal of Human Genetics - A multi-dimensional framework for establishing and managing a genomic newborn screening program
doi.org
May 29, 2026 at 7:50 AM
Project NEW_LIVES: A multi-dimensional framework for establishing and managing a genomic newborn screening program. Eur J Hum Genet (2026). doi.org/10.1038/s414.... See the paper here by researchers Karla Alex and Eva Winkler of the IMDE & their collaboration partners! #genetics #bioethics
At #ELSA2025 Karla Alex & Prof. Eva Winkler presented #NEW_LIVES 💡 — our project on #genomic newborn screening and its #ethical, legal & societal dimensions.
👉 Get the full read here: gnbs.ukhd.de and here: www.gesundheitsforschung-bmftr.de/de/new-lives...
👉 Get the full read here: gnbs.ukhd.de and here: www.gesundheitsforschung-bmftr.de/de/new-lives...
NEW_LIVES: Genomic Newborn Screening Programs: Universitätsklinikum Heidelberg
gnbs.ukhd.de
November 19, 2025 at 8:01 AM
At #ELSA2025 Karla Alex & Prof. Eva Winkler presented #NEW_LIVES 💡 — our project on #genomic newborn screening and its #ethical, legal & societal dimensions.
👉 Get the full read here: gnbs.ukhd.de and here: www.gesundheitsforschung-bmftr.de/de/new-lives...
👉 Get the full read here: gnbs.ukhd.de and here: www.gesundheitsforschung-bmftr.de/de/new-lives...
🏛️Back from the 8. Statusseminar #ELSA2025 ✨ Inspiring talks & discussions on neuroethics, personalized medicine & future discourses.
Great feedback on our projects #NEW_LIVES and #SEEM!
Big thanks to #BMFTR & project sponsor @dlr-spaceagency.bsky.social for an excellently organized conference.😄👥🎤
Great feedback on our projects #NEW_LIVES and #SEEM!
Big thanks to #BMFTR & project sponsor @dlr-spaceagency.bsky.social for an excellently organized conference.😄👥🎤
November 12, 2025 at 8:52 PM
🏛️Back from the 8. Statusseminar #ELSA2025 ✨ Inspiring talks & discussions on neuroethics, personalized medicine & future discourses.
Great feedback on our projects #NEW_LIVES and #SEEM!
Big thanks to #BMFTR & project sponsor @dlr-spaceagency.bsky.social for an excellently organized conference.😄👥🎤
Great feedback on our projects #NEW_LIVES and #SEEM!
Big thanks to #BMFTR & project sponsor @dlr-spaceagency.bsky.social for an excellently organized conference.😄👥🎤
See also the forthcoming talk of members of our NEW_LIVES group at the Annual Conferences of the German Academy for Ethics in Medicine (AEM) - Alex; Neth; Winkler: From Ethics to Practice: Ethical Framework and Best-Practice Recommendations for a Genomic Newborn Screening Program
September 17, 2025 at 1:25 PM
See also the forthcoming talk of members of our NEW_LIVES group at the Annual Conferences of the German Academy for Ethics in Medicine (AEM) - Alex; Neth; Winkler: From Ethics to Practice: Ethical Framework and Best-Practice Recommendations for a Genomic Newborn Screening Program
The article emerged from the BMFTR-funded research project NEW_LIVES: Genomic NEWborn screening programs - Legal Implications, Value, Ethics, and Society. More information on our website gnbs.ukhd.de
NEW_LIVES: Genomic Newborn Screening Programs: Universitätsklinikum Heidelberg
gnbs.ukhd.de
September 17, 2025 at 1:25 PM
The article emerged from the BMFTR-funded research project NEW_LIVES: Genomic NEWborn screening programs - Legal Implications, Value, Ethics, and Society. More information on our website gnbs.ukhd.de
Right now @MarsiliusKolleg in Heidelberg the NEW_LIVES project group is presenting the results of their project "Genomic NEWborn screening programs – Legal Implications, Value, Ethics and Society"👶🧬
July 18, 2025 at 9:32 AM
Right now @MarsiliusKolleg in Heidelberg the NEW_LIVES project group is presenting the results of their project "Genomic NEWborn screening programs – Legal Implications, Value, Ethics and Society"👶🧬
The results of our NEW_LIVES-project: Genomic Newborn Screening Programs will be presented tomorrow, in Heidelberg and online. 👶🧬
www.klinikum.uni-heidelberg.de/newsroom/gen...
www.klinikum.uni-heidelberg.de/newsroom/gen...
