🇬🇧 "Well, actually... matter how well you take care of yourself, this condition does progressively gets worse. You can't stop it. So with all the research you saw in the film... #SevereME #MildME #MyalgicEncephalomyelitis #MECFS #MyalgicE #LongCovid #MillionsMissing #TimeForUnrest #MEAction

I write about the #IllnessPolitics surrounding both ME/CFS & Long Covid in my book Illness Politics & Hashtag Activism in the chapter #TimeForUnrest, about ME/CFS & Jennifer Brea's film Unrest, & in the conclusion on Ongoingness: #LongCOVID.
manifold.umn.edu/projects/lln...

I've been tirelessly advocating since 2011, and we've only just still received crumbs in terms of funding! We don't have decades. We are alive NOW.

#SevereME #MildME #MyalgicEncephalomyelitis #MECFS #MyalgicE #LongCovid #MillionsMissing #TimeForUnrest #MEAction

The momen c0v p@ndemic broke out, I was telling my friends how MAYBE we'll have more cases of ME and finally a cure. 1/n

#LongCov #sarscov2 #LongCovid #MyalgicEncephalomyelitis #PostViralSyndromes #EBV #HHV6 #Coxie #MyalgicE #TimeForUnrest #MillionsMissing

Getting closer to publication of ILLNESS POLITICS AND HASHTAG ACTIVISM. Here's the epigraph & TOC. Epigraph from @sfdirewolf.bsky.social: "The revolution is here. One podcast, one transcript, one tweet at a time."

We see you. We are not numb.
I understand some LC organisations have chosen to leave out ME out of their publications and research after benefiting from ME allyship.

We ask that you do not abandon us.

#LongCov #sarscov2 #mecfs #TimeForUnrest #MillionsMissing

#MyalgicEncephalomyelitis #MEAction
#HealthEquity
#PremenstrualDysphoricDisorder
#MastCellActivationSyndrome
#hEDS
#Nightingales
#UnexplainedWeightLoss #SaveLizNevra #MillionsMissing #TimeForUnrest #Dysautonomia #autonomicdysfunction

We tried to warn them about more cases of M.E, too. 2/n

#LongCov #sarscov2 #LongCovid #MyalgicEncephalomyelitis #PostViralSyndromes #EBV #HHV6 #Coxie #MyalgicE #TimeForUnrest #MillionsMissing