Presse-Einladung – Genomisches Neugeborenenscreening: Experten stellen Empfehlungen vor
Eine Genom-Untersuchung von Neugeborenen würde es möglich machen, zahlreiche erblich bedingte Erkrankungen abzumildern, zu verzögern oder den Ausbruch ganz zu verhindern. Doch eine Gen-Analyse wirft a...
www.klinikum.uni-heidelberg.de
July 17, 2025 at 2:36 PM
The results of our NEW_LIVES-project: Genomic Newborn Screening Programs will be presented tomorrow, in Heidelberg and online. 👶🧬
www.klinikum.uni-heidelberg.de/newsroom/gen...
www.klinikum.uni-heidelberg.de/newsroom/gen...
"Bluttropfen kann Leben retten: Babyscreening auf Krankheiten" #NEW_LIVES
@szde.bsky.social
www.sueddeutsche.de/gesundheit/f...
@szde.bsky.social
www.sueddeutsche.de/gesundheit/f...
Bluttropfen kann Leben retten: Babyscreening auf Krankheiten
www.sueddeutsche.de
January 9, 2025 at 12:39 PM
"Bluttropfen kann Leben retten: Babyscreening auf Krankheiten" #NEW_LIVES
@szde.bsky.social
www.sueddeutsche.de/gesundheit/f...
@szde.bsky.social
www.sueddeutsche.de/gesundheit/f...
#EthicsSectionWinkler @ #AEM2024 @aem-online.bsky.social
Karla Alex et al.: Das #moralische #Recht auf #genomisches #Nichtwissen #Neugeborener - Begründung, Konzeptualisierung, Implikationen.
#Medizinethik #MedicalEthics
Mehr zu NEW_LIVES #gNBS:
www.klinikum.uni-heidelberg.de/en/new-lives...
Karla Alex et al.: Das #moralische #Recht auf #genomisches #Nichtwissen #Neugeborener - Begründung, Konzeptualisierung, Implikationen.
#Medizinethik #MedicalEthics
Mehr zu NEW_LIVES #gNBS:
www.klinikum.uni-heidelberg.de/en/new-lives...
September 28, 2024 at 10:12 AM
#EthicsSectionWinkler @ #AEM2024 @aem-online.bsky.social
Karla Alex et al.: Das #moralische #Recht auf #genomisches #Nichtwissen #Neugeborener - Begründung, Konzeptualisierung, Implikationen.
#Medizinethik #MedicalEthics
Mehr zu NEW_LIVES #gNBS:
www.klinikum.uni-heidelberg.de/en/new-lives...
Karla Alex et al.: Das #moralische #Recht auf #genomisches #Nichtwissen #Neugeborener - Begründung, Konzeptualisierung, Implikationen.
#Medizinethik #MedicalEthics
Mehr zu NEW_LIVES #gNBS:
www.klinikum.uni-heidelberg.de/en/new-lives...
#EthicsSectionWinkler @ #AEM2024 @aem-online.bsky.social
Sascha Settegast: #Medicalization Risks in #Genomic #Newborn #Screening. 👶🧬
#Medizinethik #MedicalEthics #gNBS #AEM
More information on NEW_LIVES:
www.klinikum.uni-heidelberg.de/en/new-lives...
Sascha Settegast: #Medicalization Risks in #Genomic #Newborn #Screening. 👶🧬
#Medizinethik #MedicalEthics #gNBS #AEM
More information on NEW_LIVES:
www.klinikum.uni-heidelberg.de/en/new-lives...
September 28, 2024 at 9:40 AM
#EthicsSectionWinkler @ #AEM2024 @aem-online.bsky.social
Sascha Settegast: #Medicalization Risks in #Genomic #Newborn #Screening. 👶🧬
#Medizinethik #MedicalEthics #gNBS #AEM
More information on NEW_LIVES:
www.klinikum.uni-heidelberg.de/en/new-lives...
Sascha Settegast: #Medicalization Risks in #Genomic #Newborn #Screening. 👶🧬
#Medizinethik #MedicalEthics #gNBS #AEM
More information on NEW_LIVES:
www.klinikum.uni-heidelberg.de/en/new-lives...
Universitätsklinikum Heidelberg: NEW_LIVES: Genomic Newborn Screening Programs
www.klinikum.uni-heidelberg.de
September 18, 2024 at 10:03 AM
New #publication of our #NEW_LIVES project 👶🧬
"Wilson and Jungner Revisited: Are Screening Criteria Fit for the 21st Century?"
by Schnabel-Besson et al. @Int. J. Neonatal Screen.
#newbornscreening #NBS #neonatalscreening #genomicnewbornscreening #gNBS
doi.org/10.3390/ijns...
"Wilson and Jungner Revisited: Are Screening Criteria Fit for the 21st Century?"
by Schnabel-Besson et al. @Int. J. Neonatal Screen.
#newbornscreening #NBS #neonatalscreening #genomicnewbornscreening #gNBS
doi.org/10.3390/ijns...
Wilson and Jungner Revisited: Are Screening Criteria Fit for the 21st Century?
Driven by technological innovations, newborn screening (NBS) panels have been expanded and the development of genomic NBS pilot programs is rapidly progressing. Decisions on disease selection for NBS ...
doi.org
September 18, 2024 at 10:02 AM
New #publication of our #NEW_LIVES project 👶🧬
"Wilson and Jungner Revisited: Are Screening Criteria Fit for the 21st Century?"
by Schnabel-Besson et al. @Int. J. Neonatal Screen.
#newbornscreening #NBS #neonatalscreening #genomicnewbornscreening #gNBS
doi.org/10.3390/ijns...
"Wilson and Jungner Revisited: Are Screening Criteria Fit for the 21st Century?"
by Schnabel-Besson et al. @Int. J. Neonatal Screen.
#newbornscreening #NBS #neonatalscreening #genomicnewbornscreening #gNBS
doi.org/10.3390/ijns...
Universitätsklinikum Heidelberg: NEW_LIVES: Genomic Newborn Screening Programs
www.klinikum.uni-heidelberg.de
September 18, 2024 at 9:59 AM
Mehr Informationen zum NEW_LIVES-Projekt:
www.klinikum.uni-heidelberg.de/new-lives-ge...
www.klinikum.uni-heidelberg.de/new-lives-ge...
Universitätsklinikum Heidelberg: NEW_LIVES: Genomic Newborn Screening Programs
www.klinikum.uni-heidelberg.de
March 28, 2024 at 4:07 PM
Mehr Informationen zum NEW_LIVES-Projekt:
www.klinikum.uni-heidelberg.de/new-lives-ge...
www.klinikum.uni-heidelberg.de/new-lives-ge...
Heutiger Tagesschau-Artikel zu unserem NEW_LIVES-Projekt: Neugeborenenscreening - Das Erbgut aller Babys untersuchen? #NEW_LIVES #gNBS #Neugeborenenscreening #Medizinethik 🧬👶
www.tagesschau.de/wissen/gesun...
www.tagesschau.de/wissen/gesun...
Neugeborenenscreening: Das Erbgut aller Babys testen?
Fachleute beraten über eine Ausweitung der Reihenuntersuchung von Neugeborenen auf ein
www.tagesschau.de
March 28, 2024 at 4:06 PM
Heutiger Tagesschau-Artikel zu unserem NEW_LIVES-Projekt: Neugeborenenscreening - Das Erbgut aller Babys untersuchen? #NEW_LIVES #gNBS #Neugeborenenscreening #Medizinethik 🧬👶
www.tagesschau.de/wissen/gesun...
www.tagesschau.de/wissen/gesun...
More information on NEW_LIVES:
www.klinikum.uni-heidelberg.de/en/new-lives...
www.klinikum.uni-heidelberg.de/en/new-lives...
December 15, 2023 at 3:16 PM
More information on NEW_LIVES:
www.klinikum.uni-heidelberg.de/en/new-lives...
www.klinikum.uni-heidelberg.de/en/new-lives...
We are hiring! Join our team in the ethics subproject of our interdisciplinary research project “NEW_LIVES: Genomic NEWborn Screening Programs – Legal Implications, Value, Ethics and Society” 👶🧬
Deadline Jan 3
#bioethics #ethics #medethics
karriere.klinikum.uni-heidelberg.de/index.php?ac...
Deadline Jan 3
#bioethics #ethics #medethics
karriere.klinikum.uni-heidelberg.de/index.php?ac...
December 15, 2023 at 3:15 PM
We are hiring! Join our team in the ethics subproject of our interdisciplinary research project “NEW_LIVES: Genomic NEWborn Screening Programs – Legal Implications, Value, Ethics and Society” 👶🧬
Deadline Jan 3
#bioethics #ethics #medethics
karriere.klinikum.uni-heidelberg.de/index.php?ac...
Deadline Jan 3
#bioethics #ethics #medethics
karriere.klinikum.uni-heidelberg.de/index.php?ac